Re: hello/mouthsores, shingles,scarlet fever

[Guest guest]

Sue,

glad to hear that the shingles are at an end. Do watch carefully, the last

thing you need now is to get strep or scarlet fever. It sounds like you

have your hands quite full. The trip might actually be a relief, to get

away from the illness and have your mind on something else. But you must

regain your strength first or it will all be a waste.

You certainly don't need to worry about deleting e-mail from us

Take car and feel better

Ann K

on LI NY

hello/mouthsores, shingles,scarlet fever

> he friends,

> i am slowly trying to get back. I am at the end of the shingles. Only

two

> remain on my side. It has been rough. My little one, Zachary, now has

> Scarlet Fever out of all things. We were with a few friends last week,

and

> my friend became ill with Strep, and Zach became ill, which led to Scarlet

> Fever and a horrible case of it. He had the rash ALL OVER his body, poor

> thing. He was throwing up, high fevers and just covered. I am keeping

an

> eye on Josh now, hoping that he will be okay and trying to watch myself.

I

> was at my doctors yesterday. I had the worse mouth sore ever. Two

inches

> by two inches and it took over two molars in my mouth. I didn't eat solid

> foods for days, and was only able to drink liquids, like soup and water.

> My lips around my mouth were very infected and blistered also. I have

never

> had mouth sores so horrible before, and this is with the folic acid. My

> rheumy believes that this is due to MTX and Enbrel together. I guess I

> wasn't supposed to start Enbrel again for another month. I started it too

> early with my shingles and between all the meds....it was way too much.

He

> took a picture of the horrible sore for his records. It was covered in

> white, and by the next day, a huge flap had developed and it had peeled,

> leaving raw skin underneath in my mouth. He cut off the flap. It was

> something that he had never seen so bad before. So needless to say, my

> mouth was infected as well as my throat, and I have been worried about

Zach

> and his Scarlet Fever, and trying to shake the shingles. My annual

> business trip is coming up to Vegas in two weeks, so I am hoping that all

> medical problems will be resolved before we leave, because I have to drop

> the boys off in Orlando first to be with their grandparents while I am on

my

> business trip. I haven't had too much luck lately. Not a very good

summer

> The shingles really caught me by surprise. I have never dealt with

> anything quite so horrible. I don't wish them upon anyone. I am really

> disappointed in Enbrel so far, but I know that I am rushing it also. I

> really haven't had the time for it to work. The shingles came upon me so

> fast, that it caught me and others by surprise. I just waited so long to

> start it, and since I have started it, I have been ill, and this horrible

> mouth sore, has really turned me off, but I don't want to give up on it.

My

> rheumy says that I cannot start it again for another three weeks. He told

> me to stick it away, and just continue with the MTX, 60mg of prednisone

for

> the mouth sores and all of my other meds, so I am disappointed and

depressed

> some I guess. I am definitely not myself, and kind of in a hole right

now.

> Haven't been like this for a while. I am so sorry that I had to

delete

> mail for a while. I just couldn't keep up, too weak to type and too

tired.

> I love you all though, you know that. I am thinking of you all, as

> always.

> Love, Sue #2

>

>

[Guest guest]

Oh Suzzzzzz,,,,

You sound so miserable that my heart aches for you. You are right about not

having a good summer this year. I think 's Law is what you're going

through right now.

Please give Enbrel another chance when your restart. It, plus the MTX, did

not kick in for almost four months. I was just about ready to give up when I

started noticing improvement. Now I am feeling pretty well except for major

fatigue and sore knees. But at least I am out of bed and off of the couch.

Too bad your business meeting could not be in September so you could join the

get together, but, there's always next year. I'm hoping to make it but I'm

not reserving a room or making airline plans until the last moment.

How are your boys now? I hope Zach is feeling better and that Josh was lucky

not catching it. You too !!! I just can't believe all the shingles that

are attacking our " family " . I hope it's not contagious over the computer.....

)

Many good thoughts and wishes for you and your family's recovery.

Soon !!!!!

xxoo

Mi. Carmen

[Guest guest]

Oh Sweet Sue,

I am so sorry you have had such misery! Those mouth sores sound like

something from a horror movie! I can not even imagine how painful it

must have been, maybe even still is. You be extra careful dear and get

all the rest you can. It sound like leaving the Enbrel alone for a

while is what is definitely needed. It sounds like your son has had a

time of it also. Please do not beat yourself up for deleting messages

Sue, we all have to do it sometimes. I have tried for years to read as

much as I can but sometimes our health and family needs just don't allow

us even a few minutes for anything else. That truly is the time to take

care of yourself even if you have to ignore everything else for a

while. I just had a similar time myself, we can only do so much! Your

mother must be neatly out of her mind with worry from all the illness

you and your father have suffered this year! Tell her for me that she

is in our prayers too and we hope to see her again in September. If I

were there Sue I would come over, tuck you into bed, make some brownies

with your boys [maybe we better make you chocolate pudding instead, lol]

and watch funny movies with you all, hopefully that would relieve a

little stress. Missing you dear, you are in our prayers! Louise and Greg.

Matera wrote:

> he friends,

> i am slowly trying to get back. I am at the end of the shingles.

> Only two

> remain on my side. It has been rough. My little one, Zachary, now has

> Scarlet Fever out of all things. We were with a few friends last

> week, and

> my friend became ill with Strep, and Zach became ill, which led to Scarlet

> Fever and a horrible case of it. He had the rash ALL OVER his body, poor

> thing. He was throwing up, high fevers and just covered. I am

> keeping an

> eye on Josh now, hoping that he will be okay and trying to watch

> myself. I

> was at my doctors yesterday. I had the worse mouth sore ever. Two

> inches

> by two inches and it took over two molars in my mouth. I didn't eat solid

> foods for days, and was only able to drink liquids, like soup and water.

> My lips around my mouth were very infected and blistered also. I have

> never

> had mouth sores so horrible before, and this is with the folic acid. My

> rheumy believes that this is due to MTX and Enbrel together. I guess I

> wasn't supposed to start Enbrel again for another month. I started it too

> early with my shingles and between all the meds....it was way too

> much. He

> took a picture of the horrible sore for his records. It was covered in

> white, and by the next day, a huge flap had developed and it had peeled,

> leaving raw skin underneath in my mouth. He cut off the flap. It was

> something that he had never seen so bad before. So needless to say, my

> mouth was infected as well as my throat, and I have been worried about

> Zach

> and his Scarlet Fever, and trying to shake the shingles. My annual

> business trip is coming up to Vegas in two weeks, so I am hoping that all

> medical problems will be resolved before we leave, because I have to drop

> the boys off in Orlando first to be with their grandparents while I am

> on my

> business trip. I haven't had too much luck lately. Not a very good

> summer

> The shingles really caught me by surprise. I have never dealt with

> anything quite so horrible. I don't wish them upon anyone. I am really

> disappointed in Enbrel so far, but I know that I am rushing it also. I

> really haven't had the time for it to work. The shingles came upon me so

> fast, that it caught me and others by surprise. I just waited so long to

> start it, and since I have started it, I have been ill, and this horrible

> mouth sore, has really turned me off, but I don't want to give up on

> it. My

> rheumy says that I cannot start it again for another three weeks. He told

> me to stick it away, and just continue with the MTX, 60mg of

> prednisone for

> the mouth sores and all of my other meds, so I am disappointed and

> depressed

> some I guess. I am definitely not myself, and kind of in a hole

> right now.

> Haven't been like this for a while. I am so sorry that I had to

> delete

> mail for a while. I just couldn't keep up, too weak to type and too

> tired.

> I love you all though, you know that. I am thinking of you all, as

> always.

> Love, Sue #2