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- Macey has a problem with her posterior pituitary. She does not produce

ADH (vasopressin) and has to take DDAVP (synthetic ADH) daily. The posterior

pit also makes the hormones for lactating and going into labor (lactin and

pitocin). So when it comes time to have children we're not sure what will

happen. Her demyleniated areas are near the pituitary so this could be

associated. She sees a pediatric endocrinologist in Atlanta at Emory Children's

clinic. She hasn't had an MRI since she was 6 but it might be time to update.

Ursula - mom to (13) and Macey (11, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://members.cox.net/maceyh

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