Donovans levels

[Guest guest]

Terri,

no no no.............Im sorry, I should have gone over more

background before I posted this question, I guess.

Donovan has had a full workup, along wtih my other 3 kids.

Everyones B and T cells are fine, including donovans.

In my kids, the ONLY problems are IgA, IgM, IgG, and subs.

Donovans titers suck, and I already know that, so there is no point in

re-testing that. Its been done, and he has no antibodies to several

vacs, and very little to others.

So, we knew that he had a previous IgG and sub deficiency,but at the

time we presented all 4 kids to ID, his IgG levels were decent, but

his IgA and IgM had nose dived. Along with the rotten titers, he is

dx'd CVID, but at that time his IgG was just decent enough to not get

him on immediate IVIG, and clinically, at that time, he was doing

decently, so we waited.

What I was saying was that I have heard others say that IVIG doesnt

help the sinus issues, but for my Brennan, he has certainly improved

on IVIG. His infections clear with one round of abx, generally, dont

tend to move to lung infections so much,which means less asthma and

malacia involvement, so we have been very pleased with his progress on

IVIG, and if we decided to start Donovan on it, I would hope to see as

much improvement with him.

Im sorry if Im not writing clearly today, I am attempting to wean

myself off some meds, and its causing me some whopper migraines and

sometimes its hard to think straight:)

Hope your appt goes well today. How come the kids look healthy right

when we really want them to look sick?LOL WHERE are those feverish

looking cheeks and globs of snot when you really want to show them off

to someone?LOL I so hope you are going to be approved. I know how i

felt the day we went for the hearing for the boys SSI, and I was just

a bundle of nerves. For us, we had to prove it impacted their quality

of life, and I went over each and every single thing that makes the

boys lives different then other children their age........right down

to how prednisone affects their personality, and mood, and how that

causes problems for them as far as learning, Brennans ST, I tried to

think of every single thing that was different for them than for an

" average " kid.....and pushed those points. We did have to hire legal

help......but after 3 yrs, we got it. I really, really , hope your

family doesnt have to wait.

valarie