Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Good Morning Rogina, from a mom with kids as well as myself having normal IgG levels....one subclass deficiency, specific antibody disorder and low B and T Cells including NK cells......I hope they are looking beyond JUST the Ig levels ....into the subclasses...the enzymes that switch on an immune response....the complement system....the T and B cells as well as function. You can have all the IgG in the world, but if you can't get to them, they are worth nothing. Just keep in mind that immune deficiency goes far beyond just the overall Ig Levels. My now 4 year old had severe gastro problems....never had a normal stool....until she started immunoglobin replacement, She has normal Ig Levels....except that her IgG 2 is twice the high end of normal. But she has had absolutely no response to any of her childhood vaccinations or to the pneumo vaccination. The day after her first IVIG, she had her first normal stool and has never gone back to having tummy problems again. I would just make sure they test everything. He is still at that age where any shortages of Igs could be transient and may resolve. Many times, the labs relate levels to an adult ,particulary if it is a lab (like ours) that is not used to testing kids for immune deficiency and the parameters may be higher than what is approprate for his age. You might want to check into that. I wish you luck. It is a frustrating battle as I am well aware. But persevere knowing that Flynn is what is important. , I think you said it is your child that does not have an immune deficiency that has the foot thing? Are they sure she does not have a yeast infection? Yeast is one of the fungi that causes athletes foot. I have had a couple of bouts with foot fungus this past year thanks to my DH. It is horrible....terrible burning and swelling....red....etc. If you have a problem with your feeet due to yeast, antibiotics will make it worse.....much worse. I hope you find the answer so she can get some releif! Terri Cerda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 --- > They are checking her pneumo antibody level to see if it has dropped. I want them to culture her nasal infection to see what it is. We go Nov 1 to see the immunologist. I will find out more then, I hope. The dermatologist checked the feet for yeast, and it wasn't. That is what we originally thought the problem was. We tried topical antibiotic ointments, etc.... no luck. When pus started, the derm did the culture and sensitivity. They can do a scraping and check under a microscope to see if it is fungal. That was the first thing the derm did. I hope the infection clears. I also hope you can get into a dermatologist quickly. It takes almost 6 months to get in to see one here. L mom to Ashton 13 CVID, asthma, dyslexia & Marina 10 asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Teri, not sure which you were addressing, since both of us are ...my daughter with the feet problem does have CVID...the inflammed skin is not broken, dry, or flaking...she currently has a yeast infection elsewhere, due to her antibiotics. Her feet are worse again today, same day the yeast infection presented... She was given oral Difuclan today and if her feet aren't better by Monday, I will call a dermo. From what I hear, yeast overgrowth in your system can do all sorts of awful things... thanks teri. B. mom to , CVID cerdaclan <tcerda@...> wrote: Good Morning Rogina, from a mom with kids as well as myself having normal IgG levels....one subclass deficiency, specific antibody disorder and low B and T Cells including NK cells......I hope they are looking beyond JUST the Ig levels ....into the subclasses...the enzymes that switch on an immune response....the complement system....the T and B cells as well as function. You can have all the IgG in the world, but if you can't get to them, they are worth nothing. Just keep in mind that immune deficiency goes far beyond just the overall Ig Levels. My now 4 year old had severe gastro problems....never had a normal stool....until she started immunoglobin replacement, She has normal Ig Levels....except that her IgG 2 is twice the high end of normal. But she has had absolutely no response to any of her childhood vaccinations or to the pneumo vaccination. The day after her first IVIG, she had her first normal stool and has never gone back to having tummy problems again. I would just make sure they test everything. He is still at that age where any shortages of Igs could be transient and may resolve. Many times, the labs relate levels to an adult ,particulary if it is a lab (like ours) that is not used to testing kids for immune deficiency and the parameters may be higher than what is approprate for his age. You might want to check into that. I wish you luck. It is a frustrating battle as I am well aware. But persevere knowing that Flynn is what is important. , I think you said it is your child that does not have an immune deficiency that has the foot thing? Are they sure she does not have a yeast infection? Yeast is one of the fungi that causes athletes foot. I have had a couple of bouts with foot fungus this past year thanks to my DH. It is horrible....terrible burning and swelling....red....etc. If you have a problem with your feeet due to yeast, antibiotics will make it worse.....much worse. I hope you find the answer so she can get some releif! Terri Cerda --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Teri, not sure which you were addressing, since both of us are ...my daughter with the feet problem does have CVID...the inflammed skin is not broken, dry, or flaking...she currently has a yeast infection elsewhere, due to her antibiotics. Her feet are worse again today, same day the yeast infection presented... She was given oral Difuclan today and if her feet aren't better by Monday, I will call a dermo. From what I hear, yeast overgrowth in your system can do all sorts of awful things... thanks teri. B. mom to , CVID cerdaclan <tcerda@...> wrote: Good Morning Rogina, from a mom with kids as well as myself having normal IgG levels....one subclass deficiency, specific antibody disorder and low B and T Cells including NK cells......I hope they are looking beyond JUST the Ig levels ....into the subclasses...the enzymes that switch on an immune response....the complement system....the T and B cells as well as function. You can have all the IgG in the world, but if you can't get to them, they are worth nothing. Just keep in mind that immune deficiency goes far beyond just the overall Ig Levels. My now 4 year old had severe gastro problems....never had a normal stool....until she started immunoglobin replacement, She has normal Ig Levels....except that her IgG 2 is twice the high end of normal. But she has had absolutely no response to any of her childhood vaccinations or to the pneumo vaccination. The day after her first IVIG, she had her first normal stool and has never gone back to having tummy problems again. I would just make sure they test everything. He is still at that age where any shortages of Igs could be transient and may resolve. Many times, the labs relate levels to an adult ,particulary if it is a lab (like ours) that is not used to testing kids for immune deficiency and the parameters may be higher than what is approprate for his age. You might want to check into that. I wish you luck. It is a frustrating battle as I am well aware. But persevere knowing that Flynn is what is important. , I think you said it is your child that does not have an immune deficiency that has the foot thing? Are they sure she does not have a yeast infection? Yeast is one of the fungi that causes athletes foot. I have had a couple of bouts with foot fungus this past year thanks to my DH. It is horrible....terrible burning and swelling....red....etc. If you have a problem with your feeet due to yeast, antibiotics will make it worse.....much worse. I hope you find the answer so she can get some releif! Terri Cerda --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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