Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Good Morning Sue! Good to see you....I was going to e-mail you today and see how things were going for you. Our e-mail addy that is connected to this site is back up and running again. I was wondering if your little guy is improving? I wanted the share with you about the itching thing. All 3 of us have infusion site itching for 2 or 3 days post infusion......5 months after starting. I attribute it to a couple of things. On thing we did that made a huge difference is to change to the minimed sof-set infusion needles with the norfolk extension. Some people can easily react to the metals and teflon used in stainless needles. BUT, despite the change, we still itch. It is like a bee sting....which I am allergic too...and perhaps that is why I have come up with the second conclusion...and after research......as with IVIG....there can be or is a bit of a histamine response to the product....hence the reason for benadryl. Then when you pair the fact that you are infusion immunoglobin .....producing an antibody response (which is what a histamine response is) to antibodies.....it is really pretty unavoidable to have " some " itching. I have to really work to keep the girls from scratching BECAUSE.....if you scratch at the area where you got the infusion.....just like if I were to scratch where I got stung by a bee over a period of several days.....you re-aggravate the area and spur on another histamine response. If I take an infusion area from 2 days ago and start to scratch....I will get a big raised welt....like a bee sting.....because there is still residual product...enough that by scratching you can spur on another histamine response.....two days later. SO.....I would try to discourage him from scratching as much as you can...the more you scratch it, the worse it itches.....and the bigger the bump gets ....and the redder it gets....two days after an infusion. Not sure it will ever go away....because, after 5 months....we still have it.....but if we don't scratch.....it stops itching......better than benadryl. Good LUck! I hope that helps! Terri > > Hi everybody, > > My 12-year-old son has just had his fifth sub-q vivaglobin treatment. > The treatment itself is pretty painless for him and he doesn't even have > much reaction on his skin afterward. However, the four injection sites > are very itchy for a couple of days. I am giving him benedryl during the > treatment, which helps. Any other suggestions? I haven't used an > anti-itch cream because there's nothing to put it on (the skin is not > red). We're the first family in our doctor's practice to use the sub-q > treatment, so I thought I'd check with you guys before we see the doctor > on Thursday. > > Thanks for the help. > > Sue in Phoenix > > (Mom to , 12 with CVID, asthma, celiac) > > -- > " Education is not the filling of a pail, but the lighting of a fire. " -- Yeats > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.