Hi from Dale

[Guest guest]

Thanks for posting, Dale. We are thinking of you. You and your dear ones are

in our prayers. I know you will touch base when you can. (la's

mom)

[Guest guest]

Thanks for posting, Dale. We are thinking of you. You and your dear ones are

in our prayers. I know you will touch base when you can. (la's

mom)

[Guest guest]

Greetings, Dale!

It is great to hear from you and I am so happy that you are back. I would like

to ask for your opinion about something but it is not urgent.

I am so sorry to hear that Katy is not in the same health that she was in right

after stopping IVIG.

We were all praying for a miracle. Her story serves as a cautionary tale for

our own.

Blessings and prayers to you and yours,

mom to Dani (5) CVID

[Guest guest]

Schulman wrote:

>

I would like to ask for your opinion about something but it is not

urgent.

>

>

Ask away! I can be contacted here or privately by anyone who needs me.

In His service,

dale

[Guest guest]

from dale,

Hi group -- I need the phone number for A.C.C.E.S.S. for a family

needing to fight for disability. All my stuff is packed away right now

to make room for my mother. I know that number is in the list of

resources provided by IDF. Someday it will get unpacked -- but they

need that number today. I'll call IDF tomorrow if someone doesn't

respond soon.

Thanks!

In His service,

dale

[Guest guest]

Hi Dale

Welcome Back!!! Sorry to hear about your dad. We will be keeping you

& your mom as well as Your famil in our prayers!!!

A.C.C.E.S.S ## 206-340-4505

http://www.accessw.org

Hope this helps

mom to Blake(CVID with Complete T-Cell Dysfunction....Lots of other

issues)

http://www3.caringbridge.org/sc/blakester

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Hi group -- I need the phone number for A.C.C.E.S.S. for a family

> needing to fight for disability. All my stuff is packed away right

now

> to make room for my mother. I know that number is in the list of

> resources provided by IDF. Someday it will get unpacked -- but they

> need that number today. I'll call IDF tomorrow if someone doesn't

> respond soon.

>

> Thanks!

>

> In His service,

> dale

>

[Guest guest]

Dale:

Sorry to hear about your father. Where were you in Illinois? Just curious.

We're up in Mundelein but are moving to the Peoria area in TWO WEEKS. Urrrrgh --

glad to sell the house but a 2 week closing??? Helllllp!

Have to find a ped down there for ....

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 4, more dairy intolerant but very healthy!)

[Guest guest]

Dale,

I'm so glad that you are back.

I'm sorry to hear that your father has passed away. I'm glad

that Katy was able to attend the funeral. I was hoping that

she was in good health, but I have been concerned about her.

I will pray for Katy. I think it would be very hard without health

insurance. Thank you for telling us how Katy is doing.

I worry about this for my son. He is in college now, but

we are thankful that this year he chose to attend a good local college

and live at home. One course he is taking is about career choices and

planning. Choosing a major is a big decision for him.

Congratulations on your first grandchild! I'm so excited for you and the

new parents.

Jan

[Guest guest]

Dale,

Sorry to hear about your father. I am glad you have your mother

with you.

I was hoping that Katy was doing well off IVIG. I am sorry to

hear she is not. When we met her in FL, she was so full of life. I

don't like to think of her so sick. I hope she is able to start

treatments again. This is every parent's nightmare. We are praying

for your entire family.

I also wanted to let you know that Ashton is doing really well

with her anxiety. The counselor and meds are really helping. She has

passages marked in the Bible that keep her going when times get hard.

L

mom to Ashton 13 CVID, asthma, dyslexia & Marina 10 asthma

[Guest guest]

---

UGH! we've been sick.

Brennan woke up throwing up on Sunday, just as we were leaving for

church(obviously, we stayed home). I have NEVER--and I have four

kids!---seen a kid get so sick, so fast. by Sunday afternoon, he was

vomiting every hour or two, by Sunday night, he was telling me he was

going to die. I tried everything I could think of....sips of water,

crushed popsicles, saltines. Nothing stayed down. Monday morning, he

said he had thrown up his muscles, he couldnt move anymore.

I took him in Monday morning and the family dr sent us directly to ER.

They admitted him, he was extremely dehydrated. They kept asking me

how long he had been that sick, evidently wondering how he got that

sick in just one day. He was screaming with stomach and throat pain.

by Monday night, he spiked a temp, but finally, after two huge bags of

IV fluid, peed. I mean.......for the first time since Sunday!

We came home last night. He is able to eat now, and is drinking some.

He still looks sick around his eyes--you know what I mean?---and is

pale. His temp is 100.1 today.

I started keeping better records, and am noticing that last month, the

week before infusion, he came down with a really bad sinus infection.

This month, its this stomach bug. Im going to keep doing this, and if

this trend continues, Im going to ask his dr if maybe we should move

his infusions up to every three weeks.

I feel so sorry for him, he has been so pitiful(he is five).

He has IVIG on Friday, hopefully that will help him out.

valarie

In , Dale Weatherford <dale@...> wrote:

>

> Haven't gotten any mail lately and wondering why it's so quiet. Is

> everyone sick out there -- or just busy?

>

> Hope you are just busy!!!!

>

> In His service,

> dale

>