Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 well my happiness is temporarily gone - not due to dd - I'll find that out after school - LOL - but I left the school meeting feeling ok - not great but ok -because I was told time and again don't leave without something in writing but I did because as the therapist and we know the accomodations will be constantly changing and our goal is for to have her in control of OCD and be doing everything all the other kids can so I left without anything signed now that I'm home thinking about it more - I just feel like they're not getting it - that they think we're letting her use the OCD or letting it take her over - no - we're fighting empower her - they think we're giving her an " I can't " " I'm disabled attitude " Am I blind because she's mine???? any thoughts would be great - because I'm feeling like crying and that's mixed with anger towards these " people " !!!!!!! sorry had to let it out eileen Quoting Sandy <sndy_steele@...>: > Hooray!! It sure feels good, doesn't it? I also had good news at > Bre's p-doc appt. She is doing well and had no med changes. I love it > when the meds are working and all is " well " . I savor each day like > that! I pray for all who are struggling right now, that your day in > the sun comes soon!!! > > Sandy > > > > > > > >> >> A happy note - my dh got a hug and kiss last night - he's been >> " contaminated " for so long!!! he had just finished ERPing her into > her >> bed and after a fight in a playful way - she thanked him and > hugged >> him - and then came to me and was so her old self and thanked me > too >> for making her fight - I saw a spark of the true her!!! So > excited!!! >> now off I go to the school to fight for her rights today!!! >> eileen >> >> >> >> >> >> >> >> >> >> >> >> Quoting Darletta Jaycox <darlettaj@...>: >> >> > Robin, >> > I know we are all grateful for the support we receive >> > from this group. My dd was diagnosed 2 years ago and I >> > only found this group in July. >> > You will survive and so will your dd. It gets better >> > and then sometimes it gets worse, but, then it gets >> > better again. The best part is you are taking >> > important steps to improve her life. It's a tough >> > journey we are all on, but, with all the friends here, >> > we do not stand alone. >> > Take care and may God Bless your family with comfort >> > and healing. >> > Darletta >> > >> > >> > >> > > ______________________________________________________________________ > ______________ >> > We won't tell. Get more on shows you hate to love >> > (and love to hate): TV's Guilty Pleasures list. >> > http://tv./collections/265 >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 I also know they're all wondering why she's not on meds - and you know - I want to HOPEFULLY say at the end of this ERP - " see she did it without them " -I'm festering now!!! eileen !Quoting Sandy <sndy_steele@...>: > Hooray!! It sure feels good, doesn't it? I also had good news at > Bre's p-doc appt. She is doing well and had no med changes. I love it > when the meds are working and all is " well " . I savor each day like > that! I pray for all who are struggling right now, that your day in > the sun comes soon!!! > > Sandy > > > > > > > >> >> A happy note - my dh got a hug and kiss last night - he's been >> " contaminated " for so long!!! he had just finished ERPing her into > her >> bed and after a fight in a playful way - she thanked him and > hugged >> him - and then came to me and was so her old self and thanked me > too >> for making her fight - I saw a spark of the true her!!! So > excited!!! >> now off I go to the school to fight for her rights today!!! >> eileen >> >> >> >> >> >> >> >> >> >> >> >> Quoting Darletta Jaycox <darlettaj@...>: >> >> > Robin, >> > I know we are all grateful for the support we receive >> > from this group. My dd was diagnosed 2 years ago and I >> > only found this group in July. >> > You will survive and so will your dd. It gets better >> > and then sometimes it gets worse, but, then it gets >> > better again. The best part is you are taking >> > important steps to improve her life. It's a tough >> > journey we are all on, but, with all the friends here, >> > we do not stand alone. >> > Take care and may God Bless your family with comfort >> > and healing. >> > Darletta >> > >> > >> > >> > > ______________________________________________________________________ > ______________ >> > We won't tell. Get more on shows you hate to love >> > (and love to hate): TV's Guilty Pleasures list. >> > http://tv./collections/265 >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 In a message dated 1/24/2007 3:46:54 P.M. Eastern Standard Time, autumn71A@... writes: but I left the school meeting feeling ok - not great but ok -because I was told time and again don't leave without something in writing but I did because as the therapist and we know the accomodations will be constantly changing and our goal is for to have her in control of OCD and be doing everything all the other kids can so I left without anything signed Eileen - What was your ultimate goal for this meeting? An actual plan - like a 504? Were those words actually used prior to the meeting taking place - or was it just a meeting to discuss your daughter's situation? Has you therapist had any contact with the school, in writing or a phone call, to explain what your daughter really needs? I don't have any experience working with the school on my daughter's OCD because it never got that bad - however I must say, if they're accusing you of making excuses for her or giving her an " I'm disabled " attitude, my guess would be that they are woefully under educated on OCD and you need to provide some written material for them. Maybe your therapist can give you something. Also, try the OCFoundation.org website - as they have pamphlets you can print off for school administrators. Just a thought. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 YES YES YES !!!! she said school was good and the hugs are continuing - and even touching brothers tonight!!!! AMEN!!!!!!!!! Quoting <@...>: > Hi Eileen, aren't those moments great?!!! I bet more begin coming > too! > > > > >> >> A happy note - my dh got a hug and kiss last night - he's been >> " contaminated " for so long!!! he had just finished ERPing her into > her >> bed and after a fight in a playful way - she thanked him and > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 thanks all for all your responses - it was a CSE meeting which I knew would show she's academically not qualified for spec Ed however a 504 was what I thought would be given and what I had in mind and on paper in front of me but was barely allowed to speak! my new therapist sounded like she thought the 504 made sense the other day because her accomodations would be changing often - like writing/erasing was an isssue, is currently not etc - but after a 45 min discussion with the social worker at the school - which I requested take place) so they would totally accept the OCD -that conversation now may have proven to once again been sabotaged - each time the school speaks to therapists they change - I " m done!!! we all need to be together - be on the same page etc but no future phone calls will take place without me on the line too!!! - they don't get it never will and I have sent some reading - even gave the teacher a copy of the teaching tiger etc - she's seems the most willing to learn/help - maybe - still I can tell they think it's " behavior " and she's choosing to be this way I could see eyes rolling as I told them that I tell her almost 4 year old brother - it's ok, she still loves you it's the oCD that's not letting her touch you or play with you now) I don't think anyone here would see a problem with that but they have some kind of thing with me calling it what it is and telling others this is why things are happening I'm seeing the therapist Monday - getting the " official Dx " in hand and requesting her 504!!!!!! thank you all!!! eileen Quoting jtlt@...: > > In a message dated 1/24/2007 3:46:54 P.M. Eastern Standard Time, > autumn71A@... writes: > > but I left the school meeting feeling ok - > not great but ok -because I was told time and again don't leave > without something in writing but I did because as the therapist and we > know the accomodations will be constantly changing and our goal is for > to have her in control of OCD and be doing everything all the other > kids can so I left without anything signed > > > Eileen - > > What was your ultimate goal for this meeting? An actual plan - like a 504? > Were those words actually used prior to the meeting taking place - or was it > just a meeting to discuss your daughter's situation? Has you therapist had > any contact with the school, in writing or a phone call, to explain > what your > daughter really needs? > > I don't have any experience working with the school on my daughter's OCD > because it never got that bad - however I must say, if they're > accusing you of > making excuses for her or giving her an " I'm disabled " attitude, my guess > would be that they are woefully under educated on OCD and you need > to provide > some written material for them. Maybe your therapist can give you > something. > Also, try the OCFoundation.org website - as they have pamphlets you > can print > off for school administrators. > > Just a thought. > LT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 I caught a glimpse of normal - it was wonderful!!! of course she slept in a chair part of the night as her bed was " contaminated " but we'll take the improvement in other area - Is that what others have found??? new things coming in as you're fighting others??? eileen Quoting <@...>: > YES YES YES !!!! she said school was good and > the hugs are continuing and even touching brothers tonight!!!! > AMEN!!!!!!!!! > > LOL, AMEN!! Are you remembering what " normal " feels like? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Hi Eileen. Be aware that some schools still do not comply with providing a 504 even with a diagnosis in hand. My daughter's junior high refused to give her a 504. She does have one now in high school, but we had to fight the junior high school and get an advocate involved. Kim In a message dated 1/25/2007 8:16:54 PM Central Standard Time, autumn71A@... writes: I'm seeing the therapist Monday - getting the " official Dx " in hand and requesting her 504!!!!!! thank you all!!! eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Yep! Sharon Re: Re: happy news!!! I caught a glimpse of normal - it was wonderful!!! of course she slept in a chair part of the night as her bed was " contaminated " but we'll take the improvement in other area - Is that what others have found??? new things coming in as you're fighting others??? eileen Quoting <@...>: > YES YES YES !!!! she said school was good and > the hugs are continuing and even touching brothers tonight!!!! > AMEN!!!!!!!!! > > LOL, AMEN!! Are you remembering what " normal " feels like? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 great - I'll fight till we have it - thanks - if your dd in HS then it may be totally different accomodations - but I'd love to see one if you don't mind emailing it offline - THANKS eileen Quoting mnmomof1@...: > Hi Eileen. Be aware that some schools still do not comply with providing a > 504 even with a diagnosis in hand. My daughter's junior high refused > to give her > a 504. She does have one now in high school, but we had to fight the junior > high school and get an advocate involved. Kim > > In a message dated 1/25/2007 8:16:54 PM Central Standard Time, > autumn71A@... writes: > I'm seeing the therapist Monday - getting the " official Dx " in hand > and requesting her 504!!!!!! > thank you all!!! > eileen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 I've gone through similiar situations at school/teachers. Sometimes I think they're a bunch of idiots. It seems to me that these teachers want to " be in charge " . When I ask that only use erasable pens instead of pencils, there is ALWAYS a teacher that thinks it is their place to tell she WILL use pencil in their class!!!! That's when I march up to the school bldg and have to let them know yet again, it's not up to them what she needs. She had a 504 when we lived in a different county. This county says one is not needed that they will accomodate her needs with no problem. But since middle school (this year) I have had to be parent/advocate/mediator whatever else there is for my child. When people don't live with OCD they have no clue what it is like, and when you try to explain it, it sounds totally crazy. So stick w/it, I have cried and cried and cried too. It has been 6 yrs since she was diagnosed, and looking at the things she does sometimes breaks my heart so bad. Put it this way, she can't use pencils, even though I know it's the OCD, I now will not pencils because they have ruined her life!!!! Isn't that crazy. Anyway hang in there. Kristi --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 is there no recourse against OCD???!! ok - we'll hang in and fight what comes our way - thanks eileen Quoting nna <mdonlon@...>: > > Is that what others have found??? >> new things coming in as you're fighting others??? >> eileen > > Yes, Eileen, I've had this happen many times, very frustrating because > you feel like it's one step forward, 2 steps back. Keep up with the > encouragement and praise for what she DID accomplish, and reassure her > that since she was able to fight back, eventually she'll be able to do > it with most, if not all of, her issues. She is getting the idea and > realizing the hard work pays off - good luck!!!! > > nna > NY > > Quote Link to comment Share on other sites More sharing options...
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