Low white count and more

[Guest guest]

, I would be concerned, but not panicked or anything. Of course I am

not a doctor.. I am just speaking from my experience. My boys walk around

with white counts between 2.1- 3.9 (sometimes get into the 4s) Do you

happen to know what his ANC (absolute neutrophil count) is/was? When

looking at the CBC and/or a low white count, several things need to be taken

into consideration. (see websites below for more info)

Of course, we get excited when they are sick and their WBCs eek up. A lot

of times they just sit there at the same low numbers..but we have actually

had a few white counts hit 5.0 when they are sick!

We've got a lot of information on WBC counts on our SDA website message

board www.shwachmandiamondamerica.org

<http://www.shwachmandiamondamerica.org/> and I also have a page on

neutropenia on our family webpage-it explains the relative and absolute

count portions of the CBC, etc... and tells you how to figure out the

absolute counts by multiplying with the WBC, etc.. www.shwachman.50megs.com

Peace Be With You,

~Pattie~

" What matters is not great deeds, but great love. " ~ St. Therese of Lisieux

I'm curious to know if anyone can tell me how concerned I should be by a low

white count for Conner. This is something we haven't had to deal with yet.

His ID doc mentioned that he was a little concerned by this, but I haven't

heard back from the immuno yet. I think his count was around 3.

Also, we've noticed that his troughs are on the low side and his IgA is

continuing to drop even lower. He gets 25 grams of Gammagard every 3-4 weeks

and his IgA has dropped to 15 and IgG is 558. He's actually been fairly

health recently, but is complaining of being tired and not much of an

appetite - he's lost 10 pounds over the last few months.

[Guest guest]

I'm curious to know if anyone can tell me how concerned I should be by a low

white count for Conner. This is something we haven't had to deal with yet. His

ID doc mentioned that he was a little concerned by this, but I haven't heard

back from the immuno yet. I think his count was around 3.

Also, we've noticed that his troughs are on the low side and his IgA is

continuing to drop even lower. He gets 25 grams of Gammagard every 3-4 weeks

and his IgA has dropped to 15 and IgG is 558. He's actually been fairly health

recently, but is complaining of being tired and not much of an appetite - he's

lost 10 pounds over the last few months.

Take care,

Mom to Conner (12, unknown combined immune deficiency, lymphadenopathy, asthma,

Hashimoto's disease and resolved adrenal insufficiency),

Hayden (12, unknown immune deficiency, IBS and moderate hearing loss/aided),

Evan (12, unknown immune deficiency, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown immune deficiency and asthma)

Please visit us at www.caringbridge.org/in/connersmith

[Guest guest]

Low white count and more

I'm curious to know if anyone can tell me how concerned I should be by a low

white count for Conner. This is something we haven't had to deal with yet. His

ID doc mentioned that he was a little concerned by this, but I haven't heard

back from the immuno yet. I think his count was around 3.

Also, we've noticed that his troughs are on the low side and his IgA is

continuing to drop even lower. He gets 25 grams of Gammagard every 3-4 weeks

and his IgA has dropped to 15 and IgG is 558. He's actually been fairly health

recently, but is complaining of being tired and not much of an appetite - he's

lost 10 pounds over the last few months.

Take care,

Mom to Conner (12, unknown combined immune deficiency, lymphadenopathy, asthma,

Hashimoto's disease and resolved adrenal insufficiency),

Hayden (12, unknown immune deficiency, IBS and moderate hearing loss/aided),

Evan (12, unknown immune deficiency, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown immune deficiency and asthma)

Please visit us at www.caringbridge.org/in/connersmith

[Guest guest]

,

For many of our kids, a low counts are consistent with CVID. My kiddo's WBC was

2.6 a few weeks ago and some of the mom's here said it might have been due to a

virus...but I don't have her new numbers yet.

Anyway, Conner may have some more complicated stuff going on so do make sure the

docs are aware of the drops. Maybe he needs IVIG every 3 weeks instead of every

3-4 weeks? 528 is pretty low and his weight loss may be the clinical sign that

he needs higher numbers until a better treatment is available for him. Just

thinking...

Hope you are doing okay.

I just wrote you a quick note directly.

Take care,

mom to CVIDer