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,

How old is your daughter? Mine is 17 and just this

past summer she was diagnosed with OCD. The girls

sound very, very similar. I know what you are going

through. We took her to Psychiatrist that literally

did nothing. Her therapist (who she liked) moved to

another state at the same time. She was extremely

resistant to go to another Psychiatrist or therapist.

We finally had to bribe her. She wanted something

really badly and we wrote out a contract that if she

wants to keep it (cell phone) she has to go to her

doctor's appts. and be cooperative. We made her sign

it. We have had to bring it out numerous times, but

it seems to have worked.

I also know it is really difficult to tell what is OCD

and what is normal teenage stuff. It is a constant

battle. She is on 25 mg of Zoloft and 50 mg of

seroquel. I didn't see the zoloft doing much - but

the seroquel seems to have improved her mood - she is

sleeping a bit better and is more even tempered. The

new psychiatrist decided to handle her anger/mood

first with seroquel and then tackle the OCD. He may

up the zoloft or try something else, we shall see.

Most of her rituals are at night at bedtime. Does

take long showers and washes her hands constantly.

Have to continuously reassure her that she will be

alright.

Hope this helps! God bless you and good luck!

--- <Rosegardenerr@...> wrote:

> Hi - I am new to the group - My daughter has mild

> ocd - fears of

> contamination and germs, she has alot of anxieties

> about stuff

> harboring germs, unfounded fears that something will

> hurt her. She

> confided in us that it was something she was going

> through shortly

> before we had a big move. The move really brought

> in on strong, hour

> showers, 25 minutes to scrub her hands. She can't

> help around the

> house, won't touch anything, hasn't hugged me in

> months (and she was

> always a snuggler) Things were better when she was

> busy with school

> (she likes it alot) and apparantly at school she

> functions fairly well

> - does her chores around the classroom, etc. but at

> home she can't

> function. Over the holiday it al started up again.

> Seems that as

> soon as she has some time on her hands, she worries.

>

> My concern is that she is very resistant to getting

> therapy. We went

> to a psychologist and then a psychiatrist when it

> was really bad

> before school started, and she had a screaming fit

> in his office. She

> doesn't want anything to do with it but I see that

> she is suffering

> and I feel we need to do somthing. I feel like if

> we just let it

> continue it will get worse. Sometimes, even often,

> she controls it

> fine, takes a 5 minute shower, gets out the door

> quikly (when friends

> are waiting, etc) I feel myself getting angry at her

> - because she

> will do fine when it something for her, but if I

> need her to open a

> door to let the cat in, or help with her little

> sister she can't help.

> I don't want to be angry, but she won't accept

> help. Anyone with

> ideas? Thanks!

>

>

__________________________________________________

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Hi Kimberley,

Welcome to the group, you will find so much support and help from all

these wonderful people on this site( they sure helped me through some

rough times). Like you, my daughter was diagnosed last June with OCD,

she pretty much showed signs for at least two years prior

(unfortunately I did not understand it and when I took her in to

doctors they told me it was puberty, take her home) Last June it

escalated during a stressful time just before she went to nationals

to compete for karate last summer. She has/had huge contamination

issues, won't walk barefoot in house( only in her clean area around

her room and bathroom). Won't open doors etc. I won't go on, the list

is huge. It got so bad that she would no longer drink water from our

fridge, we had to buy her bottled water that she kept in her room.

She had horrible anger attacks that resulted in rages with memory

loss and slipped into a deep secondary depression due to the stress

of her OCD.

We have a wonderful family doctor, who's own brother has OCD and he

got my daughter into counselling immediately and a referral to a

psychiatrist which prescribed Celexa( now after a slow increase over

that last few months she is now up to 40mg and doing great). She sees

her counsellor once a week and the psychiatrist every 2 months now. I

could see improvements after a month on celexa but that was only the

outward stuff. " SHE " told me last week she was finally feeling better

and told me she thinks the 40 mg is the right dose for her. What a

relief, that tells me the obsessions ( the part we don't see) are

getting better.

My daughter hated me for dragging her to the doctors, she told her

counsellor I was mean and that she did not need counselling or

medication. She thought I was taking her there to change her because

she thought that I saw her as a " bad kid, who was ruining the

family " . We had a long talk, I reinforced the fact that she has an

illness. I used diabetes as an example. I told her if she had

diabetes I would take her to the doctor, get her counselling on

eating and lifestyle, and buy her the medication she needed. She

understood this example and finally saw clearly that she is sick and

this is something that needs to be treated. She also understands from

all her doctors, counsellors that this is something she will have to

deal with for a life time and only she can know when she starts to

feel bad again. She knows she must tell if or when the medications

don't work anymore and if we need to try something else. She is

prepared now and will let me know.

I hope you can get your daughter into counselling etc, and if it gets

really bad don't be afraid to try medications. You have to do what

works for your daughter. I think 's idea was great about

signing a contract. You got to do what works and gets them in there.

It is hard, and I understand your frustration with her about being

able to do some things and not others. I bite my tongue a lot with my

daughter. Dealing with her OCD and depression (she did not want to

live anymore) was the hardest thing for me to go through in my entire

life, I felt so helpless that I could not fix this for her. Imagine

how bad it feels for our kids.

I wish you the best and hope you can find good help in your area.

Keep us updated and take care.

Kim M

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- sometimes it just helps to know that you are not alone. My daughter,

11, has had OCD all her life, and we ended up so desperate a year ago that we

dragged her into a psychiatrist to get started on medication.

What you describe - our kids' being able to control stuff at school and in

front of friends, but not in front of family, is so very frustrating to me as a

mother. Home is " safe " - it's where you get to be who you are.

Anyway, the way that I got her to go to therapy initially (CBT with ERP but

unfortunately not successful) when she was 10 was by telling her again and again

and again for several months that she would eventually need to go. Little by

little I built in her the expectation that going to a therapist was inevitable.

It became so normal for her to hear about it that she finally just acquiesed.

Also, through a listserve that I belong to I found another mom with a teen who

has OCD and arranged for them to meet - it was totally awkward, they had ice

cream and didn't talk about OCD, but it made my own daughter's " secret " more

tangible when she met a flesh-and-blood kid who she knew had had therapy

(inpatient and successful) and who seemed completely and totally normal from the

outside. I think it helped to just see a fellow sufferer. She's also

fascinated by " A Beautiful Mind " and " Proof, " movies about talented

mathmeticians who suffer from mental disorders (makes her think

that she's capable of great things, too!).

Finally, through messages in this group and consulting with the psychiatrist,

we started Abilify a few weeks ago, and have worked up to 6 mg to supplement

Zoloft. It's been working, but it's not perfect - last night we had an

" incident " in which my son had a headache and my daughter withdrew to her room

and wouldn't come out for fear of his throwing up, which he didn't, but she is

terrified of vomiting ... so the Abilify is not able to completely suppress this

nasty disorder. But it has helped greatly with many of the compulsions that had

started preventing her from functioning much at all as she has been adjusting to

her new school.

As for being angry ... I know that I should be used to all of this by now, but

it's so hard. A few weeks ago, my daughter started not closing the car door

behind her. In the dark, in the rain, taking 10 minutes to get out of the car

and up a flight of stairs and into the house, she left the car door wide open.

Not a problem in the suburbs, but we live in an " iffy " city where you don't do

that. We didn't find out until a half hour later, when her friend came over and

told us that the car door was open. We were lucky nothing was stolen (including

the car). And all winter she's been leaving the front door open (contributing

in our own little way to global warming!). I have not worked up to the level of

motherhood yet where I find myself tolerating what I know I can't change. So I

still get angry. I hope she forgives me!

Hope things get better soon.

M

<Rosegardenerr@...> wrote:

Hi - I am new to the group - My daughter has mild ocd - fears of

contamination and germs, she has alot of anxieties about stuff

harboring germs, unfounded fears that something will hurt her. She

confided in us that it was something she was going through shortly

before we had a big move. The move really brought in on strong, hour

showers, 25 minutes to scrub her hands. She can't help around the

house, won't touch anything, hasn't hugged me in months (and she was

always a snuggler) Things were better when she was busy with school

(she likes it alot) and apparantly at school she functions fairly well

- does her chores around the classroom, etc. but at home she can't

function. Over the holiday it al started up again. Seems that as

soon as she has some time on her hands, she worries.

My concern is that she is very resistant to getting therapy. We went

to a psychologist and then a psychiatrist when it was really bad

before school started, and she had a screaming fit in his office. She

doesn't want anything to do with it but I see that she is suffering

and I feel we need to do somthing. I feel like if we just let it

continue it will get worse. Sometimes, even often, she controls it

fine, takes a 5 minute shower, gets out the door quikly (when friends

are waiting, etc) I feel myself getting angry at her - because she

will do fine when it something for her, but if I need her to open a

door to let the cat in, or help with her little sister she can't help.

I don't want to be angry, but she won't accept help. Anyone with

ideas? Thanks!

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In a message dated 1/4/2007 12:06:34 P.M. Eastern Standard Time,

Rosegardenerr@... writes:

Sometimes, even often, she controls it

fine, takes a 5 minute shower, gets out the door quikly (when friends

are waiting, etc) I feel myself getting angry at her - because she

will do fine when it something for her, but if I need her to open a

door to let the cat in, or help with her little sister she can't help.

This is typical. Back when my dd (15yrs) was REALLY bad (germ issues, would

only wear anything once & it had to be washed.... even jackets... among many

other issues) I was losing my mind with all the laundry - her clothes were

starting to fall apart. One day she brought home her gym outfit - her gross,

smelly, disgusting, filthy gym outfit. She had been wearing it for 2 weeks

straight at school. I remember jumping on the board & screaming to everyone

" HOW CAN SHE DO THAT? " But it is true - they are able to do a lot more out in

public than they can at home. They hide it because they don't want anyone

to know. Home is safe, they can let down their guard.

As far as resisting therapy - we were there too. We were convinced our

daughter was going to run on that first appointment. She hated every doctor &

every appt since being diagnosed. She would cry & yell in the car all the way

there. She would sit & refuse to get out of the car. Luckily we never had

an emotional outburst in a doctor's office, but she would barely respond with

a word or two. She hated being there.

Right now we only go to a psychiatrist for meds. Even those appts are only

10-15 mins & she hates them & hardly says a word while we're there. These

kids just don't want to face it. I think my daughter spoke very truthfully

when she was crying before one of her appts - we were trying to get her to tell

us WHY it was so hard for her to go -- she said, " Because I don't want to be

the 14 year old that needs to be in therapy. " It carries a horrible stigma.

Especially in those tender teen years when it means everything just to " fit

in " and be like everyone else.

Good luck. The most you can do is to try & be understanding of their

feelings. But you still have to do what you know is best for them.

LT

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Hi ! I have a son, 17, whose OCD battle began back in 6th

grade. Terrible year!!! always did well at school too and

if anyone was at our home visiting. LOL, I was sort of like " why

can't you just do what you do at school or when someone's over and

NOT do the compulsions??!!??!! " :)

However, I did complain (here to the group) that whenever someone was

over and then left, seemed worse after they left; like where

he had held it back, it just all came out worse than it normally was,

closer together type things. I thought about barring anyone from

visiting!

Interesting though how they can manage to do all these *things*

normally at school or elsewhere. But I would see things like little

hesitations with so there was a struggle with others around.

But at the same time, I was thinking, " WHY can't you try to do this

when no one is around??? " because I was always wanting him to do some

ERP/CBT, to battle back against the compulsions; nag, nag, nag, LOL!

With your daughter, even with mild OCD you may want to try some

medication. Might help overall and make her less resistant (lower

any anxiety) towards therapy. Another alternative some here have

tried (me included) is inositol powder (supposedly in B vitamin

family) and some have found it to help with anxiety/OCD (helped back

in middle school, hasn't helped much this recent time around but I'm

having up his daily dosage). You can search back through

some posts for " inositol " to see info about it. Also not for OCD

really, but many also are using some omega 3 & 6 which is healthy to

take but I believe also helps with mood or behavior (also some use

for ADD and it shows promise with bipolar -- I think; have to google

it and doublecheck!). was also on Celexa (one of the OCD

meds) for 9th and 10th grades, he did well on it for his OCD.

Speaking of , have to go pick him up! Welcome to the group!

single mom, 3 sons

, 17, with OCD, dysgraphia and Aspergers

>

> Hi - I am new to the group - My daughter has mild ocd - fears of

> contamination and germs, she has alot of anxieties about stuff

> harboring germs, unfounded fears that something will hurt her. She

> confided in us that it was something she was going through shortly

> before we had a big move. The move really brought in on strong,

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In a message dated 1/5/2007 9:15:31 A.M. Eastern Standard Time,

kidsnpets@... writes:

my dd couldnt pick things up off the floor because they might have germs,

but at the same time, she could help her dad clean a fish!!!!!!!

Sharon

I'll tell ya, it's enough to make you want to share the Prozac RX, you know?

LT

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Hi ,

my daughter is younger but we had the same here, big issues at home

and fine at school and most of the time in public and with friends

(although that also changed at some point a bit). Before I realized

that it is not really within her " power " and she doesn't do it to make

my life extra hard it was very hard to get along with her. She thought

that I didn't love her any more and I had a hard time to understand

why she was a " good girl " everywhere else. Once I got to the point it

got somehow easier because she got more compliant but in her case

nothing really worked before medication. Her OCD is under control now

and she can work on it.

Finding the right therapist is very important too. I got a

recommendation here and she is a genius! My daughter who is usually

very oppositional does very well with her - sometimes it is not the

right " fit " and in those cases it gets extra hard.

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welcome! to chime in with the rest - yes it's normal for them to hold

it together when they feel they have to and fall apart at home -and

yes I think using something to work towards might help but yes she

does need to start therapy - I'm counting the days till dd starts and

she's just going downhill without it- maybe she'd benefit from an

online meeting with others even some from here to realize it's not so

uncommon etc??

good luck

we're here

eileen

Quoting <Rosegardenerr@...>:

> Hi - I am new to the group - My daughter has mild ocd - fears of

> contamination and germs, she has alot of anxieties about stuff

> harboring germs, unfounded fears that something will hurt her. She

> confided in us that it was something she was going through shortly

> before we had a big move. The move really brought in on strong, hour

> showers, 25 minutes to scrub her hands. She can't help around the

> house, won't touch anything, hasn't hugged me in months (and she was

> always a snuggler) Things were better when she was busy with school

> (she likes it alot) and apparantly at school she functions fairly well

> - does her chores around the classroom, etc. but at home she can't

> function. Over the holiday it al started up again. Seems that as

> soon as she has some time on her hands, she worries.

> My concern is that she is very resistant to getting therapy. We went

> to a psychologist and then a psychiatrist when it was really bad

> before school started, and she had a screaming fit in his office. She

> doesn't want anything to do with it but I see that she is suffering

> and I feel we need to do somthing. I feel like if we just let it

> continue it will get worse. Sometimes, even often, she controls it

> fine, takes a 5 minute shower, gets out the door quikly (when friends

> are waiting, etc) I feel myself getting angry at her - because she

> will do fine when it something for her, but if I need her to open a

> door to let the cat in, or help with her little sister she can't help.

> I don't want to be angry, but she won't accept help. Anyone with

> ideas? Thanks!

>

>

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" my dd couldnt pick things up off the floor because they might have germs,

but at the same time, she could help her dad clean a fish!!!!!!! "

That is like my son he wont eat food I have touched, or food that he thinks has

been contaminated which is 99% of the food yet he will get his pet mice and

place the head in his mouth..... I just don't get it.

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Hi Everyone! - I just read through all these responses and started

crying - thank you for the answers thoughts and sharing with me your

stories - it is good to feel not so alone with all this.

Many of you said things that really touched me - similar stories to

what we are going through, etc. This disease is so hard on all of the

family. I am learning about it, and that helps. I know she needs to

go to therapy and finally we have an appointment with a woman next

month - that was the soonest we could get in. I am just praying that

she'll manage until then. We are trying not to enable her - the books

say not to let her convince us to live like her, but it is hard to be

" mean " like that - but I know it only makes it harder.

I like the idea of a contract - we may have to use that. Actually

over the last few days since I first contacted the group she has

finally conceded that therapy may help.

I guess I need to know though - what kind do you think is the most

helpful for these kids with the germs issues. The problem is that her

fears jump from one thing to another, it revolves around germs, but

sometimes it's the video store cases, then it's anything from a

certain market, etc. Her issues are big - she wants us to promise not

to go to certain stores that she is afraid of. Actually, anywhere out

with us she often seems anxious. If I take her out with a friend,

downtown or to the mall she wanders freely and carelessly, but with us

she is edgy and constantly worrying if someone coughs, won't touch a

restaurant menu, etc. Does erp therapy help with this? Thanks for

all the support!

She is sleeping fine, she could eat better, my big concern is that

when she has free time she worries, and once school is over she has

hours to kill. She isn't doing any classes that would take up some

time but I may have convinced her to do one...she wants to spend all

the time on the computer talking to the kids from school because it

fills the void, but I think too much of that isn't healthy. But it

helps her, so I am at a quandry.

>

> > Hi - I am new to the group - My daughter has mild

> > ocd - fears of

> > contamination and germs, she has alot of anxieties

> > about stuff

> > harboring germs, unfounded fears that something will

> > hurt her. She

> > confided in us that it was something she was going

> > through shortly

> > before we had a big move. The move really brought

> > in on strong, hour

> > showers, 25 minutes to scrub her hands. She can't

> > help around the

> > house, won't touch anything, hasn't hugged me in

> > months (and she was

> > always a snuggler) Things were better when she was

> > busy with school

> > (she likes it alot) and apparantly at school she

> > functions fairly well

> > - does her chores around the classroom, etc. but at

> > home she can't

> > function. Over the holiday it al started up again.

> > Seems that as

> > soon as she has some time on her hands, she worries.

> >

> > My concern is that she is very resistant to getting

> > therapy. We went

> > to a psychologist and then a psychiatrist when it

> > was really bad

> > before school started, and she had a screaming fit

> > in his office. She

> > doesn't want anything to do with it but I see that

> > she is suffering

> > and I feel we need to do somthing. I feel like if

> > we just let it

> > continue it will get worse. Sometimes, even often,

> > she controls it

> > fine, takes a 5 minute shower, gets out the door

> > quikly (when friends

> > are waiting, etc) I feel myself getting angry at her

> > - because she

> > will do fine when it something for her, but if I

> > need her to open a

> > door to let the cat in, or help with her little

> > sister she can't help.

> > I don't want to be angry, but she won't accept

> > help. Anyone with

> > ideas? Thanks!

> >

> >

>

>

> __________________________________________________

>

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Thanks Kim - I like what you said about if it was diabetes....

I am going to use this - I try to get her to eat right, I know that

would help her feel better. She needs her vitamins, and all thost

things that help her mood and overall feeling. She gets so stubborn,

won't eat breakfast, barely eats her lunch then pigs out on frozen

pizzas when she gets home. There are so many issues, I just feel like

if we can get her to school, have a pleasant afternoon with no

arguing, and possibly get her to stay through dinner with us after

doing homework then the day is a success. But my heart aches for her

- I want her to have a happy life, it hurts so much to see her

suffering so much, she's in tears as she washes over and over, cries,

I want to be done. She doesnt want to seem crazy, and therefore the

no therapy feelings. I know it will get better -

she is home - gotta go!

K

>

> Hi Kimberley,

>

> Welcome to the group, you will find so much support and help from all

> these wonderful people on this site( they sure helped me through some

> rough times). Like you, my daughter was diagnosed last June with OCD,

> she pretty much showed signs for at least two years prior

> (unfortunately I did not understand it and when I took her in to

> doctors they told me it was puberty, take her home) Last June it

> escalated during a stressful time just before she went to nationals

> to compete for karate last summer. She has/had huge contamination

> issues, won't walk barefoot in house( only in her clean area around

> her room and bathroom). Won't open doors etc. I won't go on, the list

> is huge. It got so bad that she would no longer drink water from our

> fridge, we had to buy her bottled water that she kept in her room.

> She had horrible anger attacks that resulted in rages with memory

> loss and slipped into a deep secondary depression due to the stress

> of her OCD.

>

> We have a wonderful family doctor, who's own brother has OCD and he

> got my daughter into counselling immediately and a referral to a

> psychiatrist which prescribed Celexa( now after a slow increase over

> that last few months she is now up to 40mg and doing great). She sees

> her counsellor once a week and the psychiatrist every 2 months now. I

> could see improvements after a month on celexa but that was only the

> outward stuff. " SHE " told me last week she was finally feeling better

> and told me she thinks the 40 mg is the right dose for her. What a

> relief, that tells me the obsessions ( the part we don't see) are

> getting better.

>

> My daughter hated me for dragging her to the doctors, she told her

> counsellor I was mean and that she did not need counselling or

> medication. She thought I was taking her there to change her because

> she thought that I saw her as a " bad kid, who was ruining the

> family " . We had a long talk, I reinforced the fact that she has an

> illness. I used diabetes as an example. I told her if she had

> diabetes I would take her to the doctor, get her counselling on

> eating and lifestyle, and buy her the medication she needed. She

> understood this example and finally saw clearly that she is sick and

> this is something that needs to be treated. She also understands from

> all her doctors, counsellors that this is something she will have to

> deal with for a life time and only she can know when she starts to

> feel bad again. She knows she must tell if or when the medications

> don't work anymore and if we need to try something else. She is

> prepared now and will let me know.

>

> I hope you can get your daughter into counselling etc, and if it gets

> really bad don't be afraid to try medications. You have to do what

> works for your daughter. I think 's idea was great about

> signing a contract. You got to do what works and gets them in there.

> It is hard, and I understand your frustration with her about being

> able to do some things and not others. I bite my tongue a lot with my

> daughter. Dealing with her OCD and depression (she did not want to

> live anymore) was the hardest thing for me to go through in my entire

> life, I felt so helpless that I could not fix this for her. Imagine

> how bad it feels for our kids.

>

> I wish you the best and hope you can find good help in your area.

> Keep us updated and take care.

>

> Kim M

>

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Hi - I think you said exactly what it all boils down to - they don't

want to be thought of as crazy. My daughter has said as much - and I

would love to say you can beat this on your own and we can spend the

money on some new furniture!! But I know she needs this. I don't

want to be mean but I feel lke it is doing my part as her parent to

get her the help she needs. Thanks for your feedback - it is so

helpful to have others to talk to.

K

>

>

> In a message dated 1/4/2007 12:06:34 P.M. Eastern Standard Time,

> Rosegardenerr@... writes:

>

> Sometimes, even often, she controls it

> fine, takes a 5 minute shower, gets out the door quikly (when friends

> are waiting, etc) I feel myself getting angry at her - because she

> will do fine when it something for her, but if I need her to open a

> door to let the cat in, or help with her little sister she can't help.

>

>

>

>

>

> This is typical. Back when my dd (15yrs) was REALLY bad (germ

issues, would

> only wear anything once & it had to be washed.... even jackets...

among many

> other issues) I was losing my mind with all the laundry - her

clothes were

> starting to fall apart. One day she brought home her gym outfit -

her gross,

> smelly, disgusting, filthy gym outfit. She had been wearing it for

2 weeks

> straight at school. I remember jumping on the board & screaming to

everyone

> " HOW CAN SHE DO THAT? " But it is true - they are able to do a lot

more out in

> public than they can at home. They hide it because they don't want

anyone

> to know. Home is safe, they can let down their guard.

>

> As far as resisting therapy - we were there too. We were convinced

our

> daughter was going to run on that first appointment. She hated

every doctor &

> every appt since being diagnosed. She would cry & yell in the car

all the way

> there. She would sit & refuse to get out of the car. Luckily we

never had

> an emotional outburst in a doctor's office, but she would barely

respond with

> a word or two. She hated being there.

>

> Right now we only go to a psychiatrist for meds. Even those appts

are only

> 10-15 mins & she hates them & hardly says a word while we're there.

These

> kids just don't want to face it. I think my daughter spoke very

truthfully

> when she was crying before one of her appts - we were trying to get

her to tell

> us WHY it was so hard for her to go -- she said, " Because I don't

want to be

> the 14 year old that needs to be in therapy. " It carries a

horrible stigma.

> Especially in those tender teen years when it means everything just

to " fit

> in " and be like everyone else.

>

> Good luck. The most you can do is to try & be understanding of their

> feelings. But you still have to do what you know is best for them.

> LT

>

>

>

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My son didn't do well in therapy either. He hated talking about his

" anxiety " . We spent many wasted hours with him hesitant to talk. I have

learned over the years in dealing with my son and dealing with my husband

and marriage that there is power in me going to the therapist alone. Then I

am able to openly talk about all the problems that occur in our home and the

therapist is able to advise me who is willing to listen to how to handle

each situation. We have made leaps and bounds with just me going to therapy

alone. For one, I learned that I can't discipline, respond appropriately

when I am weighted down with a heavy fog of stress and depression. It has

done wonders for me to have a safe place to dump all of that and in return

lighten my load and given me more energy to deal with everything. Secondly,

just having the support is huge in giving me the courage and strength to do

the tough love. Lastly, having the wisdom that only a good PHD Psychologist

has is huge. There is so much that they know and learn that you just don't

read in a book.

So. hope this helps and gives you hope. You do have control in how you react

and behave and ultimately can help your child.

Good luck

Adele

_____

From:

[mailto: ] On Behalf Of rosegardenerr

Sent: Sunday, January 07, 2007 6:16 PM

Subject: Re: daughter resistant to therapy

Hi Everyone! - I just read through all these responses and started

crying - thank you for the answers thoughts and sharing with me your

stories - it is good to feel not so alone with all this.

Many of you said things that really touched me - similar stories to

what we are going through, etc. This disease is so hard on all of the

family. I am learning about it, and that helps. I know she needs to

go to therapy and finally we have an appointment with a woman next

month - that was the soonest we could get in. I am just praying that

she'll manage until then. We are trying not to enable her - the books

say not to let her convince us to live like her, but it is hard to be

" mean " like that - but I know it only makes it harder.

I like the idea of a contract - we may have to use that. Actually

over the last few days since I first contacted the group she has

finally conceded that therapy may help.

I guess I need to know though - what kind do you think is the most

helpful for these kids with the germs issues. The problem is that her

fears jump from one thing to another, it revolves around germs, but

sometimes it's the video store cases, then it's anything from a

certain market, etc. Her issues are big - she wants us to promise not

to go to certain stores that she is afraid of. Actually, anywhere out

with us she often seems anxious. If I take her out with a friend,

downtown or to the mall she wanders freely and carelessly, but with us

she is edgy and constantly worrying if someone coughs, won't touch a

restaurant menu, etc. Does erp therapy help with this? Thanks for

all the support!

She is sleeping fine, she could eat better, my big concern is that

when she has free time she worries, and once school is over she has

hours to kill. She isn't doing any classes that would take up some

time but I may have convinced her to do one...she wants to spend all

the time on the computer talking to the kids from school because it

fills the void, but I think too much of that isn't healthy. But it

helps her, so I am at a quandry.

>

> > Hi - I am new to the group - My daughter has mild

> > ocd - fears of

> > contamination and germs, she has alot of anxieties

> > about stuff

> > harboring germs, unfounded fears that something will

> > hurt her. She

> > confided in us that it was something she was going

> > through shortly

> > before we had a big move. The move really brought

> > in on strong, hour

> > showers, 25 minutes to scrub her hands. She can't

> > help around the

> > house, won't touch anything, hasn't hugged me in

> > months (and she was

> > always a snuggler) Things were better when she was

> > busy with school

> > (she likes it alot) and apparantly at school she

> > functions fairly well

> > - does her chores around the classroom, etc. but at

> > home she can't

> > function. Over the holiday it al started up again.

> > Seems that as

> > soon as she has some time on her hands, she worries.

> >

> > My concern is that she is very resistant to getting

> > therapy. We went

> > to a psychologist and then a psychiatrist when it

> > was really bad

> > before school started, and she had a screaming fit

> > in his office. She

> > doesn't want anything to do with it but I see that

> > she is suffering

> > and I feel we need to do somthing. I feel like if

> > we just let it

> > continue it will get worse. Sometimes, even often,

> > she controls it

> > fine, takes a 5 minute shower, gets out the door

> > quikly (when friends

> > are waiting, etc) I feel myself getting angry at her

> > - because she

> > will do fine when it something for her, but if I

> > need her to open a

> > door to let the cat in, or help with her little

> > sister she can't help.

> > I don't want to be angry, but she won't accept

> > help. Anyone with

> > ideas? Thanks!

> >

> >

>

>

> __________________________________________________

>

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sometimes it's nice to get out a good cry and it does usually come

while reading on here - glad you are getting help - wish it were

sooner - but ERP can fight anything - It's tough when there are big

things that encompass so many smaller ones - I'm hoping the new

psychologist will help us break it all down too - we start the 15th -

will update all

take care

hang in

eileen

Quoting rosegardenerr <Rosegardenerr@...>:

> Hi Everyone! - I just read through all these responses and started

> crying - thank you for the answers thoughts and sharing with me your

> stories - it is good to feel not so alone with all this.

> Many of you said things that really touched me - similar stories to

> what we are going through, etc. This disease is so hard on all of the

> family. I am learning about it, and that helps. I know she needs to

> go to therapy and finally we have an appointment with a woman next

> month - that was the soonest we could get in. I am just praying that

> she'll manage until then. We are trying not to enable her - the books

> say not to let her convince us to live like her, but it is hard to be

> " mean " like that - but I know it only makes it harder.

> I like the idea of a contract - we may have to use that. Actually

> over the last few days since I first contacted the group she has

> finally conceded that therapy may help.

> I guess I need to know though - what kind do you think is the most

> helpful for these kids with the germs issues. The problem is that her

> fears jump from one thing to another, it revolves around germs, but

> sometimes it's the video store cases, then it's anything from a

> certain market, etc. Her issues are big - she wants us to promise not

> to go to certain stores that she is afraid of. Actually, anywhere out

> with us she often seems anxious. If I take her out with a friend,

> downtown or to the mall she wanders freely and carelessly, but with us

> she is edgy and constantly worrying if someone coughs, won't touch a

> restaurant menu, etc. Does erp therapy help with this? Thanks for

> all the support!

> She is sleeping fine, she could eat better, my big concern is that

> when she has free time she worries, and once school is over she has

> hours to kill. She isn't doing any classes that would take up some

> time but I may have convinced her to do one...she wants to spend all

> the time on the computer talking to the kids from school because it

> fills the void, but I think too much of that isn't healthy. But it

> helps her, so I am at a quandry.

>

>>

>> > Hi - I am new to the group - My daughter has mild

>> > ocd - fears of

>> > contamination and germs, she has alot of anxieties

>> > about stuff

>> > harboring germs, unfounded fears that something will

>> > hurt her. She

>> > confided in us that it was something she was going

>> > through shortly

>> > before we had a big move. The move really brought

>> > in on strong, hour

>> > showers, 25 minutes to scrub her hands. She can't

>> > help around the

>> > house, won't touch anything, hasn't hugged me in

>> > months (and she was

>> > always a snuggler) Things were better when she was

>> > busy with school

>> > (she likes it alot) and apparantly at school she

>> > functions fairly well

>> > - does her chores around the classroom, etc. but at

>> > home she can't

>> > function. Over the holiday it al started up again.

>> > Seems that as

>> > soon as she has some time on her hands, she worries.

>> >

>> > My concern is that she is very resistant to getting

>> > therapy. We went

>> > to a psychologist and then a psychiatrist when it

>> > was really bad

>> > before school started, and she had a screaming fit

>> > in his office. She

>> > doesn't want anything to do with it but I see that

>> > she is suffering

>> > and I feel we need to do somthing. I feel like if

>> > we just let it

>> > continue it will get worse. Sometimes, even often,

>> > she controls it

>> > fine, takes a 5 minute shower, gets out the door

>> > quikly (when friends

>> > are waiting, etc) I feel myself getting angry at her

>> > - because she

>> > will do fine when it something for her, but if I

>> > need her to open a

>> > door to let the cat in, or help with her little

>> > sister she can't help.

>> > I don't want to be angry, but she won't accept

>> > help. Anyone with

>> > ideas? Thanks!

>> >

>> >

>>

>>

>> __________________________________________________

>>

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" they don't

want to be thought of as crazy "

Funny you should say that. The first thing that came out of my family

doctor's mouth to my daughter just after the psychiatrist confirmed it

was definitely OCD was, " The good thing now is you know you are NOT

crazy " . He really emphasized that this was a biological condition in

the brain that can be treated. It was the best thing he could have said

to her at the time.

Take care,

Kim M

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In a message dated 1/7/2007 9:15:23 P.M. Eastern Standard Time,

autumn71A@... writes:

sometimes it's nice to get out a good cry and it does usually come

while reading on here -

Eileen -

HA! This is so true. I remember days that I just cried on & off all day

long. I think the best & most therapeutic for me, as well as my daughter, were

the times that we just cried together. We would lay on the bed or couch &

just cry and cry... I would tell her I really never mean to yell when she's

having issues (can't get out of the shower, wanted me to wash her, etc) and

that I needed to know that she realized it was just frustration on my part that

I didn't have the magic answer to help her. I explained to her how horrible

it was for a mom to watch their child suffer so much & not be able to do a

damn thing about it. Mom's are used to having that magic touch that could fix

practically anything & I don't have it for this.

Then she would cry & tell me all sorts of things about how she felt, etc.

It was kind of our reality check so that either of us COULD melt down if we

needed, but in our hearts we knew the other one understood.

{{{{sigh}}}}

LT

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In a message dated 1/8/2007 9:50:49 A.M. Eastern Standard Time,

autumn71A@... writes:

a question popped in my mind while reading this - do most want to stop

and even cry during rituals??? my dd's anxiety comes from stopping the

ritual or someone messing it up - she even says I don't want to get

rid of OCD of course because she knows she'll have to fight but she

doesn't seem upset during it - just counting away and doing all sort

of gestures etc.

Eileen

I'm not sure I understand the wording in the last part of your post.....

but, I know my daughter would get terrible upset & anxious when she went

through

the hand washing routines. You, as an observer, are totally oblivious to

what the " need " to do (unless they are open & honest with you on all that...

plus, what the NEED to do sometimes changes on a daily basis anyway)... so,

even if it looks like they're doing it one way, to THEM it might not be

right...

for whatever reason.

Also, my dd would stop & cry in the middle of a ritual simply because she

didn't WANT to be doing it, but couldn't stop herself.

This is incredibly hard to explain in words!!!!! But I can see my dd in my

mind trying to wash just right.... actually breathing harder & faster while

doing it... then starting to cry and saying " wait, wait, that's not right... "

then stopping & starting again. I pretty much knew what she felt she " had "

to do, and it looked right, but for whatever reason SHE wasn't happy with how

it was going.

LT

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That is great!

Sharon

Re: daughter resistant to therapy

" they don't

want to be thought of as crazy "

Funny you should say that. The first thing that came out of my family

doctor's mouth to my daughter just after the psychiatrist confirmed it

was definitely OCD was, " The good thing now is you know you are NOT

crazy " . He really emphasized that this was a biological condition in

the brain that can be treated. It was the best thing he could have said

to her at the time.

Take care,

Kim M

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Share on other sites

a question popped in my mind while reading this - do most want to stop

and even cry during rituals??? my dd's anxiety comes from stopping the

ritual or someone messing it up - she even says I don't want to get

rid of OCD of course because she knows she'll have to fight but she

doesn't seem upset during it - just counting away and doing all sort

of gestures etc.

eileen

Quoting rosegardenerr <Rosegardenerr@...>:

> Thanks Kim - I like what you said about if it was diabetes....

> I am going to use this - I try to get her to eat right, I know that

> would help her feel better. She needs her vitamins, and all thost

> things that help her mood and overall feeling. She gets so stubborn,

> won't eat breakfast, barely eats her lunch then pigs out on frozen

> pizzas when she gets home. There are so many issues, I just feel like

> if we can get her to school, have a pleasant afternoon with no

> arguing, and possibly get her to stay through dinner with us after

> doing homework then the day is a success. But my heart aches for her

> - I want her to have a happy life, it hurts so much to see her

> suffering so much, she's in tears as she washes over and over, cries,

> I want to be done. She doesnt want to seem crazy, and therefore the

> no therapy feelings. I know it will get better -

> she is home - gotta go!

> K

>

>

>

>>

>> Hi Kimberley,

>>

>> Welcome to the group, you will find so much support and help from all

>> these wonderful people on this site( they sure helped me through some

>> rough times). Like you, my daughter was diagnosed last June with OCD,

>> she pretty much showed signs for at least two years prior

>> (unfortunately I did not understand it and when I took her in to

>> doctors they told me it was puberty, take her home) Last June it

>> escalated during a stressful time just before she went to nationals

>> to compete for karate last summer. She has/had huge contamination

>> issues, won't walk barefoot in house( only in her clean area around

>> her room and bathroom). Won't open doors etc. I won't go on, the list

>> is huge. It got so bad that she would no longer drink water from our

>> fridge, we had to buy her bottled water that she kept in her room.

>> She had horrible anger attacks that resulted in rages with memory

>> loss and slipped into a deep secondary depression due to the stress

>> of her OCD.

>>

>> We have a wonderful family doctor, who's own brother has OCD and he

>> got my daughter into counselling immediately and a referral to a

>> psychiatrist which prescribed Celexa( now after a slow increase over

>> that last few months she is now up to 40mg and doing great). She sees

>> her counsellor once a week and the psychiatrist every 2 months now. I

>> could see improvements after a month on celexa but that was only the

>> outward stuff. " SHE " told me last week she was finally feeling better

>> and told me she thinks the 40 mg is the right dose for her. What a

>> relief, that tells me the obsessions ( the part we don't see) are

>> getting better.

>>

>> My daughter hated me for dragging her to the doctors, she told her

>> counsellor I was mean and that she did not need counselling or

>> medication. She thought I was taking her there to change her because

>> she thought that I saw her as a " bad kid, who was ruining the

>> family " . We had a long talk, I reinforced the fact that she has an

>> illness. I used diabetes as an example. I told her if she had

>> diabetes I would take her to the doctor, get her counselling on

>> eating and lifestyle, and buy her the medication she needed. She

>> understood this example and finally saw clearly that she is sick and

>> this is something that needs to be treated. She also understands from

>> all her doctors, counsellors that this is something she will have to

>> deal with for a life time and only she can know when she starts to

>> feel bad again. She knows she must tell if or when the medications

>> don't work anymore and if we need to try something else. She is

>> prepared now and will let me know.

>>

>> I hope you can get your daughter into counselling etc, and if it gets

>> really bad don't be afraid to try medications. You have to do what

>> works for your daughter. I think 's idea was great about

>> signing a contract. You got to do what works and gets them in there.

>> It is hard, and I understand your frustration with her about being

>> able to do some things and not others. I bite my tongue a lot with my

>> daughter. Dealing with her OCD and depression (she did not want to

>> live anymore) was the hardest thing for me to go through in my entire

>> life, I felt so helpless that I could not fix this for her. Imagine

>> how bad it feels for our kids.

>>

>> I wish you the best and hope you can find good help in your area.

>> Keep us updated and take care.

>>

>> Kim M

>>

>

>

>

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dd is young enough to open up (with most things) I got her on tape

explaining the current handwashing ritual (mind boggling) but I guess

what I'm finding weird is that she's not upset that she has to do it -

or doesn't admit it as as long as it's right and doesn't get

interupted it doesn't bug her - just takes long -

eileen

Quoting jtlt@...:

>

> In a message dated 1/8/2007 9:50:49 A.M. Eastern Standard Time,

> autumn71A@... writes:

>

> a question popped in my mind while reading this - do most want to stop

> and even cry during rituals??? my dd's anxiety comes from stopping the

> ritual or someone messing it up - she even says I don't want to get

> rid of OCD of course because she knows she'll have to fight but she

> doesn't seem upset during it - just counting away and doing all sort

> of gestures etc.

>

>

> Eileen

>

> I'm not sure I understand the wording in the last part of your post.....

> but, I know my daughter would get terrible upset & anxious when she

> went through

> the hand washing routines. You, as an observer, are totally oblivious to

> what the " need " to do (unless they are open & honest with you on all that...

> plus, what the NEED to do sometimes changes on a daily basis anyway)... so,

> even if it looks like they're doing it one way, to THEM it might

> not be right...

> for whatever reason.

>

> Also, my dd would stop & cry in the middle of a ritual simply because she

> didn't WANT to be doing it, but couldn't stop herself.

>

> This is incredibly hard to explain in words!!!!! But I can see my dd in my

> mind trying to wash just right.... actually breathing harder & faster while

> doing it... then starting to cry and saying " wait, wait, that's not

> right... "

> then stopping & starting again. I pretty much knew what she felt she " had "

> to do, and it looked right, but for whatever reason SHE wasn't

> happy with how

> it was going.

> LT

>

>

>

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you brought out more tears just now LT - LOL!! they do feel good

sometimes - and everytime dd and I talk (she's wise beyond her years)

she explains more to me and I help her find ways to communicate it

better to people it is so helpful

eileen

Quoting jtlt@...:

>

> In a message dated 1/7/2007 9:15:23 P.M. Eastern Standard Time,

> autumn71A@... writes:

>

> sometimes it's nice to get out a good cry and it does usually come

> while reading on here -

>

>

> Eileen -

>

> HA! This is so true. I remember days that I just cried on & off all day

> long. I think the best & most therapeutic for me, as well as my

> daughter, were

> the times that we just cried together. We would lay on the bed or couch &

> just cry and cry... I would tell her I really never mean to yell when she's

> having issues (can't get out of the shower, wanted me to wash her, etc) and

> that I needed to know that she realized it was just frustration on

> my part that

> I didn't have the magic answer to help her. I explained to her how horrible

> it was for a mom to watch their child suffer so much & not be able to do a

> damn thing about it. Mom's are used to having that magic touch

> that could fix

> practically anything & I don't have it for this.

>

> Then she would cry & tell me all sorts of things about how she felt, etc.

> It was kind of our reality check so that either of us COULD melt down if we

> needed, but in our hearts we knew the other one understood.

> {{{{sigh}}}}

> LT

>

>

>

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For my son it really helped him not feel crazy when he read the book " Mr.

Worry " . He said he thought he was the only crazy one until he read that book

and realized that many people struggle with this. It's nice to know you

aren't alone.

Also, just read some post about crying with your kids. My son and I have

both grown so much closer to each other through all this, talked more

openly, cried together, etc. As hard as all this is it is neat to become

closer to each other through it all.

Adele

_____

From:

[mailto: ] On Behalf Of kidsnpets

Sent: Monday, January 08, 2007 7:01 AM

Subject: Re: Re: daughter resistant to therapy

That is great!

Sharon

Re: daughter resistant to therapy

" they don't

want to be thought of as crazy "

Funny you should say that. The first thing that came out of my family

doctor's mouth to my daughter just after the psychiatrist confirmed it

was definitely OCD was, " The good thing now is you know you are NOT

crazy " . He really emphasized that this was a biological condition in

the brain that can be treated. It was the best thing he could have said

to her at the time.

Take care,

Kim M

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Oh boy do I know that feeling. My 10 yr old (then) son looked at me with such

anguish and asked " Am I going crazy? "

His first visit to the psychologist was wonderful. I told her he felt like

that and then I left. She explained the biological condition to him and

explained his thoughts were a challenge to him right now, just like others had

challenges physically and others with behavior and others with learning, etc.

She told him if there weren't lots and lots of kids just like him, she wouldn't

have a job!

He left still with lots of bad thoughts, but with a huge burden being lifted

from him. It's amazing to think that they can categorize themselves in this way

while being so young.

Adele Mahan <adelem@...> wrote:

For my son it really helped him not feel crazy when he read the book

" Mr.

Worry " . He said he thought he was the only crazy one until he read that book

and realized that many people struggle with this. It's nice to know you

aren't alone.

Also, just read some post about crying with your kids. My son and I have

both grown so much closer to each other through all this, talked more

openly, cried together, etc. As hard as all this is it is neat to become

closer to each other through it all.

Adele

_____

From:

[mailto: ] On Behalf Of kidsnpets

Sent: Monday, January 08, 2007 7:01 AM

Subject: Re: Re: daughter resistant to therapy

That is great!

Sharon

Re: daughter resistant to therapy

" they don't

want to be thought of as crazy "

Funny you should say that. The first thing that came out of my family

doctor's mouth to my daughter just after the psychiatrist confirmed it

was definitely OCD was, " The good thing now is you know you are NOT

crazy " . He really emphasized that this was a biological condition in

the brain that can be treated. It was the best thing he could have said

to her at the time.

Take care,

Kim M

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