Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 In a message dated 12/28/2006 8:40:13 P.M. Eastern Standard Time, hlballard@... writes: I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. As long as your making your decisions to the best of your ability - doing the research, listening to the professionals, etc... you can't make the 'wrong' decision. That's a big weight to put on yourself. No matter how severe the situation, I think we've all felt that way at one time or another - that perhaps we made the wrong choice somewhere along the way. You can't lay that on yourself. I have no advice for you, but I couldn't help but respond. You sound so down. Know that I'll be thinking of you & I know many others on the board will send good thoughts your way as well ----- even if they don't have an answer for you. Take care, LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 , I know exactly how you feel. I have been there and still am!! I don't want to be a downer, but am being honest, seeing I have had so much false hope. Feel free to email me privately if you need to talk. My dd has been diagnosed with bipolar and ocd also, and has been on literally dozens of meds. As a matter of fact, she has been on almost 3/4 of the meds out there, just out of desperation to make her " better " . The side effects are a nightmare! The ocd and bipolar commorbid are almost impossible to treat.You always have something going on. If the mania goes away you are left with depression and panic and rituals. If the panic and ocd rituals are gone, you have manic behavior, than the side effects of all the meds. Has she been on any mood stabilizers ever? If she does have bipolar, some kids do really well on them. Each child is different. I will also add that my son has had manic reactions to 2 SSRI's, and the doctors feel strongly he does not have bipolar at this point. ( This week , I should say, because it constantly changes.) My dd never once had a bad reaction to an SSRI and definitely does have bipolar. ( go figure) It's really crazy! I wish you luck and hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi , I'm not sure what to say that would help except that I will pray for you and your daughter. It seems for me that whenever things seemed to bottom out something good started to happen. Just stay strong. God bless, Becky Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 As some of the others in this group have said, we know how truly horrible things can get with these illnesses. You are not alone, and things will get better. Just wondering if you've really given all the SSRI's sufficient trials. As I'm sure you know, it takes time for these meds to work, and the dosage is important too. If there's one you feel you haven't really given enough time to work, maybe you could try revisiting that med. My son is on his 6th SSRI (Celexa) and it seems to be stabilizing his mood for now. However, the rituals almost seem to be getting worse (sigh). But he is much more manageable now that the mood is stable. Best of luck to you. Patty > > > > I feel such a strong need to reach out to all of you tonight. My daughter > Elise has been on the decline for some months now. We've tried all the > SSRI's with worsening symptoms. She's experienced manic episodes and they've > intensified with every med change. I'm so afraid this could be the start of > Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). > No one wants to say it is bipolar as of yet, apparently diagnosing bipolar > in children in not common. They took her off the latest SSRI (Zoloft) two > days before Christmas and put her on the mood stabilizer Seroquel and > Lorazepam to get us through the holidays (at only 65 lbs she's a walking > zombie). Our next appointment with her Psychiatrist is the 3rd and I fear > the dreaded words " let's try this next " . She's so tired of feeling sick and > has started refusing to take her medicine, feeling that they are at the root > of the problem and not her illness. I'm so tired of fighting this battle. > Everything seems so uncertain and I'm so afraid I'm making all the wrong > choices for her. The sheer terror in her eyes tonight was almost too much. > > I trust her Psychologist when she tells me Elise definitely needs medicine, > and I too have seen improvement when she's taking them. BUT, the good effect > of the SSRI only lasts briefly and than the manic behavior takes over. What > comes next after SSRI's have failed to help? What am I in for now that > they've told me we need to move beyond them? I know I will get back up and > fight again tomorrow, but for now I feel defeated. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi and (((hugs)))!! Rough road, trialing all those meds! I'm sure your daughter is sick/tired of medication right now and equally sure she wants to feel good again! *If* bipolar was triggered by an SSRI, have they not tried adding a mood stabilizer to take with the SSRI?? Believe that's what I've read in the past, that those with bipolar have to have the mood stabil if they take an SSRI. I hope one of the parents here that are dealing with both bipolar & OCD see your post. I believe it's a delicate balance at times with medication if you need to treat both. However it sounds like she only seems " bipolar-ish " when on an SSRI?? Fine otherwise?? Some people who don't respond well to SSRIs actually do great with Anafranil...and it seems there's another med too maybe but can't think of it now. OCD Foundation site lists all the medications though. Can she possibly try to go " med free " if this new combo doesn't work? (but certainly hope it does!!) I mean just a break for her and to see how she is after all meds out of her system, since you mentioned symptoms had been worsening on the SSRIs. Does she have a therapist for CBT?? Wondering if Elise might be able to try the therapy, which is the actual *best* treatment for OCD, try it without medication; though I know many need some help by a medication just to be able to begin therapy (boy, I remember when was so bad!). -- Speaking of , he's still not on medication, still not in therapy. But I asked him tonight does he *get* the concept of fighting OCD? because he doesn't like to take a shower before 9pm so I told him that he knows he really needs to take one before 9 since OCD is holding him back. He said he understands that he should take a shower before 9 and that he has before. And then he waited til a bit after 9 and took one. Well, still a " work in progress " here too! Please keep us posted, , about how Elise is doing and how the current medications turn out. And so far I can't see where you've made a " wrong choice " anywhere along the way! (((hugs))) > > > > I feel such a strong need to reach out to all of you tonight. My daughter > Elise has been on the decline for some months now. We've tried all the > SSRI's with worsening symptoms. She's experienced manic episodes and they've > intensified with every med change. I'm so afraid this could be the start of > Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). > No one wants to say it is bipolar as of yet, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 , What exactly are her symptoms of the OCD and/or manic episodes? Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 so true - try to hang in - you're doing your best - we're here for you and things will look up -no offense LT but I do have to add one note to the " listening to the professionals " part - DON'T - some are clueless and I regret that still - just our experience eileen Quoting jtlt@...: > > In a message dated 12/28/2006 8:40:13 P.M. Eastern Standard Time, > hlballard@... writes: > > I'm so tired of fighting this battle. > Everything seems so uncertain and I'm so afraid I'm making all the wrong > choices for her. > > > > > As long as your making your decisions to the best of your ability - doing > the research, listening to the professionals, etc... you can't make > the 'wrong' > decision. That's a big weight to put on yourself. No matter how severe the > situation, I think we've all felt that way at one time or another - that > perhaps we made the wrong choice somewhere along the way. You can't > lay that on > yourself. > > I have no advice for you, but I couldn't help but respond. You sound so > down. Know that I'll be thinking of you & I know many others on the > board will > send good thoughts your way as well ----- even if they don't have an answer > for you. > Take care, > LT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I have no med experience but I too was thinking what said about going med-free for a while - if you think they're part of the problem and try cbt/erp and maybe some natural forms of mood stabilizers and calmers?? eileen Quoting <@...>: > Hi and (((hugs)))!! Rough road, trialing all those meds! > I'm sure your daughter is sick/tired of medication right now and > equally sure she wants to feel good again! > > *If* bipolar was triggered by an SSRI, have they not tried adding a > mood stabilizer to take with the SSRI?? Believe that's what I've > read in the past, that those with bipolar have to have the mood > stabil if they take an SSRI. > > I hope one of the parents here that are dealing with both bipolar & > OCD see your post. I believe it's a delicate balance at times with > medication if you need to treat both. However it sounds like she > only seems " bipolar-ish " when on an SSRI?? Fine otherwise?? > > Some people who don't respond well to SSRIs actually do great with > Anafranil...and it seems there's another med too maybe but can't > think of it now. OCD Foundation site lists all the medications > though. > > Can she possibly try to go " med free " if this new combo doesn't work? > (but certainly hope it does!!) I mean just a break for her and to > see how she is after all meds out of her system, since you mentioned > symptoms had been worsening on the SSRIs. > > Does she have a therapist for CBT?? Wondering if Elise might be able > to try the therapy, which is the actual *best* treatment for OCD, try > it without medication; though I know many need some help by a > medication just to be able to begin therapy (boy, I remember when > was so bad!). -- Speaking of , he's still not on > medication, still not in therapy. But I asked him tonight does he > *get* the concept of fighting OCD? because he doesn't like to take a > shower before 9pm so I told him that he knows he really needs to take > one before 9 since OCD is holding him back. He said he understands > that he should take a shower before 9 and that he has before. And > then he waited til a bit after 9 and took one. Well, still a " work > in progress " here too! > > Please keep us posted, , about how Elise is doing and how the > current medications turn out. And so far I can't see where you've > made a " wrong choice " anywhere along the way! (((hugs))) > > > > > > >> >> >> >> I feel such a strong need to reach out to all of you tonight. My > daughter >> Elise has been on the decline for some months now. We've tried all > the >> SSRI's with worsening symptoms. She's experienced manic episodes > and they've >> intensified with every med change. I'm so afraid this could be the > start of >> Bipolar disorder (I believe the gene is sometimes activated by SSRI > drugs). >> No one wants to say it is bipolar as of yet, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hello all!! I have been following this group for many months, but never officially " joined in " by responding to any particular topic. However, when I read 's note this morning I felt so compelled to " join " !! I so empathize with each and every one of you. I have sat at my desk and cried and prayed for all of you when you are having a bad day!!! My daughter is 23 years old now, and has had SERIOUS OCD since she was 6 years old. As you can imagine, we have been through all the situations that I have read about in this group (meds, therapies, etc., etc.) so I clearly understand what you all are going through. How I wish this group was around 15+ years ago!! Even now I gain so much strength from the encouraging words and advice posted here and I would like to thank everyone for that!! I just want you all to know how amazing and blessed you are! And , just take it day by day (or minute by minute!!) and you will get through this and every challenge that comes your way. Follow your heart (and the scrutinized advice of docs!). My best wishes and prayers go out to each and every one of you as we start a new year of hope and challenge together!! Cheryl : ) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I have to add my 2 cents in here again also. There are cases where you don't listen to the professionals, as Eileen said. I have taken my daughter and son to many " professionals " psychiatric directors, etc, etc,that even though they hold a psychiatry degree, they do not have a clue! If your child has a clear cut case of ocd, than yes, heed their advice on meds and therapy, but if you have any doubt in your mind your child may have a commorbidity with the ocd, you are going to have to do ALOT of research on your own , because I'll tell you first hand these doctors DON'T know what exactly is wrong with your child. I have been to three different states,as well as umpteen doctors and therapists, universities, hospitals,neurologists, etc,. There is no CONCRETE test out there to diagnose your child , especially if bipolar is a possibility with the ocd.It is extremely difficult to diagnose in a child who already has ocd. Many of the behaviors of bipolar are also seen in ocd, like rituals, tantrums, anxiety, mood swings Many doctors cannot tell the difference. Just because the meds work, or do not work does not mean anything either, like I said in my last post about my kids. My daughter with ocd and bp has been on zoloft for 5 years. She has never gotten manic from the SSRI. My son does, but is not bipolar, only ocd. Your child will not always fit into the " norm " Hope this helps some!!!. The main thing is to do is RESEARCH, RESEARCH, RESEARCH, , Also, make sure you do your research on websites that are not bogus! There are many good books at libraries and bookstores on bipolar, which also cover commorbidities and medications.You know your child better than anyone else!!!! Hugs, and Hang in there! Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Do you believe that a bipolar illness is any worse than having OCD? I don't think so. It's tough to consider a different diagnosis. You have to go through that feeling of vulnerability that comes when you face the unknown as a parent. Try to become educated about it and see how it may fit if that makes you feel less afraid. Focus more on what works and what doesn't despite the diagnosis. No one fits a group of signs and symptoms (diagnosis) perfectly. Won't you feel better if she can get another kind of treatment and get better? I have a sister who lives with a bipolar illness. She went through a lot of hell - mostly as a teenager, but you should see her now completely off meds, married, getting her PhD!!! Hang in there. Bonnie > > > > I feel such a strong need to reach out to all of you tonight. My daughter > Elise has been on the decline for some months now. We've tried all the > SSRI's with worsening symptoms. She's experienced manic episodes and they've > intensified with every med change. I'm so afraid this could be the start of > Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). > No one wants to say it is bipolar as of yet, apparently diagnosing bipolar > in children in not common. They took her off the latest SSRI (Zoloft) two > days before Christmas and put her on the mood stabilizer Seroquel and > Lorazepam to get us through the holidays (at only 65 lbs she's a walking > zombie). Our next appointment with her Psychiatrist is the 3rd and I fear > the dreaded words " let's try this next " . She's so tired of feeling sick and > has started refusing to take her medicine, feeling that they are at the root > of the problem and not her illness. I'm so tired of fighting this battle. > Everything seems so uncertain and I'm so afraid I'm making all the wrong > choices for her. The sheer terror in her eyes tonight was almost too much. > > I trust her Psychologist when she tells me Elise definitely needs medicine, > and I too have seen improvement when she's taking them. BUT, the good effect > of the SSRI only lasts briefly and than the manic behavior takes over. What > comes next after SSRI's have failed to help? What am I in for now that > they've told me we need to move beyond them? I know I will get back up and > fight again tomorrow, but for now I feel defeated. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 _____ From: [mailto: ] On Behalf Of c ward Sent: Friday, December 29, 2006 9:17 AM Subject: Re: Moving beyond SSRI's , A lot of Elise's OCD is bad thought, which seems to be the hardest for her to control. She also has more obvious things like having to have things even or something bad with happen. Faucets have to be turned in the exact same position in relation to one another before she can brush her teeth, toilet lid has to be lifted 2 or 4 times before going to the bathroom, light switches have to all be up or all be down in a room for her to come in, she can get stuck at school if her teacher makes a gesture with one had and not the other...the list goes on and on. Evenness is very important and despair can set in if she feels things are not. Clothing is impossible.she is very tactile. The manic episodes are very different. She gets very angry and violent. She is quick to hit punch or lash out in some way without thought or provocation. We have three other children all younger than Elise and she is a danger to them. She tells us that at the time she feels nothing and it is beyond her control, she just has to hurt someone to feel better. She becomes very paranoid and withdrawn, with thoughts of not wanting to be alive. When things are not RIGHT she will quickly escalate and go into some sort of trance and scream. The worst was when she was convinced I had been replaced by and alien and was no longer her mother and I was not allowed to touch her. This resolves when off SSRI meds but the OCD and depression get worse. What exactly are her symptoms of the OCD and/or manic episodes? Ballard <hlballardadelphia (DOT) <mailto:hlballard%40adelphia.net> net> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Eileen, We have tried Med-free and things got very bad and quickly. We have used cbt/erp for a year now (her therapist is great), it's helpful but only when Elise is regulated and at the moment she is not. What are some of the natural forms of mood stabilizers and calmers you're talking about? _____ From: [mailto: ] On Behalf Of autumn71A@... Sent: Friday, December 29, 2006 9:46 AM Subject: Re: Re: Moving beyond SSRI's I have no med experience but I too was thinking what said about going med-free for a while - if you think they're part of the problem and try cbt/erp and maybe some natural forms of mood stabilizers and calmers?? eileen Quoting <@ <mailto:%40hotmail.com> hotmail.com>: > Hi and (((hugs)))!! Rough road, trialing all those meds! > I'm sure your daughter is sick/tired of medication right now and > equally sure she wants to feel good again! > > *If* bipolar was triggered by an SSRI, have they not tried adding a > mood stabilizer to take with the SSRI?? Believe that's what I've > read in the past, that those with bipolar have to have the mood > stabil if they take an SSRI. > > I hope one of the parents here that are dealing with both bipolar & > OCD see your post. I believe it's a delicate balance at times with > medication if you need to treat both. However it sounds like she > only seems " bipolar-ish " when on an SSRI?? Fine otherwise?? > > Some people who don't respond well to SSRIs actually do great with > Anafranil...and it seems there's another med too maybe but can't > think of it now. OCD Foundation site lists all the medications > though. > > Can she possibly try to go " med free " if this new combo doesn't work? > (but certainly hope it does!!) I mean just a break for her and to > see how she is after all meds out of her system, since you mentioned > symptoms had been worsening on the SSRIs. > > Does she have a therapist for CBT?? Wondering if Elise might be able > to try the therapy, which is the actual *best* treatment for OCD, try > it without medication; though I know many need some help by a > medication just to be able to begin therapy (boy, I remember when > was so bad!). -- Speaking of , he's still not on > medication, still not in therapy. But I asked him tonight does he > *get* the concept of fighting OCD? because he doesn't like to take a > shower before 9pm so I told him that he knows he really needs to take > one before 9 since OCD is holding him back. He said he understands > that he should take a shower before 9 and that he has before. And > then he waited til a bit after 9 and took one. Well, still a " work > in progress " here too! > > Please keep us posted, , about how Elise is doing and how the > current medications turn out. And so far I can't see where you've > made a " wrong choice " anywhere along the way! (((hugs))) > > > > > > >> >> >> >> I feel such a strong need to reach out to all of you tonight. My > daughter >> Elise has been on the decline for some months now. We've tried all > the >> SSRI's with worsening symptoms. She's experienced manic episodes > and they've >> intensified with every med change. I'm so afraid this could be the > start of >> Bipolar disorder (I believe the gene is sometimes activated by SSRI > drugs). >> No one wants to say it is bipolar as of yet, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 , I am so sorry you are going through this, it must be so hard. I will keep your family in my prayers and hope you get some decent help on the 3rd and that they get your daughter on the right direction with her meds. Take care, Kim M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 , You poor thing. That is alot to deal with. My son, 11, also has bad thoughts ocd, though without rituals. He is the oldest of 5 children, so I know you have alot on your plate. Trying to help the one affected and then still parent and care for your other children is a challenge that I think lots here face every day. My 7 yr old daughter, though not officially diagnosed with ocd, sounds alot like your daughter. She has bad thoughts, but also even-ness and sensory issues. She would get upset because her hair did not feel the same on both sides, blankets had to be perfect, socks, shoes tied the exact same tightness,etc. She also rages and attacks. I hope for you this new dr. can be of help. Honestly, though, my daughter's moods are greatly effected by two things ... making sure she is not hungry (I didn't realize she was affected by blood sugar, though not diabetic). Keeping food in her at pretty much all times has made a HUGE difference in her not raging and attacking. She eats up to 8 small meals a day and I always keep healthy snacks on hand. She does not eat sugar. And omega 3s (we use Coromega) helps her tremendously. She is also on other things, but I feel these make the most difference in her mood. She still does get a little moody, but she seems to have much more control and is able to remove herself or sometimes even stop. How old is your daughter? Ballard <hlballard@...> wrote: _____ From: [mailto: ] On Behalf Of c ward Sent: Friday, December 29, 2006 9:17 AM Subject: Re: Moving beyond SSRI's , A lot of Elise's OCD is bad thought, which seems to be the hardest for her to control. She also has more obvious things like having to have things even or something bad with happen. Faucets have to be turned in the exact same position in relation to one another before she can brush her teeth, toilet lid has to be lifted 2 or 4 times before going to the bathroom, light switches have to all be up or all be down in a room for her to come in, she can get stuck at school if her teacher makes a gesture with one had and not the other...the list goes on and on. Evenness is very important and despair can set in if she feels things are not. Clothing is impossible.she is very tactile. The manic episodes are very different. She gets very angry and violent. She is quick to hit punch or lash out in some way without thought or provocation. We have three other children all younger than Elise and she is a danger to them. She tells us that at the time she feels nothing and it is beyond her control, she just has to hurt someone to feel better. She becomes very paranoid and withdrawn, with thoughts of not wanting to be alive. When things are not RIGHT she will quickly escalate and go into some sort of trance and scream. The worst was when she was convinced I had been replaced by and alien and was no longer her mother and I was not allowed to touch her. This resolves when off SSRI meds but the OCD and depression get worse. What exactly are her symptoms of the OCD and/or manic episodes? Ballard <hlballardadelphia (DOT) <mailto:hlballard%40adelphia.net> net> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi , My son Tommy started taking ad/hd meds when he was 4 because behavioral interventions alone did not help him to control himself. These did make his OCD symptoms worse and we added in Prozac, which initially did activate his behavior some. Over the years (and he is now 13) he has been on 3 different SSRI's, which have only partially controlled his mood swings, Topamax, Seroquel, and now abilify, along with his AD/HD meds, and Buspar to help with anxiety that he still has, and the ever present and necessary Prozac.. He has had the benefit of a therapist who is one of out list Advisors since the age of 7. He is very very complicated, and sounds much like your daughter. My son does become violent when he is not on the correct amount/correct medication/ I hate the thought of having to change meds! If your daughter does have bipolar disorder, she may need to use an SSRI along with a mood stabilizing medication to keep her depression at bay. I have a close adult friend who was not diagnosed until well into adulthood. This person is using a combination of 3 different medications in order to keep working and leading a normal life. I caution you to really think before withdrawing all medications for your daughter. I have had some experience with " natural " remedies, my daughter and I both have been taking Inositol for anxiety lately, and it has been working. My daughter and I though have always been able to function - Tommy takes much stronger medications because his conditions render him unable to function, and he would not be able to live at home if he was not medicated. If things get out of control, even though it is a Holiday weekend, your medical professional should be contacted. After one really bad reaction to an SSRI, when our Child Adolescent Psychiatrist was not on call, I decided to NEVER make med changes unless I knew that he was available on the weekend. He has been most happy to give me this information when we are making a change. So glad you found our list and are posting. Joye in Southeastern PA Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I totally agree that meds may be completely the only thing to help. I also know it is the worst feeling in the entire world to watch your child suffer. Oh, does my heart go out to you. However, I do believe that omegas can certainly be used along with the meds to help control moods. Why not try and " boost " their effects with some natural products. in TN Joye <cjoye16@...> wrote: Hi , My son Tommy started taking ad/hd meds when he was 4 because behavioral interventions alone did not help him to control himself. These did make his OCD symptoms worse and we added in Prozac, which initially did activate his behavior some. Over the years (and he is now 13) he has been on 3 different SSRI's, which have only partially controlled his mood swings, Topamax, Seroquel, and now abilify, along with his AD/HD meds, and Buspar to help with anxiety that he still has, and the ever present and necessary Prozac.. He has had the benefit of a therapist who is one of out list Advisors since the age of 7. He is very very complicated, and sounds much like your daughter. My son does become violent when he is not on the correct amount/correct medication/ I hate the thought of having to change meds! If your daughter does have bipolar disorder, she may need to use an SSRI along with a mood stabilizing medication to keep her depression at bay. I have a close adult friend who was not diagnosed until well into adulthood. This person is using a combination of 3 different medications in order to keep working and leading a normal life. I caution you to really think before withdrawing all medications for your daughter. I have had some experience with " natural " remedies, my daughter and I both have been taking Inositol for anxiety lately, and it has been working. My daughter and I though have always been able to function - Tommy takes much stronger medications because his conditions render him unable to function, and he would not be able to live at home if he was not medicated. If things get out of control, even though it is a Holiday weekend, your medical professional should be contacted. After one really bad reaction to an SSRI, when our Child Adolescent Psychiatrist was not on call, I decided to NEVER make med changes unless I knew that he was available on the weekend. He has been most happy to give me this information when we are making a change. So glad you found our list and are posting. Joye in Southeastern PA Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 - I feel so bad for you - just reading through all the posts - I wish I had more knowledge - I mean the OCD part sounds like my 7 year old daughter - and she's really bad right now but we got rid of most of the sadness/anger that was here a couple of months ago by using Coromega and Inositol powder daily - now she's her happy self but when something " isn't right " or is " dirty " then it's real bad lately - it sounds though that you have other things going on there too - so I really don't know about the med removal?? but the other things I mentioned can be found at www.nativeremedies.com - you can click on ask an expert and explain to them all her symptoms - we were about to start Purecalm for almost instant calmness from what I've heard on here - and also a focus thing for school - but we were told not to start yet by a new psychologist who will be starting ERP finally jan 15th - Good luck and we're always here for you eileen Quoting Ballard <hlballard@...>: > Eileen, > > We have tried Med-free and things got very bad and quickly. We have used > cbt/erp for a year now (her therapist is great), it's helpful but only when > Elise is regulated and at the moment she is not. What are some of the > natural forms of mood stabilizers and calmers you're talking about? > > > > > > _____ > > From: > [mailto: ] On Behalf Of > autumn71A@... > Sent: Friday, December 29, 2006 9:46 AM > > Subject: Re: Re: Moving beyond SSRI's > > > > I have no med experience but I too was thinking what said about > going med-free for a while - if you think they're part of the problem > and try cbt/erp and maybe some natural forms of mood stabilizers and > calmers?? > eileen > > Quoting <@ <mailto:%40hotmail.com> > hotmail.com>: > >> Hi and (((hugs)))!! Rough road, trialing all those meds! >> I'm sure your daughter is sick/tired of medication right now and >> equally sure she wants to feel good again! >> >> *If* bipolar was triggered by an SSRI, have they not tried adding a >> mood stabilizer to take with the SSRI?? Believe that's what I've >> read in the past, that those with bipolar have to have the mood >> stabil if they take an SSRI. >> >> I hope one of the parents here that are dealing with both bipolar & >> OCD see your post. I believe it's a delicate balance at times with >> medication if you need to treat both. However it sounds like she >> only seems " bipolar-ish " when on an SSRI?? Fine otherwise?? >> >> Some people who don't respond well to SSRIs actually do great with >> Anafranil...and it seems there's another med too maybe but can't >> think of it now. OCD Foundation site lists all the medications >> though. >> >> Can she possibly try to go " med free " if this new combo doesn't work? >> (but certainly hope it does!!) I mean just a break for her and to >> see how she is after all meds out of her system, since you mentioned >> symptoms had been worsening on the SSRIs. >> >> Does she have a therapist for CBT?? Wondering if Elise might be able >> to try the therapy, which is the actual *best* treatment for OCD, try >> it without medication; though I know many need some help by a >> medication just to be able to begin therapy (boy, I remember when >> was so bad!). -- Speaking of , he's still not on >> medication, still not in therapy. But I asked him tonight does he >> *get* the concept of fighting OCD? because he doesn't like to take a >> shower before 9pm so I told him that he knows he really needs to take >> one before 9 since OCD is holding him back. He said he understands >> that he should take a shower before 9 and that he has before. And >> then he waited til a bit after 9 and took one. Well, still a " work >> in progress " here too! >> >> Please keep us posted, , about how Elise is doing and how the >> current medications turn out. And so far I can't see where you've >> made a " wrong choice " anywhere along the way! (((hugs))) >> >> >> >> >> >> >>> >>> >>> >>> I feel such a strong need to reach out to all of you tonight. My >> daughter >>> Elise has been on the decline for some months now. We've tried all >> the >>> SSRI's with worsening symptoms. She's experienced manic episodes >> and they've >>> intensified with every med change. I'm so afraid this could be the >> start of >>> Bipolar disorder (I believe the gene is sometimes activated by SSRI >> drugs). >>> No one wants to say it is bipolar as of yet, >> >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 thanks Cheryl a happy healthy to you and yours as well - glad you posted eileen > Hello all!! I have been following this group for many months, but > never officially " joined in " by responding to any particular topic. > However, when I read 's note this morning I felt so compelled > to " join " !! I so empathize with each and every one of you. I have > sat at my desk and cried and prayed for all of you when you are > having a bad day!!! My daughter is 23 years old now, and has had > SERIOUS OCD since she was 6 years old. As you can imagine, we have > been through all the situations that I have read about in this group > (meds, therapies, etc., etc.) so I clearly understand what you all > are going through. How I wish this group was around 15+ years ago!! > Even now I gain so much strength from the encouraging words and > advice posted here and I would like to thank everyone for that!! I > just want you all to know how amazing and blessed you are! And > , just take it day by day (or minute by minute!!) and you > will get through this and every challenge that comes your > way. Follow your heart (and the scrutinized advice of docs!). My > best wishes and prayers go out to each and every one of you as we > start a new year of hope and challenge together!! Cheryl : ) > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 , I do agree that use of natural products may sometimes help our kids, I do also strongly caution their use with medications, and also when a child is struggling to the point that describes. None of the Natural remedies are regulated, and the amount of active ingredients can vary from batch to batch. Sometimes the inert ingredients affect our kids in ways they might not affect the general population. Also there is danger is drug interaction, and also with Serotonin Syndrome, which coulkd happen easily if a child is receiving too much Serotonin from several sources. While being conservative and only adding one medication in at a time is difficult, it is still the best way to go when treating our complicated kids. Adding in natural products can cloud or mask what the other meds are doing/not doing, causing a scenario where one may not know what is working for the child and what is not. Joye in Southeastern PA c ward <cward_ri@...> wrote: I totally agree that meds may be completely the only thing to help. I also know it is the worst feeling in the entire world to watch your child suffer. Oh, does my heart go out to you. However, I do believe that omegas can certainly be used along with the meds to help control moods. Why not try and " boost " their effects with some natural products. in TN Joye <cjoye16@...> wrote: Hi , My son Tommy started taking ad/hd meds when he was 4 because behavioral interventions alone did not help him to control himself. These did make his OCD symptoms worse and we added in Prozac, which initially did activate his behavior some. Over the years (and he is now 13) he has been on 3 different SSRI's, which have only partially controlled his mood swings, Topamax, Seroquel, and now abilify, along with his AD/HD meds, and Buspar to help with anxiety that he still has, and the ever present and necessary Prozac.. He has had the benefit of a therapist who is one of out list Advisors since the age of 7. He is very very complicated, and sounds much like your daughter. My son does become violent when he is not on the correct amount/correct medication/ I hate the thought of having to change meds! If your daughter does have bipolar disorder, she may need to use an SSRI along with a mood stabilizing medication to keep her depression at bay. I have a close adult friend who was not diagnosed until well into adulthood. This person is using a combination of 3 different medications in order to keep working and leading a normal life. I caution you to really think before withdrawing all medications for your daughter. I have had some experience with " natural " remedies, my daughter and I both have been taking Inositol for anxiety lately, and it has been working. My daughter and I though have always been able to function - Tommy takes much stronger medications because his conditions render him unable to function, and he would not be able to live at home if he was not medicated. If things get out of control, even though it is a Holiday weekend, your medical professional should be contacted. After one really bad reaction to an SSRI, when our Child Adolescent Psychiatrist was not on call, I decided to NEVER make med changes unless I knew that he was available on the weekend. He has been most happy to give me this information when we are making a change. So glad you found our list and are posting. Joye in Southeastern PA Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 I certainly do see your point. It is best to know what meds are effecting a child in what way - and then possibly go from there. However, I am a firm believer in once a med is set as part of a drug regiment, supplementing with vitamins (not necessarily homeopathic remedies) in areas in which there may be a deficiency. So I guess what I am saying is in building up the body's own natural system in addition to masking the effects of the ocd. However, I certainly do agree with you that it is best to take things slow and certainly under the direction of a qualified medical professional. Joye <cjoye16@...> wrote: , I do agree that use of natural products may sometimes help our kids, I do also strongly caution their use with medications, and also when a child is struggling to the point that describes. None of the Natural remedies are regulated, and the amount of active ingredients can vary from batch to batch. Sometimes the inert ingredients affect our kids in ways they might not affect the general population. Also there is danger is drug interaction, and also with Serotonin Syndrome, which coulkd happen easily if a child is receiving too much Serotonin from several sources. While being conservative and only adding one medication in at a time is difficult, it is still the best way to go when treating our complicated kids. Adding in natural products can cloud or mask what the other meds are doing/not doing, causing a scenario where one may not know what is working for the child and what is not. Joye in Southeastern PA c ward <cward_ri@...> wrote: I totally agree that meds may be completely the only thing to help. I also know it is the worst feeling in the entire world to watch your child suffer. Oh, does my heart go out to you. However, I do believe that omegas can certainly be used along with the meds to help control moods. Why not try and " boost " their effects with some natural products. in TN Joye <cjoye16@...> wrote: Hi , My son Tommy started taking ad/hd meds when he was 4 because behavioral interventions alone did not help him to control himself. These did make his OCD symptoms worse and we added in Prozac, which initially did activate his behavior some. Over the years (and he is now 13) he has been on 3 different SSRI's, which have only partially controlled his mood swings, Topamax, Seroquel, and now abilify, along with his AD/HD meds, and Buspar to help with anxiety that he still has, and the ever present and necessary Prozac.. He has had the benefit of a therapist who is one of out list Advisors since the age of 7. He is very very complicated, and sounds much like your daughter. My son does become violent when he is not on the correct amount/correct medication/ I hate the thought of having to change meds! If your daughter does have bipolar disorder, she may need to use an SSRI along with a mood stabilizing medication to keep her depression at bay. I have a close adult friend who was not diagnosed until well into adulthood. This person is using a combination of 3 different medications in order to keep working and leading a normal life. I caution you to really think before withdrawing all medications for your daughter. I have had some experience with " natural " remedies, my daughter and I both have been taking Inositol for anxiety lately, and it has been working. My daughter and I though have always been able to function - Tommy takes much stronger medications because his conditions render him unable to function, and he would not be able to live at home if he was not medicated. If things get out of control, even though it is a Holiday weekend, your medical professional should be contacted. After one really bad reaction to an SSRI, when our Child Adolescent Psychiatrist was not on call, I decided to NEVER make med changes unless I knew that he was available on the weekend. He has been most happy to give me this information when we are making a change. So glad you found our list and are posting. Joye in Southeastern PA Ballard <hlballard@...> wrote: I feel such a strong need to reach out to all of you tonight. My daughter Elise has been on the decline for some months now. We've tried all the SSRI's with worsening symptoms. She's experienced manic episodes and they've intensified with every med change. I'm so afraid this could be the start of Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). No one wants to say it is bipolar as of yet, apparently diagnosing bipolar in children in not common. They took her off the latest SSRI (Zoloft) two days before Christmas and put her on the mood stabilizer Seroquel and Lorazepam to get us through the holidays (at only 65 lbs she's a walking zombie). Our next appointment with her Psychiatrist is the 3rd and I fear the dreaded words " let's try this next " . She's so tired of feeling sick and has started refusing to take her medicine, feeling that they are at the root of the problem and not her illness. I'm so tired of fighting this battle. Everything seems so uncertain and I'm so afraid I'm making all the wrong choices for her. The sheer terror in her eyes tonight was almost too much. I trust her Psychologist when she tells me Elise definitely needs medicine, and I too have seen improvement when she's taking them. BUT, the good effect of the SSRI only lasts briefly and than the manic behavior takes over. What comes next after SSRI's have failed to help? What am I in for now that they've told me we need to move beyond them? I know I will get back up and fight again tomorrow, but for now I feel defeated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 I hadn't realized that about each batch being different - also they told me it was fine to keep using inositol and add other things in pure calm etc- I wonder if they know about seratonin syndrome - i will ask and get back - thanks eileen Quoting Joye <cjoye16@...>: > , > > I do agree that use of natural products may sometimes help our > kids, I do also strongly caution their use with medications, and > also when a child is struggling to the point that describes. > > None of the Natural remedies are regulated, and the amount of > active ingredients can vary from batch to batch. Sometimes the > inert ingredients affect our kids in ways they might not affect the > general population. Also there is danger is drug interaction, and > also with Serotonin Syndrome, which coulkd happen easily if a child > is receiving too much Serotonin from several sources. > > While being conservative and only adding one medication in at a > time is difficult, it is still the best way to go when treating our > complicated kids. Adding in natural products can cloud or mask what > the other meds are doing/not doing, causing a scenario where one > may not know what is working for the child and what is not. > > Joye in Southeastern PA > > c ward <cward_ri@...> wrote: > I totally agree that meds may be completely the only thing > to help. I also know it is the worst feeling in the entire world to > watch your child suffer. Oh, does my heart go out to you. However, > I do believe that omegas can certainly be used along with the meds > to help control moods. Why not try and " boost " their effects with > some natural products. > in TN > > Joye <cjoye16@...> wrote: > Hi , > > My son Tommy started taking ad/hd meds when he was 4 because > behavioral interventions alone did not help him to control himself. > These did make his OCD symptoms worse and we added in Prozac, which > initially did activate his behavior some. Over the years (and he is > now 13) he has been on 3 different SSRI's, which have only partially > controlled his mood swings, Topamax, Seroquel, and now abilify, > along with his AD/HD meds, and Buspar to help with anxiety that he > still has, and the ever present and necessary Prozac.. He has had > the benefit of a therapist who is one of out list Advisors since the > age of 7. He is very very complicated, and sounds much like your > daughter. My son does become violent when he is not on the correct > amount/correct medication/ I hate the thought of having to change > meds! > > If your daughter does have bipolar disorder, she may need to use an > SSRI along with a mood stabilizing medication to keep her depression > at bay. I have a close adult friend who was not diagnosed until > well into adulthood. This person is using a combination of 3 > different medications in order to keep working and leading a normal > life. > > I caution you to really think before withdrawing all medications for > your daughter. I have had some experience with " natural " remedies, > my daughter and I both have been taking Inositol for anxiety > lately, and it has been working. My daughter and I though have > always been able to function - Tommy takes much stronger > medications because his conditions render him unable to function, > and he would not be able to live at home if he was not medicated. > > If things get out of control, even though it is a Holiday weekend, > your medical professional should be contacted. After one really bad > reaction to an SSRI, when our Child Adolescent Psychiatrist was not > on call, I decided to NEVER make med changes unless I knew that he > was available on the weekend. He has been most happy to give me this > information when we are making a change. > > So glad you found our list and are posting. > > Joye in Southeastern PA > > Ballard <hlballard@...> wrote: > > I feel such a strong need to reach out to all of you tonight. My daughter > Elise has been on the decline for some months now. We've tried all the > SSRI's with worsening symptoms. She's experienced manic episodes and they've > intensified with every med change. I'm so afraid this could be the start of > Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). > No one wants to say it is bipolar as of yet, apparently diagnosing bipolar > in children in not common. They took her off the latest SSRI (Zoloft) two > days before Christmas and put her on the mood stabilizer Seroquel and > Lorazepam to get us through the holidays (at only 65 lbs she's a walking > zombie). Our next appointment with her Psychiatrist is the 3rd and I fear > the dreaded words " let's try this next " . She's so tired of feeling sick and > has started refusing to take her medicine, feeling that they are at the root > of the problem and not her illness. I'm so tired of fighting this battle. > Everything seems so uncertain and I'm so afraid I'm making all the wrong > choices for her. The sheer terror in her eyes tonight was almost too much. > > I trust her Psychologist when she tells me Elise definitely needs medicine, > and I too have seen improvement when she's taking them. BUT, the good effect > of the SSRI only lasts briefly and than the manic behavior takes over. What > comes next after SSRI's have failed to help? What am I in for now that > they've told me we need to move beyond them? I know I will get back up and > fight again tomorrow, but for now I feel defeated. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 just did a search of seratonin syndrome recognition and management - interesting info for any interested -also mentions giving more than 2 weeks in between switching ones - I have no med experience but just in case docs try switching too soon etc thought some may benefit from reading this also they don't mention that inositol would be considered one but it does affect seratonin levels as well as other natural items - just more to think about - uuugghhh!!!!! happy new year all!!!! eileen Quoting c ward <cward_ri@...>: > I certainly do see your point. It is best to know what meds are > effecting a child in what way - and then possibly go from there. > However, I am a firm believer in once a med is set as part of a drug > regiment, supplementing with vitamins (not necessarily homeopathic > remedies) in areas in which there may be a deficiency. So I guess > what I am saying is in building up the body's own natural system in > addition to masking the effects of the ocd. However, I certainly do > agree with you that it is best to take things slow and certainly > under the direction of a qualified medical professional. > > > > > > Joye <cjoye16@...> wrote: > , > > I do agree that use of natural products may sometimes help our kids, > I do also strongly caution their use with medications, and also > when a child is struggling to the point that describes. > > None of the Natural remedies are regulated, and the amount of active > ingredients can vary from batch to batch. Sometimes the inert > ingredients affect our kids in ways they might not affect the > general population. Also there is danger is drug interaction, and > also with Serotonin Syndrome, which coulkd happen easily if a child > is receiving too much Serotonin from several sources. > > While being conservative and only adding one medication in at a time > is difficult, it is still the best way to go when treating our > complicated kids. Adding in natural products can cloud or mask what > the other meds are doing/not doing, causing a scenario where one may > not know what is working for the child and what is not. > > Joye in Southeastern PA > > c ward <cward_ri@...> wrote: > I totally agree that meds may be completely the only thing to help. > I also know it is the worst feeling in the entire world to watch > your child suffer. Oh, does my heart go out to you. However, I do > believe that omegas can certainly be used along with the meds to > help control moods. Why not try and " boost " their effects with some > natural products. > in TN > > Joye <cjoye16@...> wrote: > Hi , > > My son Tommy started taking ad/hd meds when he was 4 because > behavioral interventions alone did not help him to control himself. > These did make his OCD symptoms worse and we added in Prozac, which > initially did activate his behavior some. Over the years (and he is > now 13) he has been on 3 different SSRI's, which have only partially > controlled his mood swings, Topamax, Seroquel, and now abilify, > along with his AD/HD meds, and Buspar to help with anxiety that he > still has, and the ever present and necessary Prozac.. He has had > the benefit of a therapist who is one of out list Advisors since the > age of 7. He is very very complicated, and sounds much like your > daughter. My son does become violent when he is not on the correct > amount/correct medication/ I hate the thought of having to change > meds! > > If your daughter does have bipolar disorder, she may need to use an > SSRI along with a mood stabilizing medication to keep her depression > at bay. I have a close adult friend who was not diagnosed until > well into adulthood. This person is using a combination of 3 > different medications in order to keep working and leading a normal > life. > > I caution you to really think before withdrawing all medications for > your daughter. I have had some experience with " natural " remedies, > my daughter and I both have been taking Inositol for anxiety > lately, and it has been working. My daughter and I though have > always been able to function - Tommy takes much stronger > medications because his conditions render him unable to function, > and he would not be able to live at home if he was not medicated. > > If things get out of control, even though it is a Holiday weekend, > your medical professional should be contacted. After one really bad > reaction to an SSRI, when our Child Adolescent Psychiatrist was not > on call, I decided to NEVER make med changes unless I knew that he > was available on the weekend. He has been most happy to give me this > information when we are making a change. > > So glad you found our list and are posting. > > Joye in Southeastern PA > > Ballard <hlballard@...> wrote: > > I feel such a strong need to reach out to all of you tonight. My daughter > Elise has been on the decline for some months now. We've tried all the > SSRI's with worsening symptoms. She's experienced manic episodes and they've > intensified with every med change. I'm so afraid this could be the start of > Bipolar disorder (I believe the gene is sometimes activated by SSRI drugs). > No one wants to say it is bipolar as of yet, apparently diagnosing bipolar > in children in not common. They took her off the latest SSRI (Zoloft) two > days before Christmas and put her on the mood stabilizer Seroquel and > Lorazepam to get us through the holidays (at only 65 lbs she's a walking > zombie). Our next appointment with her Psychiatrist is the 3rd and I fear > the dreaded words " let's try this next " . She's so tired of feeling sick and > has started refusing to take her medicine, feeling that they are at the root > of the problem and not her illness. I'm so tired of fighting this battle. > Everything seems so uncertain and I'm so afraid I'm making all the wrong > choices for her. The sheer terror in her eyes tonight was almost too much. > > I trust her Psychologist when she tells me Elise definitely needs medicine, > and I too have seen improvement when she's taking them. BUT, the good effect > of the SSRI only lasts briefly and than the manic behavior takes over. What > comes next after SSRI's have failed to help? What am I in for now that > they've told me we need to move beyond them? I know I will get back up and > fight again tomorrow, but for now I feel defeated. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Hi , my dd is younger but has similiar problems and her behavior is not controllable without proper medication. She can't be on a SSRI alone, she needs a mood stabilizer in addition. But it is not easy to find the right combination and it is likely that we will have to switch meds which is always a pain ! If your dd refuses to take the meds and she needs them please call the prescriber - I know from my dd when she is without meds things escalate quickly. I hope things will get calm down a bit for all of us in 2007 ! sabine Quote Link to comment Share on other sites More sharing options...
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