Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 Dear , It was so nice to hear how smoothly (?!) everything is going right now! I'm glad staying with your relatives is working out so well! Hang in there with the move and continue to feel good! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 It took about 2 years for her to heal and she is now a different child. , Did it take two years for her to get stamina back?? Bri is still struggling with this. He's been out of school for almost a month and has barely moved off the couch!! Not like him at all. I usually have to hold him down--even after surgery!! We're at the year and a half marker. Also, I can't remember if I posted about the fungal sinus Doc. had a sinus infection that lasted for 3 months. Last Monday, he went to the Medical School (OHSU) Sinus Division. There, it was determined that he does not have fungal sinus infection. But the Doc who saw him was an absolute expert in any and all sinus infections--not just fungal. I quizzed her quite a bit and we seem to be on the same page regarding treatment. So, we will go back in three months. Also, if he has another infection, she wants to see him. She has started him on nasal lavage--and because she was very pretty he is happily rinsing out his sinuses!!! LOL, at least there is an upside to having a teenage boy. Therefore, his Immuno has no choice but to keep him on the IVIG. As my friend Diane said, I never thought I'd be happy for a sinus infection. So, hoping he will recharge his batteries and maybe even go to school full time in the fall! Sandi, Mom to , CVID, age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 ) I know that I sound like a broken record but have you considered SCIG? It might prevent that awful bone tired stuff that kicks in after the 7th or so day of IVIG. Take care, mom to CVIDer Rebekah has a port, so we haven't been rushing to SCIG. When the port goes, that's what I'd like to do. Her immuno said she might not have enough fatty tissue to tolerate SCIG. We'll see when the time comes. She's had a port for almost four years now and I hope it keeps working for awhile yet! But, it would be nice to put the fatigue issue behind us! Pam Mom to 4 Rebekah, 6, CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 , I know how you feel about the job situation. I was asked to step down a few months ago after being with the company for six years. They have kept me on in a very small capacity (4 hours per week or less). I agreed to that for the little bit of money that brings in, I'm not sure I can get another job at this point, since I know I need so much time off. I hope you are able to work things out with your job! Hang in there! Take care, Mom to Conner (12, unknown combined immune deficiency, lymphadenopathy, asthma, Hashimoto's disease and resolved adrenal insufficiency), Hayden (12, unknown immune deficiency, IBS and moderate hearing loss/aided), Evan (12, unknown immune deficiency, asthma and mild hearing loss/unaided), and Kelsey - (10, unknown immune deficiency and asthma) Quote Link to comment Share on other sites More sharing options...
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