Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hey, I am still here also, just kind of lurking in the back ground. I guess that I better tell all what my thoughts have been. I have been thinking of leaving the group because I most likely don't have stills and I feel that I really don't contribute enough to really help. All I do is complain and whine. This past week has been the worst emotional week that I have had in a few yrs. When I get like this I don't always think clearly. I want to say hey to all the newbies and good luck, be patient and it does get better. I know for a fact now that it is possible to bounce back and have more good days then bad. As far as the letter to Superman, I too am appalled that someone would stoop that low, come on....making someone feel bad because they feel good...I'll tell you what, that's an all time low. I am afraid to post anything positive and to share how well I am doing considering all that I've been through. I do see a light at the end of the tunnel and I do believe in remissions. Please don't go Superman/, you are a positive force for the majority of this group and we need that, in fact we need more positive reinforcement from others who have been there and done that. I hope that everyone has a great weekend, *Ann: have a wonderful trip, don't wear yourself out to much and rest whenever possible. *To all who have the vivid dreams: BOO, no just kidding....Thanks to all who have thought about me and who have called me, yes I have been ignoring the phone and sleeping most of the time. I get to pick up my kittys ashes this morning, and now hopefully I can bring closure to this long nightmare. Sincerely, Lorie in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 ((((((((( Lorie)))))))........don't go...but do rest.....we need you...I am soo sorry about your kitty.....I know how horrible that is....Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Please don't go Lorie.. Even if you don't have Still's you are still a part of this family. You mean a lot to people here and I am one of them. I really enjoyed the chat the other night. I really hope you decide to stay, you are a great person. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Lorie, please don't think that people don't want you here because you haven't been diagnosed with Stills yet or that you might not have it at all. I don't have Stills and have been on this groups for 3 or 4 years, I've stopped counting, lol. I have a couple things in common with them though such as the same types of medication, fact that it's an autoimmune disease (rheumatoid arthritis & Stills), I also suffer from Fibromyalgia as do most here, etc. I'm sure there is something that you can contribute to the group if even just to show your support and to be there for us when we are feeling down and need to whine. Are you on any of the medications that we are? If so then there is the other reason for you to stay. So many reasons to stay, no reason for you to go...... Take care and stop lurking!! We want to hear from you Lorie <smile>. Marilyn mhogg69@... ----Original Message Follows---- From: tabbarose@... Reply-Stillsdisease Stillsdisease Subject: Re: I'm here too-Lorie Date: Sat, 17 May 2003 09:25:35 EDT Hey, I am still here also, just kind of lurking in the back ground. I guess that I better tell all what my thoughts have been. I have been thinking of leaving the group because I most likely don't have stills and I feel that I really don't contribute enough to really help. All I do is complain and whine. This past week has been the worst emotional week that I have had in a few yrs. When I get like this I don't always think clearly. Sincerely, Lorie in Seattle _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Kathy I have been out all day and didn't get a chance to reply this morning about IM. I guess I should have written this week along with your posts to Caroline that we must be careful in how we say things. I too have felt that she is crossing rules of conduct and have been reading every message from her carefully. Bob and I personally talked a bit of our concerns and he said he was watching closely as I said myself. Would it make it better if I did write publicly about the issues we are concerned about at hand? I do not want to have you gone. You are very important here because you have knowledge that you share with whomever needs. It's alright that it's not always in the public forum and I think one on one often is better for a person to feel cared about and heard. But I do appreciate your tact and ability to clearly state what you feel when you do. Let me tell you a bit about my week. My internet provider gave me wrong information when I moved last month and as a result I was hit with a $589.55 bill on Thursday. And there will be more to come for another 11 days before I knew. I have had a rough and depressing week but trying all my best to keep a level head. This is part of the reason I didn't respond publicly to support you. I should have. I'm sorry I didn't. Another tough part is getting the Board to reply to anything as a whole entity. But that is not your problem and shouldn't affect the was the sight is looked over. I will attach the inclusive list of Board Members and I do believe their addresses are at the International Site. Please don't leave Kathi. You are important to me!! And I am very sure others as well. The Board members names follow: & Carole Himes / Jay / Beth Gilleland / Brent Rice / Joyce Irvin / Kate brawner / Kathleen Brown / Louise Darlington / L. Boerner / Kufahl Sincerley, Patty Re: I'm here too-Lorie > Please don't go Lorie.. Even if you don't have Still's you are still a part > of this family. You mean a lot to people here and I am one of them. I > really enjoyed the chat the other night. I really hope you decide to stay, > you are a great person. Kelley in Colorado > > > Quote Link to comment Share on other sites More sharing options...
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