Chelsea - Extra Prayers needed PLEASE

[Guest guest]

Hi everyone,

I wanted to let the group know that Chelsea has had another anaphalatic (sp??)

reaction today not to SCIG but to a new antibiotic she has been on for over 2

1/2 weeks (CIPRO) for double ear infection. At around 5:30 am she was having

shortness of breath and thought she was just dreaming so when I went to wake her

for school at 6:15 she looked at me and struggled to tell me she could not

breathe. I called 911 and they rushed her to the hospital near my house and was

then transferred to her normal hospital where her Ped/ID doc is and was placed

in Ped ICU until this evening when they moved her to a regular floor on

Pediatrics.

Chelsea is so brave and an AWSOME patient but I can see in her eyes she is tired

of it all. The ID doc confirmed that the ear infection is still not clear so

they started Chelsea on Gentimican and one other IV antibiotic which means a few

more days in the hospital so I know she is not happy about that. I think I just

needed some extra support and thought were better to get it than from my PEDPID

family.

Marlo

Mom to Chelsea (11) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

[Guest guest]

Marlo,

my thoughts and prayers and with you and Chelsea...the anaphalatic rxn had to be

frightening! Hopefully the Gentamiacin and other antibiotic will work without

side effects and she will be able to return home. Please let her know others

are thinking about her. And please keep us updated about her progress.

mom to , 16, CVID, chronic migraines, suspected autoimmune dis.

MarloDarr@... wrote: Hi everyone,

I wanted to let the group know that Chelsea has had another anaphalatic (sp??)

reaction today not to SCIG but to a new antibiotic she has been on for over 2

1/2 weeks (CIPRO) for double ear infection. At around 5:30 am she was having

shortness of breath and thought she was just dreaming so when I went to wake her

for school at 6:15 she looked at me and struggled to tell me she could not

breathe. I called 911 and they rushed her to the hospital near my house and was

then transferred to her normal hospital where her Ped/ID doc is and was placed

in Ped ICU until this evening when they moved her to a regular floor on

Pediatrics.

Chelsea is so brave and an AWSOME patient but I can see in her eyes she is

tired of it all. The ID doc confirmed that the ear infection is still not clear

so they started Chelsea on Gentimican and one other IV antibiotic which means a

few more days in the hospital so I know she is not happy about that. I think I

just needed some extra support and thought were better to get it than from my

PEDPID family.

Marlo

Mom to Chelsea (11) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

[Guest guest]

Marlo,

I'll be praying for you and your dd. How totally frightening!!!!

Pam

mom to 4

Rebekah, 6, CVID and ??

Chelsea is so brave and an AWSOME patient but I can see in her eyes she is

tired of it all. The ID doc confirmed that the ear infection is still not

clear so they started Chelsea on Gentimican and one other IV antibiotic

which means a few more days in the hospital so I know she is not happy about

that. I think I just needed some extra support and thought were better to

get it than from my PEDPID family.

[Guest guest]

Chelsea and your whole family are in our thoughts and prayers.

Hugs...Pam

Tim cvid age 16

[Guest guest]

you are so WONDERFUL. Where are you located? Are you local to me?

(Simi Valley) Chelsea and I would love to meet you.....

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

Marlo,

I am thinking about you and Chelsea and sending good wishes.

I would be happy to send or drop off something to the nurses station for

Chelsea if you wish. Soccer balloons = ) Please let me know what I can do.

[Guest guest]

Praying here also...Hang in there.\

RE: Chelsea - Extra Prayers needed PLEASE

Marlo,

I'll be praying for you and your dd. How totally frightening!!!!

Pam

mom to 4

Rebekah, 6, CVID and ??

Chelsea is so brave and an AWSOME patient but I can see in her eyes she

is tired of it all. The ID doc confirmed that the ear infection is

still not clear so they started Chelsea on Gentimican and one other IV

antibiotic which means a few more days in the hospital so I know she is

not happy about that. I think I just needed some extra support and

thought were better to get it than from my PEDPID family.

This forum is open to parents and caregivers of children diagnosed with

a Primary Immune Deficiency. Opinions or medical advice stated here are

the sole responsibility of the poster and should not be taken as

professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

Marlo -

You are too kind. We are in SCV. I may try to attend the SQ conference at

UCLA next weekend -- I am sure we will cross paths at some point. Actually, it

is possible that I met you in San Diego a few months ago...

I hope that Chelsea is able to go home soon -- at which point you will

probably become our resident expert on autoimmune disease. I may ask you some

questions...

Thinking of you guys.

[Guest guest]

That is so cool that you are so close to us. We are not sure if we are

attending the UCLA day as it is a conflict with our schedule. I am heading to

the Hospial now to have breakfast with Chelsea and hopefully get her discharged

before her next antibiotic dose. Our Home Health nurse is coming today to show

me how to infuse her antibiotics here at home.

We were at the NICE weekend in Carlsbad I was with my Mom and Chelsea was the

one who got the Black eye playing in the pool. :-0) My little Bruiser.....

Take Care,

Marlo

Mom to Chelsea (10) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

Marlo -

You are too kind. We are in SCV. I may try to attend the SQ conference at

UCLA next weekend -- I am sure we will cross paths at some point. Actually, it

is possible that I met you in San Diego a few months ago...

I hope that Chelsea is able to go home soon -- at which point you will

probably become our resident expert on autoimmune disease. I may ask you some

questions...

Thinking of you guys.

[Guest guest]

,

what is the SQ conference at UCLA? Is that the " Nice Day " event? I have been

trying to obtain info on it...

mom to CVIDer

Schulman <dietdoc@...> wrote: Marlo -

You are too kind. We are in SCV. I may try to attend the SQ conference at

UCLA next weekend -- I am sure we will cross paths at some point. Actually, it

is possible that I met you in San Diego a few months ago...

I hope that Chelsea is able to go home soon -- at which point you will

probably become our resident expert on autoimmune disease. I may ask you some

questions...

Thinking of you guys.

[Guest guest]

In a message dated 6/1/2006 10:04:13 PM Pacific Daylight Time,

MarloDarr@... writes:

The ID doc confirmed that the ear infection is still not clear so they

started Chelsea on Gentimican and one other IV antibiotic which means a few more

days in the hospital so I know she is not happy about that. I think I just

needed some extra support and thought were better to get it than from my PEDPID

family.

____________________________________________________________________________

Marlo,

I'm sorry Chelsea is struggling and was in the hospital. Is she home yet?

Sandi, Mom to --age 13--CVID

[Guest guest]

Hi, Marlo.

I hope that you were able to take Chelsea home today and that her IV abx

treatment goes smoothly.

Thinking of you guys! We'll see you when we see you. = )

mom to CVIDer - Dani

[Guest guest]

Hi, Marlo.

I hope that you were able to take Chelsea home today and that her IV abx

treatment goes smoothly.

Thinking of you guys! We'll see you when we see you. = )

mom to CVIDer - Dani

[Guest guest]

Hi ,

Yes we are home YEAH!!! We have just begain our second dose of IV Antibiotics

and it is too easy. I am so relieved. Chelsea is still pretty tired and her

gut has been doing a number on her but the Mylanta seems to be working. The

PICC line is giving her a bit of pain due to all the brusing

My husband and I are thinking about keeping her our of school while she has the

PICC line I am so afraid of her getting any additional infections. I hope I am

not being to paranoid. I will meet with the Principal tomorrow and I think our

IEP meeting is this week too.

Thank you for support it really helped both Chelsea and I to get through this

very difficult time.

Take Care,

Marlo

Mom to Chelsea (10) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

Hi, Marlo.

I hope that you were able to take Chelsea home today and that her IV abx

treatment goes smoothly.

Thinking of you guys! We'll see you when we see you. = )

mom to CVIDer - Dani

[Guest guest]

Hi Sandi,

Yes Chelsea is home and we are so relieved this ordeal is past us. How is

doing?

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

In a message dated 6/1/2006 10:04:13 PM Pacific Daylight Time,

MarloDarr@... writes:

The ID doc confirmed that the ear infection is still not clear so they

started Chelsea on Gentimican and one other IV antibiotic which means a few more

days in the hospital so I know she is not happy about that. I think I just

needed some extra support and thought were better to get it than from my PEDPID

family.

____________________________________________________________________________

Marlo,

I'm sorry Chelsea is struggling and was in the hospital. Is she home yet?

Sandi, Mom to --age 13--CVID

[Guest guest]

In a message dated 6/4/2006 8:37:39 PM Pacific Daylight Time,

MarloDarr@... writes:

Yes Chelsea is home and we are so relieved this ordeal is past us. How is

doing?

______________________________________________________________________________

_

Marlo,

There is nothing quite like getting home from the hospital. I am rejoicing

with you!! Bri is about the same--I am trying to get him to see the Doc at

the medical school who specializes in fungal sinus infections. So far, that is

like getting an appointment with the President.

There are only two more weeks of school, so I'm anticipating him being able

to rest as much as he needs. I'm sure Chelsea is going to be doing the

same--hopefully you, too!!

Sandi, Mom to --age 13--CVID

[Guest guest]

Sandi,

I hope gets into the specialist sooner than later. I have decided to keep

Chelsea home although her School nurse has taken care of kids with Ports and

PICC lines before, I think Chelsea just needs some more rest. Keep us posted on

's appt with the specialist.

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

In a message dated 6/4/2006 8:37:39 PM Pacific Daylight Time,

MarloDarr@... writes:

Yes Chelsea is home and we are so relieved this ordeal is past us. How is

doing?

______________________________________________________________________________

_

Marlo,

There is nothing quite like getting home from the hospital. I am rejoicing

with you!! Bri is about the same--I am trying to get him to see the Doc at

the medical school who specializes in fungal sinus infections. So far, that is

like getting an appointment with the President.

There are only two more weeks of school, so I'm anticipating him being able

to rest as much as he needs. I'm sure Chelsea is going to be doing the

same--hopefully you, too!!

Sandi, Mom to --age 13--CVID

[Guest guest]

Thank you Sue.....

Marlo

&

Chelsea (10) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)

Re: Chelsea - Extra Prayers needed PLEASE

Marlo-

prayers are being sent your way-

tell Chelsea that I think that she is a brave girl and we are thinking of her-

Sue Petrelli Mom to 14 year old w CVID

Illinois

MarloDarr@... wrote:

Hi everyone,

I wanted to let the group know that Chelsea has had another anaphalatic (sp??)

reaction today not to SCIG but to a new antibiotic she has been on for over 2

1/2 weeks (CIPRO) for double ear infection. At around 5:30 am she was having

shortness of breath and thought she was just dreaming so when I went to wake her

for school at 6:15 she looked at me and struggled to tell me she could not

breathe. I called 911 and they rushed her to the hospital near my house and was

then transferred to her normal hospital where her Ped/ID doc is and was placed

in Ped ICU until this evening when they moved her to a regular floor on

Pediatrics.

Chelsea is so brave and an AWSOME patient but I can see in her eyes she is tired

of it all. The ID doc confirmed that the ear infection is still not clear so

they started Chelsea on Gentimican and one other IV antibiotic which means a few

more days in the hospital so I know she is not happy about that. I think I just

needed some extra support and thought were better to get it than from my PEDPID

family.

Marlo

Mom to Chelsea (11) CVID

Marlo

Independent Jewelry Consultant

Cookie Lee

818-425-7847

805-584-8251 (fax)