Re: Casemanagers/Glenda/All

[Guest guest]

Are you drinking the Maple Syrup?? The kind that's about $35.00 a bottle?? (lactulose)... I am, of all people, not suggesting that what your experiencing isn't exactly what is happening, I've actually had the same thing said to me. My response was the same as yours. Your people told me to call back, to see ......... whatever> I swear sometimes they are all testing me to see my reaction(s). The test is in the form of them saying or suggesting that I don't remember or they told me, etc..... at first, I countered with would you like some lactulose?? I have some in my backpack... when they lay their pen down and can't find it, or anything that show's normal mental short circuits, that happen to ALL of us. not just us.... but non

infected as well. Generally after two times of laughingly pointing out that they, too...might want to consider being tested for elevated ammonia levels, as they starting to act like they say I do. YOU LOST YOUR PEN?? They smilingly back off and don't employ these "tactics anymore"... I realize this smacks of the paranoia they also like to point out, real or imagined, haha.... but trying to dtermine this, is futile..... and my "lets look at it this way", second nature, as being argumentative, when standing my ground. Well, if they perceive me as being those things, while it is irritating......... if I don't let them know I don't appreciate them trying to re-enforce how forgetful, paranoid,confused I am, and in a 5 minute

conversation/analysis, when they haven't even seen me in 90 days, tell me I'm all those things. Again...I DO think it is tactic, and not tx, so they can keep a upper hand on the situation, basically because the disease/meds are causing me to be direlect in handling my life. So I don't type so well... duh... I earned a 'D' in typing class, and for the last ten years or so had someone else to do that for me. But, take this with a grain (and no more,heh..heh...) of salt, cause I'm the guy that thinks our government would rather we die off in 2 yrs. w/o proper medical care, then (after being approved), making us wait for 2 yrs, saving billions in drugs/care for two years. That is the only conclusion I can come up with! It doesn't benefit ANYONE, but them. Think about it.. Drug companies wanyt to make MORE drugs, not cut back. Wholesale distributors.... doctors, that can't prescribe what the

patient needs because of lack of money.....pharmacies, druggist's and then the part time high school/college kid, at the cash register, who gets to represent and advise these rules of death. It is left up to her, to be the Grim Reaper. I totally rambled again, but looking back, I rambled alot before tx!! hahaha Maybe I am crazy. I would like to hear your take on this 2 yr. wait policy. Del God Bless everyone and sleep well. Del glendajohn25@...

wrote: In a message dated 9/26/2006 7:59:41 P.M. Eastern Standard Time, go_deliman writes: Finally.... My solution and suggestion...it has done wonders for me..in MANY ways. Get a pocket digital recorder. Explain to who ever is talking to

you, the reason for the recording is (as they say) I CRS!! sooo, when my family and friends want an update of my conversation with you today..I will have all the info right here!! and they won't become frustrated with me...or think I may be "avoiding" something. I had been telling my doc I can't afford all these drugs...for months!! $800.00 a month for Ecoli Protection? Do I positively have to take that to stay alive, now? I'm broke..well, hallelujah, knowing (I believe) that I was recording this, for the reason I CRS( ONLY!!) he was able to cut it down to five scripts a day.Weird eh??? I also feel I'm treated with a little more respect than I used to. I wish I had the pocket recorder today, the doctor said do you know you call and had a list. Some are for other

things, nothing to do with the transplant. I am just calling when they told me. He gave me water pills and other med's. I did get blood work, and he said that if I get moved up he will have the caseworker in Shands call me. I willl have to wait. If I fell like calling I will just write here. Thanks Glenda very good advice.

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