RE: Panel discussion at St. Luke's..

[Guest guest]

How very interesting and wonderful Boo...Keep us posted on this, we all can learn...And dont forget your giving back...Love and Hugs, Pat

Panel discussion at St. Luke's..

Hello to all, finally got a moment to myself..No kids at all tonight.. So I thought I'd let you all know how the panel question and answer discussion went.. It was so much fun, 6 of us sat at the table.. Had a good size audience there.. And I learned from them, a very mixed group of people..Everyone talked about what they were going though, and offered hope to each other..One lady was here from New Orleans, she has been here for 5 weeks now..So very thin, and tired.. She has been on the list since '98.I got this feeling gang she is next..But her daughter is down in New Orleans waiting for the first grandchild to be born.. But people just asked things like how long were you on the list,have you ever had problems with varices, brain fog, Ammonia levels, herbal supplements etc..And yes gals even menstrual problems or the lack of them came up..It was pretty mixed crowd with Kidney and liver people all around.. Even talked about our donors, and if we have heard from thier loved ones..Lasted 2 1/2 hrs..Kathy B..

Kathy Brunow

[Guest guest]

Boo sounds great and wish more teams handled pt's that way. Tell the lady from New Orleans she, her daughter and family are on my prayer list and to Hang On !!!!!!!!!! She needs to see and love that grandbaby !!!!!!!!! Love and Hugs. Take Care and God Bless Us All. Deb

[Guest guest]

Hi Kathy. Were there any medical people from Houston ST.Lukes? That is my liver change out place. Dietitians, nurse patient co-ordinators, practioneer's, surgeons etc.? Just curious...no need todo any searching. Thanks, Del gail <gaila@...> wrote: Sounds good and encouraging for everyone. Gail -----Original

Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Kathy BrunowSent: April 15, 2006 6:53 PMHepatitis CSupportGroupForDummiesSubject: Panel discussion at St. Luke's..Hello to all, finally got a moment to myself..No kids at all tonight.. So I thought I'd let you all know how the panel question and answer discussion went.. It was so much fun, 6 of us sat at the table.. Had a good size audience there.. And I learned from them, a very mixed group of people..Everyone talked about what they were going though, and offered hope to each other..One lady was here from New Orleans, she has been here for 5 weeks now..So very thin, and tired.. She has been on the list since '98.I got this feeling gang she is next..But her daughter is down in New Orleans

waiting for the first grandchild to be born.. But people just asked things like how long were you on the list,have you ever had problems with varices, brain fog, Ammonia levels, herbal supplements etc..And yes gals even menstrual problems or the lack of them came up..It was pretty mixed crowd with Kidney and liver people all around.. Even talked about our donors, and if we have heard from thier loved ones..Lasted 2 1/2 hrs..Kathy B.. Kathy Brunow

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[Guest guest]

Sounds good and encouraging for everyone.

Gail

Panel discussion at St. Luke's..Hello to all, finally got a moment to myself..No kids at all tonight.. So I thought I'd let you all know how the panel question and answer discussion went.. It was so much fun, 6 of us sat at the table.. Had a good size audience there.. And I learned from them, a very mixed group of people..Everyone talked about what they were going though, and offered hope to each other..One lady was here from New Orleans, she has been here for 5 weeks now..So very thin, and tired.. She has been on the list since '98.I got this feeling gang she is next..But her daughter is down in New Orleans waiting for the first grandchild to be born.. But people just asked things like how long were you on the list,have you ever had problems with varices, brain fog, Ammonia levels, herbal supplements etc..And yes gals even menstrual problems or the lack of them came up..It was pretty mixed crowd with Kidney and liver people all around.. Even talked about our donors, and if we have heard from thier loved ones..Lasted 2 1/2 hrs..Kathy B..

Kathy Brunow

[Guest guest]

Del honey, my St. Luke's is a bit further north than yours.. I'm right under Suzie (Thunder Bay, ONT Can.) backside here in Milwaukee Wisconsin. KathyDel Compton <go_deliman@...> wrote: Hi Kathy. Were there any medical people from Houston ST.Lukes? That is my liver change out place. Dietitians, nurse patient co-ordinators, practioneer's, surgeons etc.? Just curious...no need todo any searching. Thanks, Del Kathy Brunow