Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 We have run the blood work on my son when he was on the maintence dose of antibiotics. We now run it whenever it is needed and it don't matter. We are also heading into our last IVIG for three months to see how he does and then we shall go from there. My son never laid around all the time but he just had recurrent infections that surgery and IV antibiotics didn't take care of and so he was on maintence dose for about 2 years until I got tired of it because every time he would get off of it he would have an infection within 2 weeks and would have to have a theraputic dose of meds. He hasn't had but just a few infections since he has been on the treatments. Cassie --- & Vernon <scully@...> wrote: > I have been quite because let's face it, we don't > even have confirmed > diagnosis yet. I just have to say though to folks > that understand that > this is so maddening. We made a whole 2 weeks off > antibiotics before new > ear and sinus mess started. I really like and trust > the pediatrician, > she is taking a new approach and as she says. " > treating faster " , based > on the suspicion of PID. She has talked with > immunology, and everyone is > advisising we do blood work when she is going longer > between illness, > but we won't go past this summer waiting on that. It > is just so > frustrating, family says she is eating better, and > has a better weight > now so she is fine, I should quit worrying and > ignore it. I'm just > finding that hard to do when she is sick so often. I > am glad she acts > like a " normal " kid when she's well. i keep trying > to tell people that > if she laid around all the time we would really be > in trouble. Everyone > knows she wears out much quicker than most kids her > age, but she does > play and laugh when she feels good. What do people > think, they have to > lay around 24/7 to actually have a problem. I > personally think > antibiotics and illness every 2 to 3 weeks is a big > enough problem. I > know no one has answers. i just wanted ot vent in a > place where someone > might understand. Thanks for listening. > > G > > mom to Mackenzie 3 ?PID > > 6, healthy > www.marykay.com/cassieredinger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 Vent on girl!!!! We all hear you loud and clear....as if it is not bad enough to deal with constant illness and er visits, doctors appointments and inpaitient hospitilizations you have to listen to family, school, your job etc. " But she looks so healthy " , " maybe she just needs vitamins " , " probably just bad luck she ran into more germs before she was feeling well again " , " kids get sick, it's normal " ......we all have heard it before.... forget about it!!! They don't know what you are going through....only you can do what is best for your child!!! Does someone have the list of suggestions for family and friends that we made up a few months ago? I loved that, maybe we can repost it for our new members? Mom to Gwynn, 6y...antibody deficiency/possible complement system issue....labwork pending. also her immuno said he believes she has a minor T-cell defect. and Aiden 15 mo recently diagnosed with antibody deficiency etc. ,lab results similar to his sister...but also is chronically neutropenic and has elevated platelet count --- & Vernon <scully@...> wrote: > I have been quite because let's face it, we don't > even have confirmed > diagnosis yet. I just have to say though to folks > that understand that > this is so maddening. We made a whole 2 weeks off > antibiotics before new > ear and sinus mess started. I really like and trust > the pediatrician, > she is taking a new approach and as she says. " > treating faster " , based > on the suspicion of PID. She has talked with > immunology, and everyone is > advisising we do blood work when she is going longer > between illness, > but we won't go past this summer waiting on that. It > is just so > frustrating, family says she is eating better, and > has a better weight > now so she is fine, I should quit worrying and > ignore it. I'm just > finding that hard to do when she is sick so often. I > am glad she acts > like a " normal " kid when she's well. i keep trying > to tell people that > if she laid around all the time we would really be > in trouble. Everyone > knows she wears out much quicker than most kids her > age, but she does > play and laugh when she feels good. What do people > think, they have to > lay around 24/7 to actually have a problem. I > personally think > antibiotics and illness every 2 to 3 weeks is a big > enough problem. I > know no one has answers. i just wanted ot vent in a > place where someone > might understand. Thanks for listening. > > G > > mom to Mackenzie 3 ?PID > > 6, healthy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 " Does someone have the list of suggestions for family and friends that we made up a few months ago? I loved that, maybe we can repost it for our new members? " has the list (or perhaps it is in the archives?). You may want to check in with her carepage. She is currently on vacation as a gift to her son who will undergo some heavy medical procedures shortly. I'll post the list, if I can retrieve it. I'm sure that she would appreciate words of support. mom to CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 , I am Dayna, and my three kids all have PID. I just wanted to offer you a little support. Many of us have been through this stage - when we suspect something is wrong, we're desperate for answers and alternatively our family or friends don't see it, or think we're over reacting. I can remember an infectious disease doc suggested once that we do some blood work on my daughter the next time she wasn't sick. When I relayed that to our pediatrician he actually said. " Will there be a time when she's not sick? I mean, come on, she's been sick almost every day for the last 3 months. " And he drew the blood right then and there. Hang in there. we're all here and we totally get it! _____ From: [mailto: ] On Behalf Of & Vernon Sent: Monday, March 05, 2007 10:10 AM Subject: Need to vent I have been quite because let's face it, we don't even have confirmed diagnosis yet. I just have to say though to folks that understand that this is so maddening. We made a whole 2 weeks off antibiotics before new ear and sinus mess started. I really like and trust the pediatrician, she is taking a new approach and as she says. " treating faster " , based on the suspicion of PID. She has talked with immunology, and everyone is advisising we do blood work when she is going longer between illness, but we won't go past this summer waiting on that. It is just so frustrating, family says she is eating better, and has a better weight now so she is fine, I should quit worrying and ignore it. I'm just finding that hard to do when she is sick so often. I am glad she acts like a " normal " kid when she's well. i keep trying to tell people that if she laid around all the time we would really be in trouble. Everyone knows she wears out much quicker than most kids her age, but she does play and laugh when she feels good. What do people think, they have to lay around 24/7 to actually have a problem. I personally think antibiotics and illness every 2 to 3 weeks is a big enough problem. I know no one has answers. i just wanted ot vent in a place where someone might understand. Thanks for listening. G mom to Mackenzie 3 ?PID 6, healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Thanks so much for listening. I'll dig through the archives to see if I can find the list you are referencing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I would love to see this list if someone has been able to find it! Mom to , 7 unaffected , 4 GSD, hypogam, pneumococcal AD Meredith, 2 GSD, ?PI Huntsville, AL Re: Need to vent Vent on girl!!!! We all hear you loud and clear....as if it is not bad enough to deal with constant illness and er visits, doctors appointments and inpaitient hospitilizations you have to listen to family, school, your job etc. " But she looks so healthy " , " maybe she just needs vitamins " , " probably just bad luck she ran into more germs before she was feeling well again " , " kids get sick, it's normal " ......we all have heard it before.... forget about it!!! They don't know what you are going through....only you can do what is best for your child!!! Does someone have the list of suggestions for family and friends that we made up a few months ago? I loved that, maybe we can repost it for our new members? Mom to Gwynn, 6y...antibody deficiency/possible complement system issue....labwork pending. also her immuno said he believes she has a minor T-cell defect. and Aiden 15 mo recently diagnosed with antibody deficiency etc. ,lab results similar to his sister...but also is chronically neutropenic and has elevated platelet count --- & Vernon <scullytriad (DOT) <mailto:scully%40triad.rr.com> rr.com> wrote: > I have been quite because let's face it, we don't > even have confirmed > diagnosis yet. I just have to say though to folks > that understand that > this is so maddening. We made a whole 2 weeks off > antibiotics before new > ear and sinus mess started. I really like and trust > the pediatrician, > she is taking a new approach and as she says. " > treating faster " , based > on the suspicion of PID. She has talked with > immunology, and everyone is > advisising we do blood work when she is going longer > between illness, > but we won't go past this summer waiting on that. It > is just so > frustrating, family says she is eating better, and > has a better weight > now so she is fine, I should quit worrying and > ignore it. I'm just > finding that hard to do when she is sick so often. I > am glad she acts > like a " normal " kid when she's well. i keep trying > to tell people that > if she laid around all the time we would really be > in trouble. Everyone > knows she wears out much quicker than most kids her > age, but she does > play and laugh when she feels good. What do people > think, they have to > lay around 24/7 to actually have a problem. I > personally think > antibiotics and illness every 2 to 3 weeks is a big > enough problem. I > know no one has answers. i just wanted ot vent in a > place where someone > might understand. Thanks for listening. > > G > > mom to Mackenzie 3 ?PID > > 6, healthy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2007 Report Share Posted July 25, 2007 Carolyn,If I were Catholic, I would say that you should be canonized, as it is I simply admire you more than I have words to say. As far as when things get overwhelming, well - in a crisis I am Ms. Cool, Calm and Collected (particularly if it is a physical type thing). I cannot count lately how many times lately I have started to hyperventilate and say I can't do this, I can't do this.... Many times, I wonder how I have maintained as long as I can.It probably sounds like I am putting too much stock into this move, but I honestly am at the end of the rope too! The stress of raising special kids is tremendous - you have one of the hardest loads yet. But, at the same time, your faith really buoys me and I think of you and Marty all the time.I wish I had some magic word that would make it all easier to deal with - but I don't - I think that we all have that seepage of ick that we don't deal with head on at the time, and I wouldn't worry about it too much. Sometimes just reacting (like I am prone to do) is the worst thing in the world. It actually makes more sense logically to deal with it piecemeal.JenCarolyn <charper777@...> wrote: Hi everybody, I am just sitting here this morning like a lump, and realize I need to vent. Are you like me, whenever I go through really stressful things I tend to freeze my feelings and emotions deep inside of me like a lump of ice, and then later, a little later, they start to melt and want out! It is an uncomfortable feeling, but I have learned it is best to let them out rather than try to freeze them back up again. O.k. so here goes; The sheer terror of having my son diagnosed with pneumonia AGAIN! On Sun. night. I was so scared I was going to have to stay at that hospital with him that night, and I felt so sick myself, and dreaded having to do it. Not knowing how sick he was, and thinking about when his lung had collapsed that time, and how horribly he breathed with just one lung, and how they had to do surgery, I mean really SERIOUS surgery, they cut a big hole cut into his back to clean out the stuff around his lung, they said had hardened like a shell on an egg, so his lung could inflate again. And weeks and weeks of recuperation after that, finally went home, but the care we had to give him was endless... And many times since then, on Christmas eve he had it, was in the hospital for 5 days, me there with him, and in April he had it, and was there a few days. And you can't tell how bad it is, a teeny little fever, only 99.9, and he isn't coughing, then the fever disappears and you think you must have imagined it, but later when you put him to bed, you KNOW, you just KNOW he has to go to ER, denial won't work. Sigh. And right in the middle of all of this, I HAD TO GO TO ER myself, two weeks ago today, got the vertigo and the room started spinning, they did a CT scan, found a small stroke in my brain. I don't know yet if it happened that night or is something old, my doctor put me on the pills for high blood pressure, I never wanted to take them, now feel bad I didn't do it sooner. Thought I could get my blood pressure down by myself, had gotten it down actually from walking in the mornings, and losing some weight. But couldn't do that since allergy season started in May, can't breath, have asthma. Sigh. And the acid reflux is the worst, didn't know I could have been taking TWO Prilosec a day, and it is really helped, finally my stomach and throat have quit throbbing, thank God. Stress has been doing this to me for several years, always worse when I take antibiotic, which I had to do after the vertigo attack, they figured I had ear infection. But my ears still hurt, don't dare go outside, something in the air that really irritates my head. Let's see, what else, oh been reading about stroke, and realize we are ALL just hanging on by a thread! There are 270,000 strokes a years in this country, and 160,000 die, and many are disabled. We could have one at any minute! It is the number 3 killer behind heart attack, and cancer, then stroke. I don't want to think about what could kill me, or others I love, but read the brochures, so now I know. And it isn't so much that I would mind dying, I know where I am going when I die, but my son, and daughter could not make it without me, or my three grandkids. They are very dependant on me. I mean they would probably make it, but I can't stand to think about how they would make it. And my mom, she is 89, and it is a pure miracle she has lived this long herself. She has always had high blood pressure, but has managed it pretty well the last few years with medication, now I am on it too. I have to take her to the hospital on Aug. 10th to get a growth taken off her colon, they will have to sedate her, and I will have to wait while the acid builds up in my stomach, better take two Prilosec that morning for sure. Well that is probably enough venting for right now I guess, I know the Lord will give me strength, that is what He has done all these years or I wouldn't even be here. The other night in the ER with my son I really could not take it this time, and began to cry. It is a very scary feeling to me to cry, it is like I am falling with nothing to catch me! I have issues with trust, even in trusting God, have always been this way. Wish I had more trust, it is torture not to have as much as I need. Then I feel guilty because I don't have more, but this is all I have, so can't help it. I know God will take care of me, my son, my mom, my family, my faith knows it, but the human part of me doesn't. Thanks sisters, glad you are here, somebody to talk to this morning. Much love to you all, Carolyn in really cool Oregon, in fact I am cold in here at this computer! Life may not be the party we asked for - but while we're here, let's dance! Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 I've been away from the computer. Sorry so long to get to you. I've said a prayer for you and your family. Hope it helps just to know that I do care. It is hard to understand why some people have more burdens then others but I do believe that God has a purpose for everything and He is a God of love. He loves you and I do too. I hope you find some rest and peace soon. Take care and God bless. Jodi > > > Hi everybody, > > I am just sitting here this morning like a lump, and realize I need to vent. Are you like me, whenever I go through really stressful things I tend to freeze my feelings and emotions deep inside of me like a lump of ice, and then later, a little later, they start to melt and want out! It is an uncomfortable feeling, but I have learned it is best to let them out rather than try to freeze them back up again. > > O.k. so here goes; The sheer terror of having my son diagnosed with pneumonia AGAIN! On Sun. night. I was so scared I was going to have to stay at that hospital with him that night, and I felt so sick myself, and dreaded having to do it. Not knowing how sick he was, and thinking about when his lung had collapsed that time, and how horribly he breathed with just one lung, and how they had to do surgery, I mean really SERIOUS surgery, they cut a big hole cut into his back to clean out the stuff around his lung, they said had hardened like a shell on an egg, so his lung could inflate again. And weeks and weeks of recuperation after that, finally went home, but the care we had to give him was endless... > > And many times since then, on Christmas eve he had it, was in the hospital for 5 days, me there with him, and in April he had it, and was there a few days. And you can't tell how bad it is, a teeny little fever, only 99.9, and he isn't coughing, then the fever disappears and you think you must have imagined it, but later when you put him to bed, you KNOW, you just KNOW he has to go to ER, denial won't work. Sigh. > > And right in the middle of all of this, I HAD TO GO TO ER myself, two weeks ago today, got the vertigo and the room started spinning, they did a CT scan, found a small stroke in my brain. I don't know yet if it happened that night or is something old, my doctor put me on the pills for high blood pressure, I never wanted to take them, now feel bad I didn't do it sooner. Thought I could get my blood pressure down by myself, had gotten it down actually from walking in the mornings, and losing some weight. But couldn't do that since allergy season started in May, can't breath, have asthma. Sigh. > > And the acid reflux is the worst, didn't know I could have been taking TWO Prilosec a day, and it is really helped, finally my stomach and throat have quit throbbing, thank God. Stress has been doing this to me for several years, always worse when I take antibiotic, which I had to do after the vertigo attack, they figured I had ear infection. But my ears still hurt, don't dare go outside, something in the air that really irritates my head. > > Let's see, what else, oh been reading about stroke, and realize we are ALL just hanging on by a thread! There are 270,000 strokes a years in this country, and 160,000 die, and many are disabled. We could have one at any minute! It is the number 3 killer behind heart attack, and cancer, then stroke. I don't want to think about what could kill me, or others I love, but read the brochures, so now I know. > > And it isn't so much that I would mind dying, I know where I am going when I die, but my son, and daughter could not make it without me, or my three grandkids. They are very dependant on me. I mean they would probably make it, but I can't stand to think about how they would make it. > > And my mom, she is 89, and it is a pure miracle she has lived this long herself. She has always had high blood pressure, but has managed it pretty well the last few years with medication, now I am on it too. I have to take her to the hospital on Aug. 10th to get a growth taken off her colon, they will have to sedate her, and I will have to wait while the acid builds up in my stomach, better take two Prilosec that morning for sure. > > Well that is probably enough venting for right now I guess, I know the Lord will give me strength, that is what He has done all these years or I wouldn't even be here. The other night in the ER with my son I really could not take it this time, and began to cry. It is a very scary feeling to me to cry, it is like I am falling with nothing to catch me! I have issues with trust, even in trusting God, have always been this way. Wish I had more trust, it is torture not to have as much as I need. > > Then I feel guilty because I don't have more, but this is all I have, so can't help it. I know God will take care of me, my son, my mom, my family, my faith knows it, but the human part of me doesn't. > > Thanks sisters, glad you are here, somebody to talk to this morning. > > Much love to you all, > Carolyn in really cool Oregon, in fact I am cold in here at this computer! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 ---How about this:) " Im sorry, did it sound like I was asking for your opinion? Because I WASNT " . I will never understand why people feel like they need to be involved in others lives this way. Its no ones business if you work or not! good grief.......personally, I love my family and friends, and hope them to be healthy, happy and content. Unless someone is getting hurt, its just not my business. That said........I know I tick off a lot of people. My mom is mad at me right now, bc of a schooling decision I have made for my son. But we have to do what is best for our own families. valarie In , " " <iamlaurasmith@...> wrote: > > Hello, > I need to vent for a sec. My MIL is constanly on my case about not > working. My son was diagnosed this year with a PID at 11. My daughter > is healthy at this time. She is 8. > > Normally I would try to find a job while they are in school. I worked > some last year, even though my son was absent 45 days and checked out > more than that. My husband can not take sick days at work unless > someone is in the hospital, and I can't stand to be an unreliable > employee. We are paying our bills just fine. Any money I brought in was > extra money. > > Does any one else get constant lip about not working? I am sick of > being considered lazy. She told me I should keep kids at home. Doesn't > that defeat the purpose of being available for my children? I know some > of you have dealt with this in a tactful manner and can give me tips, > or some ideas for good work at home, flexible jobs-no selling please! > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 My parents have told me that I am wasting my education (2 undergraduate degrees) and don't agree with homeschooling... I just ignore them and do what is best for MY family. Sometimes it is hard to do-but only YOU and your husband can decide what is best for you, your family and your children. No one else has any business butting in. My parents don't even acknowledge my kids have an illness. They are sick because we baby them too much.. Yeah, right. ~Peace be with you~ Pattie Earth has no sorrow that heaven cannot heal. ~St. More Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 I recomend that you get yourself a copy of the book " Boundaries " by Dr. Cloud (so you can learn to set them with MIL). - <iamlaurasmith@...> wrote: Hello, I need to vent for a sec. My MIL is constanly on my case about not working. My son was diagnosed this year with a PID at 11. My daughter is healthy at this time. She is 8. Normally I would try to find a job while they are in school. I worked some last year, even though my son was absent 45 days and checked out more than that. My husband can not take sick days at work unless someone is in the hospital, and I can't stand to be an unreliable employee. We are paying our bills just fine. Any money I brought in was extra money. Does any one else get constant lip about not working? I am sick of being considered lazy. She told me I should keep kids at home. Doesn't that defeat the purpose of being available for my children? I know some of you have dealt with this in a tactful manner and can give me tips, or some ideas for good work at home, flexible jobs-no selling please! Thanks, --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 and moms that feel invisible. / , mom to Dani, CVIDer It all began to make sense, the blank stares, the lack of response, the way one of the kids will walk into the room while I'm on the phone and ask to be taken to the store. Inside I'm thinking, " Can't you see I'm on the phone? " Obviously not. No one can see if I'm on the phone, or cooking, or sweeping the floor, or even standing on my head in the corner, because no one can see me at all. I'm invisible. Some days I am only a pair of hands, nothing more: Can you fix this? Can you tie this? Can you open this? Some days I'm not a pair of hands; I'm not even a human being. I'm a clock to ask, " What time is it? " I'm a satellite guide to answer, " What number is the Disney Channel? " I'm a car to order, " Right around 5:30, please. " I was certain that these were the hands that once held books and the eyes that studied history and the mind that graduated summa cum laude - but now they had disappeared into the peanut butter, never to be seen again. She's going ... she's going... she's gone! One night, a group of us were having dinner, celebrating the return of a friend from England. Janice had just gotten back from a fabulous trip, and she was going on and on about the hotel she stayed in. I was sitting there, looking around at the others all put together so well. It was hard not to compare and feel sorry for myself as I looked down at my out-of-style dress; it was the only thing I could find that was clean. My unwashed hair was pulled up in a banana clip and I was afraid I could actually smell peanut butter in it. I was feeling pretty pathetic, when Janice turned to me with a beautifully wrapped package, and said, " I brought you this. " It was a book on the great cathedrals of Europe. I wasn't exactly sure why she'd given it to me until I read her inscription: " To Charlotte, with admiration for the greatness of what you are building when no one sees. " In the days ahead I would read - no, devour - the book. And I would discover what would become for me, four life-changing truths, after which I could pattern my work: No one can say who built the great cathedrals - we have no record of their names. These builders gave their whole lives for a work they would never see finished. They made great sacrifices and expected no credit. The passion of their building was fueled by their faith that the eyes of God waw everything. A legendary story in the book told of a rich man who came to visit the cathedral while it was being built, and he saw a workman carving a tiny bird on the inside of a beam. He was puzzled and asked the man, " Why are you spending so much time carving that bird into a beam that will be covered by the roof? No one will ever see it. " And the workman replied, " Because God sees. " I closed the book, feeling the missing piece fall into place. It was almost as if I heard God whispering to me, " I see you, Charlotte. I see the sacrifices you make every day, even when no one around you does. No act of kindness you've done, no sequin you've sewn on, no cupcake you've baked, is too small for me to notice and smile over. You are building a great cathedral, but you can't see right now what it will become. " At times, my invisibility feels like an affliction. But it is not a disease that is erasing my life. It is the cure for the disease of my own self-centeredness. It is the antidote to my strong, stubborn pride. I keep the right perspective when I see myself as a great builder. As one of the people who show up at a job that they will never see finished, to work on something that their name will never be on. The writer of the book went so far as to say that no cathedrals could ever be built in our lifetime because there are so few people willing to sacrifice to that degree. When I really think about it, I don't want my son to tell the friend he's bringing home from college for Thanksgiving, " My mom gets up at 4 in the morning and bakes homemade pies, and then she hand bastes a turkey for three hours and presses all the linens for the table. " That would mean I'd built a shrine or a monument to myself. I just want him to want to come home. And then, if there is anything more to say to his friend, to add, " You're gonna love it there. " As mothers, we are building great cathedrals. We cannot be seen if we're doing it right. And one day, it is very possible that the world will marvel, not only at what we have built, but at the beauty that has been added to the world by the sacrifices of invisible women. Need to vent Hello, I need to vent for a sec. My MIL is constanly on my case about not working. My son was diagnosed this year with a PID at 11. My daughter is healthy at this time. She is 8. Normally I would try to find a job while they are in school. I worked some last year, even though my son was absent 45 days and checked out more than that. My husband can not take sick days at work unless someone is in the hospital, and I can't stand to be an unreliable employee. We are paying our bills just fine. Any money I brought in was extra money. Does any one else get constant lip about not working? I am sick of being considered lazy. She told me I should keep kids at home. Doesn't that defeat the purpose of being available for my children? I know some of you have dealt with this in a tactful manner and can give me tips, or some ideas for good work at home, flexible jobs-no selling please! Thanks, <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Thank you ! I needed that today! www.caringbridge.org/visit/alexsmith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 So today i called to get help from my worker DDD turns out that she no longer works there.Last week my son slapped the speech therapies in the face at home.And then he started spitting at her she put him in a chair for time out.That didnt work because he would get up and do it again i dont have a worker.I talked to the supervisor and she said i have to wait because she only have four.So then i talked to her about the speech device that i'm still waiting for.She said that's going to take 3 months or longer so i'm going to save my money so that i can buy my son one.This is crazy why do we have DDD workers they dont do much i'm pretty much on my own right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 i am so sorry that you are going thru that. I have not been thru that personally but i do know that it is damn near impossible to find good help for children with autism. I hope it gets better for you and your child soon. ------------------------------ On Mon, May 7, 2012 5:29 PM CDT Ola wrote: >So today i called to get help from my worker DDD turns out that she no longer works there.Last week my son slapped the speech therapies in the face at home.And then he started spitting at her she put him in a chair for time out.That didnt work because he would get up and do it again i dont have a worker.I talked to the supervisor and she said i have to wait because she only have four.So then i talked to her about the speech device that i'm still waiting for.She said that's going to take 3 months or longer so i'm going to save my money so that i can buy my son one.This is crazy why do we have DDD workers they dont do much i'm pretty much on my own right now. > Quote Link to comment Share on other sites More sharing options...
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