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Hi Corina, just a quick note before I go to work. My daughter is 7

years old and she is semi-potty trained; she will go when taken, but

won't go voluntarily. Her teachers put her on a schedule and we sent

extra clothes with her and after a while the " accidents " went WAY

down. She is still afraid of flushing toilets though. Funny story;

we went on vacation for spring break and she would go into the

bathroom and flush the toilet over and over! Maybe it's self therapy!

Amyway, gotta go to work! Keep the faith!

Sara

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The neuro told me last month that she does not want me stressing out my 7 yr

old because I have to think about his mental age which is 22 - 26 mos. She

says that because my daughter was potty trained by 20 mos that it is ok if I

continue working with my son but just not to stress him and definitely, not to

show disappointment. He is doing really very well for a 2 yr old because she

says that now-a-days, children are potty trained at 3. Why has the age been

raised from 2 to 3? I didn't ask her but am still wondering.

> Sara,

> My son just turned 9 and for the last 3 years his teacher has attempted

> toilet training with him. Lately, he is in underwear all day at school and

is

> generally successful( some days not even one accident) but they also have

> him on a rigid bathroom schedule. MY problem is when he gets home! I have 3

> other kids, dinner to cook, etc. and it's harder for me to keep him on as

> tight a schedule. Do you have this problem also--any suggestions out there?

He

> still does not initiate but does go most of the time when he's taken(that

> is, he urinates--not the " other " yet) Maybe the only answer is just patience!!

>

> a

> re:potty training

>

>

> Hi Corina, just a quick note before I go to work. My daughter is 7

> years old and she is semi-potty trained; she will go when taken, but

> won't go voluntarily. Her teachers put her on a schedule and we sent

> extra clothes with her and after a while the " accidents " went WAY

> down. She is still afraid of flushing toilets though. Funny story;

> we went on vacation for spring break and she would go into the

> bathroom and flush the toilet over and over! Maybe it's self therapy!

> Amyway, gotta go to work! Keep the faith!

> Sara

>

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Sara,

My son just turned 9 and for the last 3 years his teacher has attempted

toilet training with him. Lately, he is in underwear all day at school and is

generally successful( some days not even one accident) but they also have him on

a rigid bathroom schedule. MY problem is when he gets home! I have 3 other

kids, dinner to cook, etc. and it's harder for me to keep him on as tight a

schedule. Do you have this problem also--any suggestions out there? He still

does not initiate but does go most of the time when he's taken(that is, he

urinates--not the " other " yet) Maybe the only answer is just patience!!

a

re:potty training

Hi Corina, just a quick note before I go to work. My daughter is 7

years old and she is semi-potty trained; she will go when taken, but

won't go voluntarily. Her teachers put her on a schedule and we sent

extra clothes with her and after a while the " accidents " went WAY

down. She is still afraid of flushing toilets though. Funny story;

we went on vacation for spring break and she would go into the

bathroom and flush the toilet over and over! Maybe it's self therapy!

Amyway, gotta go to work! Keep the faith!

Sara

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In a message dated 5/27/2003 12:59:08 PM Central Standard Time,

gryharhntr@... writes:

> The neuro told me last month that she does not want me stressing out my 7

> yr

> old because I have to think about his mental age which is 22 - 26 mos. She

> says that because my daughter was potty trained by 20 mos that it is ok if I

>

> continue working with my son but just not to stress him and definitely, not

> to

> show disappointment. He is doing really very well for a 2 yr old because

> she

> says that now-a-days, children are potty trained at 3. Why has the age been

>

> raised from 2 to 3? I didn't ask her but am still wondering.

That's an easy answer. You see, society has changed since you and I were

children now a days both parents work where as when we were children most days

worked and most mothers did not thus not having mothers at home well this cause

children to be potty trained a little later.

Tammy

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In a message dated 5/27/2003 12:59:08 PM Central Standard Time,

gryharhntr@... writes:

>

> >Sara,

> > My son just turned 9 and for the last 3 years his teacher has attempted

> >toilet training with him. Lately, he is in underwear all day at school

> and is

> >generally successful( some days not even one accident) but they also have

> >him on a rigid bathroom schedule. MY problem is when he gets home! I have

> 3

> >other kids, dinner to cook, etc. and it's harder for me to keep him on as

> >tight a schedule. Do you have this problem also--any suggestions out

> there? He

> >still does not initiate but does go most of the time when he's taken(that

> >is, he urinates--not the " other " yet) Maybe the only answer is just

> patience!!

> >

> >a

Been there done that. Yes with more than one child that is very challenging.

I had two potty training at once. I couldn't take them like they can at

school, so I made sure to take them at least 3 times a day. First thing in the

morning at noon when they were home and last thing at night. Well, finally it

worked.

Tammy

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Thank you. That makes sense. Hope

In a message dated 5/27/03 4:55:40 PM Eastern Daylight Time,

smiles2322@... writes:

> That's an easy answer. You see, society has changed since you and I were

> children now a days both parents work where as when we were children most

> days

> worked and most mothers did not thus not having mothers at home well this

> cause

> children to be potty trained a little later.

>

> Tammy

>

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Guest guest

It is so hard finding those things that work. For us, we used a cute

timer (an oven timer will do). We conditioned him with great things

concerning this timer (we made sure to have a different type timer

than used for time outs or therapy). When the timer went off,

everyone would stop, do a cheer, and race to the bathroom where great

books and treats awaited him-after he was done I would reset the

timer. Eventually he was able to do this on his own without us

needing to be involved and then we faded the timer. We also got a

timer for my daughter who WAS potty trained so he could mimic her and

so she would not feel left out---we cheered for her too.

Some children are almost immediately potty trained after AIT or other

things (this did not occur with us-ours was a struggle and we finally

just spent 2 weeks straight in the bathroom one summer). One woman

on the chelatingkids2 list said her child pottied after starting the

new B12 shots. Sometimes it is a medical problem or sensory problem

like the loud flushing (TLP helped us with this).

Just brainstorming with the rest of you, Theresa

> Sara,

> My son just turned 9 and for the last 3 years his teacher has

attempted toilet training with him. Lately, he is in underwear all

day at school and is generally successful( some days not even one

accident) but they also have him on a rigid bathroom schedule. MY

problem is when he gets home! I have 3 other kids, dinner to cook,

etc. and it's harder for me to keep him on as tight a schedule. Do

you have this problem also--any suggestions out there? He still does

not initiate but does go most of the time when he's taken(that is, he

urinates--not the " other " yet) Maybe the only answer is just

patience!!

> a

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  • 9 months later...
Guest guest

http://www.teacch.com/toilet.htm

I went to the TEACCH website above and printed out the information

on toilet training and used it along with my own stragtegies. I

bought two books " Once Upon a potty " , which my son drew all over and

then tore the pages out and the other was " Lift the Lid, Use the

Potty! " which he loved and still loves today. Also, I exploited his

obsession for letters, numbers, colors and shapes. I went to Wal-

Mart and dollar stores and bought cheap toys and prizes to reward

him with, he use to say, " mommy I wanna go poo-poo for some

letters " . He drank a lot of water to encourage urinating and in six

months my son was urine-day-potty-trained. Now this is the story of

how he became BM trained. About the time potty training started I

noticed my son was becoming constipated, almost as if he was holding

bowel movements. My husband and I tried adding dietary fiber to his

diet and it didn't seem to help. Then we got worried and gave our

son a laxative. He went but the bowel movements didn't seem whole

hearted. One day my son said, " mommy, I go poo-poo no more " so we

took our son to his Pediatrician and she said he seemed to be

holding it on purpose and recommended we see a Pediatic GI, which we

did and learned that this is a condition called Encopresis (I looked

this up on the Internet and found out it's a fairly common ailment

in special needs kids) so our son was placed on a prescription

laxative called Miralax. I failed to mention earlier that while all

this was going on our son was being assessed by a team of

developmental pediatricans for suspected PDD, talk about stress.

Because the laxative had more power over our son's will power he

could no longer " hold " bowel movements so that worked in our favor.

Going pee was never a problem because our son wanted rewards like

stickers, fruit filled gummy bears, praise etc., and we took video

of our son sitting on the potty (for hours), which he loved to

replay over and over. The change and cooperation came in time, once

he learned to read his body's signals and our constant asking him if

he needed to go potty, he finally started to tell us when he needed

to go. He now goes on his own without all the prompting. He still

has an accident every once in awhile but mostly because he waits

until the last second to run to the potty. He has reduced the use of

Miralax to once every third day and in the future he will just have

it around to maintain regularity. Once he was doing well on his own

we made the transition from pull-ups to cloth underwear. A little

regression occurred, I think it was the thin cotton underwear that

excited him a little so I bought the reinforced training underwear

made by Gerber and he really liked them. He said, " I'm wearing big

boy underwear " . And just recently he began to wear little boy jockey

type and good results so far. Another thing that helped was our

babysitter refused to put him back in diapers if he had a

regression, I'm glad she insisted because it would have been so easy

to put a diaper back on. About once a week he might have a night

time accident. Witholding liquids before bed isn't always feasible

because my son takes a lot vitamin supplements that he likes to wash

down with a lot of water. He wears pull-ups to bed at night called

GoodNites Underpants so if he does have an accident he won't soak

the bed. I hope you can get something out of our experience.

Reece, mom to Dawson almost 5, diagnoses - Autism Spectrum

Disorder

> i know it takes awhile for kids with autism to be trained..but my

3yr

> old was doing well in the beginning -there were a couple of months

> where i didnt have to buy diapers,he started to wear underwear

> after,recently he just stopped going when he has to go,now hes

right

> back in diapers,this is my 1st child its hard to tell the norm

from

> the disorder he has.i wanna know what worked for your kids?how

long

> did it take for them to learn.i talked to a mom whose son wasnt

potty

> trained until he was 8-i heard there were potty training videos

for

> kids like him.but i havent found any.

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Hi all,

I would like to add my 2 cents about this subject. CSA of Austin as well as

myself (I trained 2 at once one NT 3 year old and one AU 6 year old)have

successfully used " Positive practice potty training " . It is not uncommon to

have a child urine trained in 2 weeks. Total potty training (BM's) took a

little longer but Miralax did help greatly with that as well. We are now

totally potty trained he even will ask to go and I don't even have to

supervise...okay he's 8 but hey it's like a miracle. I tried other

approaches first that were largely unsuccessful. I hope this is helpful.

Trina ----Original Message-----

From: dreece318 [mailto:kgreeceman@...]

Sent: Wednesday, March 03, 2004 9:50 PM

Autism Treatment

Subject: Re: potty training

http://www.teacch.com/toilet.htm

I went to the TEACCH website above and printed out the information

on toilet training and used it along with my own stragtegies. I

bought two books " Once Upon a potty " , which my son drew all over and

then tore the pages out and the other was " Lift the Lid, Use the

Potty! " which he loved and still loves today. Also, I exploited his

obsession for letters, numbers, colors and shapes. I went to Wal-

Mart and dollar stores and bought cheap toys and prizes to reward

him with, he use to say, " mommy I wanna go poo-poo for some

letters " . He drank a lot of water to encourage urinating and in six

months my son was urine-day-potty-trained. Now this is the story of

how he became BM trained. About the time potty training started I

noticed my son was becoming constipated, almost as if he was holding

bowel movements. My husband and I tried adding dietary fiber to his

diet and it didn't seem to help. Then we got worried and gave our

son a laxative. He went but the bowel movements didn't seem whole

hearted. One day my son said, " mommy, I go poo-poo no more " so we

took our son to his Pediatrician and she said he seemed to be

holding it on purpose and recommended we see a Pediatic GI, which we

did and learned that this is a condition called Encopresis (I looked

this up on the Internet and found out it's a fairly common ailment

in special needs kids) so our son was placed on a prescription

laxative called Miralax. I failed to mention earlier that while all

this was going on our son was being assessed by a team of

developmental pediatricans for suspected PDD, talk about stress.

Because the laxative had more power over our son's will power he

could no longer " hold " bowel movements so that worked in our favor.

Going pee was never a problem because our son wanted rewards like

stickers, fruit filled gummy bears, praise etc., and we took video

of our son sitting on the potty (for hours), which he loved to

replay over and over. The change and cooperation came in time, once

he learned to read his body's signals and our constant asking him if

he needed to go potty, he finally started to tell us when he needed

to go. He now goes on his own without all the prompting. He still

has an accident every once in awhile but mostly because he waits

until the last second to run to the potty. He has reduced the use of

Miralax to once every third day and in the future he will just have

it around to maintain regularity. Once he was doing well on his own

we made the transition from pull-ups to cloth underwear. A little

regression occurred, I think it was the thin cotton underwear that

excited him a little so I bought the reinforced training underwear

made by Gerber and he really liked them. He said, " I'm wearing big

boy underwear " . And just recently he began to wear little boy jockey

type and good results so far. Another thing that helped was our

babysitter refused to put him back in diapers if he had a

regression, I'm glad she insisted because it would have been so easy

to put a diaper back on. About once a week he might have a night

time accident. Witholding liquids before bed isn't always feasible

because my son takes a lot vitamin supplements that he likes to wash

down with a lot of water. He wears pull-ups to bed at night called

GoodNites Underpants so if he does have an accident he won't soak

the bed. I hope you can get something out of our experience.

Reece, mom to Dawson almost 5, diagnoses - Autism Spectrum

Disorder

> i know it takes awhile for kids with autism to be trained..but my

3yr

> old was doing well in the beginning -there were a couple of months

> where i didnt have to buy diapers,he started to wear underwear

> after,recently he just stopped going when he has to go,now hes

right

> back in diapers,this is my 1st child its hard to tell the norm

from

> the disorder he has.i wanna know what worked for your kids?how

long

> did it take for them to learn.i talked to a mom whose son wasnt

potty

> trained until he was 8-i heard there were potty training videos

for

> kids like him.but i havent found any.

Unlocking Autism

www.UnlockingAutism.org

Autism-Awareness-Action

Worldwide internet group for parents who have a

child with AUTISM.

SeekingJoyinDisability - Prayer support for those touched by Disability:

SeekingJoyinDisability/

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Guest guest

Hi all,

I would like to add my 2 cents about this subject. CSA of Austin as well as

myself (I trained 2 at once one NT 3 year old and one AU 6 year old)have

successfully used " Positive practice potty training " . It is not uncommon to

have a child urine trained in 2 weeks. Total potty training (BM's) took a

little longer but Miralax did help greatly with that as well. We are now

totally potty trained he even will ask to go and I don't even have to

supervise...okay he's 8 but hey it's like a miracle. I tried other

approaches first that were largely unsuccessful. I hope this is helpful.

Trina ----Original Message-----

From: dreece318 [mailto:kgreeceman@...]

Sent: Wednesday, March 03, 2004 9:50 PM

Autism Treatment

Subject: Re: potty training

http://www.teacch.com/toilet.htm

I went to the TEACCH website above and printed out the information

on toilet training and used it along with my own stragtegies. I

bought two books " Once Upon a potty " , which my son drew all over and

then tore the pages out and the other was " Lift the Lid, Use the

Potty! " which he loved and still loves today. Also, I exploited his

obsession for letters, numbers, colors and shapes. I went to Wal-

Mart and dollar stores and bought cheap toys and prizes to reward

him with, he use to say, " mommy I wanna go poo-poo for some

letters " . He drank a lot of water to encourage urinating and in six

months my son was urine-day-potty-trained. Now this is the story of

how he became BM trained. About the time potty training started I

noticed my son was becoming constipated, almost as if he was holding

bowel movements. My husband and I tried adding dietary fiber to his

diet and it didn't seem to help. Then we got worried and gave our

son a laxative. He went but the bowel movements didn't seem whole

hearted. One day my son said, " mommy, I go poo-poo no more " so we

took our son to his Pediatrician and she said he seemed to be

holding it on purpose and recommended we see a Pediatic GI, which we

did and learned that this is a condition called Encopresis (I looked

this up on the Internet and found out it's a fairly common ailment

in special needs kids) so our son was placed on a prescription

laxative called Miralax. I failed to mention earlier that while all

this was going on our son was being assessed by a team of

developmental pediatricans for suspected PDD, talk about stress.

Because the laxative had more power over our son's will power he

could no longer " hold " bowel movements so that worked in our favor.

Going pee was never a problem because our son wanted rewards like

stickers, fruit filled gummy bears, praise etc., and we took video

of our son sitting on the potty (for hours), which he loved to

replay over and over. The change and cooperation came in time, once

he learned to read his body's signals and our constant asking him if

he needed to go potty, he finally started to tell us when he needed

to go. He now goes on his own without all the prompting. He still

has an accident every once in awhile but mostly because he waits

until the last second to run to the potty. He has reduced the use of

Miralax to once every third day and in the future he will just have

it around to maintain regularity. Once he was doing well on his own

we made the transition from pull-ups to cloth underwear. A little

regression occurred, I think it was the thin cotton underwear that

excited him a little so I bought the reinforced training underwear

made by Gerber and he really liked them. He said, " I'm wearing big

boy underwear " . And just recently he began to wear little boy jockey

type and good results so far. Another thing that helped was our

babysitter refused to put him back in diapers if he had a

regression, I'm glad she insisted because it would have been so easy

to put a diaper back on. About once a week he might have a night

time accident. Witholding liquids before bed isn't always feasible

because my son takes a lot vitamin supplements that he likes to wash

down with a lot of water. He wears pull-ups to bed at night called

GoodNites Underpants so if he does have an accident he won't soak

the bed. I hope you can get something out of our experience.

Reece, mom to Dawson almost 5, diagnoses - Autism Spectrum

Disorder

> i know it takes awhile for kids with autism to be trained..but my

3yr

> old was doing well in the beginning -there were a couple of months

> where i didnt have to buy diapers,he started to wear underwear

> after,recently he just stopped going when he has to go,now hes

right

> back in diapers,this is my 1st child its hard to tell the norm

from

> the disorder he has.i wanna know what worked for your kids?how

long

> did it take for them to learn.i talked to a mom whose son wasnt

potty

> trained until he was 8-i heard there were potty training videos

for

> kids like him.but i havent found any.

Unlocking Autism

www.UnlockingAutism.org

Autism-Awareness-Action

Worldwide internet group for parents who have a

child with AUTISM.

SeekingJoyinDisability - Prayer support for those touched by Disability:

SeekingJoyinDisability/

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  • 2 years later...

I have 4 children, 3 with autism. My twin boys, age 5, have high functioning autism and I was able to train both boys in 4 days using a the Azrin and Foxx Behavioral Method. It is a great method that a Behavior Analyst taught me. I plan on teaching my 9 year old daughter with moderate autism over the holidays. It is similar to other programs in that you have the child go straight to underwear, no training pants, and it takes an all day commitment, but it works quickly and it teaches the social aspect of toilet training and the importance of being dry and clean, not just going in the toilet. I tried everything, this worked for me. Feel free to contact me if you need help finding someone to teach you this method.

-- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org

-------------- Original message -------------- From: "novine1933" <novine1933@...>

Hi, I am new to the group and from Burke County. I have a 5 year oldwith Aspergers Syndrome. I was wondering if anyone had any experienceor advice with potty training. He strongly resists any attempt topotty train. He will not even sit on the toilet. I can not evenattempt to main stream him into school until he is trained. Any advisewill be greatly appreciated.

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,

We are not yet moved to Georgia, but I desperately need to potty train my 5.5 yr old moderately severe autistic daughter. I can occassionally get her to sit on the potty, but nothing consistant. I would love to get her potty trained before we move into an apartment or something in Atlanta in December, or at least be well on the way to being potty trained.

My problem, though, is this. Sierra hates to have clothes on at home. Now, while I don't necessarily mind it so much, I know it is difficult to have others come to our home while she is running around naked! :-) She has no problem keeping clothes on at school and in public, just at home. As soon as she gets home from school, she is taking it all off!

Any tips you could share would be great!

On 11/3/06, jennifermcgee4@... <jennifermcgee4@...

> wrote:

I have 4 children, 3 with autism. My twin boys, age 5, have high functioning autism and I was able to train both boys in 4 days using a the Azrin and Foxx Behavioral Method. It is a great method that a Behavior Analyst taught me. I plan on teaching my 9 year old daughter with moderate autism over the holidays. It is similar to other programs in that you have the child go straight to underwear, no training pants, and it takes an all day commitment, but it works quickly and it teaches the social aspect of toilet training and the importance of being dry and clean, not just going in the toilet. I tried everything, this worked for me. Feel free to contact me if you need help finding someone to teach you this method.

-- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardonc

enter.org

-------------- Original message -------------- From: " novine1933 " <novine1933@...>

Hi, I am new to the group and from Burke County. I have a 5 year oldwith Aspergers Syndrome. I was wondering if anyone had any experienceor advice with potty training. He strongly resists any attempt topotty train. He will not even sit on the toilet. I can not even

attempt to main stream him into school until he is trained. Any advisewill be greatly appreciated.

-- ~ ~proud US Army wife

mommy to Caitey, 9, ADHDmommy to Sierra, 5, autism, nonverbal, sensory intergration disorder " Only the really plain people know about love - the very fascinating ones try so hard to create an impression that they soon exhaust their talents. "

~~Katharine Hepburn

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Ok…my daughter doesn’t even acknowledge

when she’s wet or dirty. Well a little more now when she’s dirty, but we’ve

started using pull-ups just so we can tell when she’s wet. She sometimes pulls

on the diaper because she’s into this naked phase so it looks wet. Any methods

to make her more aware of the yuck factor?

From: autism [mailto:autism ] On Behalf Of jennifermcgee4@...

Sent: Friday, November 03, 2006

11:09 AM

autism

Subject: Re:

Potty Training

I have 4 children, 3 with autism. My twin boys, age 5, have high

functioning autism and I was able to train both boys in 4 days using a the

Azrin and Foxx Behavioral Method. It is a great method that a Behavior Analyst

taught me. I plan on teaching my 9 year old daughter with moderate autism over

the holidays. It is similar to other programs in that you have the child go

straight to underwear, no training pants, and it takes an all day commitment,

but it works quickly and it teaches the social aspect of toilet training and

the importance of being dry and clean, not just going in the toilet. I tried

everything, this worked for me. Feel free to contact me if you need help

finding someone to teach you this method.

--

McGee

Advocacy/Education Specialist

The Reardon Center

PO BOX 14669

Savannah, GA

31416

912-355-9098

www.matthewreardoncenter.org

-------------- Original message --------------

From: " novine1933 " <novine1933 >

Hi, I am new to the group and from Burke County.

I have a 5 year old

with Aspergers Syndrome. I was wondering if anyone had any experience

or advice with potty training. He strongly resists any attempt to

potty train. He will not even sit on the toilet. I can not even

attempt to main stream him into school until he is trained. Any advise

will be greatly appreciated.

--

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.13.25/515 - Release Date: 11/3/2006

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006

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My son did not know the difference either, this method teaches this. Just google Azrin & Foxx. However, this was not a method I was able to teach myself, and I have a Master's in Psychology. I really needed the support of an ABA with this one. This is the only time I have hired an ABA. It was pricey, but it was for such a short amount of time and well worth it. I recommend finding an ABA in your area who is familiar with this method. I don't want to give the impression that this process was easy. It took alot of work, but it worked and in a short amount of time. I trianed the more difficult one of my twins in 4 days in July and he has not regressed since.

-- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org

-------------- Original message -------------- From: "" <gina_and_mark_avila@...>

Ok…my daughter doesn’t even acknowledge when she’s wet or dirty. Well a little more now when she’s dirty, but we’ve started using pull-ups just so we can tell when she’s wet. She sometimes pulls on the diaper because she’s into this naked phase so it looks wet. Any methods to make her more aware of the yuck factor?

From: autism [mailto:autism ] On Behalf Of jennifermcgee4comcast (DOT) netSent: Friday, November 03, 2006 11:09 AMautism Subject: Re: Potty Training

I have 4 children, 3 with autism. My twin boys, age 5, have high functioning autism and I was able to train both boys in 4 days using a the Azrin and Foxx Behavioral Method. It is a great method that a Behavior Analyst taught me. I plan on teaching my 9 year old daughter with moderate autism over the holidays. It is similar to other programs in that you have the child go straight to underwear, no training pants, and it takes an all day commitment, but it works quickly and it teaches the social aspect of toilet training and the importance of being dry and clean, not just going in the toilet. I tried everything, this worked for me. Feel free to contact me if you need help finding someone to teach you this method.

-- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org

-------------- Original message -------------- From: "novine1933" <novine1933 >

Hi, I am new to the group and from Burke County. I have a 5 year oldwith Aspergers Syndrome. I was wondering if anyone had any experienceor advice with potty training. He strongly resists any attempt topotty train. He will not even sit on the toilet. I can not evenattempt to main stream him into school until he is trained. Any advisewill be greatly appreciated.

--No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.13.25/515 - Release Date: 11/3/2006

--No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006

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(this is in response in another email, but wanted to share with the group)

I am not a therapist, but I will try to explain the gist of it. You do what they call "dry checks", and a child is rewarded for being dry/clean, thus the social aspect of potty training. You may start off doing dry checks every 5 minutes, than increase that space of time as the child is more successful. Again this is the ultra simplified explanation, you really need assistance from an ABA therapist for this to be successful, but it does work.

-- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org

-------------- Original message -------------- From: "novine1933" <novine1933@...>

Hi, I am new to the group and from Burke County. I have a 5 year oldwith Aspergers Syndrome. I was wondering if anyone had any experienceor advice with potty training. He strongly resists any attempt topotty train. He will not even sit on the toilet. I can not evenattempt to main stream him into school until he is trained. Any advisewill be greatly appreciated.

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  • 9 months later...

wow - can you send erin to my house for a week or so?!?! even though lexi is

now almost 4 in november and in her brace for over a year, she still has trouble

getting on and off the potty alone.we have put a step up stool in her bathroom

and even put a little handle for her to use which is attached to the cabinet

next to the toilet. however, she has a hard time getting her pants and panties

down by herself. she can climb up on to the toilet alone but can't always wipe

very well in her brace and get her bottoms back up. i was a little ticked last

week about this issue at her preschool. ok - here comes my ranting vent. we

moved her to a preschool which is closer to our house. we had her at our church

preschool last year, but it is a 15 mile one way trip and with noah in full day

school this year all i would be doing is driving back and forth to schools.

anyway - when i enrolled her this summer i had a sit down talk with her teachers

and the director of the preschool about the brace. showed them how to put it on

and take it off, etc.... said we didn't want her to have special treatment

because of the brace but she would need it taken off for playground time and she

would need help on the potty while in it. they were so understanding and willing

to learn all they could about it. so last week we start school and they are now

wigging out about this brace. they actually had me write down all the rules

which consisted of " take it off when she is on the playground " and " please help

to her to the bathroom " . they are acting like she is in some sort of device that

their brains just can't comprehend. i have no clue what is going on there, but i

am going to feel them out for another 3 or 4 weeks and see if their attitudes

change. it isn't that they don't want her there, but they are overthinking this

brace way too much. ughh...anyway - that is my rant and if you could send erin

to houston for a week i would be very grateful!!!!! LOL

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even

bend or turn her neck to see what she was doing. I had to help with some up and

down of undies and pants, but she did very well. Eventually, she didn't need my

help even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time

in their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc.

I explained her condition, why we were in Boston, etc. They also questioned if

it was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone

if they are getting too rough and will say to them: " Stop! You are hurting my

back and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

wow - can you send erin to my house for a week or so?!?! even though lexi is

now almost 4 in november and in her brace for over a year, she still has trouble

getting on and off the potty alone.we have put a step up stool in her bathroom

and even put a little handle for her to use which is attached to the cabinet

next to the toilet. however, she has a hard time getting her pants and panties

down by herself. she can climb up on to the toilet alone but can't always wipe

very well in her brace and get her bottoms back up. i was a little ticked last

week about this issue at her preschool. ok - here comes my ranting vent. we

moved her to a preschool which is closer to our house. we had her at our church

preschool last year, but it is a 15 mile one way trip and with noah in full day

school this year all i would be doing is driving back and forth to schools.

anyway - when i enrolled her this summer i had a sit down talk with her teachers

and the director of the preschool about the brace. showed them how to put it on

and take it off, etc.... said we didn't want her to have special treatment

because of the brace but she would need it taken off for playground time and she

would need help on the potty while in it. they were so understanding and willing

to learn all they could about it. so last week we start school and they are now

wigging out about this brace. they actually had me write down all the rules

which consisted of " take it off when she is on the playground " and " please help

to her to the bathroom " . they are acting like she is in some sort of device that

their brains just can't comprehend. i have no clue what is going on there, but i

am going to feel them out for another 3 or 4 weeks and see if their attitudes

change. it isn't that they don't want her there, but they are overthinking this

brace way too much. ughh...anyway - that is my rant and if you could send erin

to houston for a week i would be very grateful!!!!! LOL

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even

bend or turn her neck to see what she was doing. I had to help with some up and

down of undies and pants, but she did very well. Eventually, she didn't need my

help even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time

in their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc.

I explained her condition, why we were in Boston, etc. They also questioned if

it was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone

if they are getting too rough and will say to them: " Stop! You are hurting my

back and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

wow - can you send erin to my house for a week or so?!?! even though lexi is

now almost 4 in november and in her brace for over a year, she still has trouble

getting on and off the potty alone.we have put a step up stool in her bathroom

and even put a little handle for her to use which is attached to the cabinet

next to the toilet. however, she has a hard time getting her pants and panties

down by herself. she can climb up on to the toilet alone but can't always wipe

very well in her brace and get her bottoms back up. i was a little ticked last

week about this issue at her preschool. ok - here comes my ranting vent. we

moved her to a preschool which is closer to our house. we had her at our church

preschool last year, but it is a 15 mile one way trip and with noah in full day

school this year all i would be doing is driving back and forth to schools.

anyway - when i enrolled her this summer i had a sit down talk with her teachers

and the director of the preschool about the brace. showed them how to put it on

and take it off, etc.... said we didn't want her to have special treatment

because of the brace but she would need it taken off for playground time and she

would need help on the potty while in it. they were so understanding and willing

to learn all they could about it. so last week we start school and they are now

wigging out about this brace. they actually had me write down all the rules

which consisted of " take it off when she is on the playground " and " please help

to her to the bathroom " . they are acting like she is in some sort of device that

their brains just can't comprehend. i have no clue what is going on there, but i

am going to feel them out for another 3 or 4 weeks and see if their attitudes

change. it isn't that they don't want her there, but they are overthinking this

brace way too much. ughh...anyway - that is my rant and if you could send erin

to houston for a week i would be very grateful!!!!! LOL

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even

bend or turn her neck to see what she was doing. I had to help with some up and

down of undies and pants, but she did very well. Eventually, she didn't need my

help even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time

in their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc.

I explained her condition, why we were in Boston, etc. They also questioned if

it was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone

if they are getting too rough and will say to them: " Stop! You are hurting my

back and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

I will send her for longer than a week - just say when! LOL

I am curious, why does Lexi's brace come off for playground time? Yeah, wiping

can be hard, I did a double check when I was helping with the ups and downs.

is an independent girl - most of the time. She wore her brace for about a

little over a year.

If you go into the photos section of the group, and click on - congenital

scoliosis, you can see pics of with hre brace. Actually, we still have it.

Who knows, it may come in handy for a future science class project!

Tracey wrote:

wow - can you send erin to my house for a week or so?!?! even though lexi is

now almost 4 in november and in her brace for over a year, she still has trouble

getting on and off the potty alone.we have put a step up stool in her bathroom

and even put a little handle for her to use which is attached to the cabinet

next to the toilet. however, she has a hard time getting her pants and panties

down by herself. she can climb up on to the toilet alone but can't always wipe

very well in her brace and get her bottoms back up. i was a little ticked last

week about this issue at her preschool. ok - here comes my ranting vent. we

moved her to a preschool which is closer to our house. we had her at our church

preschool last year, but it is a 15 mile one way trip and with noah in full day

school this year all i would be doing is driving back and forth to schools.

anyway - when i enrolled her this summer i had a sit down talk with her teachers

and the director of the preschool about

the brace. showed them how to put it on and take it off, etc.... said we didn't

want her to have special treatment because of the brace but she would need it

taken off for playground time and she would need help on the potty while in it.

they were so understanding and willing to learn all they could about it. so last

week we start school and they are now wigging out about this brace. they

actually had me write down all the rules which consisted of " take it off when

she is on the playground " and " please help to her to the bathroom " . they are

acting like she is in some sort of device that their brains just can't

comprehend. i have no clue what is going on there, but i am going to feel them

out for another 3 or 4 weeks and see if their attitudes change. it isn't that

they don't want her there, but they are overthinking this brace way too much.

ughh...anyway - that is my rant and if you could send erin to houston for a week

i would be very grateful!!!!! LOL

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even bend

or turn her neck to see what she was doing. I had to help with some up and down

of undies and pants, but she did very well. Eventually, she didn't need my help

even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time in

their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc. I

explained her condition, why we were in Boston, etc. They also questioned if it

was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone if

they are getting too rough and will say to them: " Stop! You are hurting my back

and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

I will send her for longer than a week - just say when! LOL

I am curious, why does Lexi's brace come off for playground time? Yeah, wiping

can be hard, I did a double check when I was helping with the ups and downs.

is an independent girl - most of the time. She wore her brace for about a

little over a year.

If you go into the photos section of the group, and click on - congenital

scoliosis, you can see pics of with hre brace. Actually, we still have it.

Who knows, it may come in handy for a future science class project!

Tracey wrote:

wow - can you send erin to my house for a week or so?!?! even though lexi is

now almost 4 in november and in her brace for over a year, she still has trouble

getting on and off the potty alone.we have put a step up stool in her bathroom

and even put a little handle for her to use which is attached to the cabinet

next to the toilet. however, she has a hard time getting her pants and panties

down by herself. she can climb up on to the toilet alone but can't always wipe

very well in her brace and get her bottoms back up. i was a little ticked last

week about this issue at her preschool. ok - here comes my ranting vent. we

moved her to a preschool which is closer to our house. we had her at our church

preschool last year, but it is a 15 mile one way trip and with noah in full day

school this year all i would be doing is driving back and forth to schools.

anyway - when i enrolled her this summer i had a sit down talk with her teachers

and the director of the preschool about

the brace. showed them how to put it on and take it off, etc.... said we didn't

want her to have special treatment because of the brace but she would need it

taken off for playground time and she would need help on the potty while in it.

they were so understanding and willing to learn all they could about it. so last

week we start school and they are now wigging out about this brace. they

actually had me write down all the rules which consisted of " take it off when

she is on the playground " and " please help to her to the bathroom " . they are

acting like she is in some sort of device that their brains just can't

comprehend. i have no clue what is going on there, but i am going to feel them

out for another 3 or 4 weeks and see if their attitudes change. it isn't that

they don't want her there, but they are overthinking this brace way too much.

ughh...anyway - that is my rant and if you could send erin to houston for a week

i would be very grateful!!!!! LOL

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even bend

or turn her neck to see what she was doing. I had to help with some up and down

of undies and pants, but she did very well. Eventually, she didn't need my help

even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time in

their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc. I

explained her condition, why we were in Boston, etc. They also questioned if it

was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone if

they are getting too rough and will say to them: " Stop! You are hurting my back

and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

wait wait...why don't i just send lexi to you?!?! lol well, the reason we take

her brace off at playtime is mainly one because they have areas where they climb

and whatnot. our main concern there was if she were to fall. granted, it would

be bad either in brace or out of brace, but it was just the decision we made.

secondly, is she using muscles and so on when she is climbing ( the child is a

monkey) and anytime where she is " exercising " is considered in brace time and

does not go against her 6 hours out of brace per day. not only that, she is just

more comfortable running around on the playground out of the brace and can be

more free i guess and lastly - it is september and still hotter than you know

where here in texas and she is way more comfortable running around in 90 degree

weather out of that thing than she would be in it!!

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even

bend or turn her neck to see what she was doing. I had to help with some up and

down of undies and pants, but she did very well. Eventually, she didn't need my

help even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time

in their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc.

I explained her condition, why we were in Boston, etc. They also questioned if

it was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone

if they are getting too rough and will say to them: " Stop! You are hurting my

back and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

I was just curious. ran, climbed, played etc in her brace. Then again, she

wore it 23 hours. The hour out was for baths.

Tracey wrote: wait wait...why don't i just send lexi to

you?!?! lol well, the reason we take her brace off at playtime is mainly one

because they have areas where they climb and whatnot. our main concern there was

if she were to fall. granted, it would be bad either in brace or out of brace,

but it was just the decision we made. secondly, is she using muscles and so on

when she is climbing ( the child is a monkey) and anytime where she is

" exercising " is considered in brace time and does not go against her 6 hours out

of brace per day. not only that, she is just more comfortable running around on

the playground out of the brace and can be more free i guess and lastly - it is

september and still hotter than you know where here in texas and she is way more

comfortable running around in 90 degree weather out of that thing than she would

be in it!!

tracey

Potty Training

trained in a TLSO brace that included a headpiece so she couldn't even bend

or turn her neck to see what she was doing. I had to help with some up and down

of undies and pants, but she did very well. Eventually, she didn't need my help

even with the undies or pants.

Children are adaptable. This is going to be part of who they are at this time in

their life. I think as a parent we tend to " wig out " more than the child does

when they are this young. I found that if I just said " this is who she is "

everything was fine.

Couple of examples:

When got her TLSO brace (for her facial dysplacia and torticolis, not

really her back per se), her older brother was in preschool. All of the children

were very interested in why all of the sudden had a " turtle shell " (their

words, not mine) So I took the opportunity to explain that 's back and neck

weren't nice and straight like theirs and her " turtle shell " (and actually that

is what it looked like - SMART KIDS!!) was there to help her. They all asked to

touch it and things were fine with them.

another example: about a year after she got the TLSO, we went to Boston for a

consult on getting into the VEPTR trials. has congenital scoliosis, so

the brace wasn't going to do a whole lot for her back, but it did great things

to prevent her face from becoming asymmetrical. We were at a playground with my

SIL and nephew. was running around and climbing like any other child. I

could hear some of the other moms talking amongst themselves wondering if she

had been in an accident, if it was ok for her to go down the slide etc. At one

point she fell, but didn't cry. I think 6 moms ran over to her before I got

there. She was fine, I asked her if she broke the slide. " Nope! " and she ran off

to play with her cousin.

The other moms took this as an opportunity to ask me what happened to her etc. I

explained her condition, why we were in Boston, etc. They also questioned if it

was ok for her to be on the playground with the other kids etc. I said " Look,

the only things I prevent her from doing are things you would typically prevent

a 2 year old from doing - like jumping off the table saying " I can fly " or

running in a parking lot. On a playground, she can play with the other kids - as

you can see. She also cannot play contact sports - so there go her football and

hockey scholarships. " To this day, put her on a playground with a bunch of kids,

and I would bet you to pick out my daughter.

Now that being said, has gotten to the point where she can tell someone if

they are getting too rough and will say to them: " Stop! You are hurting my back

and I have scoweeosis " (her pronunciation) or " Weeve my sohjury alone " Her

teachers and aides all know about her rods and that she can't do contact sports.

They know she may ask to sit in a chair instead of on the carpet if her back is

tired. But for the most part, by letting her play with other kids and teaching

her in age appropriate language about her condition, she has done great!

I know that potty training will be a big step for a lot of the guys and gals

just getting their casts - they will be so much more comfortable! Don't forget

about the old standbys - BRIBES!! M & M's, picking out new underwear, a new book,

a phone call from a favorite character! (This worked wonders for ! When she

was juuuuuuuuust about there - I had my SIL (who is of Puertorican descent and

speaks Spanish) call as " Dora the Explorer " to congratulate her on being a

big girl)

Gail

Crafting Blog: http://itsmineitsallmine.blogspot.com/

************************************************

Mom to , 11/28/98 - ADHD/ODD/SID

and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and

renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR

Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 &

04/20/06

Put a little 'TLC' into your scrapbook!

Independent TLC Scrapbooking Instructor

http:\\www.topline-creations.com\gail

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Link to comment
Share on other sites

  • 3 years later...

If you check through past messages here you will discover this is

one of the most talked about issues.  Toilet paper put in before she

goes can help to avoid a splash.

On 23/01/2011 12:00 PM, Lea wrote:

 

I wanted to ask if other parents had trouble potty

training their Aspie child? Mine is 5 and still in diapers

at night only and when she has to poo. The splash in the

potty scares her. Any suggestions? Thanks, Lea

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I'm glad you posted this. It continues to be a conern for us and no one (pediatricians etc.) has really given us any advice or tell us what to do (although our autism diagnosis is recent).

My son (6 1/2 yrs) continues to wear underjams at night - everynight. Last year he had several accidents #1 and #2 but we used a reward system - if he got to the toilet on time, if he flushed and if he washed hands. We only concentrated on that behavior to correct at that time and it worked very well. I have never been able to try anything for night time though.

Currently he hasn't been having any pee accidents but often doesn't make it in time for #2 - if he's under a lot of stress or sometimes he says he just doesn't feel it coming. I talked with the OT and she said it is very possible as it is a sensory issue.

Does anyone have any suggestions on how to help our kids through this? And does it get to a point where it affects their self esteem? What to do, what to do! : )

potty training

I wanted to ask if other parents had trouble potty training their Aspie child? Mine is 5 and still in diapers at night only and when she has to poo. The splash in the potty scares her. Any suggestions? Thanks, Lea

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3397 - Release Date: 01/22/11 19:33:00

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Oh wow your daughter sounds like my grandson, I could never understand

when he used to scream his head off when I bathed him in the sink when

he was little. I had already done it with his two older siblings and

they didn't scream, finally one day I realized it was the sound of the

water when I sprayed it on him to rinse off the soap.. Now he is 6 and

in 1st grade and holds it all day and goes pee in my bathroom usually as

they come over here. But I HAVE to sit on the tub by him, he won't be in

there alone, he HAS to have two lights on, and I HAVE to wait until he

leaves the room before I flush. He used to afraid of the bath tub hasn't

had a bath in it in years, and desperately afraid of the public swimming

pool but got over it and now loves it and the pool in our backyard.

Lately we've been having trouble, like today I took the kids to the park

and he played like a maniac with his brother for about 45 min. well then

I suggested an ice cream cone so stopped at the local Dairy Queen, what

a PRODUCTION... For one it was not the easy task I thought it might be,

I sent my granddaughter in with a $20 and said order ice cream cones for

all, figured all would be fine. Lucas stayed in the van with me because

he was being a brat calling names and hollering, had NO patience. Then

he said he was hungry and would like a kids meal so when I learned he

had not had breakfast went in to tell his sister to order him one, so

had to take him in.

And he called me many names, just ridiculous antisocial behavior, I

figure he was hungry and tired and very mad we'd left the park like we

were going to stay there all day for him or something. He just really

mouths off badly, like no kid I have ever seen. Of course he embarrassed

me terribly and I told him in front of everybody looking at us he was

going to get a real HARD spanking when we got back to the van. Sigh but

he didn't. What's the use he would be being spanked constantly. It is as

though he has reached the end of his ability to deal and just turns

antisocial!

He had a hangnail on one of his fingers and it was bothering him and he

must have said at least 50 times, Grandma can we go to your house and

snip my nail..at about 30 times of saying no I would take him home his

mom would clip it I gave up and just let him ramble.. Figure I will

carry a clipper with me after this. He took one bite of his burger and

went to work on his milk shake which the woman forgot to give me and I

had to go back in and wait some more when I KNOW I ordered it.

Carolyn ;o{ the grandma

Lea wrote:

>

> I wanted to ask if other parents had trouble potty training their

> Aspie child? Mine is 5 and still in diapers at night only and when she

> has to poo. The splash in the potty scares her. Any suggestions?

> Thanks, Lea

>

>

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