Guest guest Posted June 21, 2012 Report Share Posted June 21, 2012 worked diligently to get us one of the new cooling vests for our son. Attached are a couple of pictures of what it looks like. There is a lot of room for growth and it works wonders. It doesn't seem to bother him at all. Definitely worth it for it!!!!Thanks !!!!ErynMother of Brayden, 20 months, 3rd cast From: "heather@..." <heather@...> infantile scoliosis treatment Sent: Thursday, June 21, 2012 11:48 AM Subject: Re: A quick update on Tom and us. Hi , I think 12 is super promising and that you guys are on the right track 100%. Its rough I know, but you guys got this. And, your lil man will surprise you:) Cooling vests can be found at www.noeledfcastframe.com under Cast Related Products. Im updating the site soon because the vests have been redesigned. They are now made of durable denim, neoprene and 5 adjustable straps. They come with cooling cells that last up to 2 hrs. Hang in there! HRH > Hi folks! I know it's been a while, but things have been busy here with > the end of school and my temp job (still working on finding the next > position). > > Tom had cast #3 put on in early June. When cast #2 came off, we were > ecstatic because we thought his back looked fabulous--even Dr. S was > excited. But after cast #3 went on, Dr. S told us we all had been a bit > overly optimistic as it looked like his curve had not changed at all. They > also remeasured his curve and he started out with a 55 degree in January > (not 47 degrees like we thought), but he was 42 degrees before cast #3 > went on so it's going in the right direction. He's down to 12 degrees in > the cast, which is promising too. > > Tom's just started walking without holding on to something, but bending > over is still a challenge. We're also dealing with some asymmetry issues > while he crawls and his PT is afraid something may be wrong with his hip. > So we're working on that too. > > Steve's frustrated because he knows how uncomfortable this heat is making > Tom, but he knows it's helping so he's sucking it up for now. > > I'm sorry I missed the webcast with Dr. S! I need to get back over here > more often. > > I hope everyone is doing well! > > > > 3 of 3 Photo(s) IMG_20120509_102523.jpg Quote Link to comment Share on other sites More sharing options...
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