Guest guest Posted June 21, 2012 Report Share Posted June 21, 2012 Love ya girl! Time to rally the troops! HRH > , > First of all im so sorry. I feel your pain. We saw our scoli doc today and > got discouraging news. My son has been cast/brace free since December > 2010. > He has been holding steady at 8 degrees. Today for what ever reason he was > at 25. Crap. We will xray again in a few mos and if worse we will cast > again. My son will be 4 by then. I had an all out fit! I wanted to punch > someone in the face! But who?? Now that i have calmed down i remember how > scoliosis is a unpredictable piece of unfair crap disease/condition. Have > a > pity party. I know i did. But when it comes down to it we are strong > mommas > and we will put our big girl panties on and kick some scoli butt!!! We may > be down but we are not out! We have casting when others before us didnt. > We > have trained docs when others before us didnt. We all have each other when > others didnt. Keep your head up and fight!!!! I know you will because as > moms thats just what we do. > > Hugs to you, > mom to Isaiah > > Sent from my Verizon Wireless 4G LTE DROID > > Re: Very Nervous > > Well, we are back home with Abby and I am afraid that i don't have very > good > news. When Abby's doctor took her last cast off in February, he told us > then that he didn't think she would need any more casting. Well, we were > supposed to take Abby's brace off this morning about 4 hours before her > appointment to see if her spine would move or if it would stay straight. > Well, when they took her X-Ray today, her spine had moved. The X-ray > showed > it being at 28 degrees (it was 3.8 in the brace). And on top of this, her > doctor said that because it moved so much in just 4 hours that he is > wanting > to do another series of casting on her beginning in the fall. He wants to > do at least 3 more casts and then see what happens after that. We are so > discouraged and frustrated. Has anyone else had this happen? I have > cried > most of the day. I could really use some encouragement. > > , Mom of Abby > > Quote Link to comment Share on other sites More sharing options...
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