Re: Cooling vest [3 Attachments]

[Guest guest]

Thanks Eryn! I really appreciate that:) and am so glad its working good

for Brayden.

HRH

> worked diligently to get us one of the new cooling vests for our

> son. Attached are a couple of pictures of what it looks like. There is a

> lot of room for growth and it works wonders. It doesn't seem to bother him

> at all. Definitely worth it for it!!!!

>

> Thanks !!!!

>

> Eryn

> Mother of Brayden, 20 months, 3rd cast

>

>

> ________________________________

> From: " heather@... " <heather@...>

> infantile scoliosis treatment

> Sent: Thursday, June 21, 2012 11:48 AM

> Subject: Re: A quick update on Tom and us.

>

>

>  

> Hi ,

> I think 12 is super promising and that you guys are on the right track

> 100%. Its rough I know, but you guys got this. And, your lil man will

> surprise you:)

> Cooling vests can be found at www.noeledfcastframe.com under Cast Related

> Products. Im updating the site soon because the vests have been

> redesigned. They are now made of durable denim, neoprene and 5 adjustable

> straps. They come with cooling cells that last up to 2 hrs.

> Hang in there!

> HRH

>

>> Hi folks! I know it's been a while, but things have been busy here with

>> the end of school and my temp job (still working on finding the next

>> position).

>>

>> Tom had cast #3 put on in early June. When cast #2 came off, we were

>> ecstatic because we thought his back looked fabulous--even Dr. S was

>> excited. But after cast #3 went on, Dr. S told us we all had been a bit

>> overly optimistic as it looked like his curve had not changed at all.

>> They

>> also remeasured his curve and he started out with a 55 degree in January

>> (not 47 degrees like we thought), but he was 42 degrees before cast #3

>> went on so it's going in the right direction. He's down to 12 degrees in

>> the cast, which is promising too.

>>

>> Tom's just started walking without holding on to something, but bending

>> over is still a challenge. We're also dealing with some asymmetry issues

>> while he crawls and his PT is afraid something may be wrong with his

>> hip.

>> So we're working on that too.

>>

>> Steve's frustrated because he knows how uncomfortable this heat is

>> making

>> Tom, but he knows it's helping so he's sucking it up for now.

>>

>> I'm sorry I missed the webcast with Dr. S! I need to get back over here

>> more often.

>>

>> I hope everyone is doing well!

>>

>>

>>

>>

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