Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Hello!! My name is Melody. My daughter Mikelle (just turned 2) has scoliosis. I also have 3 other little girls named Gabby who is almost 6, Izzy who just turned 3 and le who is a ripe 6 months old! Its hard to keep up with all of them so in most of my posts on Facebook and other websites they are all lovingly refered to as the " monsters " , unless I am talking about one specific child.. Anyway, Mikelle was very young when I noticed something not right with her back.. I brought it up to her Pedi at her 4 month and 6 month check up but he brushed it off like nothing was wrong and I was over reacting. After a tramatizing Drs appointment for my oldest I decided he would no longer be seeing my children. After months of searching the internet and a few more months of her insurance taking to long to switch all the girls we finally got them in September of last year. By then it was more than obvious to us and other family members that something wasnt right. The first thing I said to the Dr when she walked in was that something was not right with Mikelles back and that it needs to be looked at asap. She had me take her shirt off and put her on the floor facing away from the Dr and let her walk to me. Within seconds she was on her computer filing out a referal to Shriners Childrens Hospital for us! After a few moths of waiting for her first appointment she was seen in February of this year. Her xrays that day showed a 57 degree curve in her spine, and we were told she would need an MRI to take a closer look.. Few more months of waiting for her insurance to approve it and we finally got her in at the end of April. Seeing her be sedated and having to leave the room while they did it was so emotional for me and my worst fear was that her Dr at Shriners would want to do surgery. Thankfully at her appointment last week her awesome Dr said he does not want to do surgery on her because she is so young and in his words " She is just to darn cute to put though that type of pain " .. He insturcted the nurse to give us all the info on casting and said she will be getting her first cast on at the end of June!!! Ahhhh best words I have ever heard! Since she was little I have been looking up every possible treatment online and casting was always what I prayed for, and amazingly the nurse told me they have only been doing casting at this Shriners for about a year now! I know we still have a long road ahead of us, and I know I will cry like a baby everytime she has to get a new cast on, but I am so thankful we are finally doing SOMETHING about it, not just sitting and waiting anymore! I also am glad I found this group. Any info on the casting itself or care afterwords is greatly needed, and who better to give it than parents who are going through the same thing! Thank you all for reading this, and I look forward to getting to know everyone and share Mikelles journey with you all.. Quote Link to comment Share on other sites More sharing options...
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