Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Hi Amber, My daughter had this same expereince last summer. She had been in casting for over 6 months. Then, they decided to give her a summer break. I was nervous too. I had the same fears that you are having. BUT, let me tell you what happened! (This is truly amazing!) Before her summer break, her curve was sitting at 18 degrees. Her doctor said that he didn't think he could get her much lower than that. He was prpredicting an outcome of about 15-16 degrees in the end and then having her wear the brace until she reached puberty so that she could have surgery. Then, after her summer break, she went back into casting last Fall (in September). Well, the doctor came out of the OR after the casting and was shocked to see that her summer break had made her spine very flexible again. And he was able to get her spine down to 8 degrees! He was shocked! And he told us then that he could see a big improvement in her spine and its willingness to correct itself. He said that he believed that she would no longer need surgery and that the casting/bracing would correct her to the point that she would no longer need treatment. Now, she is finished with casting. She has been in her post-casting brace for 4 months now. And her curve is down to 3.8 degrees! We are so happy! So, my advice to you is to not worry, and let your precious little girl enjoy her summer cast-free! Take her swimming,fill the bathtub up with bubbles and let her play and let her have a fun summer. And, hopefully, you will get great news in the Fall like I did - , Mom of Abby (48* down to 3.8*) > > Hi my name is Amber and my daughter Aivree is 26 months old with early on set scoliosis. Aivree had a year of EDF casting before she was placed in a brace for the summer. Next month she will start her second series of EDF casts. I am worried about how she will react to casting again because she has very much enjoyed the freedom that the brace has offered her this summer. I was wondering how other children have reacted to such and I am looking for ideas to make the transition easier. Any ideas would be greatly appreciated! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Amber, I also forgot to mention that when my little girl went back into her second set of casts, she did just fine - she acted like it was completely normal. She kept right on playing, smiling and doing her normal thin without missing a beat I'm sure your daughte rwill do fine too. - , Mom of Abby > > > > Hi my name is Amber and my daughter Aivree is 26 months old with early on set scoliosis. Aivree had a year of EDF casting before she was placed in a brace for the summer. Next month she will start her second series of EDF casts. I am worried about how she will react to casting again because she has very much enjoyed the freedom that the brace has offered her this summer. I was wondering how other children have reacted to such and I am looking for ideas to make the transition easier. Any ideas would be greatly appreciated! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Thank you for the great info! And congrats to you and Abby for completing successful casting with those amazing results! I am so happy for you both! I hope my daughter reacts the same way! And we are definitely enjoying bath time and swimming! > > > > > > Hi my name is Amber and my daughter Aivree is 26 months old with early on set scoliosis. Aivree had a year of EDF casting before she was placed in a brace for the summer. Next month she will start her second series of EDF casts. I am worried about how she will react to casting again because she has very much enjoyed the freedom that the brace has offered her this summer. I was wondering how other children have reacted to such and I am looking for ideas to make the transition easier. Any ideas would be greatly appreciated! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2012 Report Share Posted June 20, 2012 This is really cool to hear stories like this jaylin is getting his cast off on Thursday and we have been counting the days he will get a brace for the rest of the summer, nervous about that because we haven't had one of those before, but all will be well I'm sure :)Live, laugh, and loveJoyOn Jun 19, 2012, at 3:44 PM, "aivrees mommy" <amber.flannery@...> wrote: Thank you for the great info! And congrats to you and Abby for completing successful casting with those amazing results! I am so happy for you both! I hope my daughter reacts the same way! And we are definitely enjoying bath time and swimming! > > > > > > Hi my name is Amber and my daughter Aivree is 26 months old with early on set scoliosis. Aivree had a year of EDF casting before she was placed in a brace for the summer. Next month she will start her second series of EDF casts. I am worried about how she will react to casting again because she has very much enjoyed the freedom that the brace has offered her this summer. I was wondering how other children have reacted to such and I am looking for ideas to make the transition easier. Any ideas would be greatly appreciated! > > > > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2012 Report Share Posted June 21, 2012 The younger my daughter was, the less I explained. She seemed to just roll with it. The older she got, the more difficult these explanations became. Not an easy one...Good luck:) HRH > Hi my name is Amber and my daughter Aivree is 26 months old with early on > set scoliosis. Aivree had a year of EDF casting before she was placed in a > brace for the summer. Next month she will start her second series of EDF > casts. I am worried about how she will react to casting again because she > has very much enjoyed the freedom that the brace has offered her this > summer. I was wondering how other children have reacted to such and I am > looking for ideas to make the transition easier. Any ideas would be > greatly appreciated! > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.