Re: Re: Amber & MP

[Guest guest]

Thanks! For providing solid info to new members:)

HRH

> ,

> Yes we are no supposed to mention doctors by name on here. Please feel

> free to email me any questions you have about our experience. I'm

> defiantly not an expert but am happy to answer anything about our

> experience or opinions & give you a contact name/ph #. Best of luck!

> Amber

> amber@...

>

>>

>>

>> Thank so much Amber and MP. You have both been extremely helpful. I was

>> not too familiar with rotation Amber so will make sure that it gets

>> checked. Are you able to tell me who cast your son at SLC? Maybe we

>> can't

>> mention particular names on this forum? If not, can I PM you? As I said,

>> I

>> am having such a hard time knowing which hospital I should choose and of

>> course which doctor. I'm so glad that you are having success with your

>> little boys casts, that is wonderful to hear.

>> I wish you and your family the very best!

>> I seem to be having some trouble getting this post up so I've tried

>> again.

>> Hope it doesn't appear too many times!

>>

>>

>>>

>>> There are a lot of questions there lets see if I can help with some of

>>> them. yes 90% resolve but that being said most times that isn't the

>>> case

>>> for many of the parents who end up on this group. Do you have an RVAD

>>> #?

>>> That helps predict if the curve might progress or not. Under 20 RVAD

>>> might resolve over 20 RVAD might progress. That being said my sons

>>> RVAD

>>> measured at SLC Shriners was only 10 but because of the 15-20 degrees

>>> of

>>> rotation the doc said his experience told him the curve would

>>> progress....we casted the next day. No not 1 year but rather there is

>>> the

>>> greatest chance of a cure if casted under the age of 2 & under 50

>>> degrees

>>> (? I might be off on the degree there it could be 60, someone else will

>>> have to chime in). My son was casted at exactly 20 months old & at 31*

>>> with 15-20* rotation. He is in his 4th cast from SLC Shriner's & is

>>> held

>>> at 10* no rotation in this last cast. He will get a brace at the end

>>> of

>>> July & the hope is that will provide more correction. If he holds

>>> steady

>>> he will be braced for a year & then possibly done with treatment.

>>> There

>>> are many Shriner's hospitals not all do Metha casting. I don't know

>>> the

>>> complete list of who does or doesn't. We love SLC & they do, in fact

>>> they

>>> were one of the first if not the first in the USA to do so. When we

>>> were

>>> making our decision we decided that following Metha's techniques,

>>> having

>>> the proper equipment, & being very experienced were at the top of our

>>> list

>>> in deciding a treatment center. 2nd was proximity. I hope that helps

>>> a

>>> little bit!

>>> Amber

>>> mommy to Levi

>>> In 4th cast from SLC 31* down to 10* in cast

>>> bracing in July

>>>

>>>

>>> > Hi all,

>>> > Well Rosie is now 10 1/2 months old and we still haven't seen the

>>> > orthopedic surgeon here in B.C Canada. Appointment in October. Her

>>> x-ray

>>> > with arms raised showed a 16 degree curve but that was 2 months ago

>>> now. I

>>> > was just curious, is the most likely outcome that her condition will

>>> self

>>> > resolve without having to be cast? I worry every day that too much

>>> time is

>>> > passing by. Aren't babies supposed to be cast by 1 year? We have

>>> requested

>>> > a copy of her x-ray and has offered to have somebody at one

>>> of

>>> the

>>> > Shriner's hospital look at it. So as soon as it arrives I will be

>>> sending

>>> > it to her.

>>> > With regards to Shriner's Hospitals. When I contacted them about

>>> getting

>>> > Rosie in their files, they asked me which hospital I wanted to apply

>>> to.

>>> > How do I decide which doctor I want her to see? I find it very

>>> > overwhelming as this is such a huge decision to make. I don't know

>>> the

>>> > first thing about any of the doctor's. I've heard good things about

>>> Salt

>>> > Lake City, would this be the best place to apply to? Any advice would

>>> be

>>> > greatly appreciated as I really don't know how to figure this out.

>>> Thanks

>>> > so much.

>>> >

>>> >

>>> >

>>>

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