Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 ----------------------- re: Binyamin Cohen From: heather@... Date: Tue, May 22, 2012 2:00 pm " zehava witkin " <zwitkin@...> Cc: infantile scoliosis treatment -------------------------------------------------------------------------- Hi Zehava, I didnt realize lil Binyamin had congenital scoli...This changes my view a bit. I think its wonderful that Shriners in Philly decided to cast a congenital case and I hope this is a trend we begin to see across the U.S. & globe. As we all know, a plaster cast cannot cure a congenital abnormality, but it can be an avenue to maintain and/or correct a bit, buy growth time, maintain alignment, maintain/improve lung volume, etc... I certainly understand your reservations on transferring to a brace. That being said, I think Philly's plan isn't all that bad. Many congenital cases progress slow and perhaps the doc in Philly is wanting to appreciate lil Binyamins pattern of progression before he makes a commitment to have him in casts continually. Fingers crossed lil B.'s scoli is the slow progressing type. If thats the case, then a summer break for him to swim and play normally may be a good plan. I cant speak for the doc but Im guessing if Binyamin does progress in brace, then he will probably be recasted immediately, as to not loose any ground... (?) Please have this discussion with his treating surgeon and go from there. And~ please keep us posted. You're doing great and being a bit apprehensive about this is completely normal. Sincerely, HRH > Hi > I wrote about not being sure whether to push for more casting. I like Dr. > Cahill ( Shriner philly ) and he seems to know his stuff. Is there > someone you would recommend that I send some paperwork to look for a > second opinion. Binyamin ( my son ) is a bit tricky as he has a > congenital butterfly and hemi-vertebrae at T5 & T6 and then his actual curve > we are bracing/casting is compensatory. It is not a common type of PIS. > Our obvious concern is getting worse in a brace over the sumer and then > Binyamin being older and really not responding to the cast. > Did I post this to you or to the site? you are welcome to share it with > the group as it is so nice to learn with and from everyone .... > thanks in advance > Zehava Cohen Quote Link to comment Share on other sites More sharing options...
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