re: Binyamin Cohen

[Guest guest]

Hi Zehava,

I didnt realize lil Binyamin had congenital scoli...This changes my view a

bit. I think its wonderful that Shriners in Philly decided to cast a

congenital case and I hope this is a trend we begin to see across the U.S.

& globe. As we all know, a plaster cast cannot cure a congenital

abnormality, but it can be an avenue to maintain and/or correct a bit, buy

growth time, maintain alignment, maintain/improve lung volume, etc...

I certainly understand your reservations on transferring to a brace. That

being said, I think Philly's plan isn't all that bad. Many congenital

cases progress slow and perhaps the doc in Philly is wanting to appreciate

lil Binyamins pattern of progression before he makes a commitment to have

him in casts continually. Fingers crossed lil B.'s scoli is the slow

progressing type. If thats the case, then a summer break for him to swim

and play normally may be a good plan. I cant speak for the doc but Im

guessing if Binyamin does progress in brace, then he will probably be

recasted immediately, as to not loose any ground... (?) Please have this

discussion with his treating surgeon and go from there.

And~ please keep us posted. You're doing great and being a bit

apprehensive about this is completely normal.

Sincerely,

HRH

> Hi

> I wrote about not being sure whether to push for more casting.  I like Dr.

> Cahill ( Shriner philly ) and he seems to know his stuff.  Is there

> someone you would recommend that I send some paperwork to look for  a

> second opinion.  Binyamin ( my son ) is a bit tricky as he has a

> congenital butterfly and hemi-vertebrae at T5 & T6 and then his actual curve

> we are bracing/casting is compensatory.  It is not a common type of PIS. 

> Our obvious concern is getting worse in a brace over the sumer and then

> Binyamin being older and really not responding to the cast.

> Did I post this to you or to the site?  you are welcome to share it with

> the group as it is so nice to learn with and from everyone ....

> thanks in advance

> Zehava Cohen