Re: Re: Daughter now 10 1/2 months and won't be seen until October

[Guest guest]

,

Yes we are no supposed to mention doctors by name on here. Please feel

free to email me any questions you have about our experience. I'm

defiantly not an expert but am happy to answer anything about our

experience or opinions & give you a contact name/ph #. Best of luck!

Amber

amber@...

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> Thank so much Amber and MP. You have both been extremely helpful. I was

> not too familiar with rotation Amber so will make sure that it gets

> checked. Are you able to tell me who cast your son at SLC? Maybe we can't

> mention particular names on this forum? If not, can I PM you? As I said, I

> am having such a hard time knowing which hospital I should choose and of

> course which doctor. I'm so glad that you are having success with your

> little boys casts, that is wonderful to hear.

> I wish you and your family the very best!

> I seem to be having some trouble getting this post up so I've tried again.

> Hope it doesn't appear too many times!

>

>

>>

>> There are a lot of questions there lets see if I can help with some of

>> them. yes 90% resolve but that being said most times that isn't the

>> case

>> for many of the parents who end up on this group. Do you have an RVAD

>> #?

>> That helps predict if the curve might progress or not. Under 20 RVAD

>> might resolve over 20 RVAD might progress. That being said my sons RVAD

>> measured at SLC Shriners was only 10 but because of the 15-20 degrees of

>> rotation the doc said his experience told him the curve would

>> progress....we casted the next day. No not 1 year but rather there is

>> the

>> greatest chance of a cure if casted under the age of 2 & under 50

>> degrees

>> (? I might be off on the degree there it could be 60, someone else will

>> have to chime in). My son was casted at exactly 20 months old & at 31*

>> with 15-20* rotation. He is in his 4th cast from SLC Shriner's & is

>> held

>> at 10* no rotation in this last cast. He will get a brace at the end of

>> July & the hope is that will provide more correction. If he holds

>> steady

>> he will be braced for a year & then possibly done with treatment. There

>> are many Shriner's hospitals not all do Metha casting. I don't know the

>> complete list of who does or doesn't. We love SLC & they do, in fact

>> they

>> were one of the first if not the first in the USA to do so. When we

>> were

>> making our decision we decided that following Metha's techniques, having

>> the proper equipment, & being very experienced were at the top of our

>> list

>> in deciding a treatment center. 2nd was proximity. I hope that helps a

>> little bit!

>> Amber

>> mommy to Levi

>> In 4th cast from SLC 31* down to 10* in cast

>> bracing in July

>>

>>

>> > Hi all,

>> > Well Rosie is now 10 1/2 months old and we still haven't seen the

>> > orthopedic surgeon here in B.C Canada. Appointment in October. Her

>> x-ray

>> > with arms raised showed a 16 degree curve but that was 2 months ago

>> now. I

>> > was just curious, is the most likely outcome that her condition will

>> self

>> > resolve without having to be cast? I worry every day that too much

>> time is

>> > passing by. Aren't babies supposed to be cast by 1 year? We have

>> requested

>> > a copy of her x-ray and has offered to have somebody at one of

>> the

>> > Shriner's hospital look at it. So as soon as it arrives I will be

>> sending

>> > it to her.

>> > With regards to Shriner's Hospitals. When I contacted them about

>> getting

>> > Rosie in their files, they asked me which hospital I wanted to apply

>> to.

>> > How do I decide which doctor I want her to see? I find it very

>> > overwhelming as this is such a huge decision to make. I don't know the

>> > first thing about any of the doctor's. I've heard good things about

>> Salt

>> > Lake City, would this be the best place to apply to? Any advice would

>> be

>> > greatly appreciated as I really don't know how to figure this out.

>> Thanks

>> > so much.

>> >

>> >

>> >

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