Re: My Daughter's X-Ray results.....any thoughts appreciated

[Guest guest]

Hi ! My daughter, Addie, was diagnosed in April 2011 at 9 months old. She was referred to ortho. She had an MRI of her spine and brain(for other issues). Ortho dr also did an xray at her first appt with her laying on her back with her arms by her side only because she couldn't walk yet. She has had standing xrays with arms raised each time for xray now. She even had one at her preop casting appt that made her bend over to her left side and then her right side. Her curve progressed tremendously from Februaryr 2012 to April 2012 due to her rapid growth spurts. We decided to cast at our April appt but chose to wait until after the first week of June due to family beach vacation. She was casted on June 18. Her curve went from 47.3 to 31 at her 2 week follow up appt.

Her curve is thoracic lumbar with thoracic severely affected. Her thoracic looks like a backwards C and was very close to compromising her left lung and heart. Traction xray was never ordered. Personally, I would not wait if its in the 20 degree curve range.

From: <davelainer@...>infantile scoliosis treatment Sent: Sunday, July 29, 2012 7:08 PMSubject: My Daughter's X-Ray results.....any thoughts appreciated

Hello,My little girl was x-rayed at B.C Children's Hospital on April 27th, she was 8 months old at the time. The only number we were given was that she had a 16 degree curve in the thoralumber region. Her arms were raised above her head during the x-ray. very kindly forwarded the x-ray to one of her doctor contacts and they gave the following results to the same x-rays:The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,RVAD at T 10 - 16 degrees.Please observe & re-x-ray in 3 months. also told me that another doctor thought that it was more of a 20 degree curve.Does it seem likely that this is a resolving case of I.S?I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees is of a major concern.I just don't want to put her through the whole casting process if it is going to correct itself. My husband is also concerned about the traction x-ray

that is done where they pull on the babies legs and feet to take the x-ray. Can this cause further damage?Thanks again for your kind help.

[Guest guest]

Hi ,

Thank you for responding.

Where is Addie being treated? Is it at one of the Shriner's Hosptitals?

I'm so glad for you that she is responding well to the casting.

Thanks so much for sharing your story and for your encouragement.

Elaine

p.s How do they check the progress while the cast is still on? You mention that

you had a two week follow up appointment and they were able to tell you that the

curve went from 47.3 to 31.

>

> Hi ! My daughter, Addie, was diagnosed in April 2011 at 9 months old.

She was referred to ortho. She had an MRI of her spine and brain(for other

issues). Ortho dr also did an xray at her first appt with her laying on her back

with her arms by her side only because she couldn't walk yet. She has had

standing xrays with arms raised each time for xray now. She even had one at her

preop casting appt that made her bend over to her left side and then her right

side. Her curve progressed tremendously from Februaryr 2012 to April 2012 due

to her rapid growth spurts. We decided to cast at our April appt but chose to

wait until after the first week of June due to family beach vacation. She was

casted on June 18. Her curve went from 47.3 to 31 at her 2 week follow up appt.

Her curve is thoracic lumbar with thoracic severely affected. Her thoracic looks

like a backwards C and was very close to compromising her left lung and heart.

Traction xray was never

> ordered. Personally, I would not wait if its in the 20 degree curve range.

>

>

>

> ________________________________

> From: <davelainer@...>

> infantile scoliosis treatment

> Sent: Sunday, July 29, 2012 7:08 PM

> Subject: My Daughter's X-Ray results.....any thoughts

appreciated

>

>

>  

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she was 8

months old at the time. The only number we were given was that she had a 16

degree curve in the thoralumber region. Her arms were raised above her head

during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and they

gave the following results to the same x-rays:

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20

degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees is

of a major concern.

> I just don't want to put her through the whole casting process if it is going

to correct itself. My husband is also concerned about the traction x-ray that is

done where they pull on the babies legs and feet to take the x-ray. Can this

cause further damage?

> Thanks again for your kind help.

>

[Guest guest]

When my Addie was casted her curve went from 52 to 25 with casting per the X-ray. Let's pray it stays that way!Sent from my iPhoneOn Jul 29, 2012, at 8:20 PM, "" <davelainer@...> wrote:

Hi ,

Thank you for responding.

Where is Addie being treated? Is it at one of the Shriner's Hosptitals?

I'm so glad for you that she is responding well to the casting.

Thanks so much for sharing your story and for your encouragement.

Elaine

p.s How do they check the progress while the cast is still on? You mention that you had a two week follow up appointment and they were able to tell you that the curve went from 47.3 to 31.

>

> Hi ! My daughter, Addie, was diagnosed in April 2011 at 9 months old. She was referred to ortho. She had an MRI of her spine and brain(for other issues). Ortho dr also did an xray at her first appt with her laying on her back with her arms by her side only because she couldn't walk yet. She has had standing xrays with arms raised each time for xray now. She even had one at her preop casting appt that made her bend over to her left side and then her right side. Her curve progressed tremendously from Februaryr 2012 to April 2012 due to her rapid growth spurts. We decided to cast at our April appt but chose to wait until after the first week of June due to family beach vacation. She was casted on June 18. Her curve went from 47.3 to 31 at her 2 week follow up appt. Her curve is thoracic lumbar with thoracic severely affected. Her thoracic looks like a backwards C and was very close to compromising her left lung and heart. Traction xray was never

> ordered. Personally, I would not wait if its in the 20 degree curve range.

>

>

>

> ________________________________

> From: <davelainer@...>

> infantile scoliosis treatment

> Sent: Sunday, July 29, 2012 7:08 PM

> Subject: My Daughter's X-Ray results.....any thoughts appreciated

>

>

> Â

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she was 8 months old at the time. The only number we were given was that she had a 16 degree curve in the thoralumber region. Her arms were raised above her head during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and they gave the following results to the same x-rays:

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20 degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees is of a major concern.

> I just don't want to put her through the whole casting process if it is going to correct itself. My husband is also concerned about the traction x-ray that is done where they pull on the babies legs and feet to take the x-ray. Can this cause further damage?

> Thanks again for your kind help.

>

[Guest guest]

Hi Elaine! We are seeing an orthopedic surgeon in Columbia that specializes in pediatric scoli. We have been offered Shriner's Hospital but our closest is 4 hours away. We just couldn't do that with 3 kids and a firefighter husband schedule. We are happy with our ortho surgeon. They just did a normal xray with the arms up. The xray radiation was able to go through the cast which amazed me. Our ortho showed us before and cast xray so we could see the huge difference the cast made. She looked almost straight. She has only had her cast on for a month and we have been dealing with scoli for only a year so I am still learning but feel free to ask any questions. Hope everything works out for your little girl and you!

From: <davelainer@...>infantile scoliosis treatment Sent: Sunday, July 29, 2012 9:20 PMSubject: Re: My Daughter's X-Ray results.....any thoughts appreciated

Hi ,Thank you for responding.Where is Addie being treated? Is it at one of the Shriner's Hosptitals?I'm so glad for you that she is responding well to the casting.Thanks so much for sharing your story and for your encouragement.Elainep.s How do they check the progress while the cast is still on? You mention that you had a two week follow up appointment and they were able to tell you that the curve went from 47.3 to 31.>> Hi ! My daughter, Addie, was diagnosed in April 2011 at 9 months old. She was referred to ortho. She had an MRI of her spine and brain(for other issues). Ortho dr also did an xray at her first appt with her laying on her

back with her arms by her side only because she couldn't walk yet. She has had standing xrays with arms raised each time for xray now. She even had one at her preop casting appt that made her bend over to her left side and then her right side. Her curve progressed tremendously from Februaryr 2012 to April 2012 due to her rapid growth spurts. We decided to cast at our April appt but chose to wait until after the first week of June due to family beach vacation. She was casted on June 18. Her curve went from 47.3 to 31 at her 2 week follow up appt. Her curve is thoracic lumbar with thoracic severely affected. Her thoracic looks like a backwards C and was very close to compromising her left lung and heart. Traction xray was never> ordered. Personally, I would not wait if its in the 20 degree curve range. > > > > ________________________________> From: <davelainer@...>> mailto:infantile scoliosis treatment%40 > Sent: Sunday, July 29, 2012 7:08 PM> Subject: My Daughter's X-Ray results.....any thoughts appreciated> > >  > Hello,> My little girl was x-rayed at B.C Children's Hospital on April 27th, she was 8 months old at the time. The only number we were given was that she had a 16 degree curve in the thoralumber region. Her arms were raised above her head during the x-ray.> very kindly forwarded the x-ray to one of her doctor contacts and they gave the following results to the same x-rays:> > The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,> RVAD at T 10 - 16 degrees.> > Please observe & re-x-ray in 3 months.> >

also told me that another doctor thought that it was more of a 20 degree curve.> > Does it seem likely that this is a resolving case of I.S?> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees is of a major concern.> I just don't want to put her through the whole casting process if it is going to correct itself. My husband is also concerned about the traction x-ray that is done where they pull on the babies legs and feet to take the x-ray. Can this cause further damage?> Thanks again for your kind help.>

[Guest guest]

Hello,Rib phase 1 and rib phase 2 is from Mehta (1971) paper. Phase 1 is normal and phase 2 means that rib and vertebra overlap. Phase 2 is always progressive.RVAD is correlated with progression. Statistics say that 80% of cases with RVAD>20* progress. RVAD<20* in most cases means resolving infantile scoliosis.So I would interpret it like this - now it seems it is resolving infantile scoliosis but it should be carefully observed (xray in 3 months) not to miss any progress.During those 3 months try doing everything as symmetrically as possible. Change your hand when you carry the child (once on

left once on right). If something is asymetric by definition - do it with the same frequency with left and right side. Observe any assymetric moves and convince doing it symmetricaly. Correct position while sitting. Avoid position your girl is not ready for yet. You may try swimming pool (it's good for muscles). It's really not difficult to do it's rather difficult to remember all the time.I had very similar situation combined with a small hypothony (nothing to worry about if it wasn't with scoliosis). Try as much physical activity as you can. It always helps overall development.MP From: <davelainer@...> infantile scoliosis treatment Sent: Monday, July 30, 2012 1:08 AM Subject: My Daughter's X-Ray results.....any thoughts appreciated

Hello,

My little girl was x-rayed at B.C Children's Hospital on April 27th, she was 8 months old at the time. The only number we were given was that she had a 16 degree curve in the thoralumber region. Her arms were raised above her head during the x-ray.

very kindly forwarded the x-ray to one of her doctor contacts and they gave the following results to the same x-rays:

The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

RVAD at T 10 - 16 degrees.

Please observe & re-x-ray in 3 months.

also told me that another doctor thought that it was more of a 20 degree curve.

Does it seem likely that this is a resolving case of I.S?

I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees is of a major concern.

I just don't want to put her through the whole casting process if it is going to correct itself. My husband is also concerned about the traction x-ray that is done where they pull on the babies legs and feet to take the x-ray. Can this cause further damage?

Thanks again for your kind help.

[Guest guest]

The traction film wont cause damage, it will only make the scoli to appear

less as she is being stretched.

HRH

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she

> was 8 months old at the time. The only number we were given was that she

> had a 16 degree curve in the thoralumber region. Her arms were raised

> above her head during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and

> they gave the following results to the same x-rays:

>

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20

> degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees

> is of a major concern.

> I just don't want to put her through the whole casting process if it is

> going to correct itself. My husband is also concerned about the traction

> x-ray that is done where they pull on the babies legs and feet to take the

> x-ray. Can this cause further damage?

> Thanks again for your kind help.

>

>

[Guest guest]

Good info to share MP. Thanks a bunch!

HRH

> Hello,

>

> Rib phase 1 and rib phase 2 is from Mehta (1971) paper. Phase 1 is normal

> and phase 2 means that rib and vertebra overlap. Phase 2 is always

> progressive.

>

>

> RVAD  is correlated with progression. Statistics say that 80% of cases

> with RVAD>20* progress. RVAD<20* in most cases means resolving infantile

> scoliosis.

>

> So I would interpret it like this - now it seems it is resolving infantile

> scoliosis but it should be carefully observed (xray in 3 months) not to

> miss any progress.

>

>

> During those 3 months try doing everything as symmetrically as possible.

> Change your hand when you carry the child (once on left once on right). If

> something is asymetric by definition - do it with the same frequency with

> left and right side. Observe any assymetric moves and convince doing it

> symmetricaly. Correct position while sitting. Avoid position your girl is

> not ready for yet. You may try swimming pool (it's good for muscles). It's

> really not difficult to do it's rather difficult to remember all the time.

>

>

> I had very similar situation combined with a small hypothony (nothing to

> worry about if it wasn't with scoliosis). Try as much physical activity as

> you can. It always helps overall development.

>

>

> MP

>

>

>

>

> ________________________________

> From: <davelainer@...>

> infantile scoliosis treatment

> Sent: Monday, July 30, 2012 1:08 AM

> Subject: My Daughter's X-Ray results.....any

> thoughts appreciated

>

>

>  

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she

> was 8 months old at the time. The only number we were given was that she

> had a 16 degree curve in the thoralumber region. Her arms were raised

> above her head during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and

> they gave the following results to the same x-rays:

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20

> degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees

> is of a major concern.

> I just don't want to put her through the whole casting process if it is

> going to correct itself. My husband is also concerned about the traction

> x-ray that is done where they pull on the babies legs and feet to take the

> x-ray. Can this cause further damage?

> Thanks again for your kind help.

>

>

>

[Guest guest]

Yes, thanks so much MP. I've really been trying to follow what you wrote about

symmetry. Also, thanks for explaining the rib phase!

>

> Good info to share MP. Thanks a bunch!

> HRH

>

> > Hello,

> >

> > Rib phase 1 and rib phase 2 is from Mehta (1971) paper. Phase 1 is normal

> > and phase 2 means that rib and vertebra overlap. Phase 2 is always

> > progressive.

> >

> >

> > RVAD  is correlated with progression. Statistics say that 80% of cases

> > with RVAD>20* progress. RVAD<20* in most cases means resolving infantile

> > scoliosis.

> >

> > So I would interpret it like this - now it seems it is resolving infantile

> > scoliosis but it should be carefully observed (xray in 3 months) not to

> > miss any progress.

> >

> >

> > During those 3 months try doing everything as symmetrically as possible.

> > Change your hand when you carry the child (once on left once on right). If

> > something is asymetric by definition - do it with the same frequency with

> > left and right side. Observe any assymetric moves and convince doing it

> > symmetricaly. Correct position while sitting. Avoid position your girl is

> > not ready for yet. You may try swimming pool (it's good for muscles). It's

> > really not difficult to do it's rather difficult to remember all the time.

> >

> >

> > I had very similar situation combined with a small hypothony (nothing to

> > worry about if it wasn't with scoliosis). Try as much physical activity as

> > you can. It always helps overall development.

> >

> >

> > MP

> >

> >

> >

> >

> > ________________________________

> > From: <davelainer@...>

> > infantile scoliosis treatment

> > Sent: Monday, July 30, 2012 1:08 AM

> > Subject: My Daughter's X-Ray results.....any

> > thoughts appreciated

> >

> >

> >  

> > Hello,

> > My little girl was x-rayed at B.C Children's Hospital on April 27th, she

> > was 8 months old at the time. The only number we were given was that she

> > had a 16 degree curve in the thoralumber region. Her arms were raised

> > above her head during the x-ray.

> > very kindly forwarded the x-ray to one of her doctor contacts and

> > they gave the following results to the same x-rays:

> >

> > The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> > RVAD at T 10 - 16 degrees.

> >

> > Please observe & re-x-ray in 3 months.

> >

> > also told me that another doctor thought that it was more of a 20

> > degree curve.

> >

> > Does it seem likely that this is a resolving case of I.S?

> > I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees

> > is of a major concern.

> > I just don't want to put her through the whole casting process if it is

> > going to correct itself. My husband is also concerned about the traction

> > x-ray that is done where they pull on the babies legs and feet to take the

> > x-ray. Can this cause further damage?

> > Thanks again for your kind help.

> >

> >

> >

>

[Guest guest]

NO the traction X ray doesn't hurt them at all! It is really no different

then hanging from the monkey bars & a very good tool to tell them how much

correction they could possibly get! Did you get any idea on the rotation?

My son was casted with only an RVAD of 10 because the doc believed the

rotation would cause the curve to progress.

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she

> was 8 months old at the time. The only number we were given was that she

> had a 16 degree curve in the thoralumber region. Her arms were raised

> above her head during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and

> they gave the following results to the same x-rays:

>

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20

> degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees

> is of a major concern.

> I just don't want to put her through the whole casting process if it is

> going to correct itself. My husband is also concerned about the traction

> x-ray that is done where they pull on the babies legs and feet to take the

> x-ray. Can this cause further damage?

> Thanks again for your kind help.

>

>

[Guest guest]

Cobb 15*, RVAD 10* and Cobb 30*, RVAD 10* are quite different situations.And that's not all. There is rotation, age, and some minor things. Good orthopaedist takes it all into account and decides what to do.My duaghter had bigger Cobb on hanging x-ray than on lying one 2 months later. The first was completetely inconclusive and I do not know if spine straightened or she simpy bent a little while hanging.MP

From: Amber Scholl <amber@...> infantile scoliosis treatment Sent: Friday, August 3, 2012 7:42 PM Subject: Re: My Daughter's X-Ray results.....any thoughts appreciated

NO the traction X ray doesn't hurt them at all! It is really no different

then hanging from the monkey bars & a very good tool to tell them how much

correction they could possibly get! Did you get any idea on the rotation?

My son was casted with only an RVAD of 10 because the doc believed the

rotation would cause the curve to progress.

> Hello,

> My little girl was x-rayed at B.C Children's Hospital on April 27th, she

> was 8 months old at the time. The only number we were given was that she

> had a 16 degree curve in the thoralumber region. Her arms were raised

> above her head during the x-ray.

> very kindly forwarded the x-ray to one of her doctor contacts and

> they gave the following results to the same x-rays:

>

>

> The curve measures 25 deg from T7-L2, convex to the left, rib phase 1,

> RVAD at T 10 - 16 degrees.

>

> Please observe & re-x-ray in 3 months.

>

> also told me that another doctor thought that it was more of a 20

> degree curve.

>

> Does it seem likely that this is a resolving case of I.S?

> I don't know what rib phase 1 means or whether the RVAD at T10-16 degrees

> is of a major concern.

> I just don't want to put her through the whole casting process if it is

> going to correct itself. My husband is also concerned about the traction

> x-ray that is done where they pull on the babies legs and feet to take the

> x-ray. Can this cause further damage?

> Thanks again for your kind help.

>

>