Re: A quick update on Tom and us.

[Guest guest]

Hi ,

I think 12 is super promising and that you guys are on the right track

100%. Its rough I know, but you guys got this. And, your lil man will

surprise you:)

Cooling vests can be found at www.noeledfcastframe.com under Cast Related

Products. Im updating the site soon because the vests have been

redesigned. They are now made of durable denim, neoprene and 5 adjustable

straps. They come with cooling cells that last up to 2 hrs.

Hang in there!

HRH

> Hi folks! I know it's been a while, but things have been busy here with

> the end of school and my temp job (still working on finding the next

> position).

>

> Tom had cast #3 put on in early June. When cast #2 came off, we were

> ecstatic because we thought his back looked fabulous--even Dr. S was

> excited. But after cast #3 went on, Dr. S told us we all had been a bit

> overly optimistic as it looked like his curve had not changed at all. They

> also remeasured his curve and he started out with a 55 degree in January

> (not 47 degrees like we thought), but he was 42 degrees before cast #3

> went on so it's going in the right direction. He's down to 12 degrees in

> the cast, which is promising too.

>

> Tom's just started walking without holding on to something, but bending

> over is still a challenge. We're also dealing with some asymmetry issues

> while he crawls and his PT is afraid something may be wrong with his hip.

> So we're working on that too.

>

> Steve's frustrated because he knows how uncomfortable this heat is making

> Tom, but he knows it's helping so he's sucking it up for now.

>

> I'm sorry I missed the webcast with Dr. S! I need to get back over here

> more often.

>

> I hope everyone is doing well!

>

>

>

>

[Guest guest]

Good luck! It is so heartbreaking to see our little ones in casts during the summer and know they can't enjoy so much of the cool, wet water fun. )-: Totally worth it in the long run, but SO HARD right now. I can relate.

[Guest guest]

Thanks ! We were a little discouraged but then he started walking on his

own and our perspective changed :-)

>

> Hi ,

> I think 12 is super promising and that you guys are on the right track

> 100%. Its rough I know, but you guys got this. And, your lil man will

> surprise you:)

> Cooling vests can be found at www.noeledfcastframe.com under Cast Related

> Products. Im updating the site soon because the vests have been

> redesigned. They are now made of durable denim, neoprene and 5 adjustable

> straps. They come with cooling cells that last up to 2 hrs.

> Hang in there!

> HRH

>

> > Hi folks! I know it's been a while, but things have been busy here with

> > the end of school and my temp job (still working on finding the next

> > position).

> >

> > Tom had cast #3 put on in early June. When cast #2 came off, we were

> > ecstatic because we thought his back looked fabulous--even Dr. S was

> > excited. But after cast #3 went on, Dr. S told us we all had been a bit

> > overly optimistic as it looked like his curve had not changed at all. They

> > also remeasured his curve and he started out with a 55 degree in January

> > (not 47 degrees like we thought), but he was 42 degrees before cast #3

> > went on so it's going in the right direction. He's down to 12 degrees in

> > the cast, which is promising too.

> >

> > Tom's just started walking without holding on to something, but bending

> > over is still a challenge. We're also dealing with some asymmetry issues

> > while he crawls and his PT is afraid something may be wrong with his hip.

> > So we're working on that too.

> >

> > Steve's frustrated because he knows how uncomfortable this heat is making

> > Tom, but he knows it's helping so he's sucking it up for now.

> >

> > I'm sorry I missed the webcast with Dr. S! I need to get back over here

> > more often.

> >

> > I hope everyone is doing well!

> >

> >

> >

> >

>

[Guest guest]

Thanks ! We were a little discouraged but then he started walking on his

own and our perspective changed :-)

>

> Hi ,

> I think 12 is super promising and that you guys are on the right track

> 100%. Its rough I know, but you guys got this. And, your lil man will

> surprise you:)

> Cooling vests can be found at www.noeledfcastframe.com under Cast Related

> Products. Im updating the site soon because the vests have been

> redesigned. They are now made of durable denim, neoprene and 5 adjustable

> straps. They come with cooling cells that last up to 2 hrs.

> Hang in there!

> HRH

>

> > Hi folks! I know it's been a while, but things have been busy here with

> > the end of school and my temp job (still working on finding the next

> > position).

> >

> > Tom had cast #3 put on in early June. When cast #2 came off, we were

> > ecstatic because we thought his back looked fabulous--even Dr. S was

> > excited. But after cast #3 went on, Dr. S told us we all had been a bit

> > overly optimistic as it looked like his curve had not changed at all. They

> > also remeasured his curve and he started out with a 55 degree in January

> > (not 47 degrees like we thought), but he was 42 degrees before cast #3

> > went on so it's going in the right direction. He's down to 12 degrees in

> > the cast, which is promising too.

> >

> > Tom's just started walking without holding on to something, but bending

> > over is still a challenge. We're also dealing with some asymmetry issues

> > while he crawls and his PT is afraid something may be wrong with his hip.

> > So we're working on that too.

> >

> > Steve's frustrated because he knows how uncomfortable this heat is making

> > Tom, but he knows it's helping so he's sucking it up for now.

> >

> > I'm sorry I missed the webcast with Dr. S! I need to get back over here

> > more often.

> >

> > I hope everyone is doing well!

> >

> >

> >

> >

>

[Guest guest]

Thanks !

>

> Good luck! It is so heartbreaking to see our little ones in casts during the

summer and know they can't enjoy so much of the cool, wet water fun. )-: Totally

worth it in the long run, but SO HARD right now. I can relate.

>