RE: Frustrated and Angry!!

[Guest guest]

I understand your frustration and your right, it isn't fair! My son has low tone

too. Has your PT ever mentioned muscle memory? My sons tone has improved

slightly over time. It's still weak and he's squishy everywhere except his

calves. He's also skinny. Very bony right now. He has never eaten very well and

has lots of texture issues. We started giving him half a pedisure a day. Sorry

to hear about Thad. Sometimes life isn't fair! I feel your pain 100% + some.

Tomorrow will be better.

Tame

Sent from my iPhone

On Mar 14, 2012, at 6:58 PM, " " <candice_welch85@...> wrote:

hey everyone,

I dont even know where to start...... brief recap: Thaddeus has been casting for

almost a year now. in Nov he had to have double hip surgery and was in a hip

spica for 1 month and brace for 1 month. then we were on the road to recovery

and he fell and broke his Femur and was in another spica cast for another 7

weeks.

We are how in our 6 cast and Thad's spine looks good sitting at about 42* in

cast but with min rotation. In this cast he can not sit on the floor at all and

its cut short compared to some we have had. his balance is so off for being on

his back for the last 7 weeks.

We went to our PT today for an assessment and he is basically back at where he

was at 18 months!!!! we have lost 1.5 years of hard work in the last 4 months.

makes me so mad!! i dont know what to do! Thaddeus can barely crawl anymore. it

almost like he has forgot he has legs... he was a bit better by the end but it

was a fight for him. he is getting his cast off in May and we will brace for the

summer so i am praying that will help him.

i am so mad i have to see him struggle like this. its not fair!!! i hate it. if

anyone has any advice on what to do i would really appreciate it. Also has

anyone their child anything to build muscle?? like protein shakes or steroid or

something....??? i dont want to do steroids but he needs something to help him

gain weight and muscle.

He is 24lbs and 36.5 inches tall...

thanks

Mommy to Thaddeus

3years in cast 6

------------------------------------

[Guest guest]

Our pediatrician said there isn't a lot you can do. We bought hemp protien

powder to put in food/drinks. They have all kinds of natural protien powders but

hemp was nutritionally the best at the nature store we went to. I figured the

more protien the better!

Sent from my iPhone

On Mar 14, 2012, at 6:58 PM, " " <candice_welch85@...> wrote:

hey everyone,

I dont even know where to start...... brief recap: Thaddeus has been casting for

almost a year now. in Nov he had to have double hip surgery and was in a hip

spica for 1 month and brace for 1 month. then we were on the road to recovery

and he fell and broke his Femur and was in another spica cast for another 7

weeks.

We are how in our 6 cast and Thad's spine looks good sitting at about 42* in

cast but with min rotation. In this cast he can not sit on the floor at all and

its cut short compared to some we have had. his balance is so off for being on

his back for the last 7 weeks.

We went to our PT today for an assessment and he is basically back at where he

was at 18 months!!!! we have lost 1.5 years of hard work in the last 4 months.

makes me so mad!! i dont know what to do! Thaddeus can barely crawl anymore. it

almost like he has forgot he has legs... he was a bit better by the end but it

was a fight for him. he is getting his cast off in May and we will brace for the

summer so i am praying that will help him.

i am so mad i have to see him struggle like this. its not fair!!! i hate it. if

anyone has any advice on what to do i would really appreciate it. Also has

anyone their child anything to build muscle?? like protein shakes or steroid or

something....??? i dont want to do steroids but he needs something to help him

gain weight and muscle.

He is 24lbs and 36.5 inches tall...

thanks

Mommy to Thaddeus

3years in cast 6

------------------------------------

[Guest guest]

Sorry, to hear this ….Is the PT recommending more PT?HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Wednesday, March 14, 2012 5:59 PMinfantile scoliosis treatment Subject: Frustrated and Angry!! hey everyone, I dont even know where to start...... brief recap: Thaddeus has been casting for almost a year now. in Nov he had to have double hip surgery and was in a hip spica for 1 month and brace for 1 month. then we were on the road to recovery and he fell and broke his Femur and was in another spica cast for another 7 weeks. We are how in our 6 cast and Thad's spine looks good sitting at about 42* in cast but with min rotation. In this cast he can not sit on the floor at all and its cut short compared to some we have had. his balance is so off for being on his back for the last 7 weeks. We went to our PT today for an assessment and he is basically back at where he was at 18 months!!!! we have lost 1.5 years of hard work in the last 4 months. makes me so mad!! i dont know what to do! Thaddeus can barely crawl anymore. it almost like he has forgot he has legs... he was a bit better by the end but it was a fight for him. he is getting his cast off in May and we will brace for the summer so i am praying that will help him. i am so mad i have to see him struggle like this. its not fair!!! i hate it. if anyone has any advice on what to do i would really appreciate it. Also has anyone their child anything to build muscle?? like protein shakes or steroid or something....??? i dont want to do steroids but he needs something to help him gain weight and muscle. He is 24lbs and 36.5 inches tall... thanks Mommy to Thaddeus 3years in cast 6

[Guest guest]

Good idea (muscle memory)...dont know much about it, but it seems worth

looking into...What is it exactly?

HRH

Re: Frustrated and Angry!!

I understand your frustration and your right, it isn't fair! My son has low

tone too. Has your PT ever mentioned muscle memory? My sons tone has

improved slightly over time. It's still weak and he's squishy everywhere

except his calves. He's also skinny. Very bony right now. He has never eaten

very well and has lots of texture issues. We started giving him half a

pedisure a day. Sorry to hear about Thad. Sometimes life isn't fair! I feel

your pain 100% + some. Tomorrow will be better.

Tame

Sent from my iPhone

On Mar 14, 2012, at 6:58 PM, " " <candice_welch85@...> wrote:

hey everyone,

I dont even know where to start...... brief recap: Thaddeus has been casting

for almost a year now. in Nov he had to have double hip surgery and was

in a hip spica for 1 month and brace for 1 month. then we were on the road

to recovery and he fell and broke his Femur and was in another spica cast

for another 7 weeks.

We are how in our 6 cast and Thad's spine looks good sitting at about 42* in

cast but with min rotation. In this cast he can not sit on the floor at all

and its cut short compared to some we have had. his balance is so off for

being on his back for the last 7 weeks.

We went to our PT today for an assessment and he is basically back at where

he was at 18 months!!!! we have lost 1.5 years of hard work in the last 4

months. makes me so mad!! i dont know what to do! Thaddeus can barely crawl

anymore. it almost like he has forgot he has legs... he was a bit better by

the end but it was a fight for him. he is getting his cast off in May and we

will brace for the summer so i am praying that will help him.

i am so mad i have to see him struggle like this. its not fair!!! i hate it.

if anyone has any advice on what to do i would really appreciate it. Also

has anyone their child anything to build muscle?? like protein shakes or

steroid or something....??? i dont want to do steroids but he needs

something to help him gain weight and muscle.

He is 24lbs and 36.5 inches tall...

thanks

Mommy to Thaddeus

3years in cast 6

------------------------------------