Your message for Marty Delaney

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Dear Friends

Marty Delaney, the founder of Project Inform and one of our main and most well known HIV treatment activists is very sick.  We are collecting well wishes from everyone that has been touched by his work and/or friendship. Please type in your message to Marty by clicking this link.  All messages will be compiled and sent to him by regular mail.

http://www.surveymonkey.com/s.aspx?sm=hd0Lf_2boH1OTk1WEjh2WuOg_3d_3d

BACKGROUND ON MARTY DELANEY:

From http://www.pbs.org/wgbh/pages/frontline/aids/interviews/delaney.html

After watching desperate friends and acquaintances self-medicate with alternative therapies and black market drugs, Delaney formed Project Inform in 1985 to share information and accelerate advances in treatment for people living with HIV/AIDS. Here he explains how his original intent was to collect data on whether the medications people were buying in Mexico were helpful or harmful, but he quickly realized patients with life-threatening illnesses, particularly AIDS, weren't being served by the government's normal drug approval process. Delaney and his organization pushed to have AIDS patients take part in clinical trials of new drugs and at one point, held their own controversial clinical trial of an experimental drug outside of the FDA process. Several men died in the course of that trial, although Delaney points out that people die in all clinical trials and that a study of the same drug by the University of California San Francisco had similar results to his group's study. He also talks movingly about how the AIDS epidemic has changed him and estimates that 80 perc

ent of his friends have died. "It's very hard to rebuild friendships," he says. "I'll be 60 years old by the time this interview runs, probably, so you end up living your life without the20people around that you thought you were going to spend it with, the people that you had in the early part of your life." This is the edited transcript of an interview conducted on Dec. 4, 2004.  http://www.pbs.org/wgbh/pages/frontline/aids/interviews/delaney.html

From Project Inform's web site:

Delaney is one of the principal architects of an enlightened response to the HIV/AIDS pandemic, and has preserved and improved the quality of life for countless individuals. He is the Founder of Project Inform, one of the nation’s most respected non-profit agencies working in HIV/AIDS. helped to lead Project Inform from its inception in 1985 until January of 2008. He has been a constructive critic of federal, academic, and industry AIDS research efforts, and a key figure in helping to bring effective HIV treatments to market. He is a leader of the movement to accelerate FDA approval of promising drugs and was a key player in the development of today’s widely used Accelerated Approval regulations and Parallel Track system for providing experimental drugs to seriously ill people preceding formal approval by the FDA. He was one of the founders of the community-based HIV research movement and, through Project Inform, led the way to an unprecedented level of HIV treatment education becoming available to patients and medical providers.

has been a featured voice in the media and at scientific conferences on AIDS-related topics. His writings have appeared in prestigious medical publications including The Journal of Infectious Diseases and the Journal of AIDS, as well as a number of popular magazines. He is the co-author of Strategies for Survival, The Gay Men’s Health Manual for the Age of AIDS and editor of the Project Inform HIV Drug Book. His work and the history of Project Inform have been described in several books, including Acceptable Risks, by Kwitney, Against the Odds by Arno and Good Intentions by Bruce Nussbaum.

Over the last 23 years, has spoken before more community, government, and industry groups on AIDS treatment and research issues than any other activist or political figure. He has served on many AIDS-related local and national boards and prominent government advisory groups. He currently leads the Fair Pricing Coalition, which presses industry to assure that HIV medications are access ible and he is the Chair of the Board of the Foundation for AIDS and Immune Research, which makes grants to support promising HIV-related research.

Vergel

powerusa.org

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