Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Hey -- Welcome! We casted our son at 9 months old. He started off with a 45 degree curve and as of last march he is 7 out of cast. We are currently in our 14th cast. Yes....14th! We are now into 26 months of casting...so just a little over 2 years. I freaked out over EVERYTHING and I actually think I posted something in this forum daily about WTHs.... We actually used pampers cruisers and these did great. They are thinner and hold more than the avg....also a smidge pricer...but it was worth it for us. We have a couple of mamas out there that do/did cloth diapering. holy moly. I salute them. We also invested in plastic bibs. or at least the one with plastic backing. Those saved the casts a many of times. Some parents will actually duct tape the bottom of the cast to prevent absorption from accidents. We havent do that yet. We did have a #2 accident one time that touched the cast---I used Cetaphor...I think its called. Its basically a lotion/soap. It did a fatastic job and Logan actually wore the cast 3 weeks past that and no smell. Clean as a whistle. Hopefully this will help a little. Dont worry too much about EVERYTHING. The casts kids are amazing and much stronger than I could ever think about being. Logan's mama (45 down to 7, 14th cast, 3 years old) From: G <deznsw1230@...>infantile scoliosis treatment Sent: Tuesday, June 26, 2012 11:06 AMSubject: New to the Group Good Morning!My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. 'Thank you for taking the time to read our story. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2012 Report Share Posted June 27, 2012 Our son, Brayden, got his first cast at 15 months and we had the same questions about diapering. We changed from Seventh Generation diapers to Pampers because they seemed to hold more and fit better around his cast. I have heard Huggies are great for girls but have no experience since we have no girls.Even though our son slept through the night my husband and I take turns getting up in the middle of the night and changing his diaper. We also place a poise pad on the top front of the diaper (belly area) for extra protection at night in case he pees too much and we don't wake up in time to change him.We also limit his fluids after dinner with his snack before bedtime. These have helped us to limit accidents.Best of luck! Eryn,Mom to Brayden, 20 months, 3rd cast From: G <deznsw1230@...> infantile scoliosis treatment Sent: Tuesday, June 26, 2012 11:06 AM Subject: New to the Group Good Morning! My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' Thank you for taking the time to read our story. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2012 Report Share Posted June 27, 2012 Thank you Eryn! Yeah I was thinking about doing the middle of the night diaper change. My concern though is waking her and then it being playtime. Currently we do cloth diapering at night. I'm hoping that maybe the cloth diapers will still fit with the cast and then the poise pads will do it. We'll see. We just spoke with the casting doctor last night and he was telling us how we'll have to stay over the first night of her cast at the hospital so she can be observed. Did you have to do this? How did it go? Thank you for your response. Being a part of this group is going to be a huge help for me! > > Our son, Brayden, got his first cast at 15 months and we had the same questions about diapering. We changed from Seventh Generation diapers to Pampers because they seemed to hold more and fit better around his cast. I have heard Huggies are great for girls but have no experience since we have no girls. > > Even though our son slept through the night my husband and I take turns getting up in the middle of the night and changing his diaper. We also place a poise pad on the top front of the diaper (belly area) for extra protection at night in case he pees too much and we don't wake up in time to change him. > > We also limit his fluids after dinner with his snack before bedtime. These have helped us to limit accidents. > > Best of luck! > > Eryn, > Mom to Brayden, 20 months, 3rd cast > > > ________________________________ > From: G <deznsw1230@...> > infantile scoliosis treatment > Sent: Tuesday, June 26, 2012 11:06 AM > Subject: New to the Group > > >  > Good Morning! > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > Thank you for taking the time to read our story. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2012 Report Share Posted June 27, 2012 We had the same thoughts about trying not to wake up our son. He is a really great sleeper except when he doesn't feel well. If he ever woke up, I would just rock him back to sleep and turn on the lullabies. This always worked for us. Is Olivia a light sleeper? I do not have any experience with cloth diapers.We did not have to stay overnight in the hospital. You will see from other parents that each doctor and child's circumstances are different. Honestly, we were a nervous wreck when our son got his first cast. He doesn't let it keep him from doing anything except being in water and playing in sand.This group has been wonderful too us as well. We have met others going through the same thing and it's just nice to know we can lean on each other for support. Thanks to all of you listening and helping with advice!!!ErynMom to Brayden, 20 months, 3rd cast From: G <deznsw1230@...> infantile scoliosis treatment Sent: Wednesday, June 27, 2012 12:40 PM Subject: Re: New to the Group Thank you Eryn! Yeah I was thinking about doing the middle of the night diaper change. My concern though is waking her and then it being playtime. Currently we do cloth diapering at night. I'm hoping that maybe the cloth diapers will still fit with the cast and then the poise pads will do it. We'll see. We just spoke with the casting doctor last night and he was telling us how we'll have to stay over the first night of her cast at the hospital so she can be observed. Did you have to do this? How did it go? Thank you for your response. Being a part of this group is going to be a huge help for me! > > Our son, Brayden, got his first cast at 15 months and we had the same questions about diapering. We changed from Seventh Generation diapers to Pampers because they seemed to hold more and fit better around his cast. I have heard Huggies are great for girls but have no experience since we have no girls. > > Even though our son slept through the night my husband and I take turns getting up in the middle of the night and changing his diaper. We also place a poise pad on the top front of the diaper (belly area) for extra protection at night in case he pees too much and we don't wake up in time to change him. > > We also limit his fluids after dinner with his snack before bedtime. These have helped us to limit accidents. > > Best of luck! > > Eryn, > Mom to Brayden, 20 months, 3rd cast > > > ________________________________ > From: G <deznsw1230@...> > infantile scoliosis treatment > Sent: Tuesday, June 26, 2012 11:06 AM > Subject: New to the Group > > >  > Good Morning! > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > Thank you for taking the time to read our story. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Hi my name is . I am interested in finding some new food ideas / recipes and hope to find some great ones here. I started purging our home of processed foods, high sugar foods several years ago. We still have the occasional box of pasta in the house and cold breakfast cereal, which I try to buy the better brands with ingredients I know. I am trying to lose weight and eat real food while serving my family nutritious real food as well. I have lost 50lbs but I have about 15-20 more to go and am stuck. Now and then I do have a " bad food day " and eat to many carbs (refined carbs/sugars like bread or pasta) when I do I end up with an upset stomach and painful bloating. I think I should just get rid of the bread, pasta, etc... foods from my diet all together but I just haven't been successful with it yet. I get bored with my regular rotation of low carb/wheat/sugar free foods and either don't eat or eat something I shouldn't because I if I don't I will just skip that meal. Then I start craving those foods again and it gets quite intense when those cravings hit. Anyone have any tips for getting past these cravings? cold turkey? slow reduction? I'll be trying out the search tool here to see what I can find as well as far as info and recipes. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 We eat grass-fed beef sausage, or pastured bacon and eggs, or raw cheese when we crave carbs. Wash it down with some kombucha infused with berries and ginger. We eat a lot less carbs that way. Sounds like you're doing great with cleaning up the diet. Charlene On Aug 2, 2012, at 12:44 PM, " " <scorpio0413@...> wrote: > Hi my name is . I am interested in finding some new food ideas / recipes and hope to find some great ones here. I started purging our home of processed foods, high sugar foods several years ago. We still have the occasional box of pasta in the house and cold breakfast cereal, which I try to buy the better brands with ingredients I know. > > I am trying to lose weight and eat real food while serving my family nutritious real food as well. I have lost 50lbs but I have about 15-20 more to go and am stuck. Now and then I do have a " bad food day " and eat to many carbs (refined carbs/sugars like bread or pasta) when I do I end up with an upset stomach and painful bloating. I think I should just get rid of the bread, pasta, etc... foods from my diet all together but I just haven't been successful with it yet. I get bored with my regular rotation of low carb/wheat/sugar free foods and either don't eat or eat something I shouldn't because I if I don't I will just skip that meal. Then I start craving those foods again and it gets quite intense when those cravings hit. Anyone have any tips for getting past these cravings? cold turkey? slow reduction? > > I'll be trying out the search tool here to see what I can find as well as far as info and recipes. Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Thanks for the food ideas. We have switched to grassfed beef and are enjoying beef again after for some time not eating much since we couldn't buy quality meat at our local grocery store. Now we get our beef, chicken, pork from a local farm in Indiana. > > > Hi my name is . I am interested in finding some new food ideas / recipes and hope to find some great ones here. I started purging our home of processed foods, high sugar foods several years ago. We still have the occasional box of pasta in the house and cold breakfast cereal, which I try to buy the better brands with ingredients I know. > > > > I am trying to lose weight and eat real food while serving my family nutritious real food as well. I have lost 50lbs but I have about 15-20 more to go and am stuck. Now and then I do have a " bad food day " and eat to many carbs (refined carbs/sugars like bread or pasta) when I do I end up with an upset stomach and painful bloating. I think I should just get rid of the bread, pasta, etc... foods from my diet all together but I just haven't been successful with it yet. I get bored with my regular rotation of low carb/wheat/sugar free foods and either don't eat or eat something I shouldn't because I if I don't I will just skip that meal. Then I start craving those foods again and it gets quite intense when those cravings hit. Anyone have any tips for getting past these cravings? cold turkey? slow reduction? > > > > I'll be trying out the search tool here to see what I can find as well as far as info and recipes. Thank you! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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