Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 I am sorry that I do not know the specifics on this but it has been my experience that you have to have chicken pox in order to pass it on. I am not sure how that works with the shingles since it is from the same pox virus. If you are concerned about it then I would deffinately be careful of how much contact you have with them for the next few weeks. I also know that the chicken pox is contagious from 3 days before breakout to 3 weeks after breakout or until the blisters scab over. Cassie KIM BUNGAY <knmb2@...> wrote: Hi everyone...I have a quick question for you. My girlfriend has a bad case of shingles on her face. To what extent would you go to stay away from her? My PID is 10 and of course I keep him away...but my 12 yr old is her son's best friend, they go to karate together, school, etc... Her son did have chicken pox but none of mine ever did. I was told once that you don't " carry " chicken pox, so her son would have to get it again and then expose my other son??? I try not to get too crazy with this stuff, BUT....I don't want my PID to get chickenpox either. Just wondering what you guys would do....It is my understanding that " shingles " is not contageous but the virus that causes chicken pox is so you are at risk if you have never had chickenpox??? Thanks! Kim - (Mostly a lurker) Mom to Nick - 12, - 10, CVID and 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 My son had shingles and we were told it was NOT contagious. Guest what?! All the kids in my daycare got chicken pox!! STAY AWAY FROM SHINGLES!! Pam Tim - cvid age 16 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Kim, I have PID and when I was on Prednidsone I was exposed to chicken pox and got shingles. I was only 23, but if you are immunocompromised you can get shingles at any time if you have had chicken pox. You also can get chicken pox if you have never had it. From my understanding you are not supposed to be around other people when you have shingles until they crust over which is the same as when you have chicken pox. From my experience at least, I would keep them away from each other until she is doing better. It never hurts to be safe. (PID) Mom of Abby 4 1/2 History of seizures, GERD, allergies, asthma? Becca 2 PID, GERD, allergies, asthma? and other medical fun KIM BUNGAY <knmb2@...> wrote: Hi everyone...I have a quick question for you. My girlfriend has a bad case of shingles on her face. To what extent would you go to stay away from her? My PID is 10 and of course I keep him away...but my 12 yr old is her son's best friend, they go to karate together, school, etc... Her son did have chicken pox but none of mine ever did. I was told once that you don't " carry " chicken pox, so her son would have to get it again and then expose my other son??? I try not to get too crazy with this stuff, BUT....I don't want my PID to get chickenpox either. Just wondering what you guys would do....It is my understanding that " shingles " is not contageous but the virus that causes chicken pox is so you are at risk if you have never had chickenpox??? Thanks! Kim - (Mostly a lurker) Mom to Nick - 12, - 10, CVID and 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Shingles is usually only seen in the older generation, meaning not in kids. My son had them when he was three years old and we found out that stress can bring them on as in his case because he just started preschool/daycare. Cassie L G <lg4275@...> wrote: Hi Kim, I have PID and when I was on Prednidsone I was exposed to chicken pox and got shingles. I was only 23, but if you are immunocompromised you can get shingles at any time if you have had chicken pox. You also can get chicken pox if you have never had it. From my understanding you are not supposed to be around other people when you have shingles until they crust over which is the same as when you have chicken pox. From my experience at least, I would keep them away from each other until she is doing better. It never hurts to be safe. (PID) Mom of Abby 4 1/2 History of seizures, GERD, allergies, asthma? Becca 2 PID, GERD, allergies, asthma? and other medical fun KIM BUNGAY <knmb2@...> wrote: Hi everyone...I have a quick question for you. My girlfriend has a bad case of shingles on her face. To what extent would you go to stay away from her? My PID is 10 and of course I keep him away...but my 12 yr old is her son's best friend, they go to karate together, school, etc... Her son did have chicken pox but none of mine ever did. I was told once that you don't " carry " chicken pox, so her son would have to get it again and then expose my other son??? I try not to get too crazy with this stuff, BUT....I don't want my PID to get chickenpox either. Just wondering what you guys would do....It is my understanding that " shingles " is not contageous but the virus that causes chicken pox is so you are at risk if you have never had chickenpox??? Thanks! Kim - (Mostly a lurker) Mom to Nick - 12, - 10, CVID and 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Thanks everyone...I think I will keep the whole family away for the time being...just to be safe. I was mostly concerned that my son might pick it up from her son and then bring it into the house. They take karate together, which I can't really do anything about...but we will all stay away from her and her house till she is clear. Thanks for the input!!! Kim - (Mostly a lurker) Mom to Nick - 12, - 10, CVID and 7 Re: Chicken Pox Shingles is usually only seen in the older generation, meaning not in kids. My son had them when he was three years old and we found out that stress can bring them on as in his case because he just started preschool/daycare. Cassie L G <lg4275@...> wrote: Hi Kim, I have PID and when I was on Prednidsone I was exposed to chicken pox and got shingles. I was only 23, but if you are immunocompromised you can get shingles at any time if you have had chicken pox. You also can get chicken pox if you have never had it. From my understanding you are not supposed to be around other people when you have shingles until they crust over which is the same as when you have chicken pox. From my experience at least, I would keep them away from each other until she is doing better. It never hurts to be safe. (PID) Mom of Abby 4 1/2 History of seizures, GERD, allergies, asthma? Becca 2 PID, GERD, allergies, asthma? and other medical fun KIM BUNGAY <knmb2@...> wrote: Hi everyone...I have a quick question for you. My girlfriend has a bad case of shingles on her face. To what extent would you go to stay away from her? My PID is 10 and of course I keep him away...but my 12 yr old is her son's best friend, they go to karate together, school, etc... Her son did have chicken pox but none of mine ever did. I was told once that you don't " carry " chicken pox, so her son would have to get it again and then expose my other son??? I try not to get too crazy with this stuff, BUT....I don't want my PID to get chickenpox either. Just wondering what you guys would do....It is my understanding that " shingles " is not contageous but the virus that causes chicken pox is so you are at risk if you have never had chickenpox??? Thanks! Kim - (Mostly a lurker) Mom to Nick - 12, - 10, CVID and 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Rob or Sunseri wrote: > > > Does anybody know if a child with CVID who is receiving IVIG can be > exposed to the chicken pox to gain natural immunity? I forgot to ask his > immunologist this question. > > - , a child with CVID has no or limited " natural immunity " . That's why he/she is receiving IVIG - other people's immunity. Exposing them to chicken pox is just inviting trouble. They may or may not have enough protection from the IVIG to keep them out of trouble. So, the answer is: Don't EVER expose your child to any infection -- it could be very dangerous!!!! In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Rob or Sunseri wrote: > > > Does anybody know if a child with CVID who is receiving IVIG can be > exposed to the chicken pox to gain natural immunity? I forgot to ask his > immunologist this question. > > - , a child with CVID has no or limited " natural immunity " . That's why he/she is receiving IVIG - other people's immunity. Exposing them to chicken pox is just inviting trouble. They may or may not have enough protection from the IVIG to keep them out of trouble. So, the answer is: Don't EVER expose your child to any infection -- it could be very dangerous!!!! In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 from dale, just read my reply to . That last sentence should read -- don't ever " deliberately " expose your child to infection. Infection and germs are everywhere. Most kids on IVIG can handle normal exposure -- but Katy still needed to avoid " infectious people " . Hope that helps. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 from dale, just read my reply to . That last sentence should read -- don't ever " deliberately " expose your child to infection. Infection and germs are everywhere. Most kids on IVIG can handle normal exposure -- but Katy still needed to avoid " infectious people " . Hope that helps. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 But won't it be far worse if they get it as an adult? - Dale Weatherford <dale@...> wrote: from dale, just read my reply to . That last sentence should read -- don't ever " deliberately " expose your child to infection. Infection and germs are everywhere. Most kids on IVIG can handle normal exposure -- but Katy still needed to avoid " infectious people " . Hope that helps. In His service, dale --------------------------------- Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 How often is the child on IVIG? Every 3 weeks, 4 weeks? Every other? Has there ever been a Varicella titer level done? Macey had a level done and it was 300 or so. Anything over 25 was considered protected. So she was getting adequate levels of antibodies to this virus. If Macey were to get chicken pox there is a whole procedure in place to help her. She would be admitted for 10 days of IV Acyclovir and then do 30 days of oral acyclovir. Chicken pox can be a medical emergency in PID patients. CVID patients can not " gain " any immunity. If they could they wouldn't have immune deficiency. Please speak to your immunologist for a more definite opinion though. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 How often is the child on IVIG? Every 3 weeks, 4 weeks? Every other? Has there ever been a Varicella titer level done? Macey had a level done and it was 300 or so. Anything over 25 was considered protected. So she was getting adequate levels of antibodies to this virus. If Macey were to get chicken pox there is a whole procedure in place to help her. She would be admitted for 10 days of IV Acyclovir and then do 30 days of oral acyclovir. Chicken pox can be a medical emergency in PID patients. CVID patients can not " gain " any immunity. If they could they wouldn't have immune deficiency. Please speak to your immunologist for a more definite opinion though. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 We were told to contact our doctors IMMEDIATELY if our child was inadvertently exposed to chicken pox. They can't fight off infections and viruses. Pam Tim cvid ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Ursala, I'm confused. Isn't Chicken pox a virus? So why is a PID kid so at risk from it? Is it just that a virus like CP can overwhelm her whole immune system?? Or is it a bacteria? Rebekah had no response to her Chicken Pox vaccine and, in fact, had severe adverse reactions to one of the vaccines given at that 12 month visit. Who knows if it was Chicken Pox or not! So, Rebekah is a not a candidate for vaccination of any kind. Can you un-confuse me? Pam Mom to 4 Rebekah, 7, a healthy PID kid IVIG every 21 days for the last 4 years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Ursala, I'm confused. Isn't Chicken pox a virus? So why is a PID kid so at risk from it? Is it just that a virus like CP can overwhelm her whole immune system?? Or is it a bacteria? Rebekah had no response to her Chicken Pox vaccine and, in fact, had severe adverse reactions to one of the vaccines given at that 12 month visit. Who knows if it was Chicken Pox or not! So, Rebekah is a not a candidate for vaccination of any kind. Can you un-confuse me? Pam Mom to 4 Rebekah, 7, a healthy PID kid IVIG every 21 days for the last 4 years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 My oldest child, in the diagnostic process (nurse actually just called and he has low IGG subclasses 1 and 2), has had the chicken pox vaccine and the chicken pox twice. He was actually sicker the second time. Betsy - mom to Henry and Sam mole1440@... wrote: We were told to contact our doctors IMMEDIATELY if our child was inadvertently exposed to chicken pox. They can't fight off infections and viruses. Pam Tim cvid ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 My oldest child, in the diagnostic process (nurse actually just called and he has low IGG subclasses 1 and 2), has had the chicken pox vaccine and the chicken pox twice. He was actually sicker the second time. Betsy - mom to Henry and Sam mole1440@... wrote: We were told to contact our doctors IMMEDIATELY if our child was inadvertently exposed to chicken pox. They can't fight off infections and viruses. Pam Tim cvid ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 My son receives IVIG every 21 days. My immunologist previously explained to me that there are 2 types of PIDs -- low levels of antibodies and defective antibodies. He said the later was more rare. He ran no such qualitative tests on my son as he is unvaccinated. Another doctor ran viral titres on my son and they were all normal except for elevated HHV6 (IgG). Of the local friends I have with a PID who were vaccinated, 2 had insufficient titres (but normal levels of antibodies), the rest had titres, but low levels of antibodies. So your statements confuse me! You are saying that with all PIDs, the person has defective antibodies? Also, what happens with the donor GGs in the case of an infection -- no permanent immunity is achieved? Please explain a little more, I will not be seeing the immunologist until fall. - Ursula Holleman <uahollem1@...> wrote: How often is the child on IVIG? Every 3 weeks, 4 weeks? Every other? Has there ever been a Varicella titer level done? Macey had a level done and it was 300 or so. Anything over 25 was considered protected. So she was getting adequate levels of antibodies to this virus. If Macey were to get chicken pox there is a whole procedure in place to help her. She would be admitted for 10 days of IV Acyclovir and then do 30 days of oral acyclovir. Chicken pox can be a medical emergency in PID patients. CVID patients can not " gain " any immunity. If they could they wouldn't have immune deficiency. Please speak to your immunologist for a more definite opinion though. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Rob or Sunseri wrote: > Also, what happens with the donor GGs in the case of an infection -- no > permanent immunity is achieved? Exactly. Our kids receive the immunity that someone else has built and it lasts approximately 21 days and then dies off. IgG replacement is just that -- replacement of antibodies that someone else has made -- it does nothing in the way of improving a body's own ability to make antibodies. No time to talk right now. Let me know if you have further questions. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 You're right. There are deficient PID variants and defective PID variants. Our daughter Macey is both. She makes no Ig's and she mounts no antibody response. My husband Les has a defective antibody system. He has a normal level IgG (800ish) but mounts no response (actually worse than Macey) to vaccinations. Plus he doesn't have an IgM level (IgM is the precursor to IgG). Both are diagnosed with CVID. Hence the term " variable " in the description. Donor IgG's are passive. They just sit around and wait to be told what to fight. Active immunity is what PID patients lack. They " actively " can't generate their own antibodies. They have to take on the " passive " ones from IVIG (all those wonderful donors). That's why it takes such a large pool of plasma donors to process IVIG. There has to be an antibody level to all the different types of things people are exposed to in order for our PID patients to be covered. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 I will run all of this by my son's doctor. His immunologist is a university researcher who found that there was a subclass of kids with autism that responded to 18 months of IVIG and did not need it after that. My son has autism and low IgG and IgM (discovered at age 5) and the doctor expected him to respond to the IVIG, but not need it long-term. He considered my son to have transitory hypergammaglobunemia like a subclass of young kids with autism do. A high dose of IVIG for 18 months can have a dramatic effect on about 30% of kids with autism (from his experience). This was all fine and dandy until we ran the same tests on the rest of the family and found that I lacked 7/12 titres I am apparently supposed to have and my husband and 8 YO were low IgM and my 2 YO was low IgG. He then concluded it was in fact genetic and most likely not transitory for my son (yet did not give us further explanation as to what to expect in the future). Funny thing though, my daughter's low IgG did in fact become normal as she approached her 3rd birthday. She was the worst (symptom-wise) of all of us. She was the one who was in the hospital monthly during cold and flu season last year and this year she has not been sick at all (labs show why). - Ursula Holleman <uahollem1@...> wrote: You're right. There are deficient PID variants and defective PID variants. Our daughter Macey is both. She makes no Ig's and she mounts no antibody response. My husband Les has a defective antibody system. He has a normal level IgG (800ish) but mounts no response (actually worse than Macey) to vaccinations. Plus he doesn't have an IgM level (IgM is the precursor to IgG). Both are diagnosed with CVID. Hence the term " variable " in the description. Donor IgG's are passive. They just sit around and wait to be told what to fight. Active immunity is what PID patients lack. They " actively " can't generate their own antibodies. They have to take on the " passive " ones from IVIG (all those wonderful donors). That's why it takes such a large pool of plasma donors to process IVIG. There has to be an antibody level to all the different types of things people are exposed to in order for our PID patients to be covered. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Your daughter evening out at 3 yrs old would be diagnosed as Transient Hypogammaglobulinemia of Infancy. Not uncommon and more out there than we probably realize. I think alot of toddlers have a slow maturing immune system, they seem sickly and then when they start school everything gets better. What were the IgM's that were low? I'm curious because my husband and daughter are a rarity according to the immunologists because things don't usually pass between father and daughter. Ursula - mom to (14) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 My opinion - YES keep her home from school and YES get her tested as quickly as possible... actually you should have put her on anti-viral medication (acyclovir) or chicken pox immune globulin (VZIG) for chicken pox as soon as you found out she was exposed. If you do this within 72 hours of exposure you greatly reduce the chances of getting a full blown case of chicken pox. We have had to do this 5 or 6 times... does not develop immunity to the varicella virus. Chicken pox can be VERY serious for PIDD kids - the rash is the least of the issues. It is primarily a respiratory infection and can lead to pneumonia in some severe cases. Also, if your child is already prone to skin infections, cellulitus can develop at some sites. Kim, mom to (Hyper Ige aka Job Syndrome, 8, currently on IVIG) From: daniellemina@... Date: Tue, 5 Oct 2010 23:55:23 -0700 Subject: Chicken Pox Tristen, 5, was exposed to chicken pox at school on Friday by a friend, but of course no one knew she had chicken pox then. The dad thankfully told me on Monday that the little girl had a rash and was tested for chicken pox, but it looked like a classic case. Tristen seemed fine until tonight when she couldn't stop scratching. I wasn't sure if she just had dry skin or what the issue was. We came home from dinner and she has two large rashes on her thigh and her neck, shoulder to ear. The rash is raised and red, but it's not blistery or bumpy, at least not yet. I don't remember how chicken pox start out, if it's a rash and then the blisters, or just red blisters form first. My question is should I keep her home from school and take her to get tested tomorrow? Haven't had to deal with this yet, this is only the 2nd month of school and I'm scared as to what the rest of the year will bring! Thanks! le mom to: Tristen 5: CVID, Asthma, peanut allergy Kaitlyn 8: healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 I don't think they make VZIG anymore. Does your child have a Tcell problem? They may give PO Acyclovir if there was exposure. Sounds possibly like a heat rash. Is she on IVIG? That has antibodies already then. Ursula On Oct 6, 2010, at 7:29 AM, Kim MacEachern <kimmaceachern@...> wrote: > > My opinion - YES keep her home from school and YES get her tested as quickly as possible... actually you should have put her on anti-viral medication (acyclovir) or chicken pox immune globulin (VZIG) for chicken pox as soon as you found out she was exposed. If you do this within 72 hours of exposure you greatly reduce the chances of getting a full blown case of chicken pox. We have had to do this 5 or 6 times... does not develop immunity to the varicella virus. > > > > Chicken pox can be VERY serious for PIDD kids - the rash is the least of the issues. It is primarily a respiratory infection and can lead to pneumonia in some severe cases. Also, if your child is already prone to skin infections, cellulitus can develop at some sites. > > > > Kim, mom to (Hyper Ige aka Job Syndrome, 8, currently on IVIG) > > > > > From: daniellemina@... > Date: Tue, 5 Oct 2010 23:55:23 -0700 > Subject: Chicken Pox > > > > > > > Tristen, 5, was exposed to chicken pox at school on Friday by a friend, but of > course no one knew she had chicken pox then. The dad thankfully told me on > Monday that the little girl had a rash and was tested for chicken pox, but it > looked like a classic case. Tristen seemed fine until tonight when she couldn't > stop scratching. I wasn't sure if she just had dry skin or what the issue was. > We came home from dinner and she has two large rashes on her thigh and her neck, > shoulder to ear. The rash is raised and red, but it's not blistery or bumpy, at > least not yet. I don't remember how chicken pox start out, if it's a rash and > then the blisters, or just red blisters form first. > > My question is should I keep her home from school and take her to get tested > tomorrow? Haven't had to deal with this yet, this is only the 2nd month of > school and I'm scared as to what the rest of the year will bring! > > Thanks! > le mom to: > Tristen 5: CVID, Asthma, peanut allergy > Kaitlyn 8: healthy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 Hello Carol, did you find anyone? My first three children (27, 25,24) got their when they were children but my last four (11, 8, 4 and 2) never got theirs. I want them to get it....I hope you can tell me how your plans went... --Jerri > > I need chicken pox for my son. Can someone direct me to the local group of > those who share? > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.