Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Funny how doctors leave us in teh dark so to speak--I normally have to bring a pen and paper when talking to my doc.I am type 1 48 weeks and had a test at 3 months, mostly for insurance reasons, lolls,I think that I take another at 6 months and then one when I am done---my doc gets qautitative, I think, test and they cost my insurance company about 500 bucks a shot.Sounds like good results that you are going lower with time. I have heard the the drugs still work on the body for another 6 months after you stop the drugs--just a rummor;edKamal Shah <kamalshah20@...> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Need Mail bonding?Go to the Q&A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20@...> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 After week 12 if your still detectable the doctor will check monthly How frequently do you need to check viral load? Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 After week 12 if your still detectable the doctor will check monthly How frequently do you need to check viral load? Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamalOn 2/2/07, Jackie on < redjaxjm@...> wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Oh thats right Kamal,, Im sorry, my memory is not good now so I forgot,, did you ever talk with your doc about putting you on daily shots of infergen?Kamal Shah <kamalshah20@...> wrote: I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamal On 2/2/07, Jackie on < redjaxjm > wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Yes. He was not in favor of this. He thought we should continue the current treatment - PegIntron once a week till week 24 and watch.The plan is to do the next viral load at the end of week 24. Do you think it should be done sooner? ThanksKamalOn 2/2/07, Jackie on <redjaxjm@...> wrote: Oh thats right Kamal,, Im sorry, my memory is not good now so I forgot,, did you ever talk with your doc about putting you on daily shots of infergen? Kamal Shah <kamalshah20gmail> wrote: I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamal On 2/2/07, Jackie on < redjaxjm@...> wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses. If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 I think that if you are not taking the ribavrin,, then not doing the PCR until 24 weeks is probably ok,, but how long are you going to treat then? IF you are clear at week 24 , will you continue to tx or stop... what happens if you are not clear, will you continue or quit? You are responding but just think of how much more you might be if you were on daily shots or on Riba too,, Is there something about dialysis that keeps you from using the riba?Kamal Shah <kamalshah20@...> wrote: Yes. He was not in favor of this. He thought we should continue the current treatment - PegIntron once a week till week 24 and watch.The plan is to do the next viral load at the end of week 24. Do you think it should be done sooner? ThanksKamal On 2/2/07, Jackie on <redjaxjm > wrote: Oh thats right Kamal,, Im sorry, my memory is not good now so I forgot,, did you ever talk with your doc about putting you on daily shots of infergen? Kamal Shah <kamalshah20gmail> wrote: I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamal On 2/2/07, Jackie on < redjaxjm > wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses. If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 Dialysis patients are already usually anemic. Ribavirin supposedly makes it much worse. I have just written to Dr. Ben Cecil about these and other questions. I have no clue to the answers. I'm hoping for some direction from him. ThanksKamalOn 2/3/07, Jackie on <redjaxjm@...> wrote: I think that if you are not taking the ribavrin,, then not doing the PCR until 24 weeks is probably ok,, but how long are you going to treat then? IF you are clear at week 24 , will you continue to tx or stop... what happens if you are not clear, will you continue or quit? You are responding but just think of how much more you might be if you were on daily shots or on Riba too,, Is there something about dialysis that keeps you from using the riba? Kamal Shah <kamalshah20gmail> wrote: Yes. He was not in favor of this. He thought we should continue the current treatment - PegIntron once a week till week 24 and watch.The plan is to do the next viral load at the end of week 24. Do you think it should be done sooner? Thanks Kamal On 2/2/07, Jackie on <redjaxjm@... > wrote: Oh thats right Kamal,, Im sorry, my memory is not good now so I forgot,, did you ever talk with your doc about putting you on daily shots of infergen? Kamal Shah <kamalshah20gmail> wrote: I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamal On 2/2/07, Jackie on < redjaxjm@...> wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses. If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Kamal, IM SO GLAD you wrote to Cecil,, he will help you! Well I KNOW that the Riba causes anemia,, but,, its the antiviral,, how can you kill the virus unless you use an antiviral? Maybe they will have to up your epo but it should be doable! Let us know what Cecil says,, jaxKamal Shah <kamalshah20@...> wrote: Dialysis patients are already usually anemic. Ribavirin supposedly makes it much worse. I have just written to Dr. Ben Cecil about these and other questions. I have no clue to the answers. I'm hoping for some direction from him. ThanksKamal On 2/3/07, Jackie on <redjaxjm > wrote: I think that if you are not taking the ribavrin,, then not doing the PCR until 24 weeks is probably ok,, but how long are you going to treat then? IF you are clear at week 24 , will you continue to tx or stop... what happens if you are not clear, will you continue or quit? You are responding but just think of how much more you might be if you were on daily shots or on Riba too,, Is there something about dialysis that keeps you from using the riba? Kamal Shah <kamalshah20gmail> wrote: Yes. He was not in favor of this. He thought we should continue the current treatment - PegIntron once a week till week 24 and watch.The plan is to do the next viral load at the end of week 24. Do you think it should be done sooner? Thanks Kamal On 2/2/07, Jackie on <redjaxjm > wrote: Oh thats right Kamal,, Im sorry, my memory is not good now so I forgot,, did you ever talk with your doc about putting you on daily shots of infergen? Kamal Shah <kamalshah20gmail> wrote: I'm using Peg-Intron and NO ribavirin since I'm on dialysis.ThanksKamal On 2/2/07, Jackie on < redjaxjm > wrote: hi Kamal you should be clear BY week 24 at the very outside,, most docs say that if you are clear by week 12 and are a genotype 1, then you have a good chance of reaching svr,, Most docs do PCR viral loads at week 12 and 24 at the very least. Most docs and the stats say that you must have a 2 log drop by week 12 to stand any chance of reaching that svr.. that would mean that you would need to have a viral load of 422 at week 12,, How you figure that is to take your pretreatment vl which was 42,200, so you would take off 2 zeros for the 2 log drop and you'd be left with 422.. You did have a vl flare if your load went UP TO 97,400 at week 4. I have heard that having a flare is a good thing and I have heard that it really doesnt matter as long as you are headed towards clear by week 12.. so if it were me, I'd have another pcr done at week 24 and if you still have a viral load, you probably will not clear on this regimine,, this time.... Are you doing Pegysys and Copagus, OR Peg-Intron and Ribavirin ? Are you overweight? just a few questions I was wondering about. Since you are geno 3 and they tend to cirrhos faster and most have problems with fatty liver, you might need to extend your treatment a bit longer because you were not clear at week 12.. IF it were me, I'd email Dr. Ben Cecil and see what he has to say, He is the supreme specialist at treating hep c.. jaxKamal Shah <kamalshah20gmail> wrote: Hi,I am Genotype 3.I got my first viral load in March 2006 (325,000). The next one was in October 2006 (42,200) just before starting treatment. At the end of 4 weeks of my treatment, got another one (97,400). And the last one was 12 weeks after beginning treatment (9,700). Is this good enough or do people get it done more often. I have read here that after going undetectable, I would need to continue for 48 weeks. Now how do I know when I go undetectable unles I check it every week? -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses. If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.Kamal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Kamal, Liz has done Infergen and Im sure she will come soon and answer your questions about daily inf shots.. IM SO GLAD that Dr. Cecil answered you, he IS the BEST in the business and he would certainly know HOW to help you! Since you have had a response to the inf, maybe just upping it or going to daily would give you THAT chance to reach SVR.. did he say that you might have to treat longer because of the dialysis? Its NOT OVER YET Kamal! hang in there...Kamal Shah <kamalshah20@...> wrote: I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.KamalJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 I did the Infergen Kamal , here is the web link . Just click on it to find out anything you want to know . http://www.infergen.com/wt/page/home Re: How frequently do you need to check viral load? I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.Kamal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 Thanks so much Jackie! He did not mention about the duration I would have to treat but asked me to do a viralload 4 weeks after the change in treatment and let him know.KamalOn 2/10/07, Jackie on <redjaxjm@...> wrote: Kamal, Liz has done Infergen and Im sure she will come soon and answer your questions about daily inf shots.. IM SO GLAD that Dr. Cecil answered you, he IS the BEST in the business and he would certainly know HOW to help you! Since you have had a response to the inf, maybe just upping it or going to daily would give you THAT chance to reach SVR.. did he say that you might have to treat longer because of the dialysis? Its NOT OVER YET Kamal! hang in there... Kamal Shah <kamalshah20gmail> wrote: I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.KamalJackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 Thanks !KamalOn 2/11/07, elizabethnv1 <elizabethnv1@...> wrote: I did the Infergen Kamal , here is the web link . Just click on it to find out anything you want to know . http://www.infergen.com/wt/page/home Re: How frequently do you need to check viral load? I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.Kamal -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 yeah, well once you do switch , if you do, then send him the vl after 4 weeks and then he will advise you further,, he is an amazing man and if anyone could help you reach SVR, it would be Dr. Cecil!Kamal Shah <kamalshah20@...> wrote: Thanks so much Jackie! He did not mention about the duration I would have to treat but asked me to do a viralload 4 weeks after the change in treatment and let him know.Kamal On 2/10/07, Jackie on <redjaxjm > wrote: Kamal, Liz has done Infergen and Im sure she will come soon and answer your questions about daily inf shots.. IM SO GLAD that Dr. Cecil answered you, he IS the BEST in the business and he would certainly know HOW to help you! Since you have had a response to the inf, maybe just upping it or going to daily would give you THAT chance to reach SVR.. did he say that you might have to treat longer because of the dialysis? Its NOT OVER YET Kamal! hang in there... Kamal Shah <kamalshah20gmail> wrote: I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.KamalJackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Your welcome Re: How frequently do you need to check viral load? I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.Kamal -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 I forwarded Dr. Cecil's email to my doctor and he agreed with his line of thinking. We decided to switch to Pegasys and then do a viral load after 4 weeks and then decide.Now, I am on dialysis and I learnt recently that with the type of dialyser I was using, there was a possibility that interferon would get cleared out of the body during dialysis. So, about 2 and a half weeks back I changed my dialyser to one in which the interferon would not get cleared out. So, I was wondering if it would be better to wait till 4 weeks after I changed the dialyser to see if there was a good drop in the viral load with my current type of interferon - Pegintron. It could be the case that the Pegintron was getting cleared and not staying in the body long enough. If after another 1 and half weeks, if my viral load does not seem to be dropping at the rate at which it should, I could switch to Pegasys.Advice?ThanksKamal On 2/12/07, Jackie on <redjaxjm@...> wrote: yeah, well once you do switch , if you do, then send him the vl after 4 weeks and then he will advise you further,, he is an amazing man and if anyone could help you reach SVR, it would be Dr. Cecil! Kamal Shah <kamalshah20gmail> wrote: Thanks so much Jackie! He did not mention about the duration I would have to treat but asked me to do a viralload 4 weeks after the change in treatment and let him know.Kamal On 2/10/07, Jackie on <redjaxjm@... > wrote: Kamal, Liz has done Infergen and Im sure she will come soon and answer your questions about daily inf shots.. IM SO GLAD that Dr. Cecil answered you, he IS the BEST in the business and he would certainly know HOW to help you! Since you have had a response to the inf, maybe just upping it or going to daily would give you THAT chance to reach SVR.. did he say that you might have to treat longer because of the dialysis? Its NOT OVER YET Kamal! hang in there... Kamal Shah <kamalshah20gmail> wrote: I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.KamalJackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Wow Kamal, I never knew that you could make the dialysis not take one item out, learn something new every day..thats great,, I'll bet that maybe now you will be able to get clear.. Ask Dr. Cecil that question about waiting to do the PCR, or you can just ask your doc to give you 4 weeks on the new machine too before you re-test the vl.. Well what I DO know is that I would listen to Dr. Cecil as he has helped several other friends of mine who failed treatment to eventually clear and stay clear of hep.. he's the best! jaxKamal Shah <kamalshah20@...> wrote: I forwarded Dr. Cecil's email to my doctor and he agreed with his line of thinking. We decided to switch to Pegasys and then do a viral load after 4 weeks and then decide.Now, I am on dialysis and I learnt recently that with the type of dialyser I was using, there was a possibility that interferon would get cleared out of the body during dialysis. So, about 2 and a half weeks back I changed my dialyser to one in which the interferon would not get cleared out. So, I was wondering if it would be better to wait till 4 weeks after I changed the dialyser to see if there was a good drop in the viral load with my current type of interferon - Pegintron. It could be the case that the Pegintron was getting cleared and not staying in the body long enough. If after another 1 and half weeks, if my viral load does not seem to be dropping at the rate at which it should, I could switch to Pegasys.Advice?ThanksKamal On 2/12/07, Jackie on <redjaxjm > wrote: yeah, well once you do switch , if you do, then send him the vl after 4 weeks and then he will advise you further,, he is an amazing man and if anyone could help you reach SVR, it would be Dr. Cecil! Kamal Shah <kamalshah20gmail> wrote: Thanks so much Jackie! He did not mention about the duration I would have to treat but asked me to do a viralload 4 weeks after the change in treatment and let him know.Kamal On 2/10/07, Jackie on <redjaxjm > wrote: Kamal, Liz has done Infergen and Im sure she will come soon and answer your questions about daily inf shots.. IM SO GLAD that Dr. Cecil answered you, he IS the BEST in the business and he would certainly know HOW to help you! Since you have had a response to the inf, maybe just upping it or going to daily would give you THAT chance to reach SVR.. did he say that you might have to treat longer because of the dialysis? Its NOT OVER YET Kamal! hang in there... Kamal Shah <kamalshah20gmail> wrote: I got a response from Dr. Cecil. He said that the drop in the viral load is not enough. And suggested one of 3 things - increasing the dose of the Pegintron (I'm currently using 80 mcg per week), switch to Pegasys or to daily Infergen. I was wondering if anyone has used daily Infergen on this list and what has their experience been in terms of side effects.With Pegintron, I usually have fever on the day of the injection. Now, I understand that Infergen is to be taken daily. So, does that mean I will have fever daily? Also, who manufactures Infergen?Thanks so much.KamalJackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie -- ThanksKamal'Never ask a man what computer he uses.If it's a Mac, he'll tell you. If it's not, why embarrass him?' - Tom Clancy Jackie Quote Link to comment Share on other sites More sharing options...
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