Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh today (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I seem to have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I pick up the needle tonight. I'm told everything is looking good. Finally remembered to check on what my viral load was at start - about 10 million of those nasty little buggers! Well, it seems that my liver panel actually came back in the normal range at week two (they have me doing weekly blood tests for the first five weeks) and we went ahead and did a viral load today. I was surprised that it was suggested at week three - but what the heck! The results should be back in about ten days. Now I'm going to mark my calendar and use that famous brain fog to try and forget about it until then :-). My love to all, karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 It sounds like your doing great ! xoxo Hep Doc Visit Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh today (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I seem to have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I pick up the needle tonight. I'm told everything is looking good. Finally remembered to check on what my viral load was at start - about 10 million of those nasty little buggers! Well, it seems that my liver panel actually came back in the normal range at week two (they have me doing weekly blood tests for the first five weeks) and we went ahead and did a viral load today. I was surprised that it was suggested at week three - but what the heck! The results should be back in about ten days. Now I'm going to mark my calendar and use that famous brain fog to try and forget about it until then :-). My love to all, karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Sounds GREAT ,, you are doing wonderfully! I hope your viral load is gone with this PCR but if not, as long as you had that 2 log drop,, you should be ok! Checkers2001 <simplicity53@...> wrote: Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh today (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I seem to have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I pick up the needle tonight. I'm told everything is looking good. Finally remembered to check on what my viral load was at start - about 10 million of those nasty little buggers! Well, it seems that my liver panel actually came back in the normal range at week two (they have me doing weekly blood tests for the first five weeks) and we went ahead and did a viral load today. I was surprised that it was suggested at week three - but what the heck! The results should be back in about ten days. Now I'm going to mark my calendar and use that famous brain fog to try and forget about it until then :-). My love to all, karenJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Sounds GREAT ,, you are doing wonderfully! I hope your viral load is gone with this PCR but if not, as long as you had that 2 log drop,, you should be ok! Checkers2001 <simplicity53@...> wrote: Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh today (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I seem to have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I pick up the needle tonight. I'm told everything is looking good. Finally remembered to check on what my viral load was at start - about 10 million of those nasty little buggers! Well, it seems that my liver panel actually came back in the normal range at week two (they have me doing weekly blood tests for the first five weeks) and we went ahead and did a viral load today. I was surprised that it was suggested at week three - but what the heck! The results should be back in about ten days. Now I'm going to mark my calendar and use that famous brain fog to try and forget about it until then :-). My love to all, karenJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 This is an amazing journey! I actually did the shot tonight with barely a flinch (just a slight hand shake lol). Actually I think things are going well - the hepatologist and his team that I am working with seem to be very good so far. I am impressed with how in touch that stay with me. I was concerned with being so long distance from their office. Actually the hardest thing I am dealing with right now is a very stressful situation in my home with my almost 18 year old son that seems to be escalating again. I could definitely use some ideas for keeping my stress levels down. I really need a healthy home right now! hugs to all, karen > > It sounds like your doing great ! xoxo > Hep Doc Visit > > > Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh today > (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I seem to > have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I pick up > the needle tonight. > > I'm told everything is looking good. Finally remembered to check on what my viral load was > at start - about 10 million of those nasty little buggers! Well, it seems that my liver panel > actually came back in the normal range at week two (they have me doing weekly blood tests > for the first five weeks) and we went ahead and did a viral load today. I was surprised that it > was suggested at week three - but what the heck! The results should be back in about ten > days. Now I'm going to mark my calendar and use that famous brain fog to try and forget > about it until then :-). > > My love to all, karen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Thanks Liz! Thanks Jax! I think the stress levels are hitting the fan here again and I've had two nights without sleep. I can definitely play hard ball although we're already past the place where my son is hurting himself. I believe conflict is an opportunity for growth and can feel pretty centered in myself - but the lack of sleep that sometimes comes in the middle of the night with the stress doesn't feel like a positive opportunity for my treatment. I'm wiped out this morning and I don't think it is from the drugs :-). I'm concerned about the effect of sleepless nights and am wondering if I should share that part of it with my treatment group. I have shared before starting that there is quite a bit of situational stress in my home due to my son's present struggles. Oh well - I guess asking for a calm year on the home front while I treat just wasn't in the cards (but I was sure hoping! lol). Anybody know how to freeze time for a year? love,k > > > > It sounds like your doing great ! xoxo > > Hep Doc Visit > > > > > > Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh > today > > (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I > seem to > > have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I > pick up > > the needle tonight. > > > > I'm told everything is looking good. Finally remembered to check on what my viral load > was > > at start - about 10 million of those nasty little buggers! Well, it seems that my liver > panel > > actually came back in the normal range at week two (they have me doing weekly blood > tests > > for the first five weeks) and we went ahead and did a viral load today. I was surprised > that it > > was suggested at week three - but what the heck! The results should be back in about > ten > > days. Now I'm going to mark my calendar and use that famous brain fog to try and > forget > > about it until then :-). > > > > My love to all, karen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Well Jax - your note was perfect. I did call a family meeting yesterday (between falling asleep lol) and let him know what I was seeing and where I would be drawing the lines. But your note really brought me back to reality and the importance of calm in my life right now. No, although there is no where to send him and I'm really on my own here, after reading your note today - I sat out on the back porch and did a little deep meditative breathing. And I just came to the conclusion that this is my life and journey and that I have an opportunity to grow and detach with love when I need to and take care of me. Not sure why, but I feel pretty good about this. But your note was the kicker! Thanks, Jax. love, karen > > > > > > It sounds like your doing great ! xoxo > > > Hep Doc Visit > > > > > > > > > Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh > > today > > > (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I > > seem to > > > have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I > > pick up > > > the needle tonight. > > > > > > I'm told everything is looking good. Finally remembered to check on what my viral > load > > was > > > at start - about 10 million of those nasty little buggers! Well, it seems that my liver > > panel > > > actually came back in the normal range at week two (they have me doing weekly > blood > > tests > > > for the first five weeks) and we went ahead and did a viral load today. I was surprised > > that it > > > was suggested at week three - but what the heck! The results should be back in > about > > ten > > > days. Now I'm going to mark my calendar and use that famous brain fog to try and > > forget > > > about it until then :-). > > > > > > My love to all, karen > > > > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Well Jax - your note was perfect. I did call a family meeting yesterday (between falling asleep lol) and let him know what I was seeing and where I would be drawing the lines. But your note really brought me back to reality and the importance of calm in my life right now. No, although there is no where to send him and I'm really on my own here, after reading your note today - I sat out on the back porch and did a little deep meditative breathing. And I just came to the conclusion that this is my life and journey and that I have an opportunity to grow and detach with love when I need to and take care of me. Not sure why, but I feel pretty good about this. But your note was the kicker! Thanks, Jax. love, karen > > > > > > It sounds like your doing great ! xoxo > > > Hep Doc Visit > > > > > > > > > Hi everyone! Here's hoping for a wonderful new year! I made the drive to Pittsburgh > > today > > > (about three hours) for my monthly doctor visit. Tonight is also shot night (#4) and I > > seem to > > > have made it home all in one piece lol. Maybe my fatigue will calm my nerves when I > > pick up > > > the needle tonight. > > > > > > I'm told everything is looking good. Finally remembered to check on what my viral > load > > was > > > at start - about 10 million of those nasty little buggers! Well, it seems that my liver > > panel > > > actually came back in the normal range at week two (they have me doing weekly > blood > > tests > > > for the first five weeks) and we went ahead and did a viral load today. I was surprised > > that it > > > was suggested at week three - but what the heck! The results should be back in > about > > ten > > > days. Now I'm going to mark my calendar and use that famous brain fog to try and > > forget > > > about it until then :-). > > > > > > My love to all, karen > > > > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Thanks, Nikki. I'll be hoping for you next week! This growing with our children is not always a smooth road. I find myself visualizing some of the good memories during the harder times and being greatful for the love I have in my life. I'm really realizing how hard the lack of sleep can be - especially now that I'm on treatment. I've been doing pretty well - but after a couple of nights with very little sleep and the long drive to the doctor's on Thursday, I injected Thursday night and could barely stand up all day yesterday. I'm back walking around today - but still feel tired and am taking it easy. Did push myself to take a little walk earlier, but that's about it. Keep breathing, Nikki - I suspect that seeing your son next week is going to be a wonderful reunion. Hope you can breath through the stress :-). much love, karen > > > > > > It sounds like your doing great ! xoxo > > > Hep Doc Visit > > > > > > > > > Hi everyone! Here's hoping for a wonderful new year! I made the drive to > Pittsburgh > > today > > > (about three hours) for my monthly doctor visit. Tonight is also shot > night (#4) and I > > seem to > > > have made it home all in one piece lol. Maybe my fatigue will calm my > nerves when I > > pick up > > > the needle tonight. > > > > > > I'm told everything is looking good. Finally remembered to check on what > my viral > load > > was > > > at start - about 10 million of those nasty little buggers! Well, it > seems that my liver > > panel > > > actually came back in the normal range at week two (they have me doing > weekly > blood > > tests > > > for the first five weeks) and we went ahead and did a viral load today. > I was surprised > > that it > > > was suggested at week three - but what the heck! The results should be > back in > about > > ten > > > days. Now I'm going to mark my calendar and use that famous brain fog to > try and > > forget > > > about it until then :-). > > > > > > My love to all, karen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Dear Jax, I just wanted to thank you again for your sincere caring. I think sometimes there can be such a feeling of isolation when we are dealing with life and its issues. Just knowing that others understand and have been there and survived is a real blessing. Today is my son's 18th birthday (and my 5th injection night!). I just made a birthday cake (although it is looking pretty lopsided lol) and am waiting for it too cool before putting on the decorations. Sometimes it seems like we just have to focus on the good stuff in spite of everything. It all goes by so fast at times. with much love,karen > Well Jax - your note was perfect. I did call a family meeting yesterday (between falling > asleep lol) and let him know what I was seeing and where I would be drawing the lines. > But your note really brought me back to reality and the importance of calm in my life right > now. No, although there is no where to send him and I'm really on my own here, after > reading your note today - I sat out on the back porch and did a little deep meditative > breathing. And I just came to the conclusion that this is my life and journey and that I > have an opportunity to grow and detach with love when I need to and take care of me. Not > sure why, but I feel pretty good about this. But your note was the kicker! Thanks, Jax. > love, karen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.