**********HepC WebSite Ideas************

[Guest guest]

Hello,

Im posted a few times but I've been busy working trying to get

insurance to get my Hep checked out, but of course, soon as my 90-days

is up, I have to leave and look for another job (because of one reason

or another) Most of you know im 23 so hopefully I havent had it that

long. Im thinking(hoping) when I was 16 from using my fathers razor,

but it could be younger.

Anyways, I check this email about 2 times a month and I find about

1-2,000 emails from messages coming from this group (a good thing,.

very active members). I try to go threw each page of mails and look at

curtain ones based on my topic interest and read them.

I am a web developer and I would like to give to the group. Sometype

of web site system to hold this great amount of great information for

others and ourselfs to access. I know sometimes I feel overwhelmed

when I check this email b/c there is just sooo much information. I was

thinking of different sections for stuff like: articles, news, forums,

treatment, etc . . etc. I know there are alot of sites out there, but

i somehow would like to make this one unqiue. Maybe all information

coming from a personal and/or professional experiences (maybe with

current DR.'s posting) Even better, the patients (meaning us) can tell

our DR's to signup to share information. Nothing too technical and

hard to search through, b/c we know how DR's dont really like

technology. But this would help the treatment by providing an easy way

for DR's to help their patients, us!

Basicly I want to build us a site where we can find a wealth of

information, both professional and personal, AND a section where dr's

can exchange data/knowledge.

This would be a huge project, but if what I envision could come to

life, it would be worth it! I really couldnt even start building the

site out until I completely planned the whole site out on paper

(documentation).

This is where I need the groups help. I've been so busy, I havent been

keeping up-to-date with the group like I would should and this is one

reason I want to build this.

I will take any ideas, comments, suggestions. References to other

sites that will be helpful on the creation of a section would be even

better.

My ultimate goal is having this site get so big, members with hep can

get the information they want fast, have members with help can tell

their experiences, do's and dont's, diets, dr's being able to exchange

information and possibly get sponsors to help with member medications

and etc. There is just tons of stuff so thats why I need you guys and

ladies help.

And once its designed and built, im also going to need moderators and

admins to keep the news/forums/ etc alive but that shouldnt be a

problem Well, now that I think of it, I would need experienced

moderators or admins from this group to help with all the content.

This is a big project and something I would have to do in my spare

time. The planning would most likely take 3-4 months. The site layout

and design would take another 2-4 months. and the actual coding and

implementation could take up to 6 months to a year.

If anyone has any design or development experience, please reply from

this message also. CSS or graphic and/or .NET experience would be great!

***P.S.**** I am not doing this to make money!!!!!!! Im doing this for

mostly for people like us. *********

More about me: im 23 from Orlando, FL. I graduated college a year ago

and I've been trying to keep a job long enough to get he insurance for

treatment, well first off, to take a look at my hepc and the damage so

far. I've come soo close to getting my insurance, well got it once,

but then had to leave, a few times. Seems like the companies I decide

to work for pay nothing and expect the world. So i decide to leave,

knowing if I would stay, get insurance and then go through treatment,

I would then have to most likely quite b/c I wouldnt be able to keep

up with the workload and hours. So, then I went to job #3 (I skipped

job#1 b/c I didnt want to kill myself working 70hrs a week). Anyways,

I was promised insurance when I started when my 90-days where up. I

was contract for the first 90-days though. It passed and they wanted

to hire me on full-time. I thought I would get insurance and a raise,

but i got neither. So, im looking again. Its going real good. I've had

10 calls today about interviews and they are talking about money I can

live on, b/c I got my first 3 jobs with no experience and did whatever

to try to get insurance.

My father has had HepC for over 30yrs and found out about it 10 yrs

ago. Everything that was so perfect (seemingly) all went downhill. He

worked with a company for 25+ yrs and was about to retire in 5 yrs I

think but they he could no longer work and he couldnt get what he has

been working for. He has to go into his 401k and get it taking out

early, which of course gets taxed the hell out of, which all went to

medicine and treatment. Nothing helped. Hes in pretty bad shape now

that I look back of what he used to be. Not only his body changed, his

mind changed from all the meds.

My mother had HepC, but thank God, she shed it (cleared it naturally)

but she has ankilonis-sponidisis so she is always weak, but has to

work long crazy hours too just to keep insurance. Companies dont want

to deal with her being ill sometimes, so they fire her, or basicly

make her do things that the disease wouldnt physically let her do (for

instance, taking people out for tours which makes her walk alot)

Anyways, i've seen the evil of insurance companies and the bull s***

that goes with it. Not only your life is sometimes hell as it is, they

have to add onto it somehow, someway. You would think the " greatest

country in the world " would care about its people as much as they do

about war. but thats another subject and im not going to get started.

I've lived at home all my life with my parents. I was waiting to move

out, but when this hit us all I decided to stay while I could. Its

depressing pretty much all the time, but i never give up hope.

Im not really into politics, but one day I hope to change this country

and bring it back to the glory we once stood for.

There is alot more too it, but I didnt know when I started writing

this, it would be sooo long.

[Guest guest]

Please contact me on my personal email doc_jade@...

or look in the database and get my phone number and you can call me

on the phone.

Love

Janet

>

> Hello,

> Im posted a few times but I've been busy working trying to get

> insurance to get my Hep checked out, but of course, soon as my 90-

days

> is up, I have to leave and look for another job (because of one

reason

> or another) Most of you know im 23 so hopefully I havent had it that

> long. Im thinking(hoping) when I was 16 from using my fathers razor,

> but it could be younger.

>

> Anyways, I check this email about 2 times a month and I find about

> 1-2,000 emails from messages coming from this group (a good thing,.

> very active members). I try to go threw each page of mails and look

at

> curtain ones based on my topic interest and read them.

>

> I am a web developer and I would like to give to the group. Sometype

> of web site system to hold this great amount of great information

for

> others and ourselfs to access. I know sometimes I feel overwhelmed

> when I check this email b/c there is just sooo much information. I

was

> thinking of different sections for stuff like: articles, news,

forums,

> treatment, etc . . etc. I know there are alot of sites out there,

but

> i somehow would like to make this one unqiue. Maybe all information

> coming from a personal and/or professional experiences (maybe with

> current DR.'s posting) Even better, the patients (meaning us) can

tell

> our DR's to signup to share information. Nothing too technical and

> hard to search through, b/c we know how DR's dont really like

> technology. But this would help the treatment by providing an easy

way

> for DR's to help their patients, us!

>

> Basicly I want to build us a site where we can find a wealth of

> information, both professional and personal, AND a section where

dr's

> can exchange data/knowledge.

>

> This would be a huge project, but if what I envision could come to

> life, it would be worth it! I really couldnt even start building the

> site out until I completely planned the whole site out on paper

> (documentation).

>

> This is where I need the groups help. I've been so busy, I havent

been

> keeping up-to-date with the group like I would should and this is

one

> reason I want to build this.

>

> I will take any ideas, comments, suggestions. References to other

> sites that will be helpful on the creation of a section would be

even

> better.

>

> My ultimate goal is having this site get so big, members with hep

can

> get the information they want fast, have members with help can tell

> their experiences, do's and dont's, diets, dr's being able to

exchange

> information and possibly get sponsors to help with member

medications

> and etc. There is just tons of stuff so thats why I need you guys

and

> ladies help.

>

> And once its designed and built, im also going to need moderators

and

> admins to keep the news/forums/ etc alive but that shouldnt be a

> problem Well, now that I think of it, I would need experienced

> moderators or admins from this group to help with all the content.

>

> This is a big project and something I would have to do in my spare

> time. The planning would most likely take 3-4 months. The site

layout

> and design would take another 2-4 months. and the actual coding and

> implementation could take up to 6 months to a year.

>

> If anyone has any design or development experience, please reply

from

> this message also. CSS or graphic and/or .NET experience would be

great!

>

> ***P.S.**** I am not doing this to make money!!!!!!! Im doing this

for

> mostly for people like us. *********

>

> More about me: im 23 from Orlando, FL. I graduated college a year

ago

> and I've been trying to keep a job long enough to get he insurance

for

> treatment, well first off, to take a look at my hepc and the damage

so

> far. I've come soo close to getting my insurance, well got it once,

> but then had to leave, a few times. Seems like the companies I

decide

> to work for pay nothing and expect the world. So i decide to leave,

> knowing if I would stay, get insurance and then go through

treatment,

> I would then have to most likely quite b/c I wouldnt be able to keep

> up with the workload and hours. So, then I went to job #3 (I skipped

> job#1 b/c I didnt want to kill myself working 70hrs a week).

Anyways,

> I was promised insurance when I started when my 90-days where up. I

> was contract for the first 90-days though. It passed and they wanted

> to hire me on full-time. I thought I would get insurance and a

raise,

> but i got neither. So, im looking again. Its going real good. I've

had

> 10 calls today about interviews and they are talking about money I

can

> live on, b/c I got my first 3 jobs with no experience and did

whatever

> to try to get insurance.

>

> My father has had HepC for over 30yrs and found out about it 10 yrs

> ago. Everything that was so perfect (seemingly) all went downhill.

He

> worked with a company for 25+ yrs and was about to retire in 5 yrs I

> think but they he could no longer work and he couldnt get what he

has

> been working for. He has to go into his 401k and get it taking out

> early, which of course gets taxed the hell out of, which all went to

> medicine and treatment. Nothing helped. Hes in pretty bad shape now

> that I look back of what he used to be. Not only his body changed,

his

> mind changed from all the meds.

>

> My mother had HepC, but thank God, she shed it (cleared it

naturally)

> but she has ankilonis-sponidisis so she is always weak, but has to

> work long crazy hours too just to keep insurance. Companies dont

want

> to deal with her being ill sometimes, so they fire her, or basicly

> make her do things that the disease wouldnt physically let her do

(for

> instance, taking people out for tours which makes her walk alot)

>

> Anyways, i've seen the evil of insurance companies and the bull s***

> that goes with it. Not only your life is sometimes hell as it is,

they

> have to add onto it somehow, someway. You would think the " greatest

> country in the world " would care about its people as much as they do

> about war. but thats another subject and im not going to get

started.

>

> I've lived at home all my life with my parents. I was waiting to

move

> out, but when this hit us all I decided to stay while I could. Its

> depressing pretty much all the time, but i never give up hope.

>

> Im not really into politics, but one day I hope to change this

country

> and bring it back to the glory we once stood for.

>

> There is alot more too it, but I didnt know when I started writing

> this, it would be sooo long.

>

[Guest guest]

I read your post and it's one heck of a story. With your energy and

attitude, I'm sure you'll whip Hep C. As for the website, sounds like

a good idea. I do websites myself and am learning css.

This group is one of the best resources on the web, in my opinion.

Pete

>

> Hello,

> Im posted a few times but I've been busy working trying to get

> insurance to get my Hep checked out, but of course, soon as my 90-

days

> is up, I have to leave and look for another job (because of one

reason

> or another) Most of you know im 23 so hopefully I havent had it that

> long. Im thinking(hoping) when I was 16 from using my fathers razor,

> but it could be younger.

>

> Anyways, I check this email about 2 times a month and I find about

> 1-2,000 emails from messages coming from this group (a good thing,.

> very active members). I try to go threw each page of mails and look

at

> curtain ones based on my topic interest and read them.

>

> I am a web developer and I would like to give to the group. Sometype

> of web site system to hold this great amount of great information

for

> others and ourselfs to access. I know sometimes I feel overwhelmed

> when I check this email b/c there is just sooo much information. I

was

> thinking of different sections for stuff like: articles, news,

forums,

> treatment, etc . . etc. I know there are alot of sites out there,

but

> i somehow would like to make this one unqiue. Maybe all information

> coming from a personal and/or professional experiences (maybe with

> current DR.'s posting) Even better, the patients (meaning us) can

tell

> our DR's to signup to share information. Nothing too technical and

> hard to search through, b/c we know how DR's dont really like

> technology. But this would help the treatment by providing an easy

way

> for DR's to help their patients, us!

>

> Basicly I want to build us a site where we can find a wealth of

> information, both professional and personal, AND a section where

dr's

> can exchange data/knowledge.

>

> This would be a huge project, but if what I envision could come to

> life, it would be worth it! I really couldnt even start building the

> site out until I completely planned the whole site out on paper

> (documentation).

>

> This is where I need the groups help. I've been so busy, I havent

been

> keeping up-to-date with the group like I would should and this is

one

> reason I want to build this.

>

> I will take any ideas, comments, suggestions. References to other

> sites that will be helpful on the creation of a section would be

even

> better.

>

> My ultimate goal is having this site get so big, members with hep

can

> get the information they want fast, have members with help can tell

> their experiences, do's and dont's, diets, dr's being able to

exchange

> information and possibly get sponsors to help with member

medications

> and etc. There is just tons of stuff so thats why I need you guys

and

> ladies help.

>

> And once its designed and built, im also going to need moderators

and

> admins to keep the news/forums/ etc alive but that shouldnt be a

> problem Well, now that I think of it, I would need experienced

> moderators or admins from this group to help with all the content.

>

> This is a big project and something I would have to do in my spare

> time. The planning would most likely take 3-4 months. The site

layout

> and design would take another 2-4 months. and the actual coding and

> implementation could take up to 6 months to a year.

>

> If anyone has any design or development experience, please reply

from

> this message also. CSS or graphic and/or .NET experience would be

great!

>

> ***P.S.**** I am not doing this to make money!!!!!!! Im doing this

for

> mostly for people like us. *********

>

> More about me: im 23 from Orlando, FL. I graduated college a year

ago

> and I've been trying to keep a job long enough to get he insurance

for

> treatment, well first off, to take a look at my hepc and the damage

so

> far. I've come soo close to getting my insurance, well got it once,

> but then had to leave, a few times. Seems like the companies I

decide

> to work for pay nothing and expect the world. So i decide to leave,

> knowing if I would stay, get insurance and then go through

treatment,

> I would then have to most likely quite b/c I wouldnt be able to keep

> up with the workload and hours. So, then I went to job #3 (I skipped

> job#1 b/c I didnt want to kill myself working 70hrs a week).

Anyways,

> I was promised insurance when I started when my 90-days where up. I

> was contract for the first 90-days though. It passed and they wanted

> to hire me on full-time. I thought I would get insurance and a

raise,

> but i got neither. So, im looking again. Its going real good. I've

had

> 10 calls today about interviews and they are talking about money I

can

> live on, b/c I got my first 3 jobs with no experience and did

whatever

> to try to get insurance.

>

> My father has had HepC for over 30yrs and found out about it 10 yrs

> ago. Everything that was so perfect (seemingly) all went downhill.

He

> worked with a company for 25+ yrs and was about to retire in 5 yrs I

> think but they he could no longer work and he couldnt get what he

has

> been working for. He has to go into his 401k and get it taking out

> early, which of course gets taxed the hell out of, which all went to

> medicine and treatment. Nothing helped. Hes in pretty bad shape now

> that I look back of what he used to be. Not only his body changed,

his

> mind changed from all the meds.

>

> My mother had HepC, but thank God, she shed it (cleared it

naturally)

> but she has ankilonis-sponidisis so she is always weak, but has to

> work long crazy hours too just to keep insurance. Companies dont

want

> to deal with her being ill sometimes, so they fire her, or basicly

> make her do things that the disease wouldnt physically let her do

(for

> instance, taking people out for tours which makes her walk alot)

>

> Anyways, i've seen the evil of insurance companies and the bull s***

> that goes with it. Not only your life is sometimes hell as it is,

they

> have to add onto it somehow, someway. You would think the " greatest

> country in the world " would care about its people as much as they do

> about war. but thats another subject and im not going to get

started.

>

> I've lived at home all my life with my parents. I was waiting to

move

> out, but when this hit us all I decided to stay while I could. Its

> depressing pretty much all the time, but i never give up hope.

>

> Im not really into politics, but one day I hope to change this

country

> and bring it back to the glory we once stood for.

>

> There is alot more too it, but I didnt know when I started writing

> this, it would be sooo long.

>