Re: Ally - workout

[Guest guest]

The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes.

Ally

On 1/7/07, <linda68082@...> wrote:

Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >>

[Guest guest]

The procrit does sting on injection. I have found that the Interferon-Peg does not sting. Mel <4thMoon@...> wrote: The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a

sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes. Ally On 1/7/07, <linda68082 > wrote: Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >> __________________________________________________

[Guest guest]

thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,, jaxmELODEE DESTEFANO <melodeedestefano@...> wrote: The procrit does sting on injection. I have found that the Interferon-Peg does not sting. Mel <4thMoongmail> wrote: The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes. Ally On 1/7/07, <linda68082 > wrote: Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >> __________________________________________________

[Guest guest]

I let it warm up for 20 minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years.

Ally

On 1/9/07, Jackie on <redjaxjm@...> wrote:

thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,,

jax mELODEE DESTEFANO <melodeedestefano >

wrote:

The procrit does sting on injection. I have found that the Interferon-Peg does not sting.

Mel <4thMoon@...> wrote:

The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes.

Ally

On 1/7/07, <linda68082@...> wrote:

Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >>

__________________________________________________

[Guest guest]

well that could be ally,,but at least you figured out how to make it sting less,,, how are you doing on the Neupo? I think THAT made me ache MORE than the Interferon,, I HATED the neupo!! thats when I had to go on real pain meds! <4thMoon@...> wrote: I let it warm up for 20 minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly

stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years. Ally On 1/9/07, Jackie on <redjaxjm > wrote: thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,, jax mELODEE DESTEFANO <melodeedestefano > wrote: The procrit does sting on injection. I have found that the Interferon-Peg does not sting. Mel <4thMoongmail> wrote: The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it

for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes. Ally On 1/7/07, <linda68082 > wrote: Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >> __________________________________________________

[Guest guest]

At first the Neupo made all my bones achy all the time but then it went away and I haven't had any noticeable side effects from it at all. The aranesp gives me the most problems. It has increased my appetite so I really have to watch what I eat because I crave everything and it makes me fatigued the day I take it but other then that, I don't seem to have too much trouble with that either. I guess I am really lucky on all accounts. I certainly count my blessings everyday.

Ally

On 1/10/07, Jackie on <redjaxjm@...> wrote:

well that could be ally,,but at least you figured out how to make it sting less,,,

how are you doing on the Neupo? I think THAT made me ache MORE than the Interferon,, I HATED the neupo!! thats when I had to go on real pain meds! <4thMoon@...> wrote:

I let it warm up for 20 minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years.

Ally

On 1/9/07, Jackie on <redjaxjm@...

> wrote:

thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,,

jax mELODEE DESTEFANO <melodeedestefano > wrote:

The procrit does sting on injection. I have found that the Interferon-Peg does not sting.

Mel <4thMoon@...> wrote:

The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes.

Ally

On 1/7/07, <linda68082@...> wrote:

Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >>

__________________________________________________

[Guest guest]

Im glad you are passed the problems with the neupo,, it nearly drove me crazy! <4thMoon@...> wrote: At first the Neupo made all my bones achy all the time but then it went away and I haven't had any noticeable side effects from it at all. The aranesp gives me the most problems. It has increased my appetite so I really have to watch what I eat because I crave everything and it makes me fatigued the day I take it but other then that, I don't seem to have too much trouble with that either. I guess I am really

lucky on all accounts. I certainly count my blessings everyday. Ally On 1/10/07, Jackie on <redjaxjm > wrote: well that could be ally,,but at least you figured out how to make it sting less,,, how are you doing on the Neupo? I think THAT made me ache MORE than the Interferon,, I HATED the neupo!! thats when I had to go on real pain meds! <4thMoongmail> wrote: I let it warm up for 20

minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years. Ally On 1/9/07, Jackie on <redjaxjm > wrote: thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to

inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,, jax mELODEE DESTEFANO <melodeedestefano > wrote: The procrit does sting on injection. I have found that the Interferon-Peg does not sting. Mel <4thMoongmail> wrote: The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked

for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes. Ally On 1/7/07, <linda68082 > wrote: Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >> __________________________________________________

[Guest guest]

Speaking of Neupo, I had a scare yesterday. I almost didn't get any of my meds when I went to the pharmacist. He said they weren't in the computer to be issued for another two weeks and I'm totally out of everything. He looked into it and apparently they had been prescribed for " once a month " instead of " every 4 weeks " so the issue date was being extended more and more as we had 5 week months, oy vey. He was very nice though and went in and managed somehow to change all the issue dates on my scripts, without my having to call the Doc, so that I would get this next batch on time. Hopefully I will get my next batch too, then I have an appointment with my Doc next month for new scripts on everything. I will have to let her know about the glitch in the system. I don't want to go through that every month. That's the VA for you...

much relieved, Ally

On 1/10/07, Jackie on <redjaxjm@...> wrote:

Im glad you are passed the problems with the neupo,, it nearly drove me crazy! <4thMoon@...> wrote:

At first the Neupo made all my bones achy all the time but then it went away and I haven't had any noticeable side effects from it at all. The aranesp gives me the most problems. It has increased my appetite so I really have to watch what I eat because I crave everything and it makes me fatigued the day I take it but other then that, I don't seem to have too much trouble with that either. I guess I am really lucky on all accounts. I certainly count my blessings everyday.

Ally

On 1/10/07, Jackie on <redjaxjm@...

> wrote:

well that could be ally,,but at least you figured out how to make it sting less,,,

how are you doing on the Neupo? I think THAT made me ache MORE than the Interferon,, I HATED the neupo!! thats when I had to go on real pain meds! <4thMoon@...> wrote:

I let it warm up for 20 minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years.

Ally

On 1/9/07, Jackie on <redjaxjm@...

> wrote:

thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,,

jax mELODEE DESTEFANO <melodeedestefano > wrote:

The procrit does sting on injection. I have found that the Interferon-Peg does not sting.

Mel <4thMoon@...> wrote:

The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes.

Ally

On 1/7/07, <linda68082@...> wrote:

Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >>

__________________________________________________

[Guest guest]

THATS EXACTLY WHY WE HAVE to be our own advocate,,, mistakes are made often,, <4thMoon@...> wrote: Speaking of Neupo, I had a scare yesterday. I almost didn't get any of my meds when I went to the pharmacist. He said they weren't in the computer to be issued for another two weeks and I'm totally out of everything. He looked into it and apparently they had been prescribed for "once a month" instead of "every 4 weeks" so the issue date was being extended more and more as we had 5 week months, oy vey.

He was very nice though and went in and managed somehow to change all the issue dates on my scripts, without my having to call the Doc, so that I would get this next batch on time. Hopefully I will get my next batch too, then I have an appointment with my Doc next month for new scripts on everything. I will have to let her know about the glitch in the system. I don't want to go through that every month. That's the VA for you... much relieved, Ally On 1/10/07, Jackie on <redjaxjm > wrote: Im glad you are passed the problems with the neupo,, it nearly drove me crazy! <4thMoongmail> wrote: At first the Neupo made all my bones achy all the time but then it went away and I haven't had any noticeable side effects from it at all. The aranesp gives me the most problems. It has increased my appetite so I really have to watch what I eat because I crave everything and it makes me fatigued the day I take it but other then that, I don't seem to have too much trouble with that either. I guess I am really lucky on all accounts. I certainly count my blessings everyday. Ally On 1/10/07, Jackie on <redjaxjm > wrote: well that could be ally,,but at least you figured out how to make it sting less,,, how are you doing on the Neupo? I think THAT made me ache MORE than the Interferon,, I HATED the neupo!! thats when I had to go on real pain meds! <4thMoongmail> wrote: I let it warm up for 20 minutes and do inject it slow but it still stings for me, not as much as when I did it cold. I think I learned that here and it does help a lot. The warming has helped most with the neupogen, it hardly stongs at all anymore now that I warm it up. When I inject I do a tiny, tiny amount and stop, wait for the pain to go away then a tiny bit more. Maybe it is just me because my pain tolerance has decreased over the years. Ally On 1/9/07, Jackie on <redjaxjm > wrote: thats because the procrit is kept in the fridge,, hold it in your hands for 5 min and let it warm up and inject it s l o w l y and it wont sting! thats what I did and I used to have to inject my father when he was in early stage of kidney failure,, and he said as long as I injected it slowly and warmed it in my hands, it didnt sting,,, jax mELODEE DESTEFANO <melodeedestefano > wrote: The procrit does

sting on injection. I have found that the Interferon-Peg does not sting. Mel <4thMoongmail> wrote: The Aranesp (procrit) shot made a HUGE difference. I used to get winded too. I would wake up and just not have the motivation to even get to the gym, let along work out. When I did workout, I felt like I was moving through cement. It was very discouraging so I asked for the Aranesp and got it and within weeks started feeling much better. The shot hurts like a sun of a gun but it is worth it for how I feel and my being able to work out. Have you found out yet if you are anemic? If so, I recommend getting the Procrit, or whatever version they have of that, it will surely help you feel better. If you can't, I've heard that Folic Acid and B12 helps too sometimes. Ally On 1/7/07, <linda68082 > wrote: Holy Smokes, Ally, how do you work out every day? I have been getting winded just walking up the stairs. I am sooooo envious :-)> > > >> >> > > >> __________________________________________________