Tic associated with speech delay

December 29, 2001

Hey

does this thing ( several times a day) with his eyes. It looks like he is

blinking but it's almost like he cannot focus on

something well. It's almost like a fluttering thing going on. We had seen it

and were'nt sure about it and the OT was the one who

asked us if anyone had ever talked to us about seizures. He also gets that

dazed out look like he is in his own world a few times a

day. It lasts only about 10 seconds and then he goes back to whatever he was

doing before. The neuro told us at one time that it

is possible that it could be some type of seizure but that alot of times that

children with speech delays were prone to " tics " . I have

to wonder though, if he is having some type of seizure, could it be the root of

alot of his other problems?

The only reason we got referred to the neurologist was because of this eye

fluttering thing. That's how we got around to getting

all the medical tests done. To date he has had an MRI ( came out okay), full

battery of blood and urine tests ( not sure of

outcome yet) and has had 2 eegs and we are waiting to be scheduled for a 3rd

eeg.

Get this- he has SI issues also but the neurologist ordered an ambulatory eeg-

you know the one where you go to the hospital and

they hook him up to the electrodes and send you home for 24 hours. I thought

this was the most absurd thing I had ever heard of

considering his SI issues and that the child can not tolerate anything on his

head at all. Well, we never even made it out of the

hospital on that one. Next, they did a routine eeg for 45 minutes at the

office. Nothing showed up and as soon as they unhooked

him, he had an episode. So now they want to bring him in to do a 4 hour eeg and

see what they can see. These are sleep

deprived eegs and then they sedate him for it when he comes in.

I swear, I do not know how much more I can put this child through.. I

understand that they have to be sure of what is going on in

his brain but it seems like if they have to put him to sleep at all that they

could have done all of these tests at one time. Watching

them put my little boy to sleep is the most horrendous thing I have every had to

do in my life. If I could switch places with him I

gladly do so in a minute.

Stacey

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