Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress@...> wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Good for your Doc Ally and I like your attitude!!!!! Love Janet4thMoon <4thMoon@...> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Take the ordinary things of life, and make them your own. Do the impossible with a smile Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Your doctor will probably order Neupogen for your low white blood count . It's an injection and burns a little going in but you will feel better and stronger by the next day Low white boold cell count I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoon@...> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Yep,, you will need neupo,, I had to take both neupo and procrit,, do whatever you have to so that they do NOT lower your dose of meds! DEMAND the neupogen!kerrilandress <kerrilandress@...> wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I think that is the best attitude to take: to be proactive in your own treatment. It makes for a smoother transition when things are rough, that is for sure. Sometimes my Dr has to remind me, " look, you are on treatment, quit having such high expectations of yourself! " LOL because I believe I can continue my normal daily life when sometimes the best thing I could do for myself is crawl into bed and sleep but you know how that goes. If I can do it, whatever " it " is, I will. It's hard sometimes to remember what life was like when I wasn't on treatment because I've been on it for so long so I have to dig down in my memories and remember that it is very different and that my current quality of life isn't permanent.. Having said all that, it is 5am in the morning right now and I am on my way to the gym, LOL... ah well, some things will never change, or maybe I should say, somethings refuse to change, hehehe. Ally tomorrow will be week 35/72 almost half way through!!! On 11/30/06, Jackie on <redjaxjm@...> wrote: That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoon@...> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress@... > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I think that is the best attitude to take: to be proactive in your own treatment. It makes for a smoother transition when things are rough, that is for sure. Sometimes my Dr has to remind me, " look, you are on treatment, quit having such high expectations of yourself! " LOL because I believe I can continue my normal daily life when sometimes the best thing I could do for myself is crawl into bed and sleep but you know how that goes. If I can do it, whatever " it " is, I will. It's hard sometimes to remember what life was like when I wasn't on treatment because I've been on it for so long so I have to dig down in my memories and remember that it is very different and that my current quality of life isn't permanent.. Having said all that, it is 5am in the morning right now and I am on my way to the gym, LOL... ah well, some things will never change, or maybe I should say, somethings refuse to change, hehehe. Ally tomorrow will be week 35/72 almost half way through!!! On 11/30/06, Jackie on <redjaxjm@...> wrote: That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoon@...> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress@... > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 The neupogen will make you feel so much better sweety . If the doctor lowers your treatment dose then there is a chance the virus will mutate and get worse . So request neupo before you let him lower the dose . That is unless you have lost so much weight that the dose for your current weight is wrong . Re: Low white boold cell count My doctors's office was SUPPOSED to call me back yesterday to advise me what to do about my low white count, but I never heard from them and I was too busy at work yesterday to call them. If I don't hear from them today, I will ask about neupogin... I am scared to lower the tx dose... what if it doesn't work? I don't want to go through all of this without results. Will the neupogin make me feel less "run down"?4thMoon <4thMoongmail> wrote: I think that is the best attitude to take: to be proactive in your own treatment. It makes for a smoother transition when things are rough, that is for sure. Sometimes my Dr has to remind me, "look, you are on treatment, quit having such high expectations of yourself!" LOL because I believe I can continue my normal daily life when sometimes the best thing I could do for myself is crawl into bed and sleep but you know how that goes. If I can do it, whatever "it" is, I will. It's hard sometimes to remember what life was like when I wasn't on treatment because I've been on it for so long so I have to dig down in my memories and remember that it is very different and that my current quality of life isn't permanent.. Having said all that, it is 5am in the morning right now and I am on my way to the gym, LOL... ah well, some things will never change, or maybe I should say, somethings refuse to change, hehehe. Ally tomorrow will be week 35/72 almost half way through!!! On 11/30/06, Jackie on <redjaxjm > wrote: That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoongmail> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 they presscribed neupogen. hopefully it will help. thanks.elizabethnv1 <elizabethnv1@...> wrote: The neupogen will make you feel so much better sweety . If the doctor lowers your treatment dose then there is a chance the virus will mutate and get worse . So request neupo before you let him lower the dose . That is unless you have lost so much weight that the dose for your current weight is wrong . Re: Low white boold cell count My doctors's office was SUPPOSED to call me back yesterday to advise me what to do about my low white count, but I never heard from them and I was too busy at work yesterday to call them. If I don't hear from them today, I will ask about neupogin... I am scared to lower the tx dose... what if it doesn't work? I don't want to go through all of this without results. Will the neupogin make me feel less "run down"?4thMoon <4thMoongmail> wrote: I think that is the best attitude to take: to be proactive in your own treatment. It makes for a smoother transition when things are rough, that is for sure. Sometimes my Dr has to remind me, "look, you are on treatment, quit having such high expectations of yourself!" LOL because I believe I can continue my normal daily life when sometimes the best thing I could do for myself is crawl into bed and sleep but you know how that goes. If I can do it, whatever "it" is, I will. It's hard sometimes to remember what life was like when I wasn't on treatment because I've been on it for so long so I have to dig down in my memories and remember that it is very different and that my current quality of life isn't permanent.. Having said all that, it is 5am in the morning right now and I am on my way to the gym, LOL... ah well, some things will never change, or maybe I should say, somethings refuse to change, hehehe. Ally tomorrow will be week 35/72 almost half way through!!! On 11/30/06, Jackie on <redjaxjm > wrote: That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoongmail> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Everyone is raving about the all-new beta. Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2006 Report Share Posted December 3, 2006 I am happy to hear that , it will make a big difference in the way you feel . Re: Low white boold cell count My doctors's office was SUPPOSED to call me back yesterday to advise me what to do about my low white count, but I never heard from them and I was too busy at work yesterday to call them. If I don't hear from them today, I will ask about neupogin... I am scared to lower the tx dose... what if it doesn't work? I don't want to go through all of this without results. Will the neupogin make me feel less "run down"?4thMoon <4thMoongmail> wrote: I think that is the best attitude to take: to be proactive in your own treatment. It makes for a smoother transition when things are rough, that is for sure. Sometimes my Dr has to remind me, "look, you are on treatment, quit having such high expectations of yourself!" LOL because I believe I can continue my normal daily life when sometimes the best thing I could do for myself is crawl into bed and sleep but you know how that goes. If I can do it, whatever "it" is, I will. It's hard sometimes to remember what life was like when I wasn't on treatment because I've been on it for so long so I have to dig down in my memories and remember that it is very different and that my current quality of life isn't permanent.. Having said all that, it is 5am in the morning right now and I am on my way to the gym, LOL... ah well, some things will never change, or maybe I should say, somethings refuse to change, hehehe. Ally tomorrow will be week 35/72 almost half way through!!! On 11/30/06, Jackie on <redjaxjm > wrote: That was me too ally! I DEMANDED procrit and neupo and REFUSED to allow them to lower my doses of tx!4thMoon <4thMoongmail> wrote: My white blood count dropped very fast when I started treatment. My Dr put me on Neupogin which solved the problem. I would have to be on death's door to let them lower my tx dose, lol, so am grateful for a Dr who is willing to give me the side effects meds. Ally On 11/29/06, kerrilandress <kerrilandress > wrote: I've been on tx for 6 weeks. Just had a lab done and was told by the nurse that my white count was very low. She said the Dr. will either supplement me with something to stimulate the blood cells or lower my tx dose. She is supposed to call today. Anyone ever have this happen? I am on Pegasys 135, and 800 mg of Ribivarin. Geno 3, vl 12 million. Jackie Everyone is raving about the all-new beta. Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
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