Re: Tic associated with speech delay

[Guest guest]

Stacey -

I am so happy to hear from you. So the doctors should be running more than

one EEG on my baby? I am so angry at the ped neurologist now. She never

follows through with my daughter. I know now I will request to see another

doctor. I don't remember noticing a tic like your sons, but my daughter,

especially when she gets tired, her eyes appear to " float " . No doctor has

really said what causes that yet. But she also has spells off in another

world. The doctor ran a 10 minute EEG and the only reason I got an answer

is because I called the doctors office...and that was it. They said it was

normal...have a nice day. I am so mad. My daughter is almost 5 and does

not talk. You would think the " specialist " would go further to find and

answer...I guess not. I am just going to take Breana to a Genetisist in

April. I hope they can give me a " real " answer, because I don't know where

else to go...we have seen all the specialists possible...I know what you

mean about sedation, I hate to see it too. I would also change places with

my baby any day, I don't ever want to see her in pain. I hope all turns out

for you. Please keep in touch. Have you ever hear of a Neurologist

Development Pediatrician? Where would I find someone like that?

>From: " Stacey " <staceydaniel@...>

>Reply-

>< >

>Subject: [ ] Tic associated with speech delay

>Date: Sat, 29 Dec 2001 00:46:54 -0500

>

>Hey

>

>does this thing ( several times a day) with his eyes. It looks like

>he is blinking but it's almost like he cannot focus on

>something well. It's almost like a fluttering thing going on. We had seen

>it and were'nt sure about it and the OT was the one who

>asked us if anyone had ever talked to us about seizures. He also gets that

>dazed out look like he is in his own world a few times a

>day. It lasts only about 10 seconds and then he goes back to whatever he

>was doing before. The neuro told us at one time that it

>is possible that it could be some type of seizure but that alot of times

>that children with speech delays were prone to " tics " . I have

>to wonder though, if he is having some type of seizure, could it be the

>root of alot of his other problems?

>

>The only reason we got referred to the neurologist was because of this eye

>fluttering thing. That's how we got around to getting

>all the medical tests done. To date he has had an MRI ( came out okay),

>full battery of blood and urine tests ( not sure of

>outcome yet) and has had 2 eegs and we are waiting to be scheduled for a

>3rd eeg.

>

>Get this- he has SI issues also but the neurologist ordered an ambulatory

>eeg- you know the one where you go to the hospital and

>they hook him up to the electrodes and send you home for 24 hours. I

>thought this was the most absurd thing I had ever heard of

>considering his SI issues and that the child can not tolerate anything on

>his head at all. Well, we never even made it out of the

>hospital on that one. Next, they did a routine eeg for 45 minutes at the

>office. Nothing showed up and as soon as they unhooked

>him, he had an episode. So now they want to bring him in to do a 4 hour

>eeg and see what they can see. These are sleep

>deprived eegs and then they sedate him for it when he comes in.

>

>I swear, I do not know how much more I can put this child through.. I

>understand that they have to be sure of what is going on in

>his brain but it seems like if they have to put him to sleep at all that

>they could have done all of these tests at one time. Watching

>them put my little boy to sleep is the most horrendous thing I have every

>had to do in my life. If I could switch places with him I

>gladly do so in a minute.

>

>Stacey

>

>

>

>

_________________________________________________________________

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[Guest guest]

" Have you ever hear of a Neurologist Development Pediatrician? Where

would I find someone like that? "

Well, you found one already - me. Dr. Agin is also a Developmental

Pediatrician.

Any questions, email me through the listserv

Larry Laveman, MD

--- In @y..., " Glaspie " <eglaspie@h...>

wrote:

> Stacey -

>

> I am so happy to hear from you. So the doctors should be running

more than

> one EEG on my baby? I am so angry at the ped neurologist now. She

never

> follows through with my daughter. I know now I will request to see

another

> doctor. I don't remember noticing a tic like your sons, but my

daughter,

> especially when she gets tired, her eyes appear to " float " . No

doctor has

> really said what causes that yet. But she also has spells off in

another

> world. The doctor ran a 10 minute EEG and the only reason I got an

answer

> is because I called the doctors office...and that was it. They

said it was

> normal...have a nice day. I am so mad. My daughter is almost 5

and does

> not talk. You would think the " specialist " would go further to

find and

> answer...I guess not. I am just going to take Breana to a

Genetisist in

> April. I hope they can give me a " real " answer, because I don't

know where

> else to go...we have seen all the specialists possible...I know

what you

> mean about sedation, I hate to see it too. I would also change

places with

> my baby any day, I don't ever want to see her in pain. I hope all

turns out

> for you. Please keep in touch. Have you ever hear of a

Neurologist

> Development Pediatrician? Where would I find someone like that?

>

>

>

> >From: " Stacey " <staceydaniel@m...>

> >Reply- @y...

> >< @y...>

> >Subject: [ ] Tic associated with speech delay

> >Date: Sat, 29 Dec 2001 00:46:54 -0500

> >

> >Hey

> >

> >does this thing ( several times a day) with his eyes. It

looks like

> >he is blinking but it's almost like he cannot focus on

> >something well. It's almost like a fluttering thing going on. We

had seen

> >it and were'nt sure about it and the OT was the one who

> >asked us if anyone had ever talked to us about seizures. He also

gets that

> >dazed out look like he is in his own world a few times a

> >day. It lasts only about 10 seconds and then he goes back to

whatever he

> >was doing before. The neuro told us at one time that it

> >is possible that it could be some type of seizure but that alot of

times

> >that children with speech delays were prone to " tics " . I have

> >to wonder though, if he is having some type of seizure, could it

be the

> >root of alot of his other problems?

> >

> >The only reason we got referred to the neurologist was because of

this eye

> >fluttering thing. That's how we got around to getting

> >all the medical tests done. To date he has had an MRI ( came out

okay),

> >full battery of blood and urine tests ( not sure of

> >outcome yet) and has had 2 eegs and we are waiting to be scheduled

for a

> >3rd eeg.

> >

> >Get this- he has SI issues also but the neurologist ordered an

ambulatory

> >eeg- you know the one where you go to the hospital and

> >they hook him up to the electrodes and send you home for 24

hours. I

> >thought this was the most absurd thing I had ever heard of

> >considering his SI issues and that the child can not tolerate

anything on

> >his head at all. Well, we never even made it out of the

> >hospital on that one. Next, they did a routine eeg for 45 minutes

at the

> >office. Nothing showed up and as soon as they unhooked

> >him, he had an episode. So now they want to bring him in to do a

4 hour

> >eeg and see what they can see. These are sleep

> >deprived eegs and then they sedate him for it when he comes in.

> >

> >I swear, I do not know how much more I can put this child

through.. I

> >understand that they have to be sure of what is going on in

> >his brain but it seems like if they have to put him to sleep at

all that

> >they could have done all of these tests at one time. Watching

> >them put my little boy to sleep is the most horrendous thing I

have every

> >had to do in my life. If I could switch places with him I

> >gladly do so in a minute.

> >

> >Stacey

> >

> >

> >

> >

>

>

>

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

[Guest guest]

My daughter has seen a Dev Ped a couple times. The first time she was 2.5

years old, the " specialist " said my daughter had a behavior problem and

needed to sleep in her own bed. A year and half later the same " specialist "

said my daughter had Dev Verbal Dyspraxia. And that was it, she didn't even

follow through with any information for me. Just said my daughter may or

may never talk....maybe speech therapy will help...and that was that. Any

suggestions on what else I should say or do? Thanks,

>

> " Have you ever hear of a Neurologist Development Pediatrician? Where

>would I find someone like that? "

>

>

>Well, you found one already - me. Dr. Agin is also a Developmental

>Pediatrician.

>

>Any questions, email me through the listserv

>

>Larry Laveman, MD

>