To: Evelyn- EEGS

[Guest guest]

Hey ,

My son is currently doing the stuff with the eegs. The doctor first recommended

the ambulatory eeg for us but has sensory issues so we never made it out

of the hospital with the stuff on. So then they ordered a routine sleep

deprived eeg in the office which was sedated. It lasted only 45 minutes and

they gave him something to drink to sedate him. The worst part was the sleep

deprivation. We had to put him to bed as late as possible and wake him as early

as possible. He could only have a total of 5 hours of sleep. ( he's 2.4 years

old). As soon as they unhooked him from the electrodes he had an episode.

Figures does'nt it?

The doctor's office called me last week to say that they now want to do a 4 hour

video eeg in the office to see if they can " catch it " this time. We are trying

to avoid the 24 eeg if we can. They had to put to sleep for the MRI by IV

and it was the worst experience of my life. For me and him. They have told us

that he may be mildly affected with PDD and I am afraid that the " trauma " of

going through all of this will send him right over the edge. Unfortunately, our

doctor does not seem to have the bedside manner that I would like.. We usually

see him for about 10 minutes where he sort of dumps alot of stuff on us that I

don't understand and then he is out of the door.

The reason we got into see the neuro was because of the absence seizures. Our

insurance turned us down for the deveopmental pediatrician and told us that the

neurologist could do the same thing. I am not so sure about that. We have an

appt with a developmental pediatrician at the Marcus Institute is Atlanta in

January. We have been waiting for 5 months for the appt. Apparently there are

not very many of these doctors around here. We are going to have to pay for

this one ourselves. We applied for the special kind of Medicaid for special

needs kids and was able to get it so we are hoping they accept that

in lieu of insurance. If you want more info on that let me know. Its designed

for the parents of children who have special needs and when the parents make too

much money to get regular aid.

Also, I read the posts here about the fits of uncontrollable laughter. Chris

does that too. I wonder if that could be associated with anything.

Stacey