Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 I dont know if its similar or not, but I know an autistic girl that is pretty alert and " with it " and very silly and laughing and active at 5:00 to 7:00 pm. Her mother came to the conclusion that it is something to do with sensory overload and SI issues. I dont know how or why she believed it, but I remember her mentioning it before. I'd be curious to know if any others with SI difficulties also experience something similar. Best wishes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi , Thanks for writing! I keep posting about this to other lists but I never get any response :-) Thank you! Our Jul has a history of severe SI issues. Over the last 3 years, she had recovered to the point where she is happily able to participate in all our regular family activities (with very minimal modifications). She does, however do a lot of bouncing and rocking at certain times. Mostly, we are able to redirect her if it goes on for too long but again, it does not interfer with regular family and community activities. It gets pretty bad at school (what we call " aggressive stimming " and we are seriously considering homeschooling her in the very near future because of such). Please, I hope that anyone with input will post. It just might be a clue for our girl. Dana in Michigan rodgers@... > I dont know if its similar or not, but I know an autistic girl that is pretty alert and " with it " and very silly and laughing and active > at 5:00 to 7:00 pm. Her mother came to the conclusion that it is something to do with sensory overload and SI issues. I dont > know how or why she believed it, but I remember her mentioning it before. I'd be curious to know if any others with SI > difficulties also experience something similar. > > Best wishes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Dana, I don't know if autism is going on with your daughter, but I was wondering if you had considered looking into some of the biomedical options that are becoming more understood and more available? Many children with autism spectrum issues are responding so well to dietary and other biomedical interventions. Children without the diagnosis, but with some of the characteristics do respond in many cases. Our daughter does not have microtia but she does have many issues that were caused at 20-40 days gestation and include misshappen and small ears. I assume that the microtia may have originated at a similar time period in gestation. For the laughter, it does sound as if the neurotransmitters may be reacting more at certain times and there is a chance that the Omega 3 fatty acids can help with improving the way the neurotranmitters actually work. I would certainly think sensory-integration therapy could be a really appropriate option. I would also check with a neurologist about the laughter. My daughter does a similar thing but it is greatly reduced in the last couple of years. I guess what comes to mind is that for some reason maybe the medicine that is helping your daughter may be too much at certain times of day depending on other factors affecting her, such as blood sugar and so on. Perhaps there is a way to regulate it so the medicine, if it is in fact connceted, has an even absorption by giving at a different time of day. I have found Dr. Walsh at The Pfeiffer Treatment Center in Chicago area to have some interesting theories about autism and you may find them of interest as well. He thinks some of my daughter's medical issues may be related to the biochemical issues that put her somewhere on the autism spectrum. Best wishes, -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Could be a Gelastic seizure, even if she does appear to be with it. My daughter Lindsey age 5.6 has what we suspect are gelastic seizures. But Lindsey is also a very silly girl, who laughs inappropriately. She laughs so hard she cannot stand at the same time. If your daughter has not had a 24 hour EEG, I think she should have one. Just to see what is happening when she has her laughing fits. Just a Mom that's been there. Jennie Lindsey's site http://lindsey03.homestead.com/mygirl.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Dana, My son also has fits of uncontrollable laughter. It has been known to go on for 2 or more hours. He is 2.4 years old and I have not seen it lately. It happened usually in the evening hours and he never could stop. This was before we knew he had any other problems other than speech delay and we thought he was just extremely happy. In fact, one time I even jokingly asked my husband if he had ever heard of any kind of disorder that had to do with laughing. We are currently seeing a neuro for medical tests looking into the possiblities of seziures with Chris. He does this eye fluttering thing alot and sometimes dazes out for 10-15 seconds a few times a day.. We do not have any conclusions yet. He is nonverbal and has a few strange signs ( lines up toys- hand flapping) he also seems to be lacking on the social side a bit. We know he has some sensory issues too. Let me know what you find out. I will be interested to follow this post. I am so glad to have found this group. Up until now, I have not found any means of a support group anywhere and this group has been the best!!! Stacey [ ] Fits of uncontrollable laughter Hi Everyone, After participating in many lists since our daughter arrived, I have to say this one is the best. I'm particularly touched by the number of medical professionals offering insight. It's so helpful (not to mention refreshing:-) In short, our oldest daughter, is six years old tomorrow. Jul joined our family through adoption when she was 2 years 10 months. I think I mentioned in my intro that she has congenital bilaterial microtia resulting in a severe hearing loss. She's been evaluated *extensively* over the last 3 years(developmental ped, psychologists, neurologist, SLP, OT, PT, etc). Anyhow, Jul is non-verbal with significant self-stimming behaviors and a significant congnitive delay as well. Her dx is severe apraxia and global aphasia (with hearing loss of course). In addition to SuperNuThera, she's also on Prozac -- primarily to improve her severe wakefullness and overall attention. It's helped tremendously with virtually no side effects. (Interestingly, we did not see any difference between 2ml per day and 5ml per day -- she's 37lbs and been on Prozac almost a year). Ok, finally to my question .... About 6 weeks ago, started having these uncontrollable fits of laughter and " sillyness " . It starts between about 6-8pm and lasts about 1 hour or perhaps a bit more. From talking with her teachers, it also seem to occur at school, though we've never seen it during the day at home. It's almost nightly now. She's very alert during these bouts, making good eye contact and communicating in very silly ways. We've come to the conclusion that she simply cannot control her laughter and giggling! It's really strange but she often does what we call " fake coughing " during these periods. During these bouts, she's probably as alert as we ever see her -- she's just really *with us* but it's so strange. If she displayed significant sadness, I might start thinking manic-depression or bi-polar but she's overall a happy child (just a bit more happy at times). Does this sound at all familiar to anyone? Any and all input is greatly appreciated! Dana in Michigan rodgers@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Dear Stacey, I wonder if maybe has some signs of PDD. My son has social/play issues, lines up cars etc. He was diagnosed by a developmental psychologist and she gave me a diagnosis of pdd-nos mild. He has been in a intensive program, min. hours 5 a week for each child, JAck receives 6 1/2 and it is helping him tremendously. His pretend play is better and also his use of language, even though his therapist for pdd is not a SLP they do work on language with him through play and it has also gotten better. Just a thought! JAck does not have uncontrollable fits of laughter but and no signs of any seizures but what he does do is when I discipline him he laughs and does not seem to care one bit. That has also gotton better. I hope I am not being too foward to make this point about PDD, I apologize if I have. Sincerely, Eileen mom to JAck 2 1/2 Oral Apraxia, SI and pdd, and 1 yr. --- Stacey <staceydaniel@...> wrote: > Hi Dana, > > My son also has fits of uncontrollable > laughter. It has been known to go on for 2 or more > hours. He is 2.4 years old and I have not seen it > lately. It happened usually in the evening hours > and he never could stop. This was before we knew he > had any other problems other than speech delay and > we thought he was just extremely happy. In fact, > one time I even jokingly asked my husband if he had > ever heard of any kind of disorder that had to do > with laughing. We are currently seeing a neuro for > medical tests looking into the possiblities of > seziures with Chris. He does this eye fluttering > thing alot and sometimes dazes out for 10-15 seconds > a few times a day.. We do not have any conclusions > yet. He is nonverbal and has a few strange signs ( > lines up toys- hand flapping) he also seems to be > lacking on the social side a bit. We know he has > some sensory issues too. > > Let me know what you find out. I will be interested > to follow this post. > > I am so glad to have found this group. Up until > now, I have not found any means of a support group > anywhere and this group has been the best!!! > > Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 PLease tell me more about the " gelastic seizure " . Oh, I did go to 's site and I think she talks so beautiful! My daughter is almost 5 and the only things she can say are mama and no. She is having a very hard time putting more than one sound together. Breana also is very silly at times, and will laugh inappropriatly as well. She will laugh so hard....even if I am mad she will make me laugh!! My little angel...I love her so much. She was my first, and also had issues with her feet which led her to walk at 18 mos. Sounds like you had some wonderful doctors...only wish I had! Talk later! >Could be a Gelastic seizure, even if she does appear to be with it. >My daughter Lindsey age 5.6 has what we suspect are gelastic seizures. >But Lindsey is also a very silly girl, who laughs inappropriately. She >laughs >so hard she cannot stand at the same time. >If your daughter has not had a 24 hour EEG, I think she should have one. >Just >to see what is happening when she has her laughing fits. > >Just a Mom that's been there. >Jennie >Lindsey's site >http://lindsey03.homestead.com/mygirl.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Dana: My first question to you is - what does her doctors say about this ? Rather than speculate, I would be interested to know what the people who have worked with her over the years think of this. Of significance is not whether she is being " silly " or not, but if this is interfering with her functioning at home and at school. Larry Laveman, MD Consultant, CHERAB http://www.apraxia.cc > Hi Everyone, > > After participating in many lists since our daughter arrived, I have to say > this one is the best. I'm particularly touched by the number of medical > professionals offering insight. It's so helpful (not to mention > refreshing:-) > > In short, our oldest daughter, is six years old tomorrow. Jul joined > our family through adoption when she was 2 years 10 months. I think I > mentioned in my intro that she has congenital bilaterial microtia resulting > in a severe hearing loss. > > She's been evaluated *extensively* over the last 3 years (developmental ped, > psychologists, neurologist, SLP, OT, PT, etc). > > Anyhow, Jul is non-verbal with significant self-stimming behaviors and a > significant congnitive delay as well. Her dx is severe apraxia and global > aphasia (with hearing loss of course). In addition to SuperNuThera, she's > also on Prozac -- primarily to improve her severe wakefullness and overall > attention. It's helped tremendously with virtually no side effects. > (Interestingly, we did not see any difference between 2ml per day and 5ml > per day -- she's 37lbs and been on Prozac almost a year). > > Ok, finally to my question .... About 6 weeks ago, started having > these uncontrollable fits of laughter and " sillyness " . It starts between > about 6-8pm and lasts about 1 hour or perhaps a bit more. From talking with > her teachers, it also seem to occur at school, though we've never seen it > during the day at home. It's almost nightly now. She's very alert during > these bouts, making good eye contact and communicating in very silly ways. > We've come to the conclusion that she simply cannot control her laughter and > giggling! It's really strange but she often does what we call " fake > coughing " during these periods. During these bouts, she's probably as alert > as we ever see her -- she's just really *with us* but it's so strange. > > If she displayed significant sadness, I might start thinking > manic-depression or bi-polar but she's overall a happy child (just a bit > more happy at times). Does this sound at all familiar to anyone? Any and > all input is greatly appreciated! > > Dana in Michigan > rodgers@i... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Dr. Laveman, Thank you for your response. is scheduled for follow-up with her neurologist near the end of January. I will mention the excessive laughing to him them. In terms of those who have worked with her in the past, they haven't a clue! Jul, it seems is a big mistery to nearly every medical and educational professional that's come to know her. We, however do not find her to be all that difficult to figure out (understand) :-) So, with the excessive laughter, we wonder if it may perhaps provide a clue. In our home, the impact is fairly minor as it only happens in the evenings (but may interfer with sleep). In school, it's totally unproductive. I should add that is a post-institutionalized child with some autistic features (if you are familiar with such and believe in statistics most children with institutional autism recover within 1-2 years. has been home with us for three years). Apparently, she does not meet the basic criteria for autism. She is dx severe aphasic and apraxic (she's non-verbal but uses sign language at 30plus month level) and also has a severe hearing loss due to congenital ear malformation. So again, I guess what I'm looking for here is any possible clue as the " professionals " are basically clueless! The excessive laughing is just what's new for now and so we are looking at it. Best, Dana in Michigan [ ] Re: Fits of uncontrollable laughter > Hi Dana: > > My first question to you is - what does her doctors say about this ? > Rather than speculate, I would be interested to know what the people > who have worked with her over the years think of this. Of > significance is not whether she is being " silly " or not, but if this > is interfering with her functioning at home and at school. > > > Larry Laveman, MD > Consultant, CHERAB > http://www.apraxia.cc Quote Link to comment Share on other sites More sharing options...
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