Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 I have a friend on my asthma board with a son about 5 who has this. right now they are watching and waiting, same as you. If you want, I could set you two up. Also, I watched a discovery channel show about this particular thing--and there was a girl who as a teenager started with awful headaches and started losing strength in her legs. She became wheelchair bound. Finally went to the Chiari Institute, and the first thing they tried was a ............the only thing I could describe it as is like a " johnny jump up " like they used to use for babies......hung in the door and she would put her chin in it, and it took off the pressure and stopped her headaches. Maybe that could be an option? She did eventually need the surgery though.Valarie Quote Link to comment Share on other sites More sharing options...
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