Re: Concerned about sons lack of ability to speak

[Guest guest]

Hi ,

I don't know what glutaric aciduria is. Hypotonia is often related to

oral apraxia because for example the tongue doesn't move all around

which can prevent different sounds from being made. My son also has

low tone which is reflected in the nasal sound. There are lots of

things you can do to help build tone in his face.

/message/5401

This post talks about early identification of language disorders.

/message/5375

You mention a metabolic dr. and pediatrician. You may want to also

see a developmental pediatrician

Go to the apraxia.cc page and print out the signs of apraxia and show

them to your doctors and SLP.

Good luck.

--- In @y..., " sassynlexnzac " <sassynlexnzac@y...>

wrote:

> My son zach is 17 months old and it is very apparent he has speech

> delays when i have him w/ a kid around his age or younger. He was

> assessed at 0-3 months of age for expressive language. MY concern

is

> he learned some words a few months ago but then lost them over the

> course of time or they became to sound like the only sounds he

makes

> anga and inga and eh all nasal tones. The therapists can hear new

> sounds and he does try to say fish ih and he barks ar he can say hi

> really well but thats the only word. He used to say mama and now

> doesnt and its been months he hasnt said it correctly.... Also dada

> he said around october and i only heard him say it one other time

> since. Now its back to anga. He does have a disease that can cause

> brain damage but he doesnt show signs of brain damage atleast to me

> and the therapists no mental retardation at all... Unless the only

> thing i can think of is that the disease isnt allowing him to

speak.

> Is anyone in this boat? he does have hypotonnia all over and in the

> face which doesnt help him to speak and he has a slightly elevated

> palate. Also zach didnt laugh til 8 months old anyone elses child

> like that? Please give me some insight. I just noticed over hte

last

> month his language skills are deminishing even though he is making

> more sounds. We do use signlanguage w/ him but having others around

> him use it thats another story. I am the only one that worries

about

> him not being able to speak and dh does a little too but he says

> he'll worry when the dr.s tell us that he can't.

> If anyone can help i'ld appreciate it i am gonna mention this to

his

> metabolic specialist and his ped when we go to their appointments

> this month.

>

> sarah mom to zach 17 months, glutaric aciduria type 2

> alexis 3 fine