Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 I've heard some people on this site and the adult site that they are receving two IG Living magazines this month. If you are one of those and you would like to keep it that way, it is fine to do so. If you are not going to use your second copy, please go ahead and email the editor at info@... and let her know. thanks, Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 I completely agree with Valarie. It is so difficult to watch the child without PID want to go to the doctor so they can have " special time " with mom. I would love to see what other families have done that worked for them. P.S. I did not get mine yet either...should it have come yet? osdbmom <osdbmom@...> wrote: --- I havent gotten mine yet, but look forward to reading it. What I would really love to see is an article about how to help the " unsick " kid in teh family cope with the time and attention the " sick " kids must have. Having three with PID and one without, I struggle with trying to keep things even constantly. valarie In , Schulman <dietdoc@...> wrote: > > - > > Great article about your daughter in IG Living. She is an inspiration. Congrats. > > If anyone is interested in subscribing. Go to: www.igliving.com > > This issue addresses the IgG-autoimmune phenomena (among other things) which was just discussed in our group. > > > mom to Dani, CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 I completely agree with Valarie. It is so difficult to watch the child without PID want to go to the doctor so they can have " special time " with mom. I would love to see what other families have done that worked for them. P.S. I did not get mine yet either...should it have come yet? osdbmom <osdbmom@...> wrote: --- I havent gotten mine yet, but look forward to reading it. What I would really love to see is an article about how to help the " unsick " kid in teh family cope with the time and attention the " sick " kids must have. Having three with PID and one without, I struggle with trying to keep things even constantly. valarie In , Schulman <dietdoc@...> wrote: > > - > > Great article about your daughter in IG Living. She is an inspiration. Congrats. > > If anyone is interested in subscribing. Go to: www.igliving.com > > This issue addresses the IgG-autoimmune phenomena (among other things) which was just discussed in our group. > > > mom to Dani, CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 I still haven't received my copy of the magazine either. I don't know why my mother always receives hers way before I do. She is in NJ and we are in NC. Ashton's little sister, Marina, doesn't really have much of an issue with feeling left out of things. Ashton receives her infusions at home, so she plays games and crafts with the nurse too. Sometimes she helps me make dinner, etc. The nurse is really great with making sure that Marina is included in things. Infusion days are just a fact of life, like going to the dr frequently. Marina has had her own health issues. The drs though that she had her own immune problems when she was born. She has always had, and was born with , strange things that full term babies don't have. They were careful about vaccinations etc. She lived at specialists when she was born. Ashton was 3 and remembers all the time in the drs for her baby sister. It just seems we were always at drs and still are. They have tested Marina twice, but nothing shows up. Her immune system seems to be fine right now. They always watch her closely. She is sick right now, and I don't want Ashton to pick up whatever she has. I find I get depressed when one of them gets sick. That is my hardest thing to deal with. I get so worried. I hope that Ashton's story gives hope to some of the families that have young children just starting on this journey. She was so sick and puny all the time. She never got better. She was always on so much medication etc. She loved soccer, but spent lots of time on the sidelines instead of playing. The transformation has been amazing. We used to struggle to get through days. I remember telling her to get her school work done so she could go to bed. She was so tired all the time. She still is tired, but not like prior to IVIG. She still gets sick, but one round of antibiotics vs. months and months, going off of them for a couple of days and right back on them. Her asthma medication has decreased in strength and frequency. It is a miracle for us. She still struggles with anxiety. I still get anxious when she gets sick. I still worry. She wrote a paper on CVID. Since she is older, she can understand more about CVID. That has also helped her anxiety. I better quit rambling. I don't post much, but I always read. Welcome to all the newcomers. L mom to Ashton 13 CVID, asthma, dyslexia Marina 11 asthma Quote Link to comment Share on other sites More sharing options...
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