Re: New- Please Help Me!/For

[Guest guest]

Yes, our 11 yo son has PANDAS. His first bout with PANDAS (and a

boutload of sx overnight) lasted about 6 weeks (4 years ago). By the

time we got in to the tic and anxiety clinic at UCLA sx were reduced

by about 80%. Unfortunately, the sx (tics, OCD, mood changes, etc)

have returned in distinct bouts. You were very fortunate to have 2

professionals (pedi and SLP) in your dd's life familiar with this

phenomenon. Nice to " meet " you!

Khris

In our case, after about 6 weeks or so the behaviors were

> almost completely gone. There were times over the last couple

years where

> we thought she might have strep because of some comments she had

made or some

> behaviors however she always came back negative. Our pediatrician

has a

> daughter who has PANDAS and there is a speech therapist (who my

daughter had just

> finished a program with at school) who's son also has PANDAS so we

were

> fortunate in not having to explain this strange occurrence to

someone who doesn't

> want to listen to a mother who got her information off the net.

This recent

> episode seems to be dissipating, however my daughter still washes

her hands

> more than normal, says some odd things and is very angry at the

other little

> girl for lying about what happened. I did get 10 books on Amazon

(can you

> say obsessive!) about OCD and what to do if your child has it.

Others have

> mentioned some of the titles I bought, I also bought anything that

would be

> good to read at bedtime or for my daughter to read. These books

and reading

> posts on this list have really helped our family.

> Like you, I run to the Dr. and hope for a positive strep test,

which to most

> parents is the opposite of what they want to hear. My

pediatrician finally

> told me, " she doesn't have to have strep for the behaviors to

reoccur " . This

> simple statement hit me like a ton of bricks......I had heard it

before, I

> had read it however I guess I chose not to let it in.

> Anyway, before this gets any longer, I wanted you to know you are

not alone.

> If you have any questions about where we are or how we got her, I

would

> gladly answer them....also I would love to know if there are other

children who

> have PANDAS on this list (I haven't seen any posts since I have

been on this

> list).

>

>

> " The root of all unhappiness is comparison "

>

>

>

>

>

>

>

>

[Guest guest]

Dear ,

My son was diagnosed with PANDAS about 1-1/2 years ago when he was 5. He

had strep in December, then a MMR & DPT vaccination on Dec 31. He got extreme

OCD & TICs on Jan 2. He did have high strep titres when diagnosed. He was on

prophylactic penicilin for a year with Univ of Fla study.

>

> From: " dinosaurkidsmom " <supernova8675309@...>

> Date: 2006/07/04 Tue PM 12:03:57 EDT

>

> Subject: Re: New- Please Help Me!/For

>

> Yes, our 11 yo son has PANDAS. His first bout with PANDAS (and a

> boutload of sx overnight) lasted about 6 weeks (4 years ago). By the

> time we got in to the tic and anxiety clinic at UCLA sx were reduced

> by about 80%. Unfortunately, the sx (tics, OCD, mood changes, etc)

> have returned in distinct bouts. You were very fortunate to have 2

> professionals (pedi and SLP) in your dd's life familiar with this

> phenomenon. Nice to " meet " you!

>

> Khris

>

>

> In our case, after about 6 weeks or so the behaviors were

> > almost completely gone. There were times over the last couple

> years where

> > we thought she might have strep because of some comments she had

> made or some

> > behaviors however she always came back negative. Our pediatrician

> has a

> > daughter who has PANDAS and there is a speech therapist (who my

> daughter had just

> > finished a program with at school) who's son also has PANDAS so we

> were

> > fortunate in not having to explain this strange occurrence to

> someone who doesn't

> > want to listen to a mother who got her information off the net.

> This recent

> > episode seems to be dissipating, however my daughter still washes

> her hands

> > more than normal, says some odd things and is very angry at the

> other little

> > girl for lying about what happened. I did get 10 books on Amazon

> (can you

> > say obsessive!) about OCD and what to do if your child has it.

> Others have

> > mentioned some of the titles I bought, I also bought anything that

> would be

> > good to read at bedtime or for my daughter to read. These books

> and reading

> > posts on this list have really helped our family.

> > Like you, I run to the Dr. and hope for a positive strep test,

> which to most

> > parents is the opposite of what they want to hear. My

> pediatrician finally

> > told me, " she doesn't have to have strep for the behaviors to

> reoccur " . This

> > simple statement hit me like a ton of bricks......I had heard it

> before, I

> > had read it however I guess I chose not to let it in.

> > Anyway, before this gets any longer, I wanted you to know you are

> not alone.

> > If you have any questions about where we are or how we got her, I

> would

> > gladly answer them....also I would love to know if there are other

> children who

> > have PANDAS on this list (I haven't seen any posts since I have

> been on this

> > list).

> >

> >

> > " The root of all unhappiness is comparison "

> >

> >

> >

> >

> >

> >

> >

> >