hi everyone,first time posting(long)

December 28, 2001

Hi everyone, I have been a member of this group for a long time but

have never posted so I will intoduce myself. I am Debbie and have 2

girls, le(5.3 yrs) and Madeline(16 months). le has been

dx with severe apraxia, severe aphasia, severe dyspahagia,and SDI.

She has been receiving speech since 23 months, OT and PT since about

2 1/2 years. She is in kindergarden now, half day special ed, 1/2 day

regular. She gets speech 3x a week, pt 2x a week and she doesn't

receive OT except for in the classroom, a group session. She also

goes to a private speech therapist 2x a week. She has severe feeding

difficulties, only eats a very limited amount and mostly mush. Her

cognitive skills are great but her social skills are behind, she is

very shy in school. I just started her on proEFA about 2 weeks ago,

have not seen any progress yet though and was thinking about giving

her 2 of them instead, is that okay?

My question is about my little one though. At just before 11 months

she said her first word(bye-bye), said it for about 3 weeks and never

said it again. This has happened also with about 3-4 other words. She

says daddy but not all the time, she just started saying uh-oh, and

she has been saying " tickle " for quite a while. She will say words

once or twice and never say them again. She can drink from a straw,

blow, and give kisses. She understands everythign you say to her. ped

did recomend to have her evaluated by EI and she had the speech eval

so far but the therapist told me they are only expected to say ONE

word at this age!! Is this true? My private therapist says no. But

she doesn't repeat words or sounds back to you or make any animals

sounds. Does babble up a storm though. I don't know if I am being too

paranoid because of le or if there really is a problem? She

seems to have no other delays, is good with her hands and is a little

monkey!lol I was talking to her today and I said " mommy " and she said

it right back to me, clear as a bell!! but only that 1 time. Am I

right to be a little concerned or am I being overly cautious??

Debbie

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