What the neurologist said about ProEFA

December 28, 2001

Hi Group,

Why is it that the doctors are so skeptical about trying any new interventions?

My son's neuro called today to tell me that they plan to do a 4 hour eeg in the

office to check and see if he is indeed having seizures. I began asking him

his opinion of the EFA's and about seizures and all that. He proceeded to tell

me in no uncertain terms that he understood that as a parent of a special needs

child that I had to do what I thought would help but that he did not put any

stock into EFA's and that it was mostly just parents grasping at straws for

anything that would help. He even went as far to say that I could try it if I

wanted but that it probably not help at all. Only to make me feel like I was

doing something for my baby.

I then went on to ask about the battery of blood tests that had been ordered and

if they did any kind of gluten peptide tests. I told them that if they hadn't

then I was going to request that they be done by the Great Plains Lab. Again,

he told me that he would sign off on anything I wanted, but for me not to expect

any changes due to change of diet.

I just do not understand how these doctors can be so uninformed about the

subject. But actually when I think about it I realize that when you come across

a doctor who has a special needs child, then you find an advocate. When the

doctor you deal with does not have a special needs kid at home, then they are

just like everyone else.

Sorry, needed to vent. I still plan on trying the Coromega when it arrives. We

are going to stay away from the Omega 6's since I understand that they can

sometimes trigger seizures. Since we do not know yet if is having them or

not, I don't want to trigger anything else. He is 2.4 years and pretty much

nonverbal. He does have about 4 or 5 words but he does'nt really use any of

them appropriateley except for " bye bye. "

Has anyone else had a " run in " with the doctors concerning the EFA's? What kind

of advice have you gotten if any?

Stacey

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