Re: hi everyone,first time posting(long)

[Guest guest]

Hi Debbie,

I live in constant concern about my daughter Kaitlyn. She is 10 months old.

Her brother, Adam is 3.5 and is severely apraxic. I am so scared of history

repeating itself.

Kaitlyn is extremely vocal with vowels and babbles mama and babababa but

that's about it. I am told this is within the normal range but I see other

children doing more and then I get scared.

It sounds like you are in the same boat as I. Keep your fingers crossed and

keep up with the evaluations. You should trust your instinct. Good luck.

Janet

[Guest guest]

Hi Debbie,

Just a brief comment (gotta run). Madeline sounds very, very much like my

daughter

, who is now almost 2.9. She said banana and our dog's name at around 1

year

for a month and that was it. She's making good progress (we just started

ProEfa), but

we have a ways to go. I wouldn't wait to intervene, especially given le's

dx.

It can't really hurt to make sure.

My two cents.

Barbara

debgr123 wrote:

> Hi everyone, I have been a member of this group for a long time but

> have never posted so I will intoduce myself. I am Debbie and have 2

> girls, le(5.3 yrs) and Madeline(16 months). le has been

> dx with severe apraxia, severe aphasia, severe dyspahagia,and SDI.

> She has been receiving speech since 23 months, OT and PT since about

> 2 1/2 years. She is in kindergarden now, half day special ed, 1/2 day

> regular. She gets speech 3x a week, pt 2x a week and she doesn't

> receive OT except for in the classroom, a group session. She also

> goes to a private speech therapist 2x a week. She has severe feeding

> difficulties, only eats a very limited amount and mostly mush. Her

> cognitive skills are great but her social skills are behind, she is

> very shy in school. I just started her on proEFA about 2 weeks ago,

> have not seen any progress yet though and was thinking about giving

> her 2 of them instead, is that okay?

> My question is about my little one though. At just before 11 months

> she said her first word(bye-bye), said it for about 3 weeks and never

> said it again. This has happened also with about 3-4 other words. She

> says daddy but not all the time, she just started saying uh-oh, and

> she has been saying " tickle " for quite a while. She will say words

> once or twice and never say them again. She can drink from a straw,

> blow, and give kisses. She understands everythign you say to her. ped

> did recomend to have her evaluated by EI and she had the speech eval

> so far but the therapist told me they are only expected to say ONE

> word at this age!! Is this true? My private therapist says no. But

> she doesn't repeat words or sounds back to you or make any animals

> sounds. Does babble up a storm though. I don't know if I am being too

> paranoid because of le or if there really is a problem? She

> seems to have no other delays, is good with her hands and is a little

> monkey!lol I was talking to her today and I said " mommy " and she said

> it right back to me, clear as a bell!! but only that 1 time. Am I

> right to be a little concerned or am I being overly cautious??

>

> Debbie

>

>

>

[Guest guest]

Hi Debbie, My son had similar issues with words appearing then just not

happening. He had 20 words that he " lost " between the age of 9 and 17 months.

Finally, after hearing " don't worry " , for the 1000th time, I insisted on a

referal to a early intervension speech therapist who took my worries seriously.

She believes he has verbal dyspraxia and we now use signs to communicate as well

as working on single sound production. He is almost 2 and now has about 10

words/sounds that he uses (and about 120 signs). (He had one or two words that

he used rarely when we started therapy at 20 months). The therapist believes

that because we " discovered " it early, he'll be talking appropriately by the

time he turns 5. He is extremely bright (like your daughter) and, the way I

understand it, the " learning verbal language naturally " part of the brain isn't

working properly so he needs help to learn to speak. He has learnt to use a

straw and blow etc but was having difficulty remembering how to repeat the mouth

movements required to say the words that he wants to say. Does you daughter

show any " groping movements " ? Corey often stands there, mouth open, moving his

toungue around trying to work out how to say a word. Signing has really take

the presure off while we work on simpler mouth movements for him to imitate.

Hope this helps,

G'day from Down Under

[Guest guest]

Hi

Thanks for answering! In regards to if Madeline does any groping, no

she doesn't. She has actually started to say daddy again in the last

couple of days and is now saying mama(sometimes mommy), which she has

never said before. And yesterday she said " nana " so she seems to be

starting to talk a little more. My 5 year old is severely apraxic and

Madeline is so different than her sister was at this age so I really

don't know what to think!

DEbbie

le

Madeline

> Hi Debbie, My son had similar issues with words appearing then just

>not happening. He had 20 words that he " lost " between the age of 9

>and 17 months. Finally, after hearing " don't worry " , for the 1000th

>time, I insisted on a referal to a early intervension speech

>therapist who took my worries seriously. She believes he has verbal

>dyspraxia and we now use signs to communicate as well as working on

>single sound production. He is almost 2 and now has about 10

>words/sounds that he uses (and about 120 signs). (He had one or two

>words that he used rarely when we started therapy at 20 months). The

>therapist believes that because we " discovered " it early, he'll be

>talking appropriately by the time he turns 5. He is extremely bright

>(like your daughter) and, the way I understand it, the " learning

>verbal language naturally " part of the brain isn't working properly

>so he needs help to learn to speak.