Re: What the neurologist said about ProEFA

[Guest guest]

Hey Stacey -

All of our Dr.'s have said the same thing. I asked his Pediatrician, Dev.

Pediatrician, Neurologist and SLP what their opinions of EFA's were and they all

said - you can try them if you want, they won't hurt, but they won't do anything

beneficial either. These are the same Dr.'s that were pushing me to put my them

3 year old on Prozac!! I started the EFA's without letting the Dr.'s know and

within 4 weeks they were amazed!! His SLP is now a true believer and tells all

her Dyspraxic and autistic patients about them. She knows they are not a

" miracle " pill and that every child is different, but if there is a chance why

not try this all natural remedy?? His dev. pediatrician even went so far as to

say maybe he wasn't dyspraxic as she has never seen the amount of progress in

speech in such a short amount of time!!! My son was essentially non-verbal,

now he talks all the time (it has been a year since we started the EFA's). His

articulation started out very poor, but now it is starting to come around. My

parents just came yesterday for a visit and are amazed because they can

understand everything is saying!!

Anyway Stacey - just wanted to let you know that our Dr.'s said the same thing.

I think honestly they don't want to give people false hope as all children are

unique, and all children are going to respond to the fish oil uniquely. Yes,

many, many people are finding success in fish oils - but there are some children

out there that don't benefit as much. Why??? We have no idea - that is why the

research needs to be done!!

My question is, if there is a chance it can help your child, and it is all

natural, and there are no severe side effects - why would you not try it???

Just my opinions!!

Carnell

North Carolina

CHERAB Support

http://www.verbaldyspraxia.com

[ ] What the neurologist said about ProEFA

Hi Group,

Why is it that the doctors are so skeptical about trying any new

interventions? My son's neuro called today to tell me that they plan to do a 4

hour eeg in the office to check and see if he is indeed having seizures. I

began asking him his opinion of the EFA's and about seizures and all that. He

proceeded to tell me in no uncertain terms that he understood that as a parent

of a special needs child that I had to do what I thought would help but that he

did not put any stock into EFA's and that it was mostly just parents grasping

at straws for anything that would help. He even went as far to say that I could

try it if I wanted but that it probably not help at all. Only to make me feel

like I was doing something for my baby.

I then went on to ask about the battery of blood tests that had been ordered

and if they did any kind of gluten peptide tests. I told them that if they

hadn't then I was going to request that they be done by the Great Plains Lab.

Again, he told me that he would sign off on anything I wanted, but for me not to

expect any changes due to change of diet.

I just do not understand how these doctors can be so uninformed about the

subject. But actually when I think about it I realize that when you come across

a doctor who has a special needs child, then you find an advocate. When the

doctor you deal with does not have a special needs kid at home, then they are

just like everyone else.

Sorry, needed to vent. I still plan on trying the Coromega when it arrives.

We are going to stay away from the Omega 6's since I understand that they can

sometimes trigger seizures. Since we do not know yet if is having them or

not, I don't want to trigger anything else. He is 2.4 years and pretty much

nonverbal. He does have about 4 or 5 words but he does'nt really use any of

them appropriateley except for " bye bye. "

Has anyone else had a " run in " with the doctors concerning the EFA's? What

kind of advice have you gotten if any?

Stacey

[Guest guest]

Sounds like we had the same doctor. Unfortunately sometimes we have

to go with what we think is best rather than a skeptical opinion. I

recently had an SLP tell me that " even if your son has apraxia he is

working through it quickly " . I find it fascinating that without a

diagnosis the school systems don't want to give you extra services

and with one they question the doctors. Go figure! When I mentioned

the Pro-efa to this SLP, if her eyes could have rolled to the sky she

would have! She admitted her skeptism and remained very polite. Why

some professionals cannot be more open is beyond me.

Anyway, good luck to you!

denise

--- In @y..., " Stacey " <staceydaniel@m...>

wrote:

> Hi Group,

>

> Why is it that the doctors are so skeptical about trying any new

interventions? My son's neuro called today to tell me that they plan

to do a 4 hour eeg in the office to check and see if he is indeed

having seizures. I began asking him his opinion of the EFA's and

about seizures and all that. He proceeded to tell me in no uncertain

terms that he understood that as a parent of a special needs child

that I had to do what I thought would help but that he did not put

any stock into EFA's and that it was mostly just parents grasping at

straws for anything that would help. He even went as far to say that

I could try it if I wanted but that it probably not help at all.

Only to make me feel like I was doing something for my baby.

>

> I then went on to ask about the battery of blood tests that had

been ordered and if they did any kind of gluten peptide tests. I

told them that if they hadn't then I was going to request that they

be done by the Great Plains Lab. Again, he told me that he would

sign off on anything I wanted, but for me not to expect any changes

due to change of diet.

>

> I just do not understand how these doctors can be so uninformed

about the subject. But actually when I think about it I realize that

when you come across a doctor who has a special needs child, then you

find an advocate. When the doctor you deal with does not have a

special needs kid at home, then they are just like everyone else.

>

> Sorry, needed to vent. I still plan on trying the Coromega when it

arrives. We are going to stay away from the Omega 6's since I

understand that they can sometimes trigger seizures. Since we do not

know yet if is having them or not, I don't want to trigger

anything else. He is 2.4 years and pretty much nonverbal. He does

have about 4 or 5 words but he does'nt really use any of them

appropriateley except for " bye bye. "

>

> Has anyone else had a " run in " with the doctors concerning the

EFA's? What kind of advice have you gotten if any?

>

> Stacey

[Guest guest]

I totally agree about trying ProEFA. My daughter has been taking them for

about 6 months now. At first it made her seem calmer, and she slept better.

Then she started making more sounds (she doesn't talk yet). I am pleased

with the results, but now she is almost 5 and I don't seem to see any more

advancements. Is this normal? Have I seen all the benefits of ProEFA I

will see? I would love to hear any other experiences please. Thank you.

, Kansas

>From: " Carnell " <@...>

>Reply-

>< >

>Subject: Re: [ ] What the neurologist said about ProEFA

>Date: Fri, 28 Dec 2001 08:09:17 -0500

>

>Hey Stacey -

>

>All of our Dr.'s have said the same thing. I asked his Pediatrician, Dev.

>Pediatrician, Neurologist and SLP what their opinions of EFA's were and

>they all said - you can try them if you want, they won't hurt, but they

>won't do anything beneficial either. These are the same Dr.'s that were

>pushing me to put my them 3 year old on Prozac!! I started the EFA's

>without letting the Dr.'s know and within 4 weeks they were amazed!! His

>SLP is now a true believer and tells all her Dyspraxic and autistic

>patients about them. She knows they are not a " miracle " pill and that

>every child is different, but if there is a chance why not try this all

>natural remedy?? His dev. pediatrician even went so far as to say maybe he

>wasn't dyspraxic as she has never seen the amount of progress in speech in

>such a short amount of time!!! My son was essentially non-verbal, now he

>talks all the time (it has been a year since we started the EFA's). His

>articulation started out very poor, but now it is starting to come around.

>My parents just came yesterday for a visit and are amazed because they can

>understand everything is saying!!

>

>Anyway Stacey - just wanted to let you know that our Dr.'s said the same

>thing. I think honestly they don't want to give people false hope as all

>children are unique, and all children are going to respond to the fish oil

>uniquely. Yes, many, many people are finding success in fish oils - but

>there are some children out there that don't benefit as much. Why??? We

>have no idea - that is why the research needs to be done!!

>

>My question is, if there is a chance it can help your child, and it is all

>natural, and there are no severe side effects - why would you not try it???

>

>Just my opinions!!

>

> Carnell

>North Carolina

>CHERAB Support

>http://www.verbaldyspraxia.com

>

> [ ] What the neurologist said about ProEFA

>

>

> Hi Group,

>

> Why is it that the doctors are so skeptical about trying any new

>interventions? My son's neuro called today to tell me that they plan to do

>a 4 hour eeg in the office to check and see if he is indeed having

>seizures. I began asking him his opinion of the EFA's and about seizures

>and all that. He proceeded to tell me in no uncertain terms that he

>understood that as a parent of a special needs child that I had to do what

>I thought would help but that he did not put any stock into EFA's and that

>it was mostly just parents grasping at straws for anything that would help.

> He even went as far to say that I could try it if I wanted but that it

>probably not help at all. Only to make me feel like I was doing something

>for my baby.

>

> I then went on to ask about the battery of blood tests that had been

>ordered and if they did any kind of gluten peptide tests. I told them that

>if they hadn't then I was going to request that they be done by the Great

>Plains Lab. Again, he told me that he would sign off on anything I wanted,

>but for me not to expect any changes due to change of diet.

>

> I just do not understand how these doctors can be so uninformed about

>the subject. But actually when I think about it I realize that when you

>come across a doctor who has a special needs child, then you find an

>advocate. When the doctor you deal with does not have a special needs kid

>at home, then they are just like everyone else.

>

> Sorry, needed to vent. I still plan on trying the Coromega when it

>arrives. We are going to stay away from the Omega 6's since I understand

>that they can sometimes trigger seizures. Since we do not know yet if

>is having them or not, I don't want to trigger anything else. He is

>2.4 years and pretty much nonverbal. He does have about 4 or 5 words but

>he does'nt really use any of them appropriateley except for " bye bye. "

>

> Has anyone else had a " run in " with the doctors concerning the EFA's?

>What kind of advice have you gotten if any?

>

> Stacey

>

>

>

>

>

>

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