Re: Frustrated (Gretchen from Missouri)

[Guest guest]

Hi Gretchen,

By any chance could he be having " absence seizures " during these times when

he is in another world and only responds after a few minutes? Has he had an

EEG? I know, just one more thing to worry about, but it does sound

suspiciously(sp?) like a seizure.

(Mom to 5 yr old Caitlin, Develop. Delay, severe verbal/oral apraxia,

occasional complex partial seizures during sleep, all caused by cortical

dysplasia on right side of brain and who knows where else, and is my wild,

sweet, loving little girl)

>and there he was standing in the corner with a " dazed >look like he was in

another world look " . I called

>him and after a few minutes he looked up.

>

>Gretchen from Missouri

[Guest guest]

I have a question on absence seizures: is it possible for an EEG to

overlook them? My daughter was sedated for her EEG and wouldn't even wake a

little for the end of the test with lights/touch. As a matter of fact she

was sedated around 9AM and we couldn't wake her until almost 4PM. Is it

possible that the 10min EEG could have overlooked the seizures. I really

was thinking that was why my daughter would have spells in la-la land...now

that the test came back " normal " I just don't know why she does that. Or is

it just " normal " for Apraxic/Dyspraxic children? Please somebody talk to

me, I am so frustrated and alone. in Kansas.

>From: " Reilly " <reillyn@...>

>Reply-

>< >

>Subject: [ ] Re: Frustrated (Gretchen from Missouri)

>Date: Fri, 28 Dec 2001 22:14:39 -0700

>

>Hi Gretchen,

>

>By any chance could he be having " absence seizures " during these times

>when

>he is in another world and only responds after a few minutes? Has he had

>an

>EEG? I know, just one more thing to worry about, but it does sound

>suspiciously(sp?) like a seizure.

>

> (Mom to 5 yr old Caitlin, Develop. Delay, severe verbal/oral apraxia,

>occasional complex partial seizures during sleep, all caused by cortical

>dysplasia on right side of brain and who knows where else, and is my wild,

>sweet, loving little girl)

>

> >and there he was standing in the corner with a " dazed >look like he was

>in

>another world look " . I called

> >him and after a few minutes he looked up.

> >

> >Gretchen from Missouri

>

>

>

>

>

_________________________________________________________________

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[Guest guest]

:

Don't feel alone and frustrated - that's what a listserv is for!

In response to your question, yes, a standard EEG " sees " only what

the brain does in the time that the electrodes are connected, so if

there is not any seizure activity during that time, it doesn't detect

it.

A better strategy is either an ambulatory EEG, where they wire your

daughter up, she goes about her regular day carrying a walkman-like

box that records her EEG, and then is returned and analyzed, or a

video EEG, where she is wired up, but stays in the hospital or

neurology center, where she is observed on camera, to detect any

abnormal activity, like an absence event.

In any case, putting her to sleep during the EEG eliminates some of

the natural activity of the brain, and should be reserved only for

children who would not leave the electrodes alone, or would be too

fearful to allow the study to be done. Most kids over three can

safely have a nonsedated EEG done, if they are told what they can and

can't do while wired up.

Good luck,

Larry Laveman, MD

Consultant, CHERAB

http://www.apraxia.cc

--- In @y..., " Glaspie " <eglaspie@h...>

wrote:

> I have a question on absence seizures: is it possible for an EEG

to

> overlook them? My daughter was sedated for her EEG and wouldn't

even wake a

> little for the end of the test with lights/touch. As a matter of

fact she

> was sedated around 9AM and we couldn't wake her until almost 4PM.

Is it

> possible that the 10min EEG could have overlooked the seizures. I

really

> was thinking that was why my daughter would have spells in la-la

land...now

> that the test came back " normal " I just don't know why she does

that. Or is

> it just " normal " for Apraxic/Dyspraxic children? Please somebody

talk to

> me, I am so frustrated and alone. in Kansas.

>

>

> >From: " Reilly " <reillyn@w...>

> >Reply- @y...

> >< @y...>

> >Subject: [ ] Re: Frustrated (Gretchen from

Missouri)

> >Date: Fri, 28 Dec 2001 22:14:39 -0700

> >

> >Hi Gretchen,

> >

> >By any chance could he be having " absence seizures " during these

times

> >when

> >he is in another world and only responds after a few minutes? Has

he had

> >an

> >EEG? I know, just one more thing to worry about, but it does sound

> >suspiciously(sp?) like a seizure.

> >

> > (Mom to 5 yr old Caitlin, Develop. Delay, severe verbal/oral

apraxia,

> >occasional complex partial seizures during sleep, all caused by

cortical

> >dysplasia on right side of brain and who knows where else, and is

my wild,

> >sweet, loving little girl)

> >

> > >and there he was standing in the corner with a " dazed >look like

he was

> >in

> >another world look " . I called

> > >him and after a few minutes he looked up.

> > >

> > >Gretchen from Missouri

> >

> >

> >

> >

> >

>

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

Thank you again for responding. Please tell me how I would go about getting

a " video EEG " done? I hate to sound negative, but up to this point I have

basically directed myself to all the specialists and requested all tests.

Do you know of ANY knowledgable doctors for my daughter in the central

Kansas area?

>

>:

>

>Don't feel alone and frustrated - that's what a listserv is for!

>

>In response to your question, yes, a standard EEG " sees " only what

>the brain does in the time that the electrodes are connected, so if

>there is not any seizure activity during that time, it doesn't detect

>it.

>

>A better strategy is either an ambulatory EEG, where they wire your

>daughter up, she goes about her regular day carrying a walkman-like

>box that records her EEG, and then is returned and analyzed, or a

>video EEG, where she is wired up, but stays in the hospital or

>neurology center, where she is observed on camera, to detect any

>abnormal activity, like an absence event.

>

>In any case, putting her to sleep during the EEG eliminates some of

>the natural activity of the brain, and should be reserved only for

>children who would not leave the electrodes alone, or would be too

>fearful to allow the study to be done. Most kids over three can

>safely have a nonsedated EEG done, if they are told what they can and

>can't do while wired up.

>

>Good luck,

>

>Larry Laveman, MD

>Consultant, CHERAB

>http://www.apraxia.cc

>